Intro

[Guest guest]

Hi Shelli! Let's us know how your son is doing, when you get time. I'm feeling

like you do, my daughter was born with Down Syndrome, 13 now and loves to dance,

and the Doctor told me she won't be able to dance like she does now, twist etc.

and I'm wondering when she has her surgery how much I'm really going to help her

or hold her back. She doesn't seem to be in pain now but I understand as she

gets older she will be. I hope all goes well for your son!! Sue and kayla

>

> I joined the group a few weeks ago and haven't had time to introduce

> myself..

>

> My son Josh has cerebral palsy and he's 14 years old. He's very small

> - maybe 60lbs - and has scoliosis. He uses a power wheelchair for

> mobility and doesn't walk independently at all. He's a typical kid and

> in high school this year with the assistance of an aide who helps him

> w/ physical things he can't do.

>

> He had severe back pain the last half of the school year last year and

> we discovered his scoliosis had progressed and the doctor wants to do

> the spinal fusion surgery in October. 8 hour surgery.

>

> He's really okay with it but he's worried he'll never be able to do

> anything fun - we're almost done building a pool w/ a slide and we go

> to Disney World and he likes to ride all the roller coasters... so

> I've told him it will improve his pain, but it may change what he's

> able to do also. He's been through many surgeries, but this one seems

> scarier to me than the others.

>

> I have friends w/ older kids who have had this surgery and they say it

> improves their pain so much that it's worth it. I just hope that's

> right.

>

> --

> Shelli in NC * http://web.mac.com/shellic * DH -

> Kids: Jane XiaoZhen 14; Josh, 14; , 14; MacKenzie, 10;

> Jack HaiChao, 7; belle Ning, 5; Emma-Grace, 4.

>

> " I don't have a problem with caffeine. I have a problem without

> caffeine! "

>

[Guest guest]

Hi Dr. ! I'm glad that you were able to find this group. I hope that our colleagues here will be able to help you navigate through some of the ethical waters that I know you are facing now and in the future! I know you'll find a wealth of knowledge and support here.

Blessings,On Fri, Jun 29, 2012 at 9:13 PM, Bylund <billy.bylund@...> wrote:

 

Hello all - I'm a Catholic US Navy Flight Doc practicing in Virginia now. I'm somewhat new to the NFP practice in the past couple years, and want to expand my knowledge in the area. Thanks in advance for all the info!