Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 hello, all.... my name is /Jules... i'm 29 yo, single female, who lives no-where! ;-( at this point in time i'm staying with friends in NJ, but practically everything i own (clothes, books, yarn, bed!) is at my bf's house up in NH... a few months ago, while on a trip south to live with my sister i found out that NH-DMV " discovered " my epilepsy and wanted me to have a physical examination to determine that i was not a threat to public safety while driving a car (fair enough.)...... my seizures (grand-mal) are catamenial (i have a grand-mal 2 or 3 days before i begin menstruating), and they are also nocturnal in that i only seem to have them after i've been sleeping for an hour or so... these facts, along with the fact that my seizures are preceeded by auras, made me think that it wouldn't be too much of a hassle getting my license back.... how wrong i was. so now, i'm depending upon the kindness of friends (again), sleeping on the floor (again), and spending whatever *sane* moments i have arguing on the phone with gov.workers and doctors (again!!!).... the rest of the time, i spend crying. yesterday was bad, very bad... and i suddenly became very afraid of the harm i could do to myself.... i've been diagnosed as suffering from PTSD, and anorexia (stemming more from emetephobia, than a desire to lose weight)..... i realized i was creeping " back inside " and frankly, i'm terrified. i don't expect anyone to solve my problems for me, but i need so much to believe that there are people out there who are " on my side " ...... blessings, Jules _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Hi , I'm Kristy, and 29 also. When I was a youngster I used to have seizures also. When I got older I took a medicine called Voltaren for my arthritis and it caused me to have a Grand Mal Seizure. The neurologist that I went to said that the medicine wasn't the thing that caused the seizure that I had in 1992 even though I hadn't had a seizure in about 20 years prior to that medicine. Well, we found out of course that the seizure was indeed caused by the Voltaren. I've not had a seizure since then. However my ob/gyn does monitor me very closely and won't let me have certain anti-inflammatory drugs b/c she's afraid that I will have a seizure from taking something like Relafen even though I can take it safely. So that's my claim to having seizures. As for my health problems, I have endometriosis, vulvodynia, Polycystic Ovarian Syndrome, Irritable Bowel Syndrome, Generalized Anxiety Disorder, and osteoarthritis in my left knee. I live in FL and I love getting personal e-mails if you would like to write to me on a private basis. Please take care and know that we are all on your side. (((((Hugs)))))) to you. ===== Kristy http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Oh my Jules, Well you have come to the right place. I dont think anybody here really tries to " Solve " problems but we will definately be on your side. As aisha always says, feel free to vent, scream, swear. ect... No vent is too long or too short. hehe im sorry for the situation you are in. I know its awful to have epilepsy and try and get your licence. ( my ex had epilepsy and his licence too) Just know that there are people out there routing for you. welcome. melinda Re: intro hello, all.... my name is /Jules... i'm 29 yo, single female, who lives no-where! ;-( at this point in time i'm staying with friends in NJ, but practically everything i own (clothes, books, yarn, bed!) is at my bf's house up in NH... a few months ago, while on a trip south to live with my sister i found out that NH-DMV " discovered " my epilepsy and wanted me to have a physical examination to determine that i was not a threat to public safety while driving a car (fair enough.)...... my seizures (grand-mal) are catamenial (i have a grand-mal 2 or 3 days before i begin menstruating), and they are also nocturnal in that i only seem to have them after i've been sleeping for an hour or so... these facts, along with the fact that my seizures are preceeded by auras, made me think that it wouldn't be too much of a hassle getting my license back.... how wrong i was. so now, i'm depending upon the kindness of friends (again), sleeping on the floor (again), and spending whatever *sane* moments i have arguing on the phone with gov.workers and doctors (again!!!).... the rest of the time, i spend crying. yesterday was bad, very bad... and i suddenly became very afraid of the harm i could do to myself.... i've been diagnosed as suffering from PTSD, and anorexia (stemming more from emetephobia, than a desire to lose weight)..... i realized i was creeping " back inside " and frankly, i'm terrified. i don't expect anyone to solve my problems for me, but i need so much to believe that there are people out there who are " on my side " ...... blessings, Jules _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com The Being Sick Community Visual problems with colors? Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts. Members Lounge:- Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things. http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:- messages/ Chat:- Scheduled Daily Chats at # on IRC DALnet. /chat.htm Sharing our resources:- Add a website URL you have found useful. Personal Complaints or problems:- Please contact a moderator either via email <-owneregroups> or visit:- /Moderators.htm Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. To modify your subscription settings please visit mygroups To subscribe or unsubscribe subscribe/ ~~~~~~~~~~~~~~~ “Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Jules HOLD ON It is very tough to go through a diagnosis and lose your ability to drive and be on your own. I know because Im 31 and going through the same thing. Have you started the process to get SSDisability? That could give you an income and help you to feel a little more self sufficient. I also am roaming staying at different places and have what stuff I kept at an aunts. You will find wonderful people on this list for support. No, none of us can solve your problems BUT I know that having the lists I am on for support has saved me during the last 6 months. At many times these people have been the only non-biased and stable support I have had to turn to, so feel free to vent---- HUGS Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Hi Jules WELCOME to the list, I am glad you have found us. I am a carer for my hubby and live in Australia, we are a friendly bunch here so just jump right on in and vent, scream , yell, laugh etc whatever takes your fancy. Sorry to hear you have been having grief with all sorts of things *hugs* I hope you can get something sorted out for you soon Don't forget we are all here to give ya a hug when you are feeling down Take care Lots of love Nerys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 > >Jules >HOLD ON It is very tough to go through a diagnosis and lose your ability >to >drive and be on your own. well, actually, the epilepsy is something i've been dealing with since infancy (petit mal), it went latent(sp) when i hit age 6 or so and then came back with a vengence when i hit puberty.... i didn't start having the grand-mal seizures until about 3-4 years ago (when i got hit with the apnea and the hypothyroid bull-crap)...... >I know because Im 31 and going through the same >thing. Have you started the process to get SSDisability? That could give >you an income and help you to feel a little more self sufficient. I also >am >roaming staying at different places and have what stuff I kept at an > >aunts. i've been on disability since i was 17, but since i've been unable to put together much of a work history, all i can collect per month is about 500 (not that i'm complaining! i'm grateful for anything that helps me pay bills)...... in NH, though, SSI doesn't automatically qualify you to recieve medical insurance so i had to go down to the office and apply in person (i was denied coverage, btw.).... >You will find wonderful people on this list for support. No, none of us >can >solve your problems BUT I know that having the lists I am on for support >has >saved me during the last 6 months. At many times these people have been >the >only non-biased and stable support I have had to turn to, so feel free to >vent---- >HUGS >Colleen and vent i shall! ;-) blessings Jules _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Hi , Just wish to let you know that while we are sorry you have to join this list, you have come to the right place! We may not help you in terms of solving some of your problems, but we will definitely be on your side, supporting you as much as we can! Just feel free to write whatever and whenever you want to. Ling Re: intro hello, all.... my name is /Jules... i'm 29 yo, single female, who lives no-where! ;-( at this point in time i'm staying with friends in NJ, but practically everything i own (clothes, books, yarn, bed!) is at my bf's house up in NH... a few months ago, while on a trip south to live with my sister found out that NH-DMV " discovered " my epilepsy and wanted me to have a physical examination to determine that i was not a threat public safety while driving a car (fair enough.)...... my seizures (grand-mal) are catamenial (i have a grand-mal 2 or 3 days before i begin menstruating), and they are also nocturnal in that i only seem to have them after i've been sleeping for an hour or so... these facts, along with the fact that my seizures are preceeded by auras, made me think that it wouldn't be too much of a hassle getting my license back.... how wrong i was. so now, i'm depending upon the kindness of friends (again), sleeping on the floor (again), and spending whatever *sane* moments i have arguing on the phone with gov.workers and doctors (again!!!).... the rest of the time, i spend crying. yesterday was bad, very bad... and i suddenly became very afraid of the harm i could do to myself.... i've been diagnosed as suffering from PTSD, and anorexia (stemming more from emetephobia, than a desire to lose weight)..... i realized i was creeping " back inside " and frankly, i'm terrified. i don't expect anyone to solve my problems for me, but i need so much to believe that there are people out there who are " on my side " ...... blessings, Jules Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Hi , Welcome to the list. I'm a bit slow (behind in my email again...lol) but I wanted to take just a minute to introduce myself. :-) I'm , I joined this list as a caregiver to my son, . There are a lot of people on this list who are here for you, hon. Just say the word, and you have 100+ people at your fingertips. :-) I've found so much love and support here that I probably couldn't leave even if I tried. LOL *hugs* , momma to ^^ 12/23/98-6/9/00 Pearson's syndrome and Kearns-Sayre syndrome (And Gracie and Adri, too!!) julie bailey wrote: > hello, all.... > > my name is /Jules... i'm 29 yo, single female, who lives > no-where! ;-( > at this point in time i'm staying with friends in NJ, but practically > everything i own (clothes, books, yarn, bed!) is at my bf's house up > in NH... a few months ago, while on a trip south to live with my sister > i found out that NH-DMV " discovered " my epilepsy and wanted me to have > a physical examination to determine that i was not a threat to > public safety while driving a car (fair enough.)...... > > my seizures (grand-mal) are catamenial (i have a grand-mal 2 or > 3 days before i begin menstruating), and they are also nocturnal > in that i only seem to have them after i've been sleeping for an > hour or so... these facts, along with the fact that my seizures > are preceeded by auras, made me think that it wouldn't be too much > of a hassle getting my license back.... > > how wrong i was. > > so now, i'm depending upon the kindness of friends (again), sleeping > on the floor (again), and spending whatever *sane* moments i have > arguing on the phone with gov.workers and doctors (again!!!).... > the rest of the time, i spend crying. > > yesterday was bad, very bad... and i suddenly became very afraid of > the harm i could do to myself.... i've been diagnosed as suffering > from PTSD, and anorexia (stemming more from emetephobia, than a > desire to lose weight)..... i realized i was creeping " back inside " > and frankly, i'm terrified. > > i don't expect anyone to solve my problems for me, but i need > so much to believe that there are people out there who are > " on my side " ...... > > blessings, > Jules > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > The Being Sick Community > > Visual problems with colors? > Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts. > > > Members Lounge:- > Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things. > http://www.elderwyn.com/members > > Message Archives and Digest Attachment Pictures:- > messages/ > > Chat:- > Scheduled Daily Chats at # on IRC DALnet. > /chat.htm > > Sharing our resources:- > Add a website URL you have found useful. > > > Personal Complaints or problems:- > Please contact a moderator either via email <-owneregroups> or visit:- > /Moderators.htm > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. > 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. > To modify your subscription settings please visit mygroups > > To subscribe or unsubscribe > subscribe/ > > ~~~~~~~~~~~~~~~ > > “Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2001 Report Share Posted January 5, 2001 Hello Jules, Welcome to the list! "my name is /Jules... i'm 29 yo, single female, who livesno-where! ;-( at this point in time i'm staying with friends in NJ, but practicallyeverything i own (clothes, books, yarn, bed!) is at my bf's house upin NH... a few months ago, while on a trip south to live with my sisteri found out that NH-DMV "discovered" my epilepsy and wanted me to havea physical examination to determine that i was not a threat topublic safety while driving a car (fair enough.)......" So you are stuck with friends? Can your bf not help you get home????? "my seizures (grand-mal) are catamenial (i have a grand-mal 2 or3 days before i begin menstruating), " Ohhh thats interesting cause my myoclonus is ALWAYS worse before menstruation also. "so now, i'm depending upon the kindness of friends (again), sleepingon the floor (again), and spending whatever *sane* moments i havearguing on the phone with gov.workers and doctors (again!!!)....the rest of the time, i spend crying." *gentle hugs*"yesterday was bad, very bad... and i suddenly became very afraid ofthe harm i could do to myself.... i've been diagnosed as sufferingfrom PTSD, and anorexia (stemming more from emetephobia, than adesire to lose weight)..... i realized i was creeping "back inside"and frankly, i'm terrified." Have you sought any professional assistance for this hon? Have you ever read the book "The secret language of Eating Disorders" by peggy claude peirre? I found it to be very insiteful. "i don't expect anyone to solve my problems for me, but i needso much to believe that there are people out there who are"on my side"......" We are here for you in abundance! Please vent anytime you need ok? You are not alone!!! Love Aisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Hi! I am . I am 26 yrs old, live in South Dakota, been married for aqlmost 7 years and have two children. Four year old is partially vaccinated. We stopped when we relized that she was having a reaction to a vaccine, but the doctor refuse to admit it. Our 8 month old has never been vaccinated. We now have a doctor now who supports our decision not to vaccinate and agrees that Madeline's screaming fits were a vaccine reaction. I am always looking forward to learning more and am happy to be on this list. ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Welcome, !! I applaud you for standing your ground with your daughters doctors, and protecting her from further harm. You will love this group...Sharon Re: intro > Hi! I am . I am 26 yrs old, live in South Dakota, been married > for aqlmost 7 years and have two children. Four year old is partially > vaccinated. We stopped when we relized that she was having a reaction to > a vaccine, but the doctor refuse to admit it. Our 8 month old has never > been vaccinated. We now have a doctor now who supports our decision not > to vaccinate and agrees that Madeline's screaming fits were a vaccine > reaction. > > I am always looking forward to learning more and am happy to be on this > list. > > > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Janine: ADHD is the diagnosis many of our kids first get. My now 12 yo son was diagnosed first with ADHD, then OCD and MDD, and after a brief hospitalization, PDD-NOS was added to the alphabet soup. Anxieties and worries like you describe are very common in our kids. Does your son have any rituals that he performs? One thing to be aware of, is that ritalin and other stiumlants can really exacerbate the anxiety. My son takes a small dose of ritalin just in the morning to get him through his academic classes. I rarely give it to him at home. If you check our archives, over the past week or so there has been a lot of discussion about the use of stimulants in kids with ocd. You've come to the right place for support and information. Please let us know where you live. One of us may be nearby. Jule in Cleveland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Janine welcome! Our experience is that when people dont know of any resources, they say there arent any - but if you look harder - they're out there!! Six years old is a fine age to start doing exposure and reponse prevention therapy. Have you contacted the OC Foundation to see about a local therapist? www.ocfoundation.org Have you read Dr. Herb Gravitz's book: OCD: NEW HELP FOR THE FAMILY? This might help you and your husband understand where you are in relation to Codi's diagnosis. You can find this book, and tons of others, at the Obsessive-Compulsive Foundations book store: http://www.ocfoundation.org/ocf1110a.htm You might find it helpful to read through our resouce articles on our website. You may access the files, links, and archives for our list at . Where do you live? We have members all over the States, Canada, England and Australia! hmmm, Did I leave anyone out?? ;o) If its convenient, try joining our live chat Sunday evenings 10pm EST. Take care, wendy in canada ======================================================= >Hi All! > My name is Janine. My son Codi has finally been diagnosed with OCD. >We have been going round and round with different DRs trying to >figure out what is going on in his little head. Codi is 6, but speaks >like a 12+ year old. He was first thought to have ADHD, then anxiety >disorder, depression and on and on. We have come to determine that is >a little of everything. Oh, Great! Codi main problems is constant >worry and anxiety. He worries about everything! To the point of being >scared of school, people, going outside, just everything. We as >parents are trying so hard to be understanding. But, my husband >especially gets so fustrated. We don't know what else to do. We put >him in a hospital for 1 week for children with his problems but it >doesn't really seem to be helping. He is on Ritalin for his >hyperactivity and they are trying him on Luvox. I was homeschooling >this past fall because of his fears and school anxiety. We are going >to try a ED self-contained classroom at the public school, but I am >afraid that if he gets much rejection he may get worse or try to hurt >himself which he sometimes does. I know he needs a support group but >I keep being told that there aren't any for his age. Well, what can >we do? Does any one have any suggestions? >Thanks for listening! >Janine _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 HI Janine: Welcome to you, Codi and your family. Most of our kids don't just have OCD, however treating the OCD is often the first way to get things back under control again. I have a son, Steve, 14 on Monday, who has OCD, major depressive disorder (MDD) and post-traumatic stress disorder (PTSD). He has improved very remarkably with the right kind of treatment. It can be very hard to find as you are experiencing, but when you do all the struggles proves well worth it. Please tell Codi there is a lot of hope and good help for kids with his worries and symptoms. If you share where you are living perhaps we have a list member nearby who can share information re: local resources for OCD treatment. The OCF also provides a list of OCD treatment providers, as does the ADAA (anxiety disorders association of America) and the AABT (Association for the Advancement of Behavior Therapy). Many of our kids are on meds too. Steve is on Luvox, mostly for his MDD as the dosage he takes is too low to work on his OCD. He uses E & RP (exposure and response prevention), a form of cognitive behavior therapy (CBT) for keeping his OCD symptoms more in the background of his life. Finding out about OCD and its treatment by reading books is an excellent way for family members to increase their understanding and patience when dealing with OCD. My husband has never been much for reading books about OCD so I got videos and insisted he watch them. Also I asked him to attend the OCF Conferences so he could learn about OCD from the experts, as it was hard for him, when he was in pain and denial, to learn about it from me and my hectoring of him. Good luck, take care, please keep posting, aloha, kathy (h) kathyh@... At 03:52 PM 01/19/2001 -0000, you wrote: >Hi All! > My name is Janine. My son Codi has finally been diagnosed with OCD. >We have been going round and round with different DRs trying to >figure out what is going on in his little head. Codi is 6, but speaks >like a 12+ year old. He was first thought to have ADHD, then anxiety >disorder, depression and on and on. We have come to determine that is >a little of everything. Oh, Great! Codi main problems is constant >worry and anxiety. He worries about everything! To the point of being >scared of school, people, going outside, just everything. We as >parents are trying so hard to be understanding. But, my husband >especially gets so fustrated. We don't know what else to do. We put >him in a hospital for 1 week for children with his problems but it >doesn't really seem to be helping. He is on Ritalin for his >hyperactivity and they are trying him on Luvox. I was homeschooling >this past fall because of his fears and school anxiety. We are going >to try a ED self-contained classroom at the public school, but I am >afraid that if he gets much rejection he may get worse or try to hurt >himself which he sometimes does. I know he needs a support group but >I keep being told that there aren't any for his age. Well, what can >we do? Does any one have any suggestions? >Thanks for listening! >Janine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 HI Jessie: Welcome to the list. Only a knowledgeable doc can officially diagnose OCD in a face-to-face structured interview. However as a mom of an OCDer I can recognize both OCD obsessions and compulsions in your note. My son, Steve, now almost 14, was on Paxil for about 1.5 to 2 years before it pooped out. His doc titrated him up very fast, he was on 60 mg after starting on 10 mg in under two weeks. This was horrendous for him and I would recommend starting low and going slow with your daughter in building up to a dosage appropriate for OCD. Most people, even young kids, need high dosages to get a response for their OCD symptoms. It can take at least 10 to 12 weeks at a high dosage before you notice improvement. Medicating OCD can require a lot of patience. OCD has a wide range of symptoms, pretty much only limited by human imagination, which is vast. I am reading Dr. Baer's new book, " The Imp of the Mind " and he writes that it is presently believed that upsetting, intrusive thoughts with themes of harm, sex and religion are much more common than the better recognized (?) OCD symptoms of washing hands, and lining up items. What helped me the most was learning all I could about OCD through reading and finding knowledgeable docs to treat Steve. If you check out our archives and files you will find a wealth of information on good reading, and how to choose a good therapist. I also recommend checking out the OCF website (http://www.ocfoundation.org). Steve was treated following and adapting the March protocol which has been published in Dr. March and Mulle's book, " OBsessive Compulsive Disorder in Children and Adolescents " . Take care, aloha, Kathy (h) kathyh@... P.S. Please don't worry about long, it is great for me to have someone else on the list who also writes longer notes, but I still think I have you beat! <VBG> At 09:48 PM 01/19/2001 EST, you wrote: >Hi, >I am new to the group. My daughter is 12yrs old. She has anxiety and possible >mild OCD. She worries about everything. It started back when she was in 4th >grade and she told me she said bad words in her mind and thought about >hurting people in her mind, even me and her father. Scared me to death. Also >she had a tic..shaking her head back and forth alot. I did alot of research >and about anxiety and ocd. I took her to her ped. and her dr. wasn't to >worried about it. She slowly started worrying so much...was afraid I would >forget to pick her up from school...I had to be there early and park where >she could see me from her classroom window. If they talked about or had a >fire alarm drill she came home all upset about it. (the what if's) wouldn't >sleep in her bed, etc. I took her back to her ped. 2yrs later about this >same thing....and the dr. said sounds like ocd and anxiety. We put her on >Prozac( small doses and worked up) and then went to a therapist. The >therapist sent us to a Psh. for meds. and he upped it to 20mg. I didn't care >for either of these to drs. I took her off the Prozac after awhile because >she was just getting to bold and agrumentive...staying awake til 11:00pm etc. >It is now 1 yr later and she is checking the dates on food. Thinks she has >cancer or a heart problem. She can't drink out of the same cup....I had to >buy paper cups to throw away. If this is OCD she doesn't have the complusive >part...she doesn't physically do thing like wash hands, count, line this up. >I took her to a different Phy. today and we are going to start Paxil slowly. >Just wondering if anyone else's kids are on Paxil and if anybody else has OCD >without the compulsive part. I can use any tips/suggestions anyone has to >give. Sorry this was so long. >Thanks for the read, >Jessie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 Dear Jessie, I am so sorry your daughter is worrying so much. I feel so bad for these kids and wish I could comfort them all. What a shame to be spending such precious time worrying their young lives away. My daughter also seems to have the obsessions rather than the compulsions at first glance. She is 10 and has been worrying for a year now. She worries about vomiting mostly but also about dying and not breathing at night. For a long time thats all we recognized until one day she told me about counting. When she was in school (no longer is) she was so afraid of something bad happening that she counted. If she hadnt told me no one would ever know. Kids are very good at hiding the compulsions so sometimes we only know about the obsessions. Once I started to read about OCD I recognized some other things she does that are considered compulsions that may not seem like the typical ones people mention. Kim also doesnt care about getting dirty and doesnt wash her hands but she does ask me questions, which is a different kind of compulsion that your daughter may be doing also. She constantly wants reassurance and asks all the time if she will be ok. Of course she is never truly reassured so she has to always ask again. OCD won't allow her to be reassured or rational about things. Checking dates on food is a compulsion to reassure her obsession about getting sick or something bad happening. There are some great books that can really help with the compulsions, sometimes the obsessions are a bit harder to deal with as in Kims case because it is difficult to expose her to her fear of vomiting. Dr. Chansky's book " Freeing your Child from OCD " was a great starting point for me and also Dr. March's book. Let me know how the paxil works out. Kim is on a low dose of prozac. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 Jessie, My daughter, , is almost 16. We noticed many similar symptoms with her and too have found that her " outward " OCD is almost non-existent, unless you know what to watch for. However, yesterday she shared with me some of the compulsive behaviors she does have: * holding her breath during an underwater scene in a movie * counting her steps (and if she is stressed getting upset when someone interrupts her while she is doing it) * thinking to herself " dont' touch me, don't touch me, don't touch me " as she walks down the hall at school * having to touch every step when she goes up or down stairs * touching herself in the same place on the opposite side of her body when someone touches her unevenly * on the way to school, plannning each move she will make when we arrive...at what point she will get out of the car, which hand she will pick up her bag with, which hand she will open the door with, etc. And while she has not yet shared these with us, I believe she has also had terrifying intrusive thoughts. In addition, she has always exhibited signs of high anxiety including wanting to know where everyone in the family is, stomach aches she was unable to explain, difficulty putting a finger on where anxiety was coming from. She has been on Paxil and while she did not feel that it helped the OCD, I did see some temporary improvement in the depression. The thing I have noticed the most, is that none of the SSRIs to date have given her the relief she has hoped for. What has seemed to make the difference is continuing to show her we would support her and keep searching until we find a combination of therapy and meds that work. As I have shared with her what I have learned from this group and the books I've read, she has begun to trust me more and more and realize that she does not have to fight this alone. I believe this is they key to the lifting of the depression that we are now seeing. While in her mind the SSRIs (Luvox, Paxil and Zoloft) that she has tried did not help. In my mind they kept the depression somewhat at bay until we could get more help for her. We just started with a new therapist who specializes in OCD on Tuesday. The appointment went great and I have noticed that is improving in her mental attitude almost daily. Our daughter's severe depression and OCD onset came with puberty. These are tough times. I would encourage you to find a therapist who does E & RP and has a lot of experience with OCD. Continue to show your daughter you will do whatever it takes to find help for her. I think that living with OCD is terrifying, especially when you are young and don't have the skills to advocate for yourself. We also have our daughter on a 504 plan at school which allows her to take two classes through home tutoring. In addition, she is allowed to leave class at anytime if her anxiety starts to spike, no questions asked. Finally, when she has gotten behind at school, we have worked with her teachers to come up with a plan to help her get back on track. It sounds like you have done an incredible job with your daughter. Keep it up. The payoff will come and with your help, she will be able to take back control of her life, pushing OCD into the distant background. Good luck. Greta Beard gbeard@... Intro Hi, I am new to the group. My daughter is 12yrs old. She has anxiety and possible mild OCD. She worries about everything. It started back when she was in 4th grade and she told me she said bad words in her mind and thought about hurting people in her mind, even me and her father. Scared me to death. Also she had a tic..shaking her head back and forth alot. I did alot of research and about anxiety and ocd. I took her to her ped. and her dr. wasn't to worried about it. She slowly started worrying so much...was afraid I would forget to pick her up from school...I had to be there early and park where she could see me from her classroom window. If they talked about or had a fire alarm drill she came home all upset about it. (the what if's) wouldn't sleep in her bed, etc. I took her back to her ped. 2yrs later about this same thing....and the dr. said sounds like ocd and anxiety. We put her on Prozac( small doses and worked up) and then went to a therapist. The therapist sent us to a Psh. for meds. and he upped it to 20mg. I didn't care for either of these to drs. I took her off the Prozac after awhile because she was just getting to bold and agrumentive...staying awake til 11:00pm etc. It is now 1 yr later and she is checking the dates on food. Thinks she has cancer or a heart problem. She can't drink out of the same cup....I had to buy paper cups to throw away. If this is OCD she doesn't have the complusive part...she doesn't physically do thing like wash hands, count, line this up. I took her to a different Phy. today and we are going to start Paxil slowly. Just wondering if anyone else's kids are on Paxil and if anybody else has OCD without the compulsive part. I can use any tips/suggestions anyone has to give. Sorry this was so long. Thanks for the read, Jessie You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at <parentsofadultswithOCD> parentsofadultswithOCD . You may access the files, links, and archives for our list at <> . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , Roman, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . 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Guest guest Posted January 22, 2001 Report Share Posted January 22, 2001 Hi Jessie and welcome. Sometimes OCD is heavier on the O's than the C's and sometimes the compulsions are there but not obvious, or they are mental rituals such as counting. Many kids are really good at hiding their compulsions for various reasons such as embarrassment, etc. BTW, asking zillions of questions for reassurance is a common OCD compulsion. My daughter takes Zoloft, has never tried Paxil, but the SSRIs have such different effects in different kids that I'm not sure one child's experience has much bearing on how a certain drug will affect another. A good rule of thumb when starting any SSRI is to start low and go slowly up to the effective dose. This approach can minimize potential side-effects such as insomnia, mouthiness, hyperness, etc. I don't read in your post that your daughter receives Exposure and Response Prevention therapy. This is a type of Cognitive Behavior Therapy that reduces OCD symptoms. Kids learn to boss OCD into the backgrounds of their lives, and many times find they can reduce or eliminate their SSRI, which in turn minimizes any med side-effects. E & RP has been at least as effective as SSRI therapy in subduing my daughter's (7) symptoms, and she takes half the dose of Zoloft she was taking a year ago. Though I'm sure we've all done it, accomodating OCD only increases its demands and helps OCD get a stronger grip on our children. Buying special cups, repeatedly reassuring that a child does not have this or that disease, etc., etc. (and the list is endless) are all ways of giving more control to OCD. We do this because we think we are helping our child suffer less, but it boomerangs and they end up suffering more. Once I stopped participating in my daughter's rituals, she began to get better. Kathy R in Indiana > Hi, > I am new to the group. My daughter is 12yrs old. She has anxiety and possible > mild OCD. She worries about everything. It started back when she was in 4th > grade and she told me she said bad words in her mind and thought about > hurting people in her mind, even me and her father. Scared me to death. Also > she had a tic..shaking her head back and forth alot. I did alot of research > and about anxiety and ocd. I took her to her ped. and her dr. wasn't to > worried about it. She slowly started worrying so much...was afraid I would > forget to pick her up from school...I had to be there early and park where > she could see me from her classroom window. If they talked about or had a > fire alarm drill she came home all upset about it. (the what if's) wouldn't > sleep in her bed, etc. I took her back to her ped. 2yrs later about this > same thing....and the dr. said sounds like ocd and anxiety. We put her on > Prozac( small doses and worked up) and then went to a therapist. The > therapist sent us to a Psh. for meds. and he upped it to 20mg. I didn't care > for either of these to drs. I took her off the Prozac after awhile because > she was just getting to bold and agrumentive...staying awake til 11:00pm etc. > It is now 1 yr later and she is checking the dates on food. Thinks she has > cancer or a heart problem. She can't drink out of the same cup....I had to > buy paper cups to throw away. If this is OCD she doesn't have the complusive > part...she doesn't physically do thing like wash hands, count, line this up. > I took her to a different Phy. today and we are going to start Paxil slowly. > Just wondering if anyone else's kids are on Paxil and if anybody else has OCD > without the compulsive part. I can use any tips/suggestions anyone has to > give. Sorry this was so long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2001 Report Share Posted January 22, 2001 Hi Janine and welcome to the group. It seems you and Codi have been through the mill arriving at a diagnosis, but now you are there and the path will be clearer from here on out. Lots of kids with OCD also have other diagnosable disorders, and many others may have bits of " this and that " thrown in with the OCD. Often, when the OCD is effectively treated, the " this and that " symptoms also reduce or disappear. You are right that support groups for young kids are nearly non- existent. A couple of ideas may be to attend a parent's support group in your area, and pose the idea that the kids get together from time to time for support and fun. A group I attended did this successfully for while. You could start the sort of support group you have in mind by approaching Codi's doctor or therapist, or the counselor at school, and asking that your name and number be offered to other clients who may be interested. I know having Codi start a new schooling situation is nerve-wracking, but try not to borrow trouble! Send Codi out the door with the idea that Mom knows he can be successful, and plan to deal with any problems or situations as they come up. Tough to do, but very helpful to our OCDers. Kathy R in Indiana > Hi All! > My name is Janine. My son Codi has finally been diagnosed with OCD. > We have been going round and round with different DRs trying to > figure out what is going on in his little head. Codi is 6, but speaks > like a 12+ year old. He was first thought to have ADHD, then anxiety > disorder, depression and on and on. We have come to determine that is > a little of everything. Oh, Great! ><snip> >We are going > to try a ED self-contained classroom at the public school, but I am > afraid that if he gets much rejection he may get worse or try to hurt > himself which he sometimes does. I know he needs a support group but > I keep being told that there aren't any for his age. Well, what can > we do? Does any one have any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Wow! 19 grandchildren!!! Hello Bonnie, and welcome to our very busy list! My husband & I have 3 daughters and we oppose mandatory vaxing - sure wish my grandmother was as understanding as you are!!! It's wonderful that you're taking such an interest in your grandchildren's health. Have your children been receptive? Namaste, Gretchen from Lexington, KY Mama to Maya Music (8/16/95) Karuna-Rhythm Joy (5/2/98) and Isabella Maitri-Song (10/25/00) ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 Hi there, Thought I would post an intro...I posted one before, but it was during the presidential elections, and I think it got overlooked.... I've got 2 unvaxed girls - 4yo and 2yo. I would like to find a classically trained homeopath, anyone know of one in the UK? -christina, london, england. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 Hi Gretchen, My youngest grandchild is a girl, Gionna, and she just turned 2. At first my daughter was telling me that the doctors' knew best and I should stick to animal vaccines. This was until Gionna was given her first dose of the rotovirus vaccine. My daughter wasn't sure she wanted it, but you know how guilty doctors can make you feel, so she did it, and when Gionna went for the second one, my daughter was told that due to the large demand, they were out of it. Then I found out thru a list I am on that it was taken off the market. When I told my daughter, she called her doctor's office and was told the same thing. Now, I send her my sources, like web sites, and she is more attuned. They just tried to give Gionna the new one out for ear infections and pneumonia, and my daughter politely declined. My daughter-in-law home schools her 4, and is very interested in this issue as one of my grandsons has asthma really bad, and she has switched to holistic medicine, and even my son has become supportive of this. Some of my son-in-law's are still behind in their thinking, but my daughters are educating them. I am preaching what I am learning to anyone who will listen, both about human and animal vaccines. Thanks for the welcome. Bonnie, Lansdale, Pa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Hi Vickie - welcome to the list! Peggy ¸ø¤º°`°º¤ø¤º°`°º¤ø,¸ ¸,ø¤º°`°º¤øø¤º°`°º¤ø,¸¸,ø The Lowell McNaughton Soap Company http://www.pressenter.com/~lmsoap ,ø¤º°`°º¤ø¤º°`°º¤ø,¸ ¸,ø¤º°`°º¤øø¤º°`°º¤ø,¸¸,ø Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 In a message dated 02/19/2001 8:43:29 AM Eastern Standard Time, jvswaim@... writes: << I am a stay at home mom with 4 children, and my husband Jerry. We raise registered dairy goats. >> Hi Vicki! Welcome to the list! Do you want to move to ville, NC? I need goat milk!!! rofl Hope you enjoy the list! Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 >X-eGroups-Return: sentto-15657-24080-982993330-snakken=nccn.netreturns (DOT) onelist.com >X-Sender: SBZ60@... >X-Apparently-Vaccinations >Vaccinations (vaccines) >X-Mailer: 6.0 sub 352 >From: SBZ60@... >Mailing-List: list Vaccinations ; contact Vaccinations-owner >Delivered-mailing list Vaccinations >List-Unsubscribe: <mailto:Vaccinations-unsubscribe > >Date: Sat, 24 Feb 2001 00:40:41 EST >Reply-Vaccinations >Subject: Intro > >Hi, >If a child is vaccinated with MMR and comes down with some mild symptoms of >measles, is that child contagious? This happened to my friends daughter and >her doctor said she wasn't contagious. My daughter was playing with her a >few days after her rash came out, and now I'm wondering whether she could be >at risk of catching the measles from this child. Yes, could be. It is a live vaccine. > >I'm also wondering, what are most of you doing about getting your kids into >school without the vaccines. My state doesn't have a philosophical >exemption, so when the time comes, I'm really wondering how I'm going to deal >with this issue, since vaccines such as the MMR are mandatory for school >entrance. What state are you in? You do what you have to and don't take NO for an answer. Sheri -------------------------------------------------------- Sheri Nakken, R.N., MA Vaccination Information & Choice Network, Nevada City CA & UK 530-478-1242 Voicemail http://www.nccn.net/~wwithin/vaccine.htm " All that is necessary for the triumph of evil is that good men ( & women) do nothing " ...Edmund Burke ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
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