Guest guest Posted January 18, 1999 Report Share Posted January 18, 1999 glad to have helped, hope the meeting goes okay Sebastiana At 10:52 AM 1/18/99 -0500, you wrote: >From: " Nicashay " <nicashay@...> > >Sebastiana, >Thank you so much. I am going to take notes on what you said and use it on my next visit to the doctor's office. > > > > > > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 Hi Rowena, Good luck with your interferon. I'm getting ready to start my interferon for the second time. I was on it for 9 months, and had to get off when it was causing thyroid problems. I was in remission for 8 months, but now it's back, so in May I start again. I'm 51 years old, and, like you, I'm not in very good health. I've got arthritis in my legs and back, and now take thyroid medicine, too. It was hard to find pain medicine that wasn't bad for my liver. You can only take a small amount of iburprofen (Advil) or Tylenol. Hang in there. Don't go kill anyone, hehe. It gets better with time. The first six weeks are the worst. Glad you found this list. It's good to have some support from others who are going through what you are going through. Take care, Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 Dear Marie: Thank you for your response. The six weeks seems to be the mark everyone talks about. It sure does make me goofy that is for sure. And hurt jeez the interferon makes me hurts so bad. My Dr.s think that this is a relapse of Hep that I had in 69 and was diagnosed as the b virus cause that was all they had then and they knew it wasn't A. For nine months in 96 I was on either demerol morphine or vicodan, could that had been the trigger for this? I am really not knowing a lot about it at all. Any way it is a pleasent day here I don't have to do any jujujuice til tomorrow night so I am enjoying the day. Good hearing from you. Rowena I am in NW Pennsylvania, how about you what is your location??? Marie Kuhn wrote: > From: Marie Kuhn <mariek@...> > > Hi Rowena, > Good luck with your interferon. I'm getting ready to start my interferon > for the second time. I was on it for 9 months, and had to get off when it > was causing thyroid problems. I was in remission for 8 months, but now it's > back, so in May I start again. I'm 51 years old, and, like you, I'm not in > very good health. I've got arthritis in my legs and back, and now take > thyroid medicine, too. It was hard to find pain medicine that wasn't bad > for my liver. You can only take a small amount of iburprofen (Advil) or > Tylenol. > > Hang in there. Don't go kill anyone, hehe. It gets better with time. The > first six weeks are the worst. > > Glad you found this list. It's good to have some support from others who > are going through what you are going through. > > Take care, > > Marie > > ------------------------------------------------------------------------ > Did you know that knowledge is power? > http://www.ONElist.com > Join a new ONElist e-mail community and strengthen your mind! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 1999 Report Share Posted April 20, 1999 Hi Rowena, I'm in Northwest Florida (south of Alabama). The narcotic drugs aren't as bad for your liver as tylenol or ibuprofen, or so I've read. I have to take Darvon, which is not as strong as what you're taking, for my arthritis. We've got some great weather here in Florida, but it's really dry. In 5 days, my husband and I are going to Disney World (400 miles away) for a week. Can't wait!! I've noticed that the shots don't hurt as much if you get smaller needles (29 gauge). The interferon " kits " come with 28 or 27 gauge. The larger the gauge, the smaller the needle. 29 gauge is used by diabetics for their insullin. If you want some good info on hepatitis, go to amazon.com. They have some great books there. I've got three of them already. I think I know more than my doctor about Hepatitis C now. Enjoy your day, glad to hear from you. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 Hi Cheryl, I live in Ca., and what I have found out so far is its very easy to get an exemption. You can choose medical, relegious, or personal belief. You just need to sign the back of your childs " blue card " that is kept at their schools office. Its not so easy in other states. In California you don't have to explain or justify your desicion, just sign on the dotted line. It should be that way everywhere. Best wishes, Sylvia >From: Mikcher@... >Reply-Vaccinationsonelist >Vaccinationsonelist >Subject: Thank you >Date: Thu, 4 Nov 1999 12:53:58 EST > >I have been reading the ONElist mailings for a few weeks now, and am very >happy I started receiving it. THANK YOU!! >I have an 11 year old daughter, who has received all her vaccines, and a 3 >month old son, who has not received any. When the subject of my son >getting >vaccinated first came up I had this strong feeling, or instinct not to do >it, >I still don't really know why, my first response to people was " why mess >with >perfection " . After reading the last ONElist and going to the link >provided >by , about " Dispelling the Myths of vaccinations " I am so happy that I >have not had my son vaccinated, I now also have a lot more to say when >someone asks me " why not? " >I am not sure what the laws are in California, but my husband and I have >decided that he will stay home with our son for a while. Does anyone know >what the laws are regarding being exempted in California? I have heard of >philosophical exemption, how do I go about getting this, do I have to type >a >letter and present it to any future day care or school, or do I have to get >something legal? >Thanks again to everyone. >Cheryl Mercer >San Diego, CA ><< text3.html >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Hi, do you know if remicade is in the same class of drugs as methotrexate? I've only been on the methotrexate for 3 days but it is already making me vomit. I have Reiter's, just diagnosed 4-29-02. The doctor started me on methotrexate right away because he said my sed rate was over 100, I guess normal is something like 0-0.5. Diane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 DIANE WROTE: " do you know if remicade is in the same class of drugs as methotrexate? " Remicade is very different than Methotrexate. Methotrexate did nothing for me but Remicade showed immediate, prodigious results. www.remicade.com ------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Thanks, I have an appointment with my rheumatologist Friday. I will bring up the idea. Diane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Sharon, Believe it or not, there is such a thing as a hip joint fusion surgery. It was was more popular in the past than now. I saw one hip surgeon who would have recommended hip fusion for my deformed arthritic hip if I didn't already have most of my spine fused. Guess I'm lucky I was able to have total hip replacement instead. loriann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Yikes. I'm glad you were able to avoid the hip fusion, Loriann. I can't imagine how one would live that way! Re: Thank you Sharon, Believe it or not, there is such a thing as a hip joint fusion surgery. It was was more popular in the past than now. I saw one hip surgeon who would have recommended hip fusion for my deformed arthritic hip if I didn't already have most of my spine fused. Guess I'm lucky I was able to have total hip replacement instead. loriann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 Thanks for your sweet note, . I'm happy to know it has helped someone, as that has been my intent. No sense in EVERYONE plowing up the same new ground! A attlinda wrote: > , > Thank you so much for the detailed report of your doctor visits. I > printed your letter off and let my husband read it. I think it helped > him to understand the seriousness of this problem. He is very > supportive, but I don't think he has really ever understood why I > don't want to just go back to my scoliosis doctor in Charlotte, NC. > I hope this helps him to see that to have this type of procedure I > need someone who is an expertise in this field. It has really helped > me to know what to do when I do finally make an appointment somewhere > and see one of these doctors. My scoliosis doctor did diagnose me > with flatback and 2 very deteriorated discs, and I am in a lot of > pain, but am putting off making an appointment because I simply don't > know where to go. Thank you for all of the time and energy you have > put in this. Please continue to let us know what you learn. You don't > know how much you have helped. > E > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2003 Report Share Posted October 6, 2003 Mauricia, Welcome to the group and I apologize for sending you this posting so late...as you'll find as you continue to read these postings, I'm often a few days/weeks?! behind on answering e-mails...I often can't sit here for long periods of time. I am a 49/yo, 3 yr. post-op Flatback revision wife/Mom. I had the posterior revision surgery done in June 2000 (removal of Harrington from 1970; osteotomies; correction of Flatback deformity with rods and pedicle screws). 2 years prior to that I TRIED the type of surgery you are referring to (fusing a couple of affected vertebrae). My surgeon " gave it a shot " for 2 reasons: 1) to try to reduce some of the sciatia/neurological pain I had been suffering from for almost 3 yrs. and 2) to give me a little more time to emotionally and mentally prepare myself for the " big revision " . In 1998 I had an anterior, laproscopic discectomy and fusion of L5, S1 with pedicle screw instrumentation. My original Harrington rod fusion from T10 to L4 and the combination of the Flatback deformity and the tremendous stress on the only discs and vertabrae remaining caused my L5 disc to, in the words of the Neuroradiologist who did my 1998 myelogram, " blew that entire L5, S1 area all to hell! " ...just the kind of diagnosis you want to hear when somebody is doing your 5th myelogram in 3 years!! Lucky for him I have a pretty bizarre sense of humor myself, having done forensic/coroner's autopsies for 27 years!! In that line of work you either develop a sense of macabre sense of humor or you end up leaving the profession after the first couple of " icky " autopsies!! But I digress... So, back to revisions! I am also one of the ones who has repeatedly said that I " somewhat regret " having waited so long to have the major revsion procedure. However, part of the delay in my surgical treatment was due to the fact that from late 1995 to 1998 I was being treated for SECONDARY SYMPTOMS of Flatback; none of the multiple physicians I had second, third, etc. opinions from EVER mentioned anything about Flatback, HARMS, instrument/surgical failure, etc. In their defense, that was just about the time that ANY Orthopedic and/or Neurological physicians were beginning to recognize Flatback/HARMS as a seperate syndrome cropping up in 30'ish-aged patients who had corrective surgery with distraction/Harrington rod instrumentation in the 60's, 70's and early 80's. Until 1998, when my family relocated to MD., I was being treated in a rather small town in PA. and I trusted the opinion of those PA. physicians and consented to the treatmetns they recommended for the symptoms I was having, most of which pointed more towards neurologically based rather than Orthopedically based symptoms. I tried everything from physical therapy to accupuncture to intra-dural spinal steroid injections to more drugs than I care to type out! Some of the treatments gave me temporary relief, others did not. My current Ortho surgeon here in MD.,( the one who has performed my last 2 surgeries) was the first to ever use the term Flatback Syndrome with me. To say that I was speechless that first visit is an understatement!! As you can see from many of my prior postings, I am rarely, if ever, at a loss for words!! But when he started explaining the syndrome to me, all the symptoms I had been experiencing and treating for 3 years suddenly started making sense!! And none of the treatments I had received prior to 1998 had harmed me or exacerbated my Flatback; the other physicians had done thier best treating the symptoms without ever attributing them to something called Flatback. Once correctly diagnosed, my surgeon laid out several treatment options to me, NONE of which seemed very appealing at the time! Those treatment plans included everything from doing absolutly nothing (which by that time was NOT an option to me! I was in way too much pain by 1998 and was really beginning to notice how far foward I was " falling " !) to the major(and to me...FRIGHTENING!!) posterior revision surgery. I was so emotionally and physically exhausted from dealing with pain and treatment options by then that I was terrified of making the wrong decision. That's the main reason I waited 2 more years before I had the extensive revision and opted for the less invasive anterior fusion first. The scale of my regret for waiting varies from day to day...I still have " good and bad " pain days and am still under the care of a Pain Management Physician. No one can determine when the " right time " is for you, personally, to have any type of palative treatment or corrective surgery. You have to weigh a lot of factors ranging from how it will affect you and your family to how long you want to put up with the pain and increasing deformrity that Flatback causes. There's a lot of GREAT information and advice from the folks on this web site. Before making any decsions, may I suggest go read back through many of the prior postings from people, just like youself, who have gone through and continue to navigate the twists and turns of the Flatback/HARMS roads. We're all here for the same reason...to help, guide and support eachh other. Best to all, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 Lori - thanks - glad the group is appreciated - good luck with the tests Good Health! Balan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Lori, The main thing at the moment is that you must find out if the doctor considers s situation critical or dangerous and exactly why! Also, What I am going to tell you now is not meant to give you alarm, just instead to show you the magic words with the SS and welfare and other agencies. will most likely be around for a long time to come, especially with treatment, but with SS and Welfare and other public agencies, you must hit the magic words. Honest and truely is a terminal patient, magic word. He also has a terminal disease and if he has been in bed a lot due to fatigue, that must be Anemia or something else that will show up causing this, these are all disabling medical conditions. But even if a definite cause is not determined, then it is still quite usual for CLL to cause such great fatigue and disability even when anemia is not present. In other words, your doctor, no matter who he is, must agree to immediately provide letters for you from him that explain that has a terminal disease and is disabled due to this disease. If they won't provide documentd and medical proof then you definitely need to get another doctor. That should be the first thing you talk to the doctor about the next time you see him. If he won't take care of that letter immediately, then there is really no need to have any further discussion with him, because he is avoiding his responsibility right there. You must let him know that these letters are immediately necessary. If he won't do it, then immediately go to other doctors. They don't have to be an oncologist to provide such medical disability determination. As soon as you get all the results etc. Let us know, meanwhile, make sure you understand if they consider in immediate danger and why. good luck, Kurt thank you Kurt & ...thank you so much for the time you took to respond to my concerns about 's CLL, and for the knowledge you are sharing with me. It really put me at ease to know I can turn to this forum for answers, and am not made to feel ignorant even tho I am so much less informed than some of you folks. I want to learn, learn, learn all I can about this disease, and I want to understand all that I read and hear. There's just sooooooooo much information to take in. I have sent for copies of all 's labs and the results of the BMB. We felt it was awfully quick to be suggesting he get to Dana Farber regarding the transplant too. I am compiling a list of questions to take to his next appt and will be assertive in asking them. This doc kind of made us feel like his approach is "I'm the doctor, just follow what I say and you'll do fine"...like we don't need all the details. Oh, I forgot to mention, the only significant symptom I can report having is extreme fatigue. He has had this to the degree of being nearly bed ridden for months now....has lost so much muscle tone from not using them. I fear that some of that fatigue may be depression as much as the CLL. I was receiving Social Security disability due to five spinal surgeries, but recently returned to working (keep having to increase chronic pain meds) because SS has denied benefits. They say if he had acute leukemia he would get it no problem. With CLL you basically have to be hemorraging (SP?) or having transfusions before they'll even consider it. He is so frustrated that after working thirty years paying into this system that's meant to assist you in times like this, there is no assistance at all. So I will lose my benefits because the job gives me a little more money to make ends meet. The maddening part of that is people we know who never worked but are collecting SSI (supplemental security income) for sudden depressions they developed when their children got older and their welfare benefits ended. (The real depression being the end of their welfare checks). I know I sound harsh and bitter, but how can we not be when those folks are being supported with funds paid into the system by folks like and myself that worked for years, and now that very system has turned its' back on us? I apologize for getting off topic although I think what happens to all areas of your life when hit with CLL (and disability in general) is part of the whole package. I hope I have not offended anyone with my opinions...they are just that. Again, I thank those on this list who have taken the time to share their knowledge with me....you seem to me to be an awesome bunch, and are all in my prayers. Sorry for the length of this....Lori ---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.538 / Virus Database: 333 - Release Date: 11/10/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Lori - I just read the other responses you received - seems all agree - don't rush, get informed, see a couple of good people - don't think is in immediate danger - Balan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Lori - you will find that these groups not only offer support, but make you be able to go see the oncologist and look him in the face and discuss your issues with him. If he (she) is the sort of person who patronizes you and will not discuss your issues with you, try to find another guy. I see four people, two regularly, and two as consultants. Over the years we have developed mutual respect; they don't think I'm stupid, and I value their thoughts. That's the best way. Balan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2004 Report Share Posted May 9, 2004 ---Dear Diane, I basically had the same surgeries as except a few weeks later by the same doctor in the same hospital in NYC. pretty much answered your questions. One thing I have learned to do that I find helpful, is to ask for a copy of the Doctor's notes from the last visit. I have a complete copy of all my doctor's files for whatever I need them for and I can explain everything better. On the first post-op visit, I got a copy of the OR notes in detail for all three surgeries they did. I learned a lot of details and which doctor did what part. I am really amazed when I read them and I usually find out some things they don't usually tell you. My revision went well and I am 3 months post-op this week. I had three ostotomies, a corrected fusion from T-3 to S-1 with rods and a cage filled with bone put in S-1. I gained back an inch in height and basically was straightened and got rid of the malalignment. I am off heavy pain meds and get by on anti-inflamatories with minimal pain, mostly from over-doing. Please feel free to ask any other questions. Jan (: How are you doing???) > Dear , Thank you for responding to my post. Are there anyother > things in the Feisty's Files that would answer my questions? I know you > have had Revision Surgery. Is there anywhere at the website where you > describe what was done to you & how things went? > I know in the past few months quite a few members have had Revision > Surgery. Can anyone take the time to describe what was done to them, > or tell me if it is already posted at the Feisty Site so I can go there > & read it. > Thank you ahead of time for any info you might share with me. > Happy Mothers Day to all the Mothers in our group. > Love, > Diane B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2004 Report Share Posted May 9, 2004 Any emails I have written since Jan 20 would be post op and would describe the hospital stay to the extent I have reported on it. > > From: Diane1B@... > Date: 2004/05/09 Sun PM 03:20:47 EDT > > Subject: Thank You > > Dear , Thank you for responding to my post. Are there anyother > things in the Feisty's Files that would answer my questions? I know you > have had Revision Surgery. Is there anywhere at the website where you > describe what was done to you & how things went? > I know in the past few months quite a few members have had Revision > Surgery. Can anyone take the time to describe what was done to them, > or tell me if it is already posted at the Feisty Site so I can go there > & read it. > Thank you ahead of time for any info you might share with me. > Happy Mothers Day to all the Mothers in our group. > Love, > Diane B > > > > > Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 With everything that you have gone through, you still have your witty humour . You do have a terrific friend in Jennie. Maybe you should ask those nurses, etc. if they would like to take a picture while you're in the shower or tape record your private phone conversations. Better yet is if you can do the same with them! Some professionals forget to respect a person/patient's privacy and they need to be reminded. Glad to hear from you and look forward to your updates, as you feel able or needing to vent. Llweyn Thank you Subsequently I also got my first shower in a week. Both nurse-people vied energetically for the opportunity to come in the shower with me and eyeball me as I bathed myself. Just in case I had a medical emergency or klutz attack, I guess. This was after days of hearing from all these staff people how able I am, how good my balance is, how I clearly am doing great and need no rehab and so forth. Who knows why, but after some eight spinal fusions and multiple orthotics, PT programs, hospitals, rehabs -- I kind of seem to know the ropes. I have taken pretty good care of myself through everything. Yet I find myself beset by an army of . . . well, enough. Thanks for everything, everyone. I'll be in touch. Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 , ! It's so good to see your name on the message board again, and such a coherent message, as well ! I hope all is going well and you'll be better every day. Really, must you experience EVERY complication known to revision surgery? Its smacks of overacheiving if you must know, and I'm getting a little put out! We need you HERE, writing your tender acidic heart out and keeping us in line and well-versed in the more complex issues of this mind-bending roller coaster of a journey. Be better, I am willing it! By the way, I'm not adverse to going down to that hospital and smacking a few nurses around, if you'd like. I don't mean to come off like a goon or anything.. I'm jus sayin'. We've been talking about humor in the past couple of days, your posts are always full of deadpan remarks about the most awful experiences you've gone through, they're a perfect example of finding strength through wit, even if sometimes the strength we find is along the lines of whistling in the dark. All my very best to you, brave girl. Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 What a great idea! I must remember to hand out cameras and recorders to staff if I ever get hospitalized again! Actually, I felt extremely lucky to wangle some precious time on a seemingly never-used laptop in an office labeled " Resource Coordinator, " from which I wrote yesterday's gripefest-letter. I had been asking whether such a PC might be available for days but only got the green light after nearly leaving the floor (with an order from my surgeon). So anyway, I think I got a little carried away with petty mouthing off (inputting-off). I was relieved to see that the last half of my post or so did not appear on the monitor. Imagine my surprise to see that it is all here after all. Oh dear, I must develop a more circumpsect and politic demeanor if I am ever to find some humble spot of mine own amidst the Scoliosis Mavens and Marvels of America!!!! Maybe I will try going in and dumping some of the copy, with the heartening knowledge that my buddies have read it (and, depending on my current level of paranoia, may have it on microfiche or PowerPoint . . . .) You're a peach as always, LLweyn -- thanks for keeping me sane. Yes, you are so right about Jennie, who is one of the " foremothers " of this whole site along with seven or so additional feisties. I see we are up to about 254 members now and have to think we are doing something right. Well, I must sign off so as to remove my brace (no inputting in the brace, and it's been a long day), so I'm sorry that more replies will have to wait. I have two zillion additional posts and emails, including some from Jennie that I have neglected way too long -- not to mention ANOTHER great card from Barbara at my home address which had me in stitches, no pun intended. (Technically, I guess it had me in staples?) I promise to write soon, guys. I love you all, as always. I am home. They finally sprung me early this afternoon. I am still feeling wonderful. I can hardly believe how great (and straight, spinally speaking) I feel. It's even harder to believe that I was being wheeled back into surgery with somber cautions re paraplegia just one week ago today. I dare to hope that everything went right this time. I dare to hope, period. Be well. In , Llweyn Friars <mad.monk@s...> wrote: > With everything that you have gone through, you still have your witty humour > . You do have a terrific friend in Jennie. Maybe you should ask > those nurses, etc. if they would like to take a picture while you're in the > shower or tape record your private phone conversations. Better yet is if you > can do the same with them! Some professionals forget to respect a > person/patient's privacy and they need to be reminded. > Glad to hear from you and look forward to your updates, as you feel able or > needing to vent. > > Llweyn > > Thank you > > > > Subsequently I also got my first shower in a week. Both nurse-people > vied energetically for the opportunity to come in the shower with me > and eyeball me as I bathed myself. Just in case I had a medical > emergency or klutz attack, I guess. This was after days of hearing > from all these staff people how able I am, how good my balance is, > how I clearly am doing great and need no rehab and so forth. Who > knows why, but after some eight spinal fusions and multiple > orthotics, PT programs, hospitals, rehabs -- I kind of seem to know > the ropes. I have taken pretty good care of myself through > everything. Yet I find myself beset by an army of . . . well, > enough. Thanks for everything, everyone. I'll be in touch. > > > > > > Support for scoliosis-surgery veterans with Harrington Rod Malalignment > Syndrome. Not medical advice. Group does not control ads or endorse any > advertised products. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Oh, ! What good news! You were so right about yourself and the earlier problems! Never doubt yourself again. It is so good to read that you are feeling well! I hope that you are CURED! Love, Carole M. (the elder) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2004 Report Share Posted May 15, 2004 Yup, I'm saving this post for sure. Thank you. It helps to have a certain wryness quotient, but it helps even more to have friends. Re: Thank you , ! It's so good to see your name on the message board again, and such a coherent message, as well ! I hope all is going well and you'll be better every day. Really, must you experience EVERY complication known to revision surgery? Its smacks of overacheiving if you must know, and I'm getting a little put out! We need you HERE, writing your tender acidic heart out and keeping us in line and well-versed in the more complex issues of this mind-bending roller coaster of a journey. Be better, I am willing it! By the way, I'm not adverse to going down to that hospital and smacking a few nurses around, if you'd like. I don't mean to come off like a goon or anything.. I'm jus sayin'. We've been talking about humor in the past couple of days, your posts are always full of deadpan remarks about the most awful experiences you've gone through, they're a perfect example of finding strength through wit, even if sometimes the strength we find is along the lines of whistling in the dark. All my very best to you, brave girl. Dianne Support for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Hi Ray As I mentioned in an earlier post, it is good to hear from you again. You and your family continue to be in our prayers and I have passed on your first name and prayer request to a few other intercessors. We also have the prayer warriors at CJIL, Canada's Christian Broadcasting station, also called the Miracle Channel. Those prayer requests went out around the world. We pray now that you will be comforted knowing that your daughter and fiance are happy in the arms of Jesus, our Lord. +Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Thank you Irene and Kathy Kae x x x Quote Link to comment Share on other sites More sharing options...
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