Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 Hi .... I don't know much about kyphoscoliosis, but I do know that the UCSF scoliosis specialists (Bradford, Hu, Berven & ) are well trained. People come from all over the world to UCSF for scoliosis treatment. FYI, I run the scoliosis support group in San Francisco. A brace, at this point, will probably not do anything for h (assuming she's been determined to be skeletally mature). If she were my daughter, I would probably get her out of the brace, and have her continue with PT (hopefully a good one) for six months or so before making any decisions. Another possibility would be to go back to Shriners for another opinion. Since you're already concerned about the financial impact, I would not get sucked into any unproved alternative treatment. The Copes program looks slick, but they have never published a single case of a skeletally mature patient being permanently helped by their treatment. Regarding radiation exposure, your daughter is actually way ahead of many scoliosis patients who have had to have regular x-rays from a much earlier age. There are definitely risks, but the only way to know what's really happening with h is to have her x-rayed. The frequency of x-rays should slow down once the doctors know what they're dealing with. The good news is that UCSF is very good about protecting the patient. X-rays are taken PA instead of AP (from the back instead of from the front), and shields are used to protect breasts and ovaries. Good luck. Regards, Quote Link to comment Share on other sites More sharing options...
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