HAVE YOU BEEN TESTED FOR CMT???

[Guest guest]

I used to be a member of this board and NEVER saw a note about CMT.

I am a 58ho woman who was diagnosed with Charcot-Marie-Tooth disease on

Jan. 15, l2008, two days ago! I inherited it from my father. I've had

it since I was at least 14yo when I was diagnosed with scoliosis. CMT

causes spine and other bone deformities. The delay in the diagnosis

has resulted in a severe case of CMT, (and Scoliosis, for which I had

surgery in 2002), whereby I have total numbness in my feet, with

numbness having progressed gradually up into my thighs. It is also now

in my arms and hands. I can hardly walk or open a jar or a box of

macaroni. If I had been diagnosed and treated even a few years ago,

some of my disability might have been slowed or avoided. If you have

ideopathic scolioisis (no known reason for it, as I did) AND/OR have

never been tested for CMT, NOW is the time!

It is a neurological, progressive, debilitating disease inherited from

one or both parents who are carriers. Those with scoliosis have have a

mutated CMT gene to pass down to their offspring. Scoliosis is only

part of it!