Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Diane, visit www.thinktwice.com. Also purchase the book Vaccines: Are They Really Safe & Effective ISBN 1-881217-10-8 $8.95 After that follow the links to the numerous sites that are vaccine related. Then make your decision. I too had my child vaccinated at 2 months - out of fear! That was the last time my child saw a needle. My concern after my research was how to defend my decision not to vaccinate. A very good friend, a physician who has never vaccinated any of his 5 children, gave me a great idea. When anyone questions my decision I offer to lend them my piles of research (organized into binders) and then request that they tell me what their decision would be given all the information. It usually is a very effective and polite way to deal with folks! Please em me privately if you need any more encouragement! Dana --- dhallwirth68@... wrote: > My name is Diane, and I recently had my son vaccinated at 2 months. > He had no bad reaction, but I am concerned about having him fully > vaccinated. I teach 6th grade (I'm on leave now), and it does seem > like kids in recent years have had more ADD and other medical > problems. > I am thinking I will consider each vaccine before he gets it. We are > not getting any at 4 months, and we will decide from there. I would > hate to think that my consenting to a vaccination caused problems for > him somewhere down the line. Also, my cousin is a resident > pediatrician and I want to have information when have " the talk " with > her. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2001 Report Share Posted April 27, 2001 Hi Everyone, I am traveling again, so I am not able to get on line as much, but I wanted to check in and say hi and thanks to all of you who are striving to achieve your goals. Remember to be kind and patient with yourself. Treat yourself as you would your most beloved, best friend. Keep in your mind that by doing your Life Lift breaths slow and easy, take your time, no rushing, your body will be able to absorb the oxygen better and also release the toxins and fat better. Keep it slow, smooth and precise. Pay attention to your breaths. Appreciate each one as a gift you are giving your body. I love reading all of your messages even when I only have time to read. Those of you who are here daily, you are my total winners. By checking in daily you are increasing your possibilities for success and at the same time you are helping others to succeed. I am getting ready to leave soon, but I want to read through some of the mail and send a few more replies before I go. Love you all! Rashelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 Hi Liz, Happy anniversary! Hi everyone, I am here, but I have been recording most of the past couple of days, and working on some new projects for you. I think you will love them. I am trying to give you some simple little, things that will help to keep you motivated and on track. I have heard from so many who say the new audio tapes have really made a difference for them, so I am feeling inspired. I am working on Life Lift daily cards. You may be surprised what I am doing with them. They are really fun. My husband and daughter love them. I am also doing work on the calendar so it will be ready for us next year. It is amazing how much planning that takes. It will be worth it. Anything that helps you succeed is worth the effort. It seems the audio tapes are such a hit that I am getting requests for more. I just finished the Positive Relationship audio and just set up the scripting for one called Forever Young and another called Creating order (removing clutter). I know Liz will love that one. She asked for it. I am open to requests. I will try to get back to answer all of your mail soon. I am so happy to see all of the positive, wonderful messages you are sending. You are all so great! This week I have heard from so many new Life Lifters who are having incredible results. It must be the good air we are all breathing. I am soooo excited after reading the past two days mail. Poornima just said she lost a whole dress size. Pretty wonderful. I will let you all know as soon as I hear who the winner is, or who they are, of the Inspiration Contest. I am going to start a new one, so get ready. It will begin as of May 1 and go for two months as the last one did, ending on the last day of June. Once again the main prize will be a $50.00 gift certificate toward anything on any of my web sites. Good luck all. The point of the contest is to help you all get energized and enthused to reach your goals. It really seemed to get our new list of to a great start, so thanks to all of you who write your wonderful, inspirational messages each and every day. You never know what a difference you are making for someone out there who may be struggling. It is a very good thing when you share your struggles, and your triumphs. In the end, you are the winner. Take good care, Rashelle Be sure to check out all of the great specials available on my web sites. All new workout videos and audios are on sale now! Save on the Large Body Wrap package. Some sales have been extended. Visit us at http://www.lifelift.com > > Hi Friends, > > I have less than a second, but I needed a breather. Today has been one of > those days!!!!!! It's our 14th wedding anniversary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Hi , What a wonderful message. I have re-read it over a few times. Your attitude is so great. You are so right in looking at the big picture and realizing that it takes so little for us to give to ourselves to have the huge return of feeling better for our entire lives. When we understand that we are only given one body in our life time to nourish, to cherish, to love and to totally appreciate we will then be on track to be the very best we can be. It is true that you can do Life Lift with or without the positions. The positions are for body sculpting and they are wonderful, but the key to the success of Life Lift is doing the breaths correctly. Timing is everything. When we try to run a race with Life Lift we actually dilute the results we will achieve. Life Lift is meant to be relaxed and serene. It is not your typical exercise video and that is why is does not give your typical results,( with traditional exercise that often means little or none). With Life Lift it is not unusual to hear someone tell us that they have lost a few inches in a week. That does not usually happen with traditional exercise. I called it Life Lift because it is about changing and lifting your entire life. It is about elevating the way you feel, the way you look and even the way your express yourself. When we are in a state of joy and peace we are nicer to be around. When we feel good physically and mentally we are so much more attractive to the world. It will change the way we function within our families and when we are with our friends. it will give us more energy to meet our challenges and much more joy to greet life's pleasures. Life Lift is not just about weight loss, that is just the frosting on the cake. I have found that when life has presented me with a challenge I find it easier to turn it into a gift if I do some Life Lift breaths so I can see a clear picture of what is happening. Doing Life Lift seems to open my eyes and my heart in a way that traditional exercise never could. When you value your body as a treasure that was given you, your life will be flooded with good things. Having a lot of money to take a wonderful trip to a far off place would mean little or nothing if you don't have the energy to enjoy it. Think of all the things you gain when you treat your body like the greatest gift you have ever been given. Love you all, Rashelle > > Me too Rose.Just remember it took a long time for us > to get to this place in our lives where we want to > take better care of our selves and look better,and > it's going to take some time to improve.Just ask > yourself this.What on earth will I do if I don't do > this.To me LL is healing as well as helping us look > better.> pain comes back when I skip a day.Rashelle said in one > of her answers that one can just do LL without > positions and still get results.After all it's all > about oxegen burning off our fat reserves.It will just > take us time.For me lots of time because of all the > stress I am under.But what choice do I have?I could > stop and go back to the way things were before with > lots of back pain.Thats where I unconsiously funnel my > stress.I wish you tons of determination. > --- Rose Kaval <Rosebookay@...> wrote: > > > ============================================================ > > Exclusive: ½ Price Omaha Steaks Top Sirloins- Only > > $22! > > Order today and we'll add 6 Burgers FREE when you > > checkout. > > 100% guaranteed to thrill; order today! > > > http://click.topica.com/caaab4BbUrFKSbVfIvaa/OmahaSteaks > > > ============================================================ > > > > Hi, > > I am plugging along. So often I have started > > something and then not > > followed through. This is something I feel strongly > > about because I believe > > it will have long term positive effects both in how > > I look and how I feel. > > Thanks for the encouragement. > > > > > > Rose > > > > > ============================================================ > > How do you want to save today? > > 29 ways to save big bucks on stuff you want - FREE. > > > http://click.topica.com/caaacgDbUrFKSbVfIvaf/TopOffers > > > ============================================================ > > > > Be sure to check out all of the current specials. > > http://www.lifelift.com > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2001 Report Share Posted June 17, 2001 Hi The story was very good. My husband was a 24 year guard member who has had a reaction. He has been denied access to Walter which the guard bureau could have sent him to. The command of the MI ANG, Gen. E. Gordon Stump and his commanders all denied Sen. Carl Levins request Tom be sent there. We know all about continous diahrea, nightsweats, joint and muscle pain and a host of other symptoms. At the moment he is going to the VA. The test show a healthy 45 year old male but don't explain the headaches which nothing will aleviate or the fact he couldn't run anymore. We know all about the commands treatment of enlisted members. Tom was interviewed by Insight magazine in November of 99 at the Defense Forum Luncheon. It puts life in perspective when you meet others having the same problems. Please keep tabs on the AVIP program. The problems are fixable with the right people. Debbie Starkweather Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 I think some times its the drugs that some of us are taken and just being sick causes people to be more gentle in nature or for us to react to things. I read all the post and enjoy most of them. I find some of the information real important and just when I feel like I am alone in the world so will post to brighten my day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 Several of the members have mentioned coke syrup to stop the spasm. There is a medication others have mentioned called Levsin??? (it will show in the past postings), and I have found relief through hypnosis to help me relax the muscles. Since going through hypnosis, I have only choked twice (both times I had gone through stressful situations prior to the spasms). Other than those couple of times, I've done really well and not choked at night. Prior to hypnosis, I was choking every night and getting viral pneumonia on a regular basis. Weins --- Dale <chard1st@...> wrote: <HR> <html><div style='background-color:'><DIV> <P><BR>Hi, I've only just found the site, and its brilliant, I'm 28 and live in Jersey in the Channel Islands, and have had a myotomy two months ago, following severe weight loss and malnutrition. I still have problems eating however, and worry it will get worse again, my consultant is lost for words, and can give me no answers, other than to have a liquid diet for the rest off my life!!! Does anyone have any suggestions on who to see in the U.K? are there any specialists in this field? no one i've met knows a thing about it! My consultant was even doubting that it was still Achalasia! and can give me no ideas on how these muscle spasms can be stopped. I'd love to here if anyone's got any answers!</P> <P><BR> & nbsp;</P></DIV></div><br clear=all><hr>Get your FREE download of MSN Explorer at <a href='http://go.msn.com/bql/hmtag_itl_EN.asp'>http://explorer.msn.com</a><br> <br> <tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 Hi Dale, I'm ten years older than you and its taken me about that long to get a diagnosis !!! I've only had one lot of BotTox injections ( without sucess ! ) and at my consultants insistence am on the waiting list for another lot asap ( which could be months ) This si depsite the reasearch papers that say the second lot of injections are probably less effective than the first lot ..... I'm just trying to be positive and hope to prove the research I've read to be incorrect this time . I see a Gastroenterologist in Plymouth . It seems to me they are all at a loss to know what to do and little appears to be known about it . I've spent ages searching the Web for info but keep being drawn back to American sites as the UK appears useless at managing this condition . I'm thankful for a helpful dietican . What do you have to drink ? I use Enlive and Fortijuice as I don't like Provide extra . In addition to that I have build up in the savoury flavours as I find it to be less powdery than complan . I also use some recipes from a booklet of nourishing drinks , such as using plain chocolate in milk for hot chocolate , more calories and nutrients and soft fruits in milk shakes etc. It appears to me its about time we came together on this one and got thsi condition recognised . I contacted the Digestive Disorders Foundation ... guess what ???!!!! They'd never even heard of it and have passed my comments on to one of their medcial advisors . Would anybody be interested in a proper info and support group besides this web site ? Let me know as I feel its the time to do something to help more people ... I only found this site by chance and know many more people must be desperate ...... , let me know how you get on and how you manage day to day . HI Hi, I've only just found the site, and its brilliant, I'm 28 and live in Jersey in the Channel Islands, and have had a myotomy two months ago, following severe weight loss and malnutrition. I still have problems eating however, and worry it will get worse again, my consultant is lost for words, and can give me no answers, other than to have a liquid diet for the rest off my life!!! Does anyone have any suggestions on who to see in the U.K? are there any specialists in this field? no one i've met knows a thing about it! My consultant was even doubting that it was still Achalasia! and can give me no ideas on how these muscle spasms can be stopped. I'd love to here if anyone's got any answers! Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 , I have not had a spasm in two weeks. It is a miracle! I am on Nexium, after being on every drug in the world. Please ask your Dr. if this might be a good choice. I had a balloon procedure 5 years ago and had recently begun to get spasms at any time of the day. I hope this suggestion helps. Gayle from CT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 What did you mean when you said " Would anybody be interested in a proper info and support group besides this web site ? Let me know as I feel its the time to do something to help more people ... I only found this site by chance and know many more people must be desperate ...... " ? How do you define a proper info and support group? I'm curious and also agree that more people could be helped, as well as more MD's having a clue about this disease. . > Hi Dale, > I'm ten years older than you and its taken me about that long to get a diagnosis !!! I've only had one lot of BotTox injections ( without sucess ! ) and at my consultants insistence am on the waiting list for another lot asap ( which could be months ) This si depsite the reasearch papers that say the second lot of injections are probably less effective than the first lot ..... I'm just trying to be positive and hope to prove the research I've read to be incorrect this time . I see a Gastroenterologist in Plymouth . It seems to me they are all at a loss to know what to do and little appears to be known about it . I've spent ages searching the Web for info but keep being drawn back to American sites as the UK appears useless at managing this condition .. > I'm thankful for a helpful dietican . What do you have to drink ? I use Enlive and Fortijuice as I don't like Provide extra . In addition to that I have build up in the savoury flavours as I find it to be less powdery than complan . I also use some recipes from a booklet of nourishing drinks , such as using plain chocolate in milk for hot chocolate , more calories and nutrients and soft fruits in milk shakes etc. > It appears to me its about time we came together on this one and got thsi condition recognised . I contacted the Digestive Disorders Foundation ... guess what ???!!!! > They'd never even heard of it and have passed my comments on to one of their medcial advisors . > Would anybody be interested in a proper info and support group besides this web site ? Let me know as I feel its the time to do something to help more people ... I only found this site by chance and know many more people must be desperate ...... > > , let me know how you get on and how you manage day to day . Chris > HI > > > > Hi, I've only just found the site, and its brilliant, I'm 28 and live in Jersey in the Channel Islands, and have had a myotomy two months ago, following severe weight loss and malnutrition. I still have problems eating however, and worry it will get worse again, my consultant is lost for words, and can give me no answers, other than to have a liquid diet for the rest off my life!!! Does anyone have any suggestions on who to see in the U.K? are there any specialists in this field? no one i've met knows a thing about it! My consultant was even doubting that it was still Achalasia! and can give me no ideas on how these muscle spasms can be stopped. I'd love to here if anyone's got any answers! > > > > > > > ---------------------------------------------------------------------- -------- > Get your FREE download of MSN Explorer at http://explorer.msn.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 Hi Carol, He did say that I should stay on it for a while. There doesn't seem to be many side effects. I did a search on Google, which is the best search engine. Since it is working for now, I plan to use it until I see the Dr. He is a gastroenterologist and I trust him with new meds. He said that spasms could be caused by acid touching the sphincter. I don't take any medicine without a lot of research. Do you see a specialist for your spasms? Please stay in touch. By the way, my worst fear is to have these spasms when I am teaching. I hope this works. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 , Where are you ? In the UK ? I don't feel the UK is very good at knowing anything about this illness and during my internet searchs find the the Us have support and info groups to turn to to meet others etc. There are info. groups for things like MS , CFS , MND , Fibromyalgis ,asthma etc. and I feel that as we all appear to only be coming across this site by chance then perhaps theres more to be done. I have a lot of expereince in working with groups for people with disabilities and chronic illness .. therefore I have a fair few contacts ..... So its over to you UK citizens .. shall we ahve a 'snail mail group' so that its well known and our message gets heard and perhaps more acceptance/understanding ? If every other condition can have a group , why not us .. it was the first thing I looked for and its taken me months to find out about this contact ... Keep in touch and let em knwo if anybody else has any ideas/ thoughts etc etc. Chris HI > > > > > > > > Hi, I've only just found the site, and its brilliant, I'm 28 and > live in Jersey in the Channel Islands, and have had a myotomy two > months ago, following severe weight loss and malnutrition. I still > have problems eating however, and worry it will get worse again, my > consultant is lost for words, and can give me no answers, other than > to have a liquid diet for the rest off my life!!! Does anyone have any > suggestions on who to see in the U.K? are there any specialists in > this field? no one i've met knows a thing about it! My consultant was > even doubting that it was still Achalasia! and can give me no ideas on > how these muscle spasms can be stopped. I'd love to here if anyone's > got any answers! > > > > > > > > > > > > > > > ---------------------------------------------------------------------- > -------- > > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 Carol, I could have written your email. I just can't believe how similar all of our stories are. I never went anywhere without my Zantac, Maalox, Tums, and Lifesavers. When I had a spasm, I would take a Zantac, followed by all of the above. I dread restaurants and parties. I even went white water rafting before the diagnosis, and everyone said that it was just in my head. I was literally choking and lived on practically nothing for seven days. Five years later, I still feel very uncomfortable going places where I have to eat. I am always full of anxiety. Well, I hope you get some good news from your Doctor. Keep in touch. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 Gayle - This is amazing news, and I know how happy you must be to have something that works. My spasms come on sporadically (sporadic spasms??) and so I'm wondering about the safety of being on something long-term as a preventive measure. Did you MD share with you any of the side effects of this drug, or discuss how long you could be on it? There are relatively few medications that one can take indefinitely, and so I'm just wondering what the advice is on this one, especially since it's so new. Take care - Carol Re: HI > , > I have not had a spasm in two weeks. It is a miracle! I am on Nexium, after > being on every drug in the world. Please ask your Dr. if this might be a > good choice. I had a balloon procedure 5 years ago and had recently begun to > get spasms at any time of the day. > I hope this suggestion helps. > > Gayle from CT > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Gayle - Thanks for writing back - your info was great and I'll check out google for info. My gastroenterologist has been treating my vigorous achalasia (the spasms are what differentiate it from regular achalasia) with Levsin and I haven't talked to him about this new medication yet. The spasms come on at inconvenient times - while shopping with friends, while walking in a Memorial Day parade, while in a meeting with a client (that was a tough one - trying to take the Levsin, not panic, keep the meeting going without client noticing I'm in excruciating pain!). I always have my Levsin with me - like a heart patient always having nitroglycerine. I'd love to have the freedom of not having that safety net with me all the time - when I don't take it with me, like when I go for a walk around the neighborhood - it's always in the back of my mind " am I going to be able to get through a few minutes without a spasm? " . If this new drug could relieve that, it would be worth it. Take care - Carol Re: HI > Hi Carol, > He did say that I should stay on it for a while. There doesn't seem to be > many side effects. I did a search on Google, which is the best search > engine. Since it is working for now, I plan to use it until I see the Dr. > He is a gastroenterologist and I trust him with new meds. He said that > spasms could be caused by acid touching the sphincter. I don't take any > medicine without a lot of research. > Do you see a specialist for your spasms? > Please stay in touch. > By the way, my worst fear is to have these spasms when I am teaching. > I hope this works. > > Gayle > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 I've been on Prilosec for years. . .do you think the Nexium would work better at controlling the spasms? Weins --- connfan1@... wrote: > , > I have not had a spasm in two weeks. It is a > miracle! I am on Nexium, after > being on every drug in the world. Please ask your > Dr. if this might be a > good choice. I had a balloon procedure 5 years ago > and had recently begun to > get spasms at any time of the day. > I hope this suggestion helps. > > Gayle from CT > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Hi and , I live in Bath and have just had an successful operation for this. It took a long time to get to this stage, and although I wasn't personally very fond of my gastrointerologist Dr, Lynahan, he was very through. I collapsed with dehydration before my GP started to really get things moving, I ended up in hospital for 18 days, so much for a shortage of beds!! The reason I sat it out in there was that I was finally in the system, they did a barium swallow. an endoscopy and a manomatry test while I was in there they finally diagnosed achalasia. They also sent me to Bristol for an oesopagicial ultra sound. This ruled out the possibility of anything else. They did a couple of dilations, neither of which worked so I lived with an NG tube while they sorted out a date for my operation.My surgeon was absolutely wonderful, Mr. J Tate at the RUH in Bath. I had an NG tube as I couldn't get enough food or liquid in to stay alive and I lost 41/2 stone. some of which has started to go back on. My GP who I really like, knows nothing about achalasia as neither did the nurses in the hospital nor even Mr. Tates registrar, this was the first case of achalasia she'd seen. Mr. Tate had done this operation before which was wonderful and he was very clear about telling me that there was no guarantee as to how well I'd be able to eat afterwards, but at the rate I'm now eating it has obviously worked well, after what we go through with this it is hard to believe we might be able to be near normal again, long may it last is my wish. The only thing I am dealing with now are trying to get the spasms under control !! So there are a few Dr's here who do know a bit, Mr. Tate's secretary is very nice I don't know if she may know of any other Dr's who deal with this but I'd be happy to find out if you'd like. All the best, HI Hi, I've only just found the site, and its brilliant, I'm 28 and live in Jersey in the Channel Islands, and have had a myotomy two months ago, following severe weight loss and malnutrition. I still have problems eating however, and worry it will get worse again, my consultant is lost for words, and can give me no answers, other than to have a liquid diet for the rest off my life!!! Does anyone have any suggestions on who to see in the U.K? are there any specialists in this field? no one i've met knows a thing about it! My consultant was even doubting that it was still Achalasia! and can give me no ideas on how these muscle spasms can be stopped. I'd love to here if anyone's got any answers! Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Dear , Great to hear from you today . I've had some good news getting a date for the second lot of injections in a few weeks time . Also heard from Jess in Staffordshire so it helps knowing there are people this side of the continent with whom I can be in contact . It helps as the USA etc. have different drugs and ideas it seems . I am also so pleased to hear a positive story , how delighted to you must be to have found the surgery has worked . Jess is waiting for surgery at the moment and so I am sure she will be encouraged to ehar this can help so much as in your case . Look forward to 'speaking' to you again soon . Bye for now To any others of you in the UK who may be reading this please get in touch so we can support each other . HI Hi, I've only just found the site, and its brilliant, I'm 28 and live in Jersey in the Channel Islands, and have had a myotomy two months ago, following severe weight loss and malnutrition. I still have problems eating however, and worry it will get worse again, my consultant is lost for words, and can give me no answers, other than to have a liquid diet for the rest off my life!!! Does anyone have any suggestions on who to see in the U.K? are there any specialists in this field? no one i've met knows a thing about it! My consultant was even doubting that it was still Achalasia! and can give me no ideas on how these muscle spasms can be stopped. I'd love to here if anyone's got any answers! Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Hi, I was on Prilosec, Procardia, Nitro, Inderal, assorted Benzos, and many other drugs for these past 6 years. I have not had a spasm in ten days on the Nexium. For me this is a miracle. When I start the school year in two weeks I hope and pray that I won't have to get a spasm while I am teaching. I am always fearful whenever I have to go anywhere that I will get a spasm and that I will look foolish. Please talk to your Dr. about any new medication. Good Luck and let me know what your decision is. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Hi Gayle. I too have to return to work in about two weeks...not a teacher, but a principal's secretary. I dread the days of running in the lounge chugging as much water as I possibly can and taking the nitro, which gives me an extreme headache! The staff at my school is small and mostly everyone is aware of my problem though, they are understanding. My question to you is do you have frequent spasms? I am just wondering about this nexium, for the amount spasms that I have, few and far between, is it worth taking something long term like this? connfan1@... wrote: > Hi, > I was on Prilosec, Procardia, Nitro, Inderal, assorted Benzos, and many other > drugs for these past 6 years. I have not had a spasm in ten days on the > Nexium. For me this is a miracle. When I start the school year in two weeks > I hope and pray that I won't have to get a spasm while I am teaching. I am > always fearful whenever I have to go anywhere that I will get a spasm and > that I will look foolish. > Please talk to your Dr. about any new medication. > > Good Luck and let me know what your decision is. > > Gayle > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Hi , My spasms were getting more frequent by the day. Ten days ago, I started Nexium and haven't had one at all. My spasms were painful to say the least and lasted from a few minutes to hours. I plan to stay on this medicine until it stops working or until the Doctor says to stop. Where is your school? Mine is in New Canaan, CT. I hope I have helped. Have a good evening. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 I will have to decide if I want to be on something long term for something that doesn't happen that often. That is my only concern. I don't want to be on a lot of medications, any medications if at all possible. My school is in Michigan. It is a Technical Education Center for the students from the 10 area high schools. Thanks for your information. I'm still checking on that tea too! connfan1@... wrote: > Hi , > My spasms were getting more frequent by the day. Ten days ago, I started > Nexium and haven't had one at all. My spasms were painful to say the least > and lasted from a few minutes to hours. I plan to stay on this medicine > until it stops working or until the Doctor says to stop. > Where is your school? > Mine is in New Canaan, CT. > I hope I have helped. > Have a good evening. > Gayle > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Sorry it's taken me so long to respond but I haven't checked my email in 3 days (My profession is in computers hence I'm not always faithful to jump back on when I get home). No, I'm not in the UK. I live in northern New York (US). I guess that's why I didn't quite understand your mention of proper info and support group. I must admit that I didn't find this group on my own. A colleague of mine, who sympathizes with what I've been going through this year, took it upon himself to do some research and found this. He's one of a kind and a really good friend. Anyway, .... I know understand what you meant. But if you think of it, this group has a wealth of knowledge and most especially first-hand experience, that I think it wouldn't take too much to use the US to your benefit. If the promoting of this disease in the UK is your intent and you wish to pursue setting up a system for others to understand or a place for them to go to (ie: a group like this) then I would think this group could be one of your references of information. Re: HI > > > What did you mean when you said " Would anybody be interested in a > proper info and support group besides this web site ? Let me know as I > feel its the time to do something to help more people ... I only found > this site by chance and know many more people must be desperate ...... > " ? How do you define a proper info and support group? I'm curious > and also agree that more people could be helped, as well as more MD's > having a clue about this disease. > > . > > > > Hi Dale, > > I'm ten years older than you and its taken me about that long to get > a diagnosis !!! I've only had one lot of BotTox injections ( without > sucess ! ) and at my consultants insistence am on the waiting list for > another lot asap ( which could be months ) This si depsite the > reasearch papers that say the second lot of injections are probably > less effective than the first lot ..... I'm just trying to be positive > and hope to prove the research I've read to be incorrect this time . I > see a Gastroenterologist in Plymouth . It seems to me they are all at > a loss to know what to do and little appears to be known about it . > I've spent ages searching the Web for info but keep being drawn back > to American sites as the UK appears useless at managing this condition > . > > I'm thankful for a helpful dietican . What do you have to drink ? I > use Enlive and Fortijuice as I don't like Provide extra . In addition > to that I have build up in the savoury flavours as I find it to be > less powdery than complan . I also use some recipes from a booklet of > nourishing drinks , such as using plain chocolate in milk for hot > chocolate , more calories and nutrients and soft fruits in milk shakes > etc. > > It appears to me its about time we came together on this one and got > thsi condition recognised . I contacted the Digestive Disorders > Foundation ... guess what ???!!!! > > They'd never even heard of it and have passed my comments on to one > of their medcial advisors . > > Would anybody be interested in a proper info and support group > besides this web site ? Let me know as I feel its the time to do > something to help more people ... I only found this site by chance and > know many more people must be desperate ...... > > > > , let me know how you get on and how you manage day to day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2001 Report Share Posted August 13, 2001 Hi , Thanks for the response. You're the first Belfast person with achalasia that I have ever communicated directly with! Where are you living now? I will be happy to give you info. on what I know of achalasia treatment in your old home town. Hope it is better where you are now!! Lesley Hi Hi Lesley, I'm a bit behind on my mail but I just read that your from Belfast way and although I haven't lived there for many years that's were I'm from originally. Interesting to hear about achlasia there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 Leis, Glad to hear from you and that BJ is doing so well. Well, and Jellybean too I guess! how cute is that? I know that who ever this baby is when it is born, you will love it so much. And BJ must be excited to be a big brother. My kids are 4 years apart too. amanda is a great big sister and my son has learned so much form her about unconditional love, acceptance, patience, and tolerence. He is a better person because of amanda. is doing very well in school this year. She is happy and very well adjusted. Take it slow and try to relax now while you still can! ~ mom to amanda 11 DS and jesse 7 NY Quote Link to comment Share on other sites More sharing options...
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