Travel

[Guest guest]

Mel & Duff....Thx so much--think that was what I needed to hear. Hugs, Lee

[Guest guest]

Duffey is right, the reason for the ICD is to allow us to continue an active health style, in other words do what we want or need to do. I've traveled a great deal, just watch the wands at airport security, point and say pacemaker. This is understood universally. I've only had one bad experience with a guard, the crowd helped me out, since I wasn't fluent in the language. I always get the name, number and address of nearest EP. This I get from Medtronics without a problem. The EP doesn't necessarily have to be in a stones throw.

Last, don't worry, be happy and live.

Mel

Travel

Do not let thin air or lack of docs scare you too much.

Talk with YOUR doctor about what is critical to _YOU_.

Somefolks with CHF might be gasping for air - even at sea level.

But having an ICD (if that's the only issue) should not be a limit.

For example... check out Rosemary 's first person account of her

trip to South America in the latest Zapper Update. She climbed Machu

Pichu and slept on a hillside with a volcano erupting on the next

mountain over!

Rule of thumb... the ICD does not limit us. It's why we need an ICD

that may put a damper on adventures. People with only arrhythmias may

be able to do just about anything they want... just make sure you

discuss it with YOUR personal docs. Mix in CHF and some other problems

and you have to be a bit more cautious. Still, don't let fear turn you

into either a vegetable or couch potatoe!

eGroups.com Home: www. - Simplifying group communications

[Guest guest]

The net is a good place to look for things like that, but most of the time your local travel agency can get you really cheap flights! We just got two round trip tickets yesterday for only 400, as long as you do it one week or even more a head of time you can get cheap tickets. I'm sorry I don't know of any sites though, but you can try just going to an airlines website and they have good tickets sales.

Jessi

travel

Does anyone know where I can go on the net an find cheap travel flights?

Chelle (michelle4)

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--- Dorothy Rush

--- jmducky@...

--- EarthLink: It's your Internet.

[Guest guest]

We always ask to sit in the very front of coach and it's NEVER been an issue.

Once they even moved us to first class because the seats are wider, which

makes it easier to position me in the versa form

Sincerely,

s, the Unique Princess.

[Guest guest]

Whenever we travel by plane- we make sure to get there early. I go up to the

counter and tell them that I HAVE to have seats in the first couple rows. I

have only had a problem once out of maybe 6 times. They always switch our

seats.We have never taken the power chair anywhere with us yet. Hope this

helps.

Kristal

Mom to Brett- SMA II- 4 years old

" Life is 10% what happens to you and 90% how you respond to it. " ~anonymous

Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm

travel

> I hope this works this time.

> Can anyone give advice or suggestions on air travel? We have

> purchased tickets 2 months in advance and still were given seats in

> the rear of the plane. It is concerning to think of pushing 8 year

> old all that way in their " aisle chair " .

> Also we are concerned about their handling of the permobile power

> chair since it is heavy and cannot really be " pushed " .

> Thanks

> Krystal

>

>

>

>

> A FEW RULES

>

> * The list members come from many backgrounds, ages and beliefs So all

> members most be tolerant and respectful to all members.

>

> * Some adult language and topics (like sexual health, swearing..) may

> occur occasionally in emails. Over use of inappropriate language will

> not be allowed. If your under 16 ask your parents/gaurdian before you

> join the list.

>

> * No SPAMMING or sending numerous emails unrelated to the topics of

> spinal muscular atrophy, health, and the daily issues of the disabled.

>

> Post message:

> Subscribe: -subscribe

> Unsubscribe: -unsubscribe

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

>

>

>

> oogroups.com

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

>

>

>

>

>

[Guest guest]

If he has a manual chair maybe you could just take that for the trip. No,

it's not as fun but manuals have less parts to be lost or broken and they have

wheelchair cases for manual chairs. I just got a manual chair for travel and to

go in houses where my powerchair wont.

[Guest guest]

Years ago, I traveled with my manual chair.Since I have a motorized chair, I

have not traveled in a plane. I absolutely hate using my manual chair, not

only because I'm less independent with it, but mine is very old (over 30 years

),

it's small and uncomfortable. If I get a new manual chair, insurance will not

pay for it because they now pay for my motorized one. They won't pay for

both. By the way, does anyone know how much manual chairs cost lately?

[Guest guest]

I think your concerns about your permobile are valid. I purposely do not

air travel for fear that my ($30,000+) chair will be damaged. I've only air

traveled a few times and each time my chair was damaged. The carrier is

only liable for a ridiculously small amount if you make a claim.

Lori

travel

I hope this works this time.

Can anyone give advice or suggestions on air travel? We have

purchased tickets 2 months in advance and still were given seats in

the rear of the plane. It is concerning to think of pushing 8 year

old all that way in their " aisle chair " .

Also we are concerned about their handling of the permobile power

chair since it is heavy and cannot really be " pushed " .

Thanks

Krystal

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

Post message:

Subscribe: -subscribe

Unsubscribe: -unsubscribe

List manager: (Sexy Mature Artist) Email: Esma1999@...

oogroups.com

List manager: (Sexy Mature Artist) Email: Esma1999@...

[Guest guest]

In a message dated 5/8/2004 6:09:42 PM Central Standard Time,

Aunt617@... writes:

If I get a new manual chair, insurance will not

pay for it because they now pay for my motorized one. They won't pay for

both. By the way, does anyone know how much manual chairs cost lately?

The one I just would have been around $5,000 or $8,000. It tilts and folds

up. Has side supports, belt and tray. Weighs around 50 pounds. However, I got it

as a demo and it cost around $2,500-$3,000. I didn't get to pick a color but

oh well... I got it free.

If you wait a few years after you get a new power chair you should be able to

get a manual but then you need to wait a few more years to get a new power

chair. Maybe you need an OT/DR to write a better letter. Everyone should have a

backup manual if your power one breaks! Not like an adult needs a new manual

every 5yrs. Maybe every 10 for adults.

If you have a wheelchair recycle program near you try looking there. Or call

your wheelchair vender and ask if they know of any demo chairs at cheeper

prices. MDA will cover some of manual chairs but not the whole thing.

[Guest guest]

In a message dated 5/8/2004 6:09:42 PM Central Standard Time,

Aunt617@... writes:

If I get a new manual chair, insurance will not

pay for it because they now pay for my motorized one. They won't pay for

both. By the way, does anyone know how much manual chairs cost lately?

if you get MA they should unless you recently got a new chair.

[Guest guest]

Tamara,

I'm so happy for you that you'll be working in something that you enjoy, even if

the food isn't right. That's one of those things we then have to take on faith.

Have a great time and let us hear from you if you can.

Travel

Hello Type O's

I am leavng to work on an archaeological excavation in Egypt for 2

months. I am very excited about it. I've been there before, Abydos, in

southern Egypt. We live in a mud brick house out in the middle of the

sand, near a village. Somewhat isolated and somewhat primitive. I

expect internet access to be limited.

The food is terrible by anyone's standards. Alot of starches, a little

bit of meat and very few vegetables; no green ones. Fava beans,

lentils. All cooked in racid corn oil. I don't have much choice about it.

I'm going to pack my suitcase full of supplements and loads of

pro-biotics.

I've been on a candida-type-O diet, no beans or bread, so this will be

a big change, I started eating some starches, so it won't be scuh a

shock. i don't like beans at all anymore, I think I'll get this stuff

called " bean-o' that helps you digest beans, they always gave me cramps.

Other than the crappy food, I love iot there. I work as a technical

illustrator. The work is hard and tedious, but I love it anyway.

- Tamara

[Guest guest]

HOw special, and exciting. Just enjoy

On 10/17/06, Tamara <tamaratornado@...> wrote:

>

> Hello Type O's

>

> I am leavng to work on an archaeological excavation in Egypt for 2

> months. I am very excited about it. I've been there before, Abydos, in

> southern Egypt. We live in a mud brick house out in the middle of the

> sand, near a village. Somewhat isolated and somewhat primitive. I

> expect internet access to be limited.

>

> The food is terrible by anyone's standards. Alot of starches, a little

> bit of meat and very few vegetables; no green ones. Fava beans,

> lentils. All cooked in racid corn oil. I don't have much choice about it.

>

> I'm going to pack my suitcase full of supplements and loads of

> pro-biotics.

>

> I've been on a candida-type-O diet, no beans or bread, so this will be

> a big change, I started eating some starches, so it won't be scuh a

> shock. i don't like beans at all anymore, I think I'll get this stuff

> called " bean-o' that helps you digest beans, they always gave me cramps.

>

> Other than the crappy food, I love iot there. I work as a technical

> illustrator. The work is hard and tedious, but I love it anyway.

>

> - Tamara

>

>

>

--

Cheers,

Kathy

[Guest guest]

You could also pack protein bars, and some jerky. I know they

ususally have small amounts of avoids, but the protein is hard

to do without for very long...

Gretchen

Travel

> Hello Type O's

>

> I am leavng to work on an archaeological excavation in Egypt

> for 2

> months. I am very excited about it. I've been there before,

> Abydos, in

> southern Egypt. We live in a mud brick house out in the

> middle of the

> sand, near a village. Somewhat isolated and somewhat

> primitive. I

> expect internet access to be limited.

>

> The food is terrible by anyone's standards. Alot of

> starches, a little

> bit of meat and very few vegetables; no green ones. Fava

> beans,

> lentils. All cooked in racid corn oil. I don't have much

> choice about it.

>

> I'm going to pack my suitcase full of supplements and loads

> of

> pro-biotics.

>

> I've been on a candida-type-O diet, no beans or bread, so

> this will be

> a big change, I started eating some starches, so it won't be

> scuh a

> shock. i don't like beans at all anymore, I think I'll get

> this stuff

> called " bean-o' that helps you digest beans, they always

> gave me cramps.

>

> Other than the crappy food, I love iot there. I work as a

> technical

> illustrator. The work is hard and tedious, but I love it

> anyway.

>

> - Tamara

>

>

>

>

>

>

>

[Guest guest]

Thanks everybody.

Yeah, I was going to take some jerky, but not a protein bar, sounds

sugary.

thanks, T

>

> You could also pack protein bars, and some jerky. I know they

> ususally have small amounts of avoids, but the protein is hard

> to do without for very long...

>

> Gretchen

>

> Travel

>

>

> > Hello Type O's

> >

> > I am leavng to work on an archaeological excavation in Egypt

> > for 2

> > months. I am very excited about it. I've been there before,

> > Abydos, in

> > southern Egypt. We live in a mud brick house out in the

> > middle of the

> > sand, near a village. Somewhat isolated and somewhat

> > primitive. I

> > expect internet access to be limited.

> >

> > The food is terrible by anyone's standards. Alot of

> > starches, a little

> > bit of meat and very few vegetables; no green ones. Fava

> > beans,

> > lentils. All cooked in racid corn oil. I don't have much

> > choice about it.

> >

> > I'm going to pack my suitcase full of supplements and loads

> > of

> > pro-biotics.

> >

> > I've been on a candida-type-O diet, no beans or bread, so

> > this will be

> > a big change, I started eating some starches, so it won't be

> > scuh a

> > shock. i don't like beans at all anymore, I think I'll get

> > this stuff

> > called " bean-o' that helps you digest beans, they always

> > gave me cramps.

> >

> > Other than the crappy food, I love iot there. I work as a

> > technical

> > illustrator. The work is hard and tedious, but I love it

> > anyway.

> >

> > - Tamara

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

In a message dated 10/17/2006 12:33:31 PM Eastern Standard Time,

mcpherson.bg@... writes:

You could also pack protein bars, and some jerky.

Customs may not let her bring food into the country.

[Guest guest]

You could also pack some protein powder - egg white protein or rice

protein would be good.

Maybe you can get some friends to send you weekly food packs.

Saying that, I don't know how reliable the post is over there.

Either way, have a good time

What are you looking for?

[Guest guest]

Yeah, I will check on that, I think it's OK if it's packaged.

I only have so much room in my bag!

I'll survive....

- T

>

> In a message dated 10/17/2006 12:33:31 PM Eastern Standard Time,

> mcpherson.bg@... writes:

> You could also pack protein bars, and some jerky.

>

>

> Customs may not let her bring food into the country.

>

>

>

[Guest guest]

Thanks so much, though I am not fond of protein powder.

It's in an isolated area, I don't trust mailing stuff there.

I will be OK, I survived this dig before.

We are excavating the pyramid complex of Pharaoh Ahmose. We've been

working on it for several years. Lots of broken bits! I make drawings

of the relief sculpture. The whole thing is smashed. Like a gigantic

jigsaw puzzle.

- T

>

> You could also pack some protein powder - egg white protein or rice

> protein would be good.

>

> Maybe you can get some friends to send you weekly food packs.

> Saying that, I don't know how reliable the post is over there.

>

> Either way, have a good time

>

> What are you looking for?

>

[Guest guest]

The protein bars from Atkins aren't sugary. They are a little sweet tasting,

but from glycerine or sucralose(?). Anyhow, it isn't sugar and I believe it is

allowed on the blood type diet.

Tamara <tamaratornado@...> wrote: Thanks

everybody.

Yeah, I was going to take some jerky, but not a protein bar, sounds

sugary.

thanks, T

>

> You could also pack protein bars, and some jerky. I know they

> ususally have small amounts of avoids, but the protein is hard

> to do without for very long...

>

> Gretchen

>

> Travel

>

>

> > Hello Type O's

> >

> > I am leavng to work on an archaeological excavation in Egypt

> > for 2

> > months. I am very excited about it. I've been there before,

> > Abydos, in

> > southern Egypt. We live in a mud brick house out in the

> > middle of the

> > sand, near a village. Somewhat isolated and somewhat

> > primitive. I

> > expect internet access to be limited.

> >

> > The food is terrible by anyone's standards. Alot of

> > starches, a little

> > bit of meat and very few vegetables; no green ones. Fava

> > beans,

> > lentils. All cooked in racid corn oil. I don't have much

> > choice about it.

> >

> > I'm going to pack my suitcase full of supplements and loads

> > of

> > pro-biotics.

> >

> > I've been on a candida-type-O diet, no beans or bread, so

> > this will be

> > a big change, I started eating some starches, so it won't be

> > scuh a

> > shock. i don't like beans at all anymore, I think I'll get

> > this stuff

> > called " bean-o' that helps you digest beans, they always

> > gave me cramps.

> >

> > Other than the crappy food, I love iot there. I work as a

> > technical

> > illustrator. The work is hard and tedious, but I love it

> > anyway.

> >

> > - Tamara

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Tamara wrote:

> Yeah, I will check on that, I think it's OK if it's packaged.

> I only have so much room in my bag!

Brewer's yeast (food yeast etc) is very compact protein....

and you can mix it into practically anything.

Have a Great time!!!

..IRene

--

Irene de Villiers, B.Sc AASCA MCSSA D.I.Hom/D.Vet.Hom.

P.O. Box 4703 Spokane WA 99220.

www.angelfire.com/fl/furryboots/clickhere.html (Veterinary Homeopath.)

" Man who say it cannot be done should not interrupt one doing it. "

[Guest guest]

hiya heather

 

im 18 and traveled alot im also lookin to go to rome soon im in the uk so im not

sure how filghts would be however when im lookin at transport and holtels i

could share what i find

 

e-mail me at lauramechelle@... can talk more on there

 

lauramechelle x

From: <h_on_wheels7@...>

Subject: Travel

Date: Thursday, 14 August, 2008, 12:58 PM

I would love to go to Rome next summer, but I don't even know how to

travel with SMA between states, let alone between countries. If

anybody has done so, can you give me a heads up? Maybe explain how to

find accessible hotels in another country, how to find transportation,

etc. I don't even know how to work out flying if I have to bring my

wheelchair with me. There's so much information I need, and I don't

know how to get any of it. I'm young, 19, so maybe it's just that I

haven't had the experience yet.

-

Send instant messages to your online friends http://uk.messenger.

[Guest guest]

I need info on flying while being ventilator dependant.

Thanks,

Doug

Travel

I would love to go to Rome next summer, but I don't even know how to

travel with SMA between states, let alone between countries. If

anybody has done so, can you give me a heads up? Maybe explain how to

find accessible hotels in another country, how to find transportation,

etc. I don't even know how to work out flying if I have to bring my

wheelchair with me. There's so much information I need, and I don't

know how to get any of it. I'm young, 19, so maybe it's just that I

haven't had the experience yet.

-

[Guest guest]

Hi ,

I have SMA type II, I sit in a power chair and need assistane 24/7. I have

travelled in 23 countries all over the world: Europe, Asia, Africa, Latin

America, Canada (not the States yet). So I am saying travelling is possible.

However, I might start by travelling between states or other shorter trips in

your own country. That way, you will get some experience about what to take into

account.

The internet has changed disability travel (I am old enough to remember the time

when you had to phone everywhere to find out about access). Nowadays you can

just google Rome + disabled and see what you'll find. Or go to the website of

Rome tourist office and see if they have anything on disability or accessibility

on their web page.

And finally, two rules of thumb that apply anywhere. If you need a lot of help,

take a reliable assistant with you. Someone you know you can stay with for a

week in a row without the two of you getting p**ed of with each other. And the

second thing is to PLAN: find out in advance as much as you can, make a plan of

what to do and how, make a second plan if the first one fails - and be ready to

improvise if the second plan doesn't work.

(Once in Africa the brakes of my powered wheelchair wouldn't switch off and the

engine was working red hot against the brakes of one wheel every time I moved.

We fixed it by disabling the brakes of one wheel altogether with a piece of

plastic. Then all I had to do was to remember not to park the chair anywhere

with the slightest slope. Not very safe but enough to keep me going for the last

week of travel.)

smiles

-Taya

from Finland

Travel

I would love to go to Rome next summer, but I don't even know how to

travel with SMA between states, let alone between countries. If

anybody has done so, can you give me a heads up? Maybe explain how to

find accessible hotels in another country, how to find transportation,

etc. I don't even know how to work out flying if I have to bring my

wheelchair with me. There's so much information I need, and I don't

know how to get any of it. I'm young, 19, so maybe it's just that I

haven't had the experience yet.

-

[Guest guest]

Yes, I have the Hoyer Advance--which is portable. ~a

From: santinoceccotti <santinoceccotti@...>

Subject: Travel

Date: Tuesday, October 28, 2008, 10:05 PM

Hi everyone,

Does anyone know of or use a portable Hoyer lift that folds up and is

transportable? My Hoyer lift is huge and there is no way I could

effectively travel with it on a airplane. Thank you for any

information you may have.

[Guest guest]

I'd bring them along.

Marilyn

On Tue, Nov 18, 2008 at 10:32 PM, BJDMohr <jdeamohr1@...> wrote:

> Do water kefir grains travel well?

>

> I can't decide whether to take them with me to the in-laws for a visit (and

> get the health benefit of drinking it daily) or to (what???) to give them a

> little sleep while I'm gone several days. I didn't know if getting jostled

> around in the cars for h-o-u-r-s would bother them or if that would still be

> better than leaving them behind. I may be able to leave them with a

> friend... hopefully they would be okay.

>

> Any advice?

> Thanks,

> Beth

>