Good Morning

[Guest guest]

Now, that sounds like a good trip to Europe.

I have been to NV 5 times this year, twice to Vegas and three times to

Reno, and they were all for business with vets. Reno was a lot of fun,

but I didn't even get out of the hotel from Tuesday until Friday. It was

in the 90s all week, I was told.

The only reason to look forward to tx is so it will be over sooner. I

wish I had started a year or more ago. The only real side effects that I

have noticed is the hair loss, but it will grow back.

Dick

At 08:11 AM 8/16/05, you wrote:

Getting

ready to take a trip to Rome and Madrid , then treatment for me

..............Was your trip this time to NV business or pleasure ? How was

Reno ? I havent been there since I was a child .Things are pretty busy

around here and I am almost looking forward to treatment so I have an

excuse to lay around , rofl I'm just so tired its rediculous .I want to

spend my days lounging in bed , lol And you what have you been up

to ?

Re: Good

morning

Good morning,

I am just back from a week in Reno.

Good to hear from you. How are things there?

Dick

At 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message

LOL

[Guest guest]

I lived just outside of Reno for about 9 months at the Bordertown Casino RV Park.

Love,Di

I'm not where I want to be,but I'm well on my waygodsowndi@...

Re: Good morning

Good morning,I am just back from a week in Reno. Good to hear from you. How are things there?DickAt 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message LOL

[Guest guest]

Hi,

I also saw where you were in San ...that is my hometown.

Dick

At 09:03 AM 8/16/05, you wrote:

I lived just outside of

Reno for about 9 months at the Bordertown Casino RV Park.

Love,

Di

I'm not where I

want to be,

but I'm well on my way

godsowndi@...

[Guest guest]

I had a cousin in San . Bruhn on Gawain Drive! It really is a small world.

Love,Di

I'm not where I want to be,but I'm well on my waygodsowndi@...

Re: Good morning

Hi,I also saw where you were in San ...that is my hometown.DickAt 09:03 AM 8/16/05, you wrote:

I lived just outside of Reno for about 9 months at the Bordertown Casino RV Park.

Love,Di I'm not where I want to be,but I'm well on my waygodsowndi@...

[Guest guest]

I lived mostly off of N First Street and then over by City

College.

Dick

At 09:18 AM 8/16/05, you wrote:

I had a cousin in San

. Bruhn on Gawain Drive! It really is a small

world.

Love,

Di

I'm not where I

want to be,

but I'm well on my way

godsowndi@...

Re: Good

morning

Hi,

I also saw where you were in San ...that is my hometown.

Dick

[Guest guest]

The last time I was in Cali I lived in Santa Cruz for a month doing "illegal street camping". The city, very thoughtfully, provided a weekday wake up service that went something like. "ALL RV'S MUST BE MOVED IN THE NEXT 15 MINUTES OR YOU WILL BE CITED! THIS IS NOT A CAMPGROUND!" over a bull horn at 5:00am, they didn't come by on the weekends and that was a nice break. Santa Cruz is an INCREDIBLE place. It's the only place that I've ever been that I would be willing to be homeless in order to live there. I have really good friends in Santa Cruz!

Love,Di

I'm not where I want to be,but I'm well on my waygodsowndi@...

Re: Good morning

Hi,

I also saw where you were in San ...that is my hometown.

Dick

[Guest guest]

Yeah hair grows back thank goodness , lol I am going to start treatment right as soon as I step off the plane from Europe . I will have the meds here and ready .You need to look around you when your out on business , take advantage of the trip and enjoy it a little

Re: Good morning

Good morning,

I am just back from a week in Reno.

Good to hear from you. How are things there?

Dick

At 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message LOL

[Guest guest]

Yeah hair grows back thank goodness , lol I am going to start treatment right as soon as I step off the plane from Europe . I will have the meds here and ready .You need to look around you when your out on business , take advantage of the trip and enjoy it a little

Re: Good morning

Good morning,

I am just back from a week in Reno.

Good to hear from you. How are things there?

Dick

At 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message LOL

[Guest guest]

Can you give me an idea how much hair I would be likely to lose? I don't mind the baldy look, but I would HATE for it to be "clumpy".

Love,Di

I'm not where I want to be,but I'm well on my waygodsowndi@...

Re: Good morning

Good morning,

I am just back from a week in Reno.

Good to hear from you. How are things there?

Dick

At 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message LOL

[Guest guest]

Can you give me an idea how much hair I would be likely to lose? I don't mind the baldy look, but I would HATE for it to be "clumpy".

Love,Di

I'm not where I want to be,but I'm well on my waygodsowndi@...

Re: Good morning

Good morning,

I am just back from a week in Reno.

Good to hear from you. How are things there?

Dick

At 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message LOL

[Guest guest]

Di, Everyone is different but mine got really,really thin and after tx it grew back prettier and full of body....Pat

Re: Good morning

Good morning,

I am just back from a week in Reno.

Good to hear from you. How are things there?

Dick

At 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message LOL

[Guest guest]

Di, Everyone is different but mine got really,really thin and after tx it grew back prettier and full of body....Pat

Re: Good morning

Good morning,

I am just back from a week in Reno.

Good to hear from you. How are things there?

Dick

At 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message LOL

[Guest guest]

Good job on losing 4 of the 6 pounds you gained. I have a dumb question - if you gained after going off the liquid diet in November, won't that happen again? That's also part of the reason I am not going to take those shots - though I did give it a second thought Sunday

good morning

Hi All --

Gained 6 pounds. Have lost 4 of them in the past week.

Have pretty much decided that I will be going back on the medically-supervised liquid fast. I've put about 20 pounds back on since going off it last November.

[Guest guest]

In the past week I've had appointments with both of my physicians and my dietitian; together we have decided that right now my focus is going to be keeping consistent, accurate food records -- and keep working on maintaining a 1400 calorie food intake and working on getting my exercise routine back on track. We will do that for a month and see what happens. My husband went with me to the appointments -- and he is going to work on the same goals as I am -- only with slightly more calorie intake. Doing it together is going to help -- as long as he doesn't become my "diet police".

Basically, I've resisted going back on the liquid fast -- because it really didn't teach me anything. Or I didn't learn how to eat in the "real world."

My primary care physician has been a really great cheerleader for me. She is encouraging & supportive. She has applauded me for continuing to work on this healthier lifestyle for the past two years. In fact, all three of them have told me that they are impressed that I am continuing with the program & continuing with the follow-up. A lot of other people just give up and drop out of the program.

My weight loss physician did put me back on a very low dosage of adapex (appetite suppressant). It does seem to be working. Not eating as much.

<bryefield@...> wrote:

Good job on losing 4 of the 6 pounds you gained. I have a dumb question - if you gained after going off the liquid diet in November, won't that happen again? That's also part of the reason I am not going to take those shots - though I did give it a second thought Sunday

Dacia <><

For it is by grace you have been saved, through faith — and this not from yourselves, it is the gift of God — not by works, so that no one can boast. Eph. 2:8-9

www.DeafJesus.org

[Guest guest]

thanks for the reply Dacia, I wasn't picking on

you just wondering. It's great hubby is doing it

with you. 1400 calories? is that enough? is

someone teaching how to eat in the real world

this time? Good luck to both of you

--- Dacia <DEReinke@...> wrote:

> In the past week I've had appointments with

> both of my physicians and my dietitian;

> together we have decided that right now my

> focus is going to be keeping consistent,

> accurate food records -- and keep working on

> maintaining a 1400 calorie food intake and

> working on getting my exercise routine back on

> track. We will do that for a month and see

> what happens. My husband went with me to the

> appointments -- and he is going to work on the

> same goals as I am -- only with slightly more

> calorie intake. Doing it together is going to

> help -- as long as he doesn't become my " diet

> police " .

>

> Basically, I've resisted going back on the

> liquid fast -- because it really didn't teach

> me anything. Or I didn't learn how to eat in

> the " real world. "

Live, Love, Laugh

[Guest guest]

Yeah, I have a really great dietitian who is working with me. My weight loss doc wanted me to go to 1000 calories a day. Just don't want to do that right now. May work on gradually getting down there -- will wait and see how it goes. One thing my doc tells me is that there are studies that show that everyone underestmiates their calorie intake by about 30% -- no matter how hard you work at keeping an accuarte food journal. I aim for 1400 cals a day -- knowing that I am probably getting more. I am going to work on holding to 1400 for a couple of weeks and see what happens. If the weight still isn't coming off, I will work on getting to 1200 cals a day. I find if I do it gradually, then my body gets used to it. I know going from 1600 to 1000 overnight is not a good thing for me to do.

<bryefield@...> wrote:

thanks for the reply Dacia, I wasn't picking onyou just wondering. It's great hubby is doing itwith you. 1400 calories? is that enough? issomeone teaching how to eat in the real worldthis time? Good luck to both of you

Dacia <><

For it is by grace you have been saved, through faith — and this not from yourselves, it is the gift of God — not by works, so that no one can boast. Eph. 2:8-9

www.DeafJesus.org

[Guest guest]

> Basically, I've resisted going back on the liquid fast -- because it

really didn't teach me anything. Or I didn't learn how to eat in the " real

world. "

That's about how I feel about liquid fasts and WLS.

>In fact, all three of them have told me that they are impressed that I am

continuing with the program & continuing with the follow-up. A lot of other

people just give up and drop out of the program.

It's nice to get an " atta girl " now and then.

Good luck, and happy journalling!

Sue in NJ

[Guest guest]

Dear ,

I am sorry to hear about your aunt diagnose, but you have found a very

informativ e and supportive group with us.

I would suggest you look at the archives to read some old post as well as

other sources of information.

www.CLLTopics.org is a very good source of information and useful to look

into.

The emotional side is very complex as everyone reacts in a different way but

having somebody like you to help and support your aunt is a tremendous help.

We are all here to help, please feel free to ask questions.

with best wishes

Chonette (UK)

dx 10-02 (aged 57)

> Message: 1

> Date: Mon, 22 Aug 2005 13:01:22 -0000

> From: " cupcake_lil " <cupcake_lil@...>

> Subject: Good Morning

>

> I just joined this group hoping to get some resources and support for

> my aunt. On Friday she found out that she has Stage 0 BCLL lymphoma.

> I think this forum is more to talk about the research and education

> around it, but with 200+ members, I'm sure many of you are also

> diagnosed with BCLL.

>

> She keeps telling me it's the best cancer to have, but she's also very

> emotional and is trying to get a grasp on it. The

> information/prognosis seems so vague. There's a support group here,

> but it meets once/month and she won't be able to get to it until October.

>

> I have found many resources on the internet - some scary, and some

> not-so-much. I was hoping to hear what has been useful for some of

> you, and maybe some first-hand accounts of how you coped with the

> first several days after diagnosis. It can be emailed to me personally

> too. Also, have any of you found a support group that deals

> more with the emotional side?

>

> Has anyone experienced face swelling? They're still trying to

> pinpoint what that's related to ...

>

> Thanks in advance for your help.

>

>

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Sorry this has taken so long. but I've been electronically challenged for a while now. I used to live in Santa Cruz. GREAT town!!!!Di <godsowndi@...> wrote:

The last time I was in Cali I lived in Santa Cruz for a month doing "illegal street camping". The city, very thoughtfully, provided a weekday wake up service that went something like. "ALL RV'S MUST BE MOVED IN THE NEXT 15 MINUTES OR YOU WILL BE CITED! THIS IS NOT A CAMPGROUND!" over a bull horn at 5:00am, they didn't come by on the weekends and that was a nice break. Santa Cruz is an INCREDIBLE place. It's the only place that I've ever been that I would be willing to be homeless in order to live there. I have really good friends in Santa Cruz!

Love,Di

I'm not where I want to be,but I'm well on my waygodsowndi@...

Re: Good morning

Hi,

I also saw where you were in San ...that is my hometown.

Dick

Take care,

Liz

[Guest guest]

Sorry this has taken so long. but I've been electronically challenged for a while now. I used to live in Santa Cruz. GREAT town!!!!Di <godsowndi@...> wrote:

The last time I was in Cali I lived in Santa Cruz for a month doing "illegal street camping". The city, very thoughtfully, provided a weekday wake up service that went something like. "ALL RV'S MUST BE MOVED IN THE NEXT 15 MINUTES OR YOU WILL BE CITED! THIS IS NOT A CAMPGROUND!" over a bull horn at 5:00am, they didn't come by on the weekends and that was a nice break. Santa Cruz is an INCREDIBLE place. It's the only place that I've ever been that I would be willing to be homeless in order to live there. I have really good friends in Santa Cruz!

Love,Di

I'm not where I want to be,but I'm well on my waygodsowndi@...

Re: Good morning

Hi,

I also saw where you were in San ...that is my hometown.

Dick

Take care,

Liz

[Guest guest]

I also live in San over by Aborn Drive. I see Dr. Ready at Kaiser in Santa Clara.Dick Southern <southern@...> wrote:

I lived mostly off of N First Street and then over by City College.DickAt 09:18 AM 8/16/05, you wrote:

I had a cousin in San . Bruhn on Gawain Drive! It really is a small world.

Love,Di I'm not where I want to be,but I'm well on my waygodsowndi@...

Re: Good morning

Hi,

I also saw where you were in San ...that is my hometown.

Dick

Take care,

Liz

[Guest guest]

- the more info you can give us, the more info you're likely to get -

we're not pros, but have all been through the mill - good luck, don't b

frightened, sounds like you're just at the very beginning of things -

[Guest guest]

Hi Di,

I'm Allan with 2 L's

I'm a non-responder after 8 months of the old "combo". I lost somewhere between a third to half of my hair. Not only on my head but all over my body (I was a pretty hairy guy). It mostly grew back except for parts of my body and not as thick on my head. Although for me it doesn't much matter as I wear a severe crewcut now.

I will tell you this. Of the literally hundreds of people I seen in person on TX only 1 lost a small clump of hair on his head although he also had a brain aneurysm which more than likely was the cause. I have heard ( and seen) it grow back a different color or even change, i.e. wavy/curly to straight and vice-a-versa. Mostly it's a "thinning".

It takes about 6 months for the bulk of it to grow back. I'm no less vain than anyone else but it the long run, the hair deal is kinda minor.

Allan with 2 L's cuts his own hair in 2 minutes

Re: Good morning

Good morning,

I am just back from a week in Reno.

Good to hear from you. How are things there?

Dick

At 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message LOL

[Guest guest]

Hi Di,

I'm Allan with 2 L's

I'm a non-responder after 8 months of the old "combo". I lost somewhere between a third to half of my hair. Not only on my head but all over my body (I was a pretty hairy guy). It mostly grew back except for parts of my body and not as thick on my head. Although for me it doesn't much matter as I wear a severe crewcut now.

I will tell you this. Of the literally hundreds of people I seen in person on TX only 1 lost a small clump of hair on his head although he also had a brain aneurysm which more than likely was the cause. I have heard ( and seen) it grow back a different color or even change, i.e. wavy/curly to straight and vice-a-versa. Mostly it's a "thinning".

It takes about 6 months for the bulk of it to grow back. I'm no less vain than anyone else but it the long run, the hair deal is kinda minor.

Allan with 2 L's cuts his own hair in 2 minutes

Re: Good morning

Good morning,

I am just back from a week in Reno.

Good to hear from you. How are things there?

Dick

At 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message LOL

[Guest guest]

Actually, I'm kind of looking forward to doing the "Kojac" thing (I knew a doberman in Las Vegas with that name, but of course he wasn't bald) ... and if I come out of it with curly hair SO MUCH THE BETTER!

Love,DiToday is the first day of the rest of my life.Like I really need that kind of pressure!godsowndi@...

Re: Good morning

Good morning,

I am just back from a week in Reno.

Good to hear from you. How are things there?

Dick

At 07:16 AM 8/16/05, you wrote:

Good morning Dick , that is an awesome wakeup message LOL