?

[Guest guest]

Thanks for your input, Priscilla.

We have been thinking about his heart too, since he has a small ASD II which is supposed to be slowly closing by itself as we were told by the cardiologist. He just had an ultrasound checkup last July and they said everything was fine. When he was about 2 months old he had a MRI of the heart done as well, just to make sure they hadn't missed anything with the previous ultrasound. But you never know, do you? I'll keep it in mind.

Re: ?

Evan also had the slow gastric emptying --we were able to draw upfrom the NG tube his total feed from 3 hours before. It wasvirtually untouched, undigested, the same. They tried Cisapride butit didn't make any difference and this drug was taken off the marketlater due to causing heart problems in little ones. They never didknow why Evan had this slow emptying --but that was probably onereason he would throw up -I mean a stomach can't hold one feed on topof another very long --but maybe it was all tied in to the heartproblem since it got better when that got better?? I dunno. Also, Ilearned that the NG tube can cause reflux and when we got rid of itlater after heart surgery, no more reflux and its accompanying pain.Priscilla K>>>>> " Müller" mueller-= Thanks, Carol.Well, didn't get a tube placed as a solution, rather to keephim alive. If he hadn't had one for the last 2 weeks he wouldprobably have starved to death, for he isn't drinking and eating atall anymore. I think the situation is way past fiddling around withdietary measures. The enteral food he is getting now is called"Frebini", a liquid containing all kinds of SCD incompatible thingslike oat fiber, maltodextrine, lactose etc., but still he hasn't beenshowing any aversion (yet). I'll talk to the doctors about having himtested for food intolerances/allergies, as he reacts badly toyoghurt, also the SCD type, I'm afraid. We believe that the SCDhelped him for some time because it is a very light diet, but itdidn't help his underlying problem, which Saskia and I think might becaused by delayed gastric emptying (an example: we fed him a yoghurton hospital-day-two because the docs wanted to record how he reactsto normal food - they don't believe in SCD - and astonishingly hegobbled it up without hesitating - he really enjoyed it - but then hewas sick with it from 8am to 6pm, so that means it got stuck in histummy without moving further down). So next to food allergies thenext thing we'll try to find out if the specialists are willing totry erythromycin, a safe motility drug. I really, really hope thatthis will turn out to be the solution, otherwise he's in forsurgery...Trying to keep our peckers up,, with Saskia, Nora-Jane & /DS/GERD/ASDII>>>>>>>>Priscilla Kendrick, married 29 years to Darrel and parents of 9 kids including Evan, 10, born with Down Syndrome and Spina Bifida"My strength is made perfect in weakness." "My grace is sufficient." II Corinthians 12:9 KJV__________________________________________________

[Guest guest]

Hi -

So sorry to hear of the problems is still having. It gets old, doesn’t

it? Hang in there…we are praying for your family and the doctors, too.

Danny had a LOT of problems with delayed

gastric emptying/vomiting when he was an infant. Meds never worked for him-but the

problem  did clear up right after he had his heart repair. But he had a large

and very obvious heart defect, that gave him a lot of symptoms.

Here is a list of Ds clinics in the US…maybe someone at one of

these clinics had dealt with a patient with similar problems and would have

some insight for you about what is going on w/.. couldn’t hurt to send

an email to ask, anyway.

http://www.ds-health.com/clinics.htm

KathyR

>>>>> " Müller " mueller-=

Thanks, Carol.

Well, didn't get a tube placed as a solution, rather to keep

him alive. If he hadn't had one for the last 2 weeks he would

probably have starved to death, for he isn't drinking and eating at

all anymore. I think the situation is way past fiddling around with

dietary measures. The enteral food he is getting now is called

" Frebini " , a liquid containing all kinds of SCD incompatible things

like oat fiber, maltodextrine, lactose etc., but still he hasn't been

showing any aversion (yet). I'll talk to the doctors about having him

tested for food intolerances/allergies, as he reacts badly to

yoghurt, also the SCD type, I'm afraid. We believe that the SCD

helped him for some time because it is a very light diet, but it

didn't help his underlying problem, which Saskia and I think might be

caused by delayed gastric emptying (an example: we fed him a yoghurt

on hospital-day-two because the docs wanted to record how he reacts

to normal food - they don't believe in SCD - and astonishingly he

gobbled it up without hesitating - he really enjoyed it - but then he

was sick with it from 8am to 6pm, so that means it got stuck in his

tummy without moving further down). So next to food allergies the

next thing we'll try to find out if the specialists are willing to

try erythromycin, a safe motility drug. I really, really hope that

this will turn out to be the solution, otherwise he's in for

surgery...

Trying to keep our peckers up,

, with Saskia, Nora-Jane &

/DS/GERD/ASDII>>>>>>>>

[Guest guest]

I have seen quite a few pieces of info

here, Duece I don’t understand what the problem is.

Nikki

Hello any one there;

Did I wander off from the main body of this site, I assume

(I Know) there are areas of reference I could gather for understanding the

medical and legal ramification, procedures I can associate with my case. Writing earlier showed some hope I was on the

right track, I am beginning to think there is a forum with uninfected

people, to concentrate on issues I have, I've received enough cold shoulders,

from work, State Fund, Workers Comp, a team of Doctors, and enough Legal

personnel to sink a ship, " is that a good thing " . I need attention focused on my peril. This has never been my character, but I'm now

facing an intangible foe. Please

inform me as to a place to further my gathering of facts and stats on this

ailment.

Thanks Deuce

__._,_.___

[Guest guest]

I am not sure what you are talking about as far as the legal ramifications as far as the disease goes. Medical yeah we can look up for you or have the answers right off the top of our heads because we have been researching it so long. But legal matters is something I am not comfortable giving advice on as I am not a paralegal or a Attorney. We do have a member here associated with a Law firm, but other than giving you general advice, I think that they would have you talk to a Lawyer that deals with medical issues. Because workman's comp, is one sort of issues, SSI another,SSDI another and so forth. It is like searching for a doctor that specializes in your particular need. Anyway we will try to help in anyway we can. Love JanetJackie on <redjaxjm@...>

wrote: Hi Deuce First off, welcome to the group. I am Jax, one of the moderators here on this forum. Im not sure what info you are looking for or what questions you have, so maybe you could rewrite your post and ask us specifically what you want to know, then we can find answers for you... I hope you will feel comfortable with our group, we are from all over the world! jaxThe Deuce <twoballcomcast (DOT) net> wrote: Hello any one there; Did I wander off from the main body of this site, I assume (I Know) there are areas of reference I could gather for understanding the medical and legal ramification, procedures I can associate with my case. Writing earlier showed some hope I was on the right track, I am beginning to think there is a forum with uninfected people, to concentrate on issues I have, I've received enough cold shoulders, from work, State Fund, Workers Comp, a team of Doctors, and enough Legal personnel to sink a ship, "is that a good thing". I need attention focused on my peril. This has never been my character, but I'm now facing an intangible foe. Please inform me as to a place to further my gathering of facts and stats on this

ailment. Thanks Deuce Jackie Take the ordinary

things of life, and make them your own. Do the impossible with a smile

[Guest guest]

The CDC and the NIH websites have excellent stats on hep c , and there are even a few web sites for hep c veterans

?

Hello any one there;

Did I wander off from the main body of this site, I assume (I Know) there are areas of reference I could gather for understanding the medical and legal ramification, procedures I can associate with my case. Writing earlier showed some hope I was on the right track, I am beginning to think there is a forum with uninfected people, to concentrate on issues I have, I've received enough cold shoulders, from work, State Fund, Workers Comp, a team of Doctors, and enough Legal personnel to sink a ship, "is that a good thing". I need attention focused on my peril. This has never been my character, but I'm now facing an intangible foe. Please inform me as to a place to further my gathering of facts and stats on this ailment.

Thanks Deuce

[Guest guest]

Hi Connie

I've just got back from 2 weeks holiday and am feeling well thanks It's

almost 6 weeks since my hip replacement: I still get sore by the end of the

day, but that is usually because I am fairly active. I have been kayaking

and can use an exercycle for 20 minutes now. Walking is the hardest thing -

if I walk too much (go shopping, for instance) I start to limp. Still using

2 sticks when out and about, but none when pottering around the house. I can

definitely see improvement each day and am really grateful for the surgery!

[Guest guest]

Wonderful news . Thank God for answered prayer. Keep up the improvements

each day.

Thanks for your concern in my health condition. I just have to take it in

stride and think of it as just another thing to do daily.

Blessings

Fr. Dave

[Guest guest]

glad to hear youre doing so well after major surgery wendy.

james

__________________________________________________

[Guest guest]

Hi ,

I guess I didn't know you had hip surgery? Sorry for that, but I'm

glad it's going so well. You sound like a great example to everyone.

You have stayed active and fit it sounds like.

Do you mind if I ask how old you are? I just see a lot of people on

this site that are getting or have gotten hip replacements and I

didn't think that was supposed to be par for the course with Reiters.

It's not supposed to destroy joints I thought. So I'm wondering if

I'm going to be looking at this and when? I'm 35 now. Oh--and I'm

still in the wheelchair--but I'm about 50% out of it--seem to have hit

plateau, when I try to do more on my feet--they swell and hurt. Baby

steps for now I guess. I plan to be hiking 5-10 miles by summer!

Anyway, congrats on your recovery.

[Guest guest]

said: " I have been kayaking "

-

WOW - my husband, who is a kayaker, is impressed and I'm really

impressed! I haven't even tried to get into his. Way to go!

Meg

[Guest guest]

Hi Meg

It was so much fun and only uses upper body strength. I had to be careful of

the 90 degree rule of course! Before my surgery I had done some kayaking

too, even with my bad hip and swollen knee: I could go much faster on the

water than I could go using my legs to walk and it's a great feeling

[Guest guest]

Sounds wonderful ! I'm new to the group will give an mini intro a

little laters

Marie

[Guest guest]

Hi ,

I am so glad you are having such an excellent recovery! You are an

inspiration. Kayaking great upper body exercise. It is so peaceful and

I love being so near the water. It is a spiritual experience for me. I

am curious, where do you kayak?

in CA

>> water than I could go using my legs to walk and it's a great

feeling

[Guest guest]

Hi ,, I can understand your concern regarding this issue but one of the main things with tx is being able to get through it and most ppl WILL need medications for the side effects.. Anti-depressants are VERY necessary as the Interferon depletes your brain of its 'normal' levels and THAT increases depression and insomnia and a host of other problems,its not just 'in our heads', the depression IS REAL because its proven that the INF depletes the brain seretonin , so the Anti-depressants are really needed... Pain meds are also needed for some (most) people.. Do you remember the last time you had a real flu and you had that fever and it caused your body to hurt from head to toe?? THAT pain was from the natural occurring Interferons in your body as its trying to fight the flu bug,, well when you use Interferon shots, it raises the interferons in your body hugely, much worse than what you felt when you had the flu and experienced what I just

spoke about... I have had Fibromyalgia since I was a little girl and the Interferon and Riba caused a HUGE increase in my body aches and pains and had it not been for the better pain meds, I could never have finished my tx.. I couldnt even get out of bed without the pain meds and I STILL cannot get out of bed until a good hour after I have taken my morning dose of morphine.. My doc switched me from the norco to morphine ( because the norco still has tylenol even tho a smaller amount but still has it and long term use of tylenol is even worse on the liver than other pain meds)for long term care of my fibro, osteo, Rheumatoid, my sarcoidosis that were all exacerbated by tx.. so its matter of survival for me now,, Im sure I'd end my life if I didnt have at least this much pain control.. I am ALWAYS in pain, even with the morphine I take,, but at the doses I take, Im never high from it( most ppl can't tell I have even taken anything),, and it never gets rid of all the

pain.. I know many many others just like me.. after tx who have lots of long term and very permanent damage from tx... in fact,, like your sister,, some ppl actually get worse or die from treatment and for some ppl, treatment causes their hep c to run quickly into end stage liver failure.. its sort of a crap shoot.. at best... Your sister failed tx and that is unfortunate but I honestly do NOT believe it had anything to do with her taking her prescribed meds unless they were liver UNfriendly... some meds are very damaging to the liver, like cymbalta for depression or lots of Tylenol, or iron pills for anemia etc,, but without the sides being treated, most ppl are unable to complete treatment OR they end up using other forms of drugs ( illegal street drugs) just to be able to tolerate this tx..Or they stop treatment and then this virus mutates. I would suggest that ANYONE who thinks that we can do this tx without pain meds and or sleeping meds along

with depression meds should take just ONE shot of this stuff and see how they feel about it after that... I know that sounds really rude and I dont mean it to be but unless one has gone through this, you cannot imagine just how awful this one little shot can make you feel,, it has anti-freeze in it to make it stay in your system longer so its not like you can take this shot and within an hour or two all the bad sides from the shot are gone,, it lasts days, weeks and months... , this is just my opinion,, and I hope I havent offended you because that is not my intention,, but honestly, unless you have had a shot of this stuff,, you really have no idea of how it makes you feel... Our livers are sick and yes, it IS better if one doesnt need to take many more drugs other than the tx but that is not always possible.. jackierichard gill <rbg11163@...> wrote: i see alot of post that suggest taking drugs for the blahs,pain ect.all i know is my sister continued to take drugs(yes prescribed ones) while she went through her treatment and she ended up not clearing, almost dieing and getting a new liver.i dont think she ever had a viral load drop like i had either (9mil/94,000).so the sides are bad- but are drugs the answer? Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Jackie

[Guest guest]

,, I see that you HAVE done tx,, I guess I forgot that,, well maybe you didnt experience the same sides as your sister,, Jackie on <redjaxjm@...> wrote: Hi ,, I can understand your concern regarding this issue but one of the main things with tx is being able to get through it and most ppl WILL need medications for the side effects.. Anti-depressants are VERY necessary as the Interferon depletes your brain of its 'normal' levels and THAT increases depression and insomnia and a

host of other problems,its not just 'in our heads', the depression IS REAL because its proven that the INF depletes the brain seretonin , so the Anti-depressants are really needed... Pain meds are also needed for some (most) people.. Do you remember the last time you had a real flu and you had that fever and it caused your body to hurt from head to toe?? THAT pain was from the natural occurring Interferons in your body as its trying to fight the flu bug,, well when you use Interferon shots, it raises the interferons in your body hugely, much worse than what you felt when you had the flu and experienced what I just spoke about... I have had Fibromyalgia since I was a little girl and the Interferon and Riba caused a HUGE increase in my body aches and pains and had it not been for the better pain meds, I could never have finished my tx.. I couldnt even get out of bed without the pain meds and I STILL cannot get out of bed until a good hour after I have taken my

morning dose of morphine.. My doc switched me from the norco to morphine ( because the norco still has tylenol even tho a smaller amount but still has it and long term use of tylenol is even worse on the liver than other pain meds)for long term care of my fibro, osteo, Rheumatoid, my sarcoidosis that were all exacerbated by tx.. so its matter of survival for me now,, Im sure I'd end my life if I didnt have at least this much pain control.. I am ALWAYS in pain, even with the morphine I take,, but at the doses I take, Im never high from it( most ppl can't tell I have even taken anything),, and it never gets rid of all the pain.. I know many many others just like me.. after tx who have lots of long term and very permanent damage from tx... in fact,, like your sister,, some ppl actually get worse or die from treatment and for some ppl, treatment causes their hep c to run quickly into end stage liver failure.. its sort of a crap shoot.. at best... Your sister failed tx and

that is unfortunate but I honestly do NOT believe it had anything to do with her taking her prescribed meds unless they were liver UNfriendly... some meds are very damaging to the liver, like cymbalta for depression or lots of Tylenol, or iron pills for anemia etc,, but without the sides being treated, most ppl are unable to complete treatment OR they end up using other forms of drugs ( illegal street drugs) just to be able to tolerate this tx..Or they stop treatment and then this virus mutates. I would suggest that ANYONE who thinks that we can do this tx without pain meds and or sleeping meds along with depression meds should take just ONE shot of this stuff and see how they feel about it after that... I know that sounds really rude and I dont mean it to be but unless one has gone through this, you cannot imagine just how awful this one little shot can make you feel,, it has anti-freeze in it to make it stay in your system longer so its

not like you can take this shot and within an hour or two all the bad sides from the shot are gone,, it lasts days, weeks and months... , this is just my opinion,, and I hope I havent offended you because that is not my intention,, but honestly, unless you have had a shot of this stuff,, you really have no idea of how it makes you feel... Our livers are sick and yes, it IS better if one doesnt need to take many more drugs other than the tx but that is not always possible.. jackierichard gill <rbg11163 > wrote: i see alot of post that suggest taking drugs for the blahs,pain ect.all i know is my sister continued to take drugs(yes prescribed ones) while she went through her treatment and she ended up not clearing, almost dieing and getting a new liver.i dont think she ever had a viral

load drop like i had either (9mil/94,000).so the sides are bad- but are drugs the answer? Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Jackie Jackie

[Guest guest]

> what is tx?

> From: Jackie on <redjaxjm@...>

> Date: 2007/05/07 Mon PM 06:48:53 MDT

> Hepatitis C

> Subject: Re: ?

>

> ,, I see that you HAVE done tx,, I guess I forgot that,, well maybe you

didnt experience the same sides as your sister,,

>

> Jackie on <redjaxjm@...> wrote: Hi ,,

> I can understand your concern regarding this issue but one of the main

things with tx is being able to get through it and most ppl WILL need

medications for the side effects.. Anti-depressants are VERY necessary as the

Interferon depletes your brain of its 'normal' levels and THAT increases

depression and insomnia and a host of other problems,its not just 'in our

heads', the depression IS REAL because its proven that the INF depletes the

brain seretonin , so the Anti-depressants are really needed... Pain meds are

also needed for some (most) people.. Do you remember the last time you had a

real flu and you had that fever and it caused your body to hurt from head to

toe?? THAT pain was from the natural occurring Interferons in your body as its

trying to fight the flu bug,, well when you use Interferon shots, it raises the

interferons in your body hugely, much worse than what you felt when you had the

flu and experienced what I just spoke about... I have had Fibromyalgia

> since I was a little girl and the Interferon and Riba caused a HUGE increase

in my body aches and pains and had it not been for the better pain meds, I could

never have finished my tx.. I couldnt even get out of bed without the pain meds

and I STILL cannot get out of bed until a good hour after I have taken my

morning dose of morphine.. My doc switched me from the norco to morphine (

because the norco still has tylenol even tho a smaller amount but still has it

and long term use of tylenol is even worse on the liver than other pain meds)for

long term care of my fibro, osteo, Rheumatoid, my sarcoidosis that were all

exacerbated by tx.. so its matter of survival for me now,, Im sure I'd end my

life if I didnt have at least this much pain control.. I am ALWAYS in pain, even

with the morphine I take,, but at the doses I take, Im never high from it( most

ppl can't tell I have even taken anything),, and it never gets rid of all the

pain.. I know many many others just like me..

> after tx who have lots of long term and very permanent damage from tx... in

fact,, like your sister,, some ppl actually get worse or die from treatment and

for some ppl, treatment causes their hep c to run quickly into end stage liver

failure.. its sort of a crap shoot.. at best... Your sister failed tx and that

is unfortunate but I honestly do NOT believe it had anything to do with her

taking her prescribed meds unless they were liver UNfriendly... some meds are

very damaging to the liver, like cymbalta for depression or lots of Tylenol, or

iron pills for anemia etc,,

> but without the sides being treated, most ppl are unable to complete

treatment OR they end up using other forms of drugs ( illegal street drugs) just

to be able to tolerate this tx..Or they stop treatment and then this virus

mutates. I would suggest that ANYONE who thinks that we can do this tx without

pain meds and or sleeping meds along with depression meds should take just ONE

shot of this stuff and see how they feel about it after that... I know that

sounds really rude and I dont mean it to be but

> unless one has gone through this, you cannot imagine just how awful this one

little shot can make you feel,, it has anti-freeze in it to make it stay in your

system longer so its not like you can take this shot and within an hour or two

all the bad sides from the shot are gone,, it lasts days, weeks and months...

> , this is just my opinion,, and I hope I havent offended you because

that is not my intention,, but honestly, unless you have had a shot of this

stuff,, you really have no idea of how it makes you feel... Our livers are sick

and yes, it IS better if one doesnt need to take many more drugs other than the

tx but that is not always possible..

> jackie

>

> richard gill <rbg11163@...> wrote:

> i see alot of post that suggest taking drugs for the blahs,pain ect.all

i know is my sister continued to take drugs(yes prescribed ones) while she went

through her treatment and she ended up not clearing, almost dieing and getting a

new liver.i dont think she ever had a viral load drop like i had either

(9mil/94,000).so the sides are bad- but are drugs the answer?

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check out new cars at Autos.

>

>

>

>

>

>

> Jackie

>

>

>

>

> Jackie

>

ROSY

[Guest guest]

hon, Im sorry I didnt make that clear,,, tx means treatment... ROSYJ34@... wrote: > what is tx?> From: Jackie on <redjaxjm >> Date: 2007/05/07 Mon PM 06:48:53 MDT> Hepatitis C > Subject: Re: ?> > ,, I see that you HAVE done tx,, I guess I forgot that,, well maybe you didnt

experience the same sides as your sister,, > > Jackie on <redjaxjm > wrote: Hi ,, > I can understand your concern regarding this issue but one of the main things with tx is being able to get through it and most ppl WILL need medications for the side effects.. Anti-depressants are VERY necessary as the Interferon depletes your brain of its 'normal' levels and THAT increases depression and insomnia and a host of other problems,its not just 'in our heads', the depression IS REAL because its proven that the INF depletes the brain seretonin , so the Anti-depressants are really needed... Pain meds are also needed for some (most) people.. Do you remember the last time you had a real flu and you had that fever and it caused your body to hurt from head to toe?? THAT pain was from the natural occurring Interferons in your body as its trying to fight the flu bug,, well when you use

Interferon shots, it raises the interferons in your body hugely, much worse than what you felt when you had the flu and experienced what I just spoke about... I have had Fibromyalgia> since I was a little girl and the Interferon and Riba caused a HUGE increase in my body aches and pains and had it not been for the better pain meds, I could never have finished my tx.. I couldnt even get out of bed without the pain meds and I STILL cannot get out of bed until a good hour after I have taken my morning dose of morphine.. My doc switched me from the norco to morphine ( because the norco still has tylenol even tho a smaller amount but still has it and long term use of tylenol is even worse on the liver than other pain meds)for long term care of my fibro, osteo, Rheumatoid, my sarcoidosis that were all exacerbated by tx.. so its matter of survival for me now,, Im sure I'd end my life if I didnt have at least this much pain control.. I am ALWAYS in pain, even with the

morphine I take,, but at the doses I take, Im never high from it( most ppl can't tell I have even taken anything),, and it never gets rid of all the pain.. I know many many others just like me..> after tx who have lots of long term and very permanent damage from tx... in fact,, like your sister,, some ppl actually get worse or die from treatment and for some ppl, treatment causes their hep c to run quickly into end stage liver failure.. its sort of a crap shoot.. at best... Your sister failed tx and that is unfortunate but I honestly do NOT believe it had anything to do with her taking her prescribed meds unless they were liver UNfriendly... some meds are very damaging to the liver, like cymbalta for depression or lots of Tylenol, or iron pills for anemia etc,,> but without the sides being treated, most ppl are unable to complete treatment OR they end up using other forms of drugs ( illegal street drugs) just to be able to tolerate this tx..Or they stop

treatment and then this virus mutates. I would suggest that ANYONE who thinks that we can do this tx without pain meds and or sleeping meds along with depression meds should take just ONE shot of this stuff and see how they feel about it after that... I know that sounds really rude and I dont mean it to be but> unless one has gone through this, you cannot imagine just how awful this one little shot can make you feel,, it has anti-freeze in it to make it stay in your system longer so its not like you can take this shot and within an hour or two all the bad sides from the shot are gone,, it lasts days, weeks and months...> , this is just my opinion,, and I hope I havent offended you because that is not my intention,, but honestly, unless you have had a shot of this stuff,, you really have no idea of how it makes you feel... Our livers are sick and yes, it IS better if one doesnt need to take many more drugs other than the tx but that is not always

possible..> jackie> > richard gill <rbg11163 > wrote:> i see alot of post that suggest taking drugs for the blahs,pain ect.all i know is my sister continued to take drugs(yes prescribed ones) while she went through her treatment and she ended up not clearing, almost dieing and getting a new liver.i dont think she ever had a viral load drop like i had either (9mil/94,000).so the sides are bad- but are drugs the answer? > ---------------------------------> Ahhh...imagining that irresistible "new car" smell?> Check out new cars at Autos. > > > > > > > Jackie > > > > > Jackie> ROSYJackie

[Guest guest]

I'm not into planes though: they remind me of getting air sick. Now, the last time they had a military vehicle show on the army base here I was sorely tempted to make some offers on a couple of WWII vehicles. It was more the maintenance issue that prevented me than the straight purchase cost, which would have hurt in themselves. I just don't have the contacts and resources to keep them up, and it would be terrible to have them sit out there and rot.

Get a sneak peek of the all-new AOL.com.

[Guest guest]

I did. I had a total thyroidectomy. Returned 2 times. Iodine keeps my markers down. You can read my story on my website at www.naturalthyroidchoices.com

No longer afraid as I have removed amalgams, root canal tooth and detoxed. I also eat gluten free and organic.

Steph

?

Anyone out ther get a lobectomy for papillary thyroid cancer and if yeswhat was the size?Are you scared it will come back?

[Guest guest]

I used sea salt on my feet and it caused thyroid storm I ended up in hospital

they took ct and found nadule in thyroid 6 months latter it was biopsed

and it was small papillar carcinoma.

It seems the sea salt caused all my problems!

From: ladybugsandbees <ladybugsandbees@...>Subject: Re: ?iodine Date: Wednesday, November 19, 2008, 10:18 PM

I did. I had a total thyroidectomy. Returned 2 times. Iodine keeps my markers down. You can read my story on my website at www.naturalthyroidc hoices.com

No longer afraid as I have removed amalgams, root canal tooth and detoxed. I also eat gluten free and organic.

Steph

?

Anyone out ther get a lobectomy for papillary thyroid cancer and if yeswhat was the size?Are you scared it will come back?

[Guest guest]

Sea salt would not cause thyroid storm. There isn't enough iodine in it to effect your thyroid through your feet. The only reason salt has iodine is because man put it in it and then it evaporates when exposed to the air.

Secondly if you were exposed to iodine in the salt it is cancer PROTECTIVE not EVOKING.

Steph

?

Anyone out ther get a lobectomy for papillary thyroid cancer and if yeswhat was the size?Are you scared it will come back?

[Guest guest]

hi liz, i'm in southern china, eastern guangdong province to be exact. i suffer

from reiters and according to my doctor, undifferentiated spondyloarthrapathy.

if you have a friend in asia somewhere please send them my way.

best wishes liz ~ james

From: Liz_K <juliette@...>

Subject: ?

Cc: " Liz_K " <juliette@...>

Date: Monday, December 7, 2009, 6:22 PM

 

Wheere are you in Asia? Someone is looking fo support there for sjogrens.

I cant remember if you have any sjogrens as one of your related disorders.

(I do and I know at least one other person on this list does as well.

Liz Kilpatrick

On the banks of the Mighty Mississippi River, Davenport,IA/ Quad

cities

~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~

Life has no limitations, except the ones you make. + Les Brown

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EMAIL: julietteinebraska (DOT) com

PERSONAL HOMEPAGE PAGE http://members. tripod.com/ ~LizK

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[Guest guest]

Thank you !

I know that even though sjogren's is slightly different he suffers many

of the same things that bother everyone with Immune system stuff.

Liz

Kilpatrick On the banks of the Mighty Mississippi River, Davenport,IA/Quad

cities

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Life has no limitations, except the ones you make. + Les Brown

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@...

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

seventeen MDs lined up around a billing trough?

Sunny

Sunny Kierstyn, RN DC Fibromyalgia Care Center of Oregon 2677 Willakenzie Road, 7CEugene, Oregon, 97401541- 654-0850; Fx; 541- 654-0834www.drsunnykierstyn.com

From: caughlindrc@...Date: Fri, 8 Jan 2010 08:06:23 -0800Subject: ?

Anyone have any info on what a “multidisciplinary pain evaluation” involves?

DR. CHARLES A CAUGHLIN DC CAC

155 NW 1ST

JOHN DAY, OR 97845

541-575-1063

Hotmail: Trusted email with powerful SPAM protection. Sign up now.

[Guest guest]

seventeen MDs lined up around a billing trough?

Sunny

Sunny Kierstyn, RN DC Fibromyalgia Care Center of Oregon 2677 Willakenzie Road, 7CEugene, Oregon, 97401541- 654-0850; Fx; 541- 654-0834www.drsunnykierstyn.com

From: caughlindrc@...Date: Fri, 8 Jan 2010 08:06:23 -0800Subject: ?

Anyone have any info on what a “multidisciplinary pain evaluation” involves?

DR. CHARLES A CAUGHLIN DC CAC

155 NW 1ST

JOHN DAY, OR 97845

541-575-1063

Hotmail: Trusted email with powerful SPAM protection. Sign up now.