Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 , Would you please explain more about glyconutrients for me? Do you mean vitamins, supplements, etc? ~ G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Hi Lynda, I was diagnosed with cmt in 1994, and have gotten to a point that my calves have shrunk conciderally I would like to know what glyconutrients are and where can I buy them,, I'm trying something which for some people might be a little extreme if this works for me I let everyone know how I've done ,by the way I'm 45 and hope to keep you and everyone posted take care hope to hear from you soon thanks bob.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 > , is this what you mean? http://www.createlight.com/nobel.html > > ~ Dear Gretchen, This is exactly what Iam talking about and these will totally change your life as they have changed mine. I intend to take this to the world to every cmt suffer like myself and if you would love to be part of this and work with me as a team player I would so enjoy this. You have to had expereince cmt to empathize with others and this is my heart. Could you please email me you address, phone number and details so I know from what country you come from. The company that supplies these patented glyconutrients are now trading in USA, UK, Japan, Australia and New Zealand. This year they open another patent and start trading in Mexico and South Korea. I will fully explain how you can get these products when you next make contact so you can also find the quality of life that I have found. Looking forward to hearing from you Your friend always Lynda Creamer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 What country do you live in Bob, this is important. To get these products the company has a patent on there products and so they are not available everywhere yet; At present they are trading in UK, USA, Japan, Australia and New Zealand. Canada. This year in South Korea and Mexico the patent has been excepted by government and they will start trading soon. If you can give me you address, place of residence I will be able to inform you how to get this product. If you are not in one of these countries I will explain ways of getting this product to you by other means. Very hard to advise you any other way until I know where you live. Look forward to hearing from you Your friend always Lynda Creamer cmt suffer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 , Thanks for the repsonse. No, I am not interested in this product. And for obvious reasons I cannot endorse something like this. And where is the CMT data? I think it is wonderful this has helped you. But remember, not everything works for everyone with CMT. Some people experience toxic reactions. In the past I have shared about my CMT and how I manage it and the good that Vit E and my Iron does. Both of these were medically suggested to me by my internist. I am very happy, like I said, and have a full, active life and do not " suffer " . If I was suffering in anyway, I would see my doctor first. Exercise, diet, sleep are my 3 standards for managing my CMT. ~ G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Hello Gretchen, I agree with you. This is the scientific way of managing CMT. Always look at the data, then ask your doctor. You do not want to damage your muscles or nerves, or feel good for a day and regret your action for the rest of your life. This is an educated group, this is what I like about this group. If some treatment works for someone, great Ask your doctor before you try it. Your doc is the only one that knows the safety of the treatment. No matter how much you are educated you are not qualified as a doctor who practices medicine. I have no problem of taking vitamin supplement except for excessive amount of B6, changing diet, calorie counting, etc Exercise is always good for you as long as you do not injure yourself, it is good for your circulation, your weight management, it makes you feel good, and at the same time it makes feel strong. My doctor tells me not take mineral supplements, since the addition of one means the lack of others. Minerals have to be balanced in the body but there are exceptions for people who suffer from lack of a certain mineral. When I was trying cholesterol medication, my doctor gave me samples, of lipitor, zycore, etc I would try it for three days if I have muscle pain, then I would stop it for three days to see if the symptoms go away then I would used again for three days to see if the symptoms appear again before I ruled out the medication. So basically my doc is telling me to listen to my body and what affects my body. I do this with almost every medication or supplement now unless it is a must. Sleep is always good. It is good for your psych as well as it is good for your body, my doc recommends it, I recommend it. I like Gretchen, take vitamin E 400 mg daily, 500 mg Niacin (at night to lower my cholesterol) and a baby 81 mg aspirin to counter the flush affect of Niacin and thins the blood. Do I suffer from CMT, yes I admit that I do suffer from CMT. I do have an active life, do what I want pretty much and go where I want. I can not carry heavy or bulky things like I used to. I can not step up the pavement with out leaning on someone, I use the handicap ramp all the time. Did I learn to live with CMT? Yes. Still I do have hope that, someday, somebody will find a cure for CMT. But I am also realistic that even if there is a cure for CMT now to regain the strength that I used to have will take time and training effort on my part as well:-) Nidal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 The good news has always been that your body can make glyconutirents, but at what cost? The energy required to produce glycoforms takes a tremendous toll on the body leaving us feeling tired all the time. Sounds like chronic fatigue, etc.... Duncan Crow <duncancrow@...> wrote: More accurately, glyconutrients are non-essential to healthy people because we make them in our bodies, and they are " conditionally essential " to SOME of the very ill people who for some reason are producing SOME of them in amounts that are a bit too low. Given that glyconutrients are common and you can simply select foods that contain the ones you choose to take more of, as I did with the glyconutrient pudding and this healingcancernaturally.com site shows with the home brew substitutes, glyconutrient powder and " glyconutrient jam " , http://www.healingcancernaturally.com/glyconutrients- substitutes.html .... plus the fact that you don't need much of them anyway, measured in hundredths to tenths of a gram except for the glucose which of course is plentiful in the diet, the best part about the information is the science that shows the importance of glycoproteins and a good, varied diet in general Duncan On 7 Nov 2006 at 13:05, cures for cancer wrote: > The best way I can describe them to you is that is that we need 8 > essential glyconutrients for our cells to communicate with one another > and restore - I think with todays foods we might get 2! So, our cells > are unable to communicate or see if there is a need within our body. > It would be like me having to send you an email and only being able to > use 12 of the letters from the alaphabet. I have read and seen > powerful testimonies as well - which is why I have him on them. > > Please contact me if you would like more information. > > Christy > --------------------------------- Sponsored Link $200,000 mortgage for $660/mo - 30/15 yr fixed, reduce debt, home equity - Click now for info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 I think that Duncan is only verbalizing and asking questions that most are thinking. That's why this board is so important. That said, I must admit that I also have concerns about this type of marketing. I want to be open-minded, but I also don't want to invest in a product that may not be helpful. Any further thoughts from anyone out there is welcome. Thanks, --- Duncan Crow <duncancrow@...> wrote: > , there's no " tremendous toll " for most of us; > that's only > marketing talk. The ready supply of glyconutrients > in our food > prevents it. We have only has to select a few of > these foods > periodically because the conditionally essential > sugars are > scavenged and utilized rather than expelled. > > A person can pursue a deficiency with bad diet, and > then > supplement with capsules to try and bail themslves > out of the > situation, but that's a pretty poor plan B compared > to simply > being on a varied and nutritionally dense diet in > the first > place, as the varied diet and whole foods provide > many benefits > that the capsules do not. Look up the propeties of > aloe vera gel > and undenatured whey and see > > Point made, by a Mannatech distributor no less! > ________________________________________________________________________________\ ____ Sponsored Link Degrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate Click now to apply http://.degrees.info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Hello Group - I've found many enlightening sources of info thru this site. I am a skeptic and like confirmation from sources independent of each other. After 3 years of personal experience with the " glyconutrient co. " , I'm convinced this should be the cornerstone of any serious intervention but by no means the final or only answer. To think otherwise closes our mind, just like the those that get critized in the medical community for such thinking. We are blessed to have the greatest caring and devoted doctors & nurses anywhere and I want to say, THANK YOU VERY MUCH!! My focus is WHAT WORKS! We will not live forever and sometimes all the knowledge or access to technology or wealth matters. The bottom line is Quality of Life is always better " with glyconutrients " !! Pilot studies are on going for cancer, Alzheimers,Parkinsons,Stroke, Dimentia, and closed head trama. Children respond very good to glyconutrients. Adult stem cell production also is apparent. Please call if you are interested. 417-438-4800 Best Wishes to All -- Ray Niewiara <lisanwilliam@...> wrote: I think that Duncan is only verbalizing and asking questions that most are thinking. That's why this board is so important. That said, I must admit that I also have concerns about this type of marketing. I want to be open-minded, but I also don't want to invest in a product that may not be helpful. Any further thoughts from anyone out there is welcome. Thanks, --- Duncan Crow <duncancrow@...> wrote: > , there's no " tremendous toll " for most of us; > that's only > marketing talk. The ready supply of glyconutrients > in our food > prevents it. We have only has to select a few of > these foods > periodically because the conditionally essential > sugars are > scavenged and utilized rather than expelled. > > A person can pursue a deficiency with bad diet, and > then > supplement with capsules to try and bail themslves > out of the > situation, but that's a pretty poor plan B compared > to simply > being on a varied and nutritionally dense diet in > the first > place, as the varied diet and whole foods provide > many benefits > that the capsules do not. Look up the propeties of > aloe vera gel > and undenatured whey and see > > Point made, by a Mannatech distributor no less! > __________________________________________________________ Sponsored Link Degrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate Click now to apply http://.degrees.info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 I'd like to add that the " tremendous toll " is not marketing but a personal health issue which has virtually disappeared since using glyconutirents. Nothing else offered by indivuduals who patrol these sites acting as if they know something worked. By the way, I couldn't agree with Ray more. Thank you Ray. Sitzer ray land <raylanddmn@...> wrote: Hello Group - I've found many enlightening sources of info thru this site. I am a skeptic and like confirmation from sources independent of each other. After 3 years of personal experience with the " glyconutrient co. " , I'm convinced this should be the cornerstone of any serious intervention but by no means the final or only answer. To think otherwise closes our mind, just like the those that get critized in the medical community for such thinking. We are blessed to have the greatest caring and devoted doctors & nurses anywhere and I want to say, THANK YOU VERY MUCH!! My focus is WHAT WORKS! We will not live forever and sometimes all the knowledge or access to technology or wealth matters. The bottom line is Quality of Life is always better " with glyconutrients " !! Pilot studies are on going for cancer, Alzheimers,Parkinsons,Stroke, Dimentia, and closed head trama. Children respond very good to glyconutrients. Adult stem cell production also is apparent. Please call if you are interested. 417-438-4800 Best Wishes to All -- Ray Niewiara <lisanwilliam@...> wrote: I think that Duncan is only verbalizing and asking questions that most are thinking. That's why this board is so important. That said, I must admit that I also have concerns about this type of marketing. I want to be open-minded, but I also don't want to invest in a product that may not be helpful. Any further thoughts from anyone out there is welcome. Thanks, --- Duncan Crow <duncancrow@...> wrote: > , there's no " tremendous toll " for most of us; > that's only > marketing talk. The ready supply of glyconutrients > in our food > prevents it. We have only has to select a few of > these foods > periodically because the conditionally essential > sugars are > scavenged and utilized rather than expelled. > > A person can pursue a deficiency with bad diet, and > then > supplement with capsules to try and bail themslves > out of the > situation, but that's a pretty poor plan B compared > to simply > being on a varied and nutritionally dense diet in > the first > place, as the varied diet and whole foods provide > many benefits > that the capsules do not. Look up the propeties of > aloe vera gel > and undenatured whey and see > > Point made, by a Mannatech distributor no less! > __________________________________________________________ Sponsored Link Degrees online in as fast as 1 Yr - MBA, Bachelor's, Master's, Associate Click now to apply http://.degrees.info Quote Link to comment Share on other sites More sharing options...
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