RS Clinics

[Guest guest]

Hi, I joined this group a week or so ago. I was given a tentative Dx

of Reiter's and am waiting to see a Rheumatologist. I have been

disabled for 11 yrs. I have been chronically ill for 30 yrs. Some of

the symptoms that are attributed to Reiter's I have had my entire

life.

I know I'm preaching to the choir, but it's been a long and dificult

struggle. I've faced all of the stupid Dr's I've read about here.

I've been repeatedly told that I'm a hypochondriac or worse. My wife

told me I'm mentally ill and left on 3/14. We have 4 children that

are devastated.

I just started telling my family (siblings) today about the Reiter's.

It's been a rough day with a lot of tears(mostly mine). I'm trying to

gut it out the best I can. I've read the basics about Reiter's and

have all of the symptoms. But I have so much more.

Can Reiter's account for the following:

- abnormal liver, pancreas and kidney tests, accompanied by severe

pain in these organs.

- heart murmur, irregular heartbeat and severe chest pain.

- possible brain aneuyrism. The specialist says it is, the

Radiologist says it's an unknown abnormality. It shows up on a

magnetic resonance angiograph (MRA).

- chronic occipital neuritis.

- temporary loss of speech, hearing and vision. Not at the same time.

-symptoms of Alzheimer's.

Also, I'd like to see a Specialist in this Disease. Any

recommendations in the Cleveland, Pittsburgh, Philadelphia,

Baltimore/Washington DC areas. Pittsburgh or Baltimore/Washington are

the closest. I want to see someone who sees this on a daily basis.

Thanks and God Bless.

Sherm