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I have had my best results with a gastrointerologest with my Reiter's. Some

of them seem to know more than the rhumatologests do. And they have known

about it longer too. I wish these Doc's would get together and compare notes

and studies. Look into some of the info from a gastro site. It may hold a

bunch of info we haven't seen. Bye EFD, Oregon

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EFD,

I agree my gastroninterologist is way ahead of the Rhumatologest here

with health. I am having to go through more in finding out at what degree

of my stomache and my colon do I need the anti-tumor medications. TNF's

such as the Remicaid.

I will be going through some tests the 7th of August, I was looking at some

old information on Thalidomide and Chron's. Granny or someone was talking

about the drug and so I started to look it up, I do remember the bad rap it

was given due to birth defects. But, that didn't mean it would not be a good

medication for other things. This was way befor we thought of permination

through to the baby. but now on women who are not child bearing ages and

haveing IBD, needing it now. Chron's or any Bowel problems could this type of

drug be used. I am going to ask my doctor about it due to the fact that the

kind of polyps I have are the kind that go into cancer.

Thanks to the ones who were talking about it and Bill, who they had

missed so much due to the discussions of this drug. It also led me to find

that some Spondylitis, and colon problems can lead to cancer of the tail bone

(spine ) and the colon. This may be rare.

On line it can be found at:

http://www.uchospitals.edu/news/thalidomide.html

Health and hope,

Brie

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  • 6 years later...
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Hi Holly,

I get reinfected a few times a week from people at work. After reinfection to my body and cloths, I try to avoid spreading it to my apartment, by immediately microwaving my cloths and immediately taking a hot shower, sometimes with harsh soaps/etc. I also turn on the UV lights in the house.

- requireshelp

From: Holly <hollyjane11@...>bird mites@...Sent: Saturday, March 14, 2009 10:37:15 AMSubject: rs

JS I wanted to ask about your parents. You said that they carry the mites with them, but dont feel them. I am wondering if you have a plan on how to deal with this, so that you dont get reinfected?Holly

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Requires... this is interesting to read.

We try so hard to rid ourselves of this thing and when you get better, you pick

it up from others that are unassuming? So do you think that there are carriers

out there but they just don't know it? How do you know you're getting it from

others as opposed to more coming out of your skin? Really curious.

-k

>

> Hi Holly,

>

> I get reinfected a few times a week from people at work.  After reinfection to

my body and cloths, I try to avoid spreading it to my apartment, by immediately

microwaving my cloths and immediately taking a hot shower, sometimes with harsh

soaps/etc.  I also turn on the UV lights in the house.

>

> - requireshelp

>

>

>

>

> ________________________________

> From: Holly <hollyjane11@...>

> bird mites

> Sent: Saturday, March 14, 2009 10:37:15 AM

> Subject: rs

>

>

> JS I wanted to ask about your parents. You said that they carry the mites with

them, but dont feel them. I am wondering if you have a plan on how to deal with

this, so that you dont get reinfected?

>

> Holly

>

>

>

>

>

> __________________________________________________________________

> Instant Messaging, free SMS, sharing photos and more... Try the new

Canada Messenger at http://ca.beta.messenger./

>

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If I walk past something and something HITs me, like whoa, you're not

getting away kind of hit? Probably external.

Under my clothes near the floor? Probably my own shed critters.

Under my clothes higher up? Same, later in the day.

Under my clothes or bitten through clothes on fallout locations such as

chest, upper back, top of legs, forearms, probably my own sheds. I

learned the hard way about sheds when I wore sandals, shorts, and a

halter top for a few days in my house (WHAT was I thinking!!! That life

was normal for me? Riiiiight. Not then, or even yet, anyhow, but it will

be)

katie

> >

> > Hi Holly,

> >

> > I get reinfected a few times a week from people at work. After

reinfection to my body and cloths, I try to avoid spreading it to my

apartment, by immediately microwaving my cloths and immediately taking a

hot shower, sometimes with harsh soaps/etc. I also turn on the UV

lights in the house.

> >

> > - requireshelp

> >

> >

> >

> >

> > ________________________________

> > From: Holly hollyjane11@

> > bird mites

> > Sent: Saturday, March 14, 2009 10:37:15 AM

> > Subject: rs

> >

> >

> > JS I wanted to ask about your parents. You said that they carry the

mites with them, but dont feel them. I am wondering if you have a plan

on how to deal with this, so that you dont get reinfected?

> >

> > Holly

> >

> >

> >

> >

> >

> > __________________________________________________________________

> > Instant Messaging, free SMS, sharing photos and more... Try the new

Canada Messenger at http://ca.beta.messenger./

> >

>

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Hi k,

I am sure that I pick mites up from others at work. I can come to work mite free, but as soon as I stand near a particular individual, I feel bites and carry those mites for most of the working day thereafter. On the flip side, without being close to carriers of mites or affected areas, I don't feel them all day.. I have tested this many times. I think that some carry mites and don't know it, but others carry it and are affected (but try to hide it).

- requireshelp

From: kixx_rc <kixx_rc@...>bird mites Sent: Monday, March 16, 2009 10:47:49 PMSubject: Re: rs

Requires... this is interesting to read.We try so hard to rid ourselves of this thing and when you get better, you pick it up from others that are unassuming? So do you think that there are carriers out there but they just don't know it? How do you know you're getting it from others as opposed to more coming out of your skin? Really curious.-k>> Hi Holly,> > I get reinfected a few times a week from people at work. After reinfection to my body and cloths, I try to avoid spreading it to my apartment, by immediately microwaving my cloths and immediately taking a hot shower, sometimes with harsh soaps/etc. I also turn on the UV lights in the house.> > - requireshelp> >

> > > ____________ _________ _________ __> From: Holly <hollyjane11@ ...>> bird mites> Sent: Saturday, March 14, 2009 10:37:15 AM> Subject: rs> > > JS I wanted to ask about your parents. You said that they carry the mites with them, but dont feel them. I am wondering if you have a plan on how to deal with this, so that you dont get reinfected?> > Holly> > > > > > ____________ _________ _________ _________ _________ _________ _> Instant Messaging, free SMS, sharing photos and more... Try the new Canada Messenger at http://ca.beta. messenger.

/>

Ask a question on any topic and get answers from real people. Go to Answers.

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There is a co-worker that I noticed scratches herself alot.

I only notice this b/c now I'm just so sensitive to ppl scratching. This can be

noticed even when I'm in the back of the room and far away from her so it's def

not me giving the bugs to her.

When I view the 1000s at my church, I notice ppl scratching all the time... last

Sunday, this person was repeatedly scratching his scalp during the hour...

Are these attributable to mites? Maybe, maybe not... some might just have

allergy or dry skin. But yeah, I wonder how many are carriers and are unaware.

And I wonder how many are carriers AND are aware... that'd make them just like

us... suffering but unable to share to others openly.

> >

> > Hi Holly,

> >

> > I get reinfected a few times a week from people at work.  After reinfection

to my body and cloths, I try to avoid spreading it to my apartment, by

immediately microwaving my cloths and immediately taking a hot shower, sometimes

with harsh soaps/etc.  I also turn on the UV lights in the house.

> >

> > - requireshelp

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: Holly <hollyjane11@ ...>

> > bird mites

> > Sent: Saturday, March 14, 2009 10:37:15 AM

> > Subject: rs

> >

> >

> > JS I wanted to ask about your parents. You said that they carry the mites

with them, but dont feel them. I am wondering if you have a plan on how to deal

with this, so that you dont get reinfected?

> >

> > Holly

> >

> >

> >

> >

> >

> > ____________ _________ _________ _________ _________ _________ _

> > Instant Messaging, free SMS, sharing photos and more... Try the new

Canada Messenger at http://ca.beta. messenger. /

> >

>

>

>

>

>

> __________________________________________________________________

> Instant Messaging, free SMS, sharing photos and more... Try the new

Canada Messenger at http://ca.beta.messenger./

>

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My mom seems to carry the mites also & doesn't feel it. I've actually seen them jump off her when she's been here. She never gets bit or feels them which worries me because my oldest son & gf share an apartment with her & he would get bit whenever he use to come.

Why do some not feel them or get bit?

From: J S <requireshelp@...>bird mites Sent: Wednesday, March 18, 2009 8:37:34 PMSubject: Re: Re: rs

Hi k,

I am sure that I pick mites up from others at work. I can come to work mite free, but as soon as I stand near a particular individual, I feel bites and carry those mites for most of the working day thereafter. On the flip side, without being close to carriers of mites or affected areas, I don't feel them all day.. I have tested this many times. I think that some carry mites and don't know it, but others carry it and are affected (but try to hide it).

- requireshelp

From: kixx_rc <kixx_rc (DOT) com>bird mitesSent: Monday, March 16, 2009 10:47:49 PMSubject: Re: rs

Requires... this is interesting to read.We try so hard to rid ourselves of this thing and when you get better, you pick it up from others that are unassuming? So do you think that there are carriers out there but they just don't know it? How do you know you're getting it from others as opposed to more coming out of your skin? Really curious.-k>> Hi Holly,> > I get reinfected a few times a week from people at work. After reinfection to my body and cloths, I try to avoid spreading it to my apartment, by immediately microwaving my cloths and immediately taking a hot shower, sometimes with harsh soaps/etc. I also turn on the UV lights in the house.> > - requireshelp> >

> > > ____________ _________ _________ __> From: Holly <hollyjane11@ ...>> bird mites> Sent: Saturday, March 14, 2009 10:37:15 AM> Subject: rs> > > JS I wanted to ask about your parents. You said that they carry the mites with them, but dont feel them. I am wondering if you have a plan on how to deal with this, so that you dont get reinfected?> > Holly> > > > > > ____________ _________ _________ _________ _________ _________ _> Instant Messaging, free SMS, sharing photos and more... Try the new Canada Messenger at http://ca.beta. messenger.

/>

Ask a question on any topic and get answers from real people. Go to Answers.

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