Re: not everyone has chronic symptoms

[Guest guest]

Jeff

Very well put! You know what might be a good idea. Let's have a roll call of

those who have full-time chronic Reiters'. I'm sure the percentage of members

of this group would be low. But I do understand where you were coming from in

your previous posts. When it's happening to you, you don't think about

others-especially new people who are already scared enough. We really do

apologize to all of you. We are here to lend an ear and to help by talking

about our experiences. Just remember, everyone experiences these diseases in

their own way. And, for whatever reasons unknown to us, in various degrees.

One piece of advice I would give is to educate yourself. Find out everything

you can about your disease. Don't be kept in the dark. And RISG is a good

place to start. There's a wealth of information in the archives.

Peggy

Jefferson lanneau wrote:

It's very easy for me to forget that not all who are members of

this group suffer from chronic symptoms that can only be

described as draconian.

Peggy (mhksmom)

Today is the first day of the rest of my life........

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[Guest guest]

Roll call... 18 years Active Reiter's syndrome.

More quiet for a bout 10 years but still there..

Sjogren's for i'm not sure how long.. active the last couple of years but

still had beeen there a lot longer than i knew..

Chronic fatigue symptoms.. which have gotten worse in the last year.

I had thought i was following my sister footsteps in going into AS but the

dr says my xrays don't show that as yet.

Liz

~~~

" Mistakes are the portals of discovery. " -- Joyce

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[Guest guest]

How do you define chronic symptoms? in my case, i almost always have joint

inflammation and pain in my right ankle. I've had two bouts with uveitis in

the past 7 months, but no experience with urethritis yet (although I feel

that my first case is upon me). is this considered full-time chronic RS/RA?

james

http://home.cogeco.ca/~jclost

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[Guest guest]

> How do you define chronic symptoms? in my case, i almost always

have joint

> inflammation and pain in my right ankle. I've had two bouts with

>

That's a really good question,, and i don't remember it having

been asked before. The first thing that comes to mind was something

Supreme Court Justice once said when asked to define

pornography...he said, i can't define it, but i know it when i see

it ..i'm not sure if there is a textbook definition of chronic

symptoms..i can think of a few examples wherein a specific period of

time is required to meet a definition..forinstance when asked for a

definition of a long-term investment, the answer is 3 - 5yrs..that

also applies to definition of bond... anything shorter would be a

note(1-2yrs) or bill 6mos-1yr..

I know there will be a textbook answer somewhere, but my gut feeling

would be continuous symptoms involving pain (not discomfort)on a

level of 5 or above on 10pt scale(say Randall Scale) for a period of

5years..that means every day non-stop..the level could vary between 4

and 8 or maybe 9 but noone could handle 8 or 9 for very long...i saw

something today in mail from a reliable source which claimed that

there were 20 million Americans suffering from chronic pain and i

asked myself the same question. namely how are they defining chronic

pain?

jeff lanneau rs,as

[Guest guest]

As part of a poll I might add that I have had constant mild - medium

symptoms for the 18 months that I have had ReA. This includes stiff and

achy joints all the time, especially the feet and ankles and mild uvitis for

which I take Pred Forte on the average once a day. I also have the tongue

lesions which last about a week and come and go about once a month. My

medication is 2x/day 200mg Celebrex. I find that warm showers, warm eye

compresses and 10-20 minutes in the spa can help quite a bit.

Larry Steneck, 55, ReA, uvitis