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Re: Mouth Sores / Orencia

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Hi, I am so sorry you are suffering with mouth sores. I wanted to share that my

mouth sores became so frequent that my gp finally put me on a daily maintenance

dose of

acyclovir. I still get one from time to time but the frequency is reduced

greatly.

I was interested in your statement that you taken antifgungals. I have had

many bouts with fungus; sinuses, blood stream, and most recently, in my ear.

Usually oral medication takes care of it but I have done IV therapy at home and

hyperbaric unit at the hospital.

Good luck.

Jane

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Jane:

What's tests were performed to ID your fungal infections. I've been on

antiotics for a year. My mouth / tongue often has been developing a white

coating -- particularly while doing exercise, etc. I'd like to investigate.

Thanks.

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Your tongue is most likely a yeast infection. Please see your doctor, he can

help and it probably will not require testing.

I have had sinus surgery six or seven times. Several of those times the

problem was fungal (aspergillis) and it was not identified and treated until

after the surgery. About five years ago, my left thumb became swollen, red, and

very painful. I saw the doctor numerous times but finally a biopsy was done; I

am sorry I can't remember the name of the fungus but it was rare and my thumb

was opened the second time to confirm. I took IV treatment at home for several

months and ended up 150 miles from home going in the hyperbaric unit every day.

The doctor's down there said I would lose the thumb. So far it is doing well

and I can still use it. My ear has been treated as inflammation only for about

a year. Finally a few weeks ago, the doctor cultured the tissue and it too is a

fungal infection. I'm putting cream in it twice a day. I have had fungus

behind by knees in the crease of your leg and at the panty line. I was always

given antifungal creams to use. I now

sleep in all cotton pajamas to decrease the possibility of fungus.

I hope this helps. My history is long and I don't think about how much has

gone on until I start to tell someone else.

I said in an earlier post that my younger son has been diagnosed with

ankylosing spondiolitis and ulcerative colitis. All thanks to the wonderful HLA

B27 gene that I passed on. He is doing Enbrel infections, an oral medications,

and steroids when things get really bad. He is 33. I have enjoyed reading the

posts because a lot of this information you can't get anywhere else.

Take care, see your doc, the yeast can be cleared. Jane

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Jane:

I don't mean to bore the rest of the risg group w/ my questions.

However, I'm just wondering if a fungus is at the root of my problems versus

some kind of chlamydia infection. I've had dozens of test for chlamydia (i.e.

urine, swab, blood) even had a synovial tissue biopsy done on my left knee. All

were negative. I always suspect chlamydia t. However, I'm wondering if my

woes are do to a yeast / fungal infection?

What tests could I have done?

Thanks.

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Hi, . Do you mind my asking how old you are? I don't guess it really

matters what infection triggered the other illnesses. I had my first round of

iritis at Age 10 so the doctors think my stepfather had already infected me

Clamydia. I don't guess there is anyway to prove that today but I try daily to

deal possitively with the things that arise.

My son, Greg, is 34 and has ankylosing spondiolitis and ulcerative colitis.

He leaned toward being a bubble baby; had severe asthma. I don't know what

infection triggered his other problems.

I hope you can make peace with this and take really good care of yourself

Jane

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Jane, This is D. I was born like one of those bubble

babies,but my father didn't believe in drs, so all my allergies and

infections etc., went untreated except home remidies my mom knew. I

developed UC as a teen,and ReA in my 20's. And in time whatever

spondilitis comes along. I am now 58,disabled,going blind and in a wheel

chair. I had four children, and the youngest has UC and AS also. He is

24, and we are trying to get it to go in remission. I feel it came down

as a tendancy towards it thru genes. My mothers fathers family had an

aray of sponilitis' and I think my youngest sons father carries the gene

also.It is hard to say what the trigger was for my son,because he was

born with UC.But I was told that my trigger was getting pregnant, I was

16,and it was full blown at 19,and the ReA was caused by the UC. So,

there are many things that can trigger it, but you have to have some

tendancy towards it to begain with.

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