Re: Re: Newly Diagnosed Also

[Guest guest]

:

I've been searching for answers for almost 5 years. I have (or at one point

had) the classic symptoms for Reiter's Syndrome. However, it took years

before any doctor would admit I had Reiters and I've been to many all considered

to be the best in the US. Many said all my problems were in my head and the

pain was due to anxiety. I continue to explore various treatments.

Unfortunately, it seems like this disease is here to stay (w/ me anyway).

I've tried dual antibiotics for almost one year....now I'm giving Celebrex a

shot. I have an appointment w/ a rheumie who believes in the Marshall Brown

(low dosage of antibiotics for a long time) protocol in two weeks. We'll see

if that's something worth pursuing considering I just stopped the dual

antibiotic experimental treatment w/ out improvement.

You'll need to explore options and find out what works for you.

Regards,

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

, Why would the Dr give you the same treatment you were just on and it

didn't work? That is strange. I think it depends on how you got the ReA that

one type of a treatment will work, but not always. Most of the people with

it, unfortunately have it for life, but are trying to cope with the pain it

brings. I hope you are one that will be able to get it into a full remission

let alone cure it. Myself, I have had so many infections, some very life

threatening, that the infection went everywhere in my body, and there is no

way of killing it. I have to take antibiotics every night for my one last

kidney, and I still have break threw's on them. And never does the ReA stop,

pain pills,muscle relaxers,special diets,natural foods,all the meds used for

it, nothing touches it. I really hope you can make it. Let us know, please.

D. In OR

-------Original Message-------

From: lamachine

:

I've been searching for answers for almost 5 years. I have (or at one point

had) the classic symptoms for Reiter's Syndrome. However, it took years

before any doctor would admit I had Reiters and I've been to many all

considered to be the best in the US.

[Guest guest]

Liz:

Good question. I guess I am search for a silver bullet. I'm sure the doctor

I plan to see will say the same. If I may ask, what was your " trigger "

infection? I still can not figure out what was mine. I suspect Chlamyida

T. or Chlamyida P.

Thanks.

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Hi , I had Ulcerative Colitis for many years, then it turned into

Toxic Mega Colon, and I had emergency surgery to remove my colon, and while

they were removing it, it burst and the toxins pored all inside me. Sounds

pretty gross and I am glad I was sedated. And because of that, I have a

chronic infection all over inside of me. I hope your's is a better cause.

D. In OR

From: lamachine

Liz:

Good question. I guess I am search for a silver bullet. I'm sure the doctor

I plan to see will say the same. If I may ask, what was your " trigger "

infection? I still can not figure out what was mine. I suspect Chlamyida T.

Or Chlamyida P.

Thanks.

__________________________________________________________

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Very well put old friend! I too went down that path... then decided my

energy would best serve elsewhere.

HAPPY HOLIDAYS EVERYONE!!!!!

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

Hi

You Wrote:

I still can not figure out what was mine. I suspect Chlamyida T. or Chlamyida P.

Well I think you are burning too many calories worrying over what triggered

your ReA. I know I did the same for a couple or more years and it just burned

the rubber off my tires.

The treatment is what is important now. But if you are looking for the Silver

Bullet, it could take a while. I have been looking for it for 33 to 35 years

now.

I too obsessed over what triggered my AS and RA for a number of years not

incxluding the 10- to 12 years it took to diagnose the disease. I got all the

standard answers over why I had so much pain, especially the Sciatic Nerve pain

running down both legs to my toes. I was a physical wreck. I not only felt

like it, I looked like it as well. Then after thinking that my pain came from

an injury caused by moving cable television line reels, you know, the big old

wooden ones with cable up to 3/4 inches. My Orthopeadist at that time blamed

all my pain on that and sent in WCB papers for compensation and medical care.

I was turned down and my doctors and the local representative of the WCB in

Medicine Hat told me to appeal. That forced a medical board consisting of an

Orthopedic Surgeon, General Surgeon, a Family Physician with a specialty with

pain, a Neurosurgeon, and a Rheumatologist. I was quized by them all at once in

one conference room. Lots of questions and one that bothered me was from a

Surgeon, he asked would I consent to surgery on my back if that was recommended.

I just told them that if all their tests and examinations came to one

conclusion, surgery, then I would consider it. As an X-Ray Tech from the 60's I

knew the odds of success in back surgery and I was aware that there was only a

75 % or less of success so told them I would have to think about it long and

hard and pray about it as well. I think that was the answer the doctors wanted.

I had to see each one seperately for their examinations but for the final part,

it was in a group setting.

Anyway about 3 weeks later my GP called me and wanted to see me in his office

that day if possible. That had me thinking about anything from a hang nail to a

disintegrating back bone until the appointment was kept. He sat me down and

told me in plain english what the diagnosis was. When he said that my

Rheumatoid Factor was positive and that I was HLA B27 positive as well. When he

said that I knew the diagnosis was not good. Then he told me that I had

Ankylosing Spondylitis and he was taking me off work right away for more tests

and rest for my back and major joints in the skeleton. I was a physical and

emotional wreck for the next two years. I read Norman Cousin's book, " Anatomy

of An Illness " , things brought me back to work. Norman had it triggered eating

some rotten food and breathiing the rotten Soviet Union air in Moscow. I can

tell you that most of the time, even in winter the air looked like it had a

brown tinge to it. The book detailed his battle with AS and the doctors all

ordering too many blood tests while he was in hospital at first. He slapped a

rule on the hospital that they could only draw blood for tests once a day and

that those blood samples would have to be all they got so had to ration it out

for the tests. Some of the doctors were not looking at all previous tests and

newly ordered tests to see if there were any duplicates. Heck they found

quadrulet tests in one day. After the doctors initial shock that a patient

would talk to them that way, he was only a patient. But Norman's personal

physician backed his request so that rule came to be routine for blood tests.

Oh, by the way, they could only take blood for routine tests every other day.

That really shocked the heck out of them. But it worked and there was much less

a chance for a wrong test result causing grief for him.

Again I ramble. But , I truly think that you are obsessing over what the

diagnosis is and what the outcome will be for you, way too much. It is good to

be careful, especially with the medications but it can be detrimental to your

own health if you try to micromanage your health.

Hope this makes sense .

Blessings and to all A HAPPY AND PROSPEROUS NEW YEAR.

Fr. Dave

who cannot believe he made it to 2008 in one piece.

[Guest guest]

: Thanks. Have a very Happy New Year.

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Thanks . Dan in WI

Re: Newly Diagnosed Also

To or anyone else:

Has Anyone tried this approach and CURED their ReA? This is not to

treat the symptoms, but to actually cure it?

[Guest guest]

: Sorry for the delayed reply. Were the doctors able to identify such

infections? Thanks.