Guest guest Posted December 26, 2008 Report Share Posted December 26, 2008 Would like to talk to anybody who has not been able to work due to ReA problems. Thanks, Jeannie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2008 Report Share Posted December 27, 2008 Hey Jeannie. I decided to stop working in 2007, after my fourth eye surgery which was for the glaucoma which was a side effect of the meds used to treat my panuveitis which is part of my diagnosis of psoriatic arthritis. I was on my second job, and third family medical leave. I was getting sicknesses and viruses from the kids at work and this was reaking havoc on my immune system(i am on immunosuprssants. When I got sick, I would get a flare of some kind. Finally I decided I needed to take a break and take care of myself. Bonnie > > Would like to talk to anybody who has not been able to work due to ReA > problems. > > Thanks, > > Jeannie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Oringinally I was diagnosed with ReA even though I felt that I was Ankylosing to begin with. I too was on the immune system supressants and I will say this, they did not work for me, at least the methotrexate and the alsulphadine. So I quit taking them, for two reasons, one I need to save the money I was wasting on something that wasn't working and two- I was tired of being sick, when I got sick it would trigger my immune system into over drive and the pain would be worse. So I don't take that stuff anymore. Now I have been thinking about maybe trying out the Enable or Humaria- but until then- hydrocodone is my best friend. Barbara > > > > Would like to talk to anybody who has not been able to work due to > ReA > > problems. > > > > Thanks, > > > > Jeannie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Hi, I am sorry you are having so many problems. I have been unable to take any immune suppresants because my immune systems stays in overdrive and keeps me infected. This time it is sinus and been around for several months. Steroid shot on Saturday but I still can't breath. I have ReA with HLAB27 gene and my son has AS and ulcerative colitis. He does take Enbrel injections. Take care. Jane Oringinally I was diagnosed with ReA even though I felt that I was Ankylosing to begin with. I too was on the immune system supressants and I will say this, they did not work for me, Recent ActivityVisit Your Group Health Achy Joint? Common arthritis myths debunked. Sell Online Start selling with our award-winning e-commerce tools. Group Charity Hands On Network Volunteering has never been so easy .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Barbara, you said you were first diagnosed with ReA. What is your final diagnosis, ReA or spondylitis? Tom reply to: thomaslambirth@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 In my own experience the AS was the first diagnosis, then after more lab tests, RA was added in a short period of time. The diagnoses of the other members of " Arthur's " family came in a fairly short manner. First PsA, then ReA and finally Sjogren's. The Sjogren's actually was going on at the same time as the first two but they never put two plus two together until I had a raging infection in my mouth following dental surgery. I continue to have problems to this day with the RA affecting my lungs or so they think!!!!! I have Pulmonary Fibrosis and they have ruled out Cancer and Acute Bronco Pulmonary Aspergillosis for now. They did find trace amounts of Aspergillosis mould in my lungs during a Bronchoscopy. Of course to combat that the Pulmonologists have me on 50 mg of Prednisone daily for six months. I pray that somehow I will not gain too much more weight as the space for sitting in a booth at Dairy Queen is rapidly depreciating. Fr. Dave wrote: Barbara, you said you were first diagnosed with ReA. What is your final diagnosis, ReA or spondylitis? Tom . --- avast! Antivirus: Outbound message clean. Virus Database (VPS): 081230-0, 30/12/2008 Tested on: 30/12/2008 2:17:32 PM avast! - copyright © 1988-2008 ALWIL Software. http://www.avast.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2009 Report Share Posted January 1, 2009 Dear , You are right. Originally I was diagnosed with ReA but later when I was able to get into a Rheumy he said that the doc that diagnosed me was crazy and that it was not that. However, after several tests he was determing that most likely since I have family history of it that I was probably suffering from Ankylosing. And even with more testing from what I have read from my medical record he was even suggesting possible Fibromalagia (probably misspelled) due to 11 tender points (whatever that means). I however ending going to see him due to the fact that my medical insurance ran out. I was on medicaid at the time. However, now that I am in s with my family I am hoping to be able to get in to see a Rheumy again. I am proud to anounce that even though I suffer from time to time I am finally working again. My aunt helped me to get on at her hospitals nursing home where I work as a Ward. I do nothing more but deal with paper work and answer phones and greet guests. So my new year so far is starting in a positive direction. I have not worked in nearly three years and to be able to work again is something that I have strived for. I just could never find the right job. I think that I finally did. So I hope and wish that your new year is a wonderful one and I pray for all the blessing that the good Lord feels fit to give you come quickly. Barbara > > > Barbara, you said you were first diagnosed with ReA. What is your final diagnosis, ReA or spondylitis? Tom > > reply to: thomaslambirth@... > > Quote Link to comment Share on other sites More sharing options...
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