Guest guest Posted June 17, 2011 Report Share Posted June 17, 2011 My name is Garrett, im 26 and have been diagnosed with ReA. This has been ongoing for 7 months now. Affecting all of my joints from my feet to neck. Im am currently unable to walk but i feel im on my way to recovery. Its been a long hard road and much to come. I know there are other people out there suffering from the same thing and i would like to meet all of you! Stay strong and keep your chin up. We will prevail! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 Hi . Im 26 myself and have been suffering from reiters syndrome for the last 7 months now. And a lil bit 4 years ago. I was wondering how your feeling now? Has anything helped? > > Hi my name is , I am 27. > > Thank you Rick and others about answering my question about having > children. I feel so good that I still can. > > A few days after a lap dance, and the day after I slept all night > after sex with a condom on, I started having problems. > > First I had a tickle in my penis. After, the top of my penis was > red. The family doctor thought it was fungus but the cream did not > work. Next, the urologist thought it was a uniary tract infection, > I took doxycycline for 2 weeks, no change. > > Everytime I went to the urologist my urine test came back negative. > There was never any discharge to culture and I never had any pain > urinating. > > Then my testicles started to hurt and my muscles and joints started > to hurt. My urologist told me I made have non-bacterial > prostatitis. Then my eyes started to hurt. My regular doctor > suggested that I may have Reiter's syndrome. > > At first, my muscles, especially my feet, hands, chest, rib cage, > lower back and upper back were in alot of pain. The middle chest > bone really hurt and I though I was having a small heart attack. > The EKG did not find anything. My Rhematologist has put me on > Indomethacin. > > I saw an optamologist, he thought I was crazy. > > For about three months now I have been feeling a bit better each > day, the arthritis has been mild for the most part. Somedays my > eyes hurt and some days my eyes feel fine. I can still run and play > sports put the continually sore/arthritis pain is still there. My > Rhematologist (I have been to his office so many times lately) > thinks that I may have a low grade case of Reiters since so far my > symptoms have no been too bad. I pray that nothing further happens > but I know it can. He also told me that most people that have > Reiters, the symptoms go away around six months. After all the > websites that I have read about reactive arthritis, is it really > true? I find it hard to believe now. All I know is that I am so > scared and I have really changed my life, appreciating the small > things so much. > > My rhematologits also said that whatever infection I had did not > last long and that some experts believe that the length of the > initial infection may dictate how long and strong Reiter's sydrome > can be. Is this just doctor talk to make me feel better or is there > any truth to this? > > I am negative for the HL27B gene. > > I have seen two urologists, each do not think I had an STD, and I > never had food posining so I do not know how I could have acquired > reactive arthritis. I did not take my pants off during the lap > dance but I realize now that it doesn't matter. I realize that I > need to deal with my problem. I love my wife and son so much that I > have such a desire to be well for them. > > Currently my rhemotologist has collected a stool sample to see if I > have bacteria. Maybe I got food posining without knowing but I > don't believe it. > > I wanted to say that I think this group RISG is so woderful > and reading all the experiences has helped me so much. > > I can see all the suffering that people are going through, similar > to mine. Yet the same people seem to go to work with good jobs > (teachers, etc), have big families with lots of kids, still enjoy > life and make the most of it. > > Rick and others, besides the pain that I now share, is it true that > you feel that you have had a good life? Were you able to do most > things most other people do? > > One of the hardest things dealing with is that people look at me and > I look fine. But inside, I feel pain that they cannot see. My > family doctor still is not buying that I have Reiters. My blood > tests do not show a high SED rate, and my white blood cell count is > normal. My rhematologits says there is some special machine or > maybe x-ray that can detect arthritis. Anybody know what he is > talking about? > > Thank you so much for reading about my recent problem/story and I > desparately welcome any suggestions/advice/information that anyone > can provide. > > = > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2011 Report Share Posted June 19, 2011 > > My name is Garrett, im 26 and have been diagnosed with ReA. This has been ongoing for 7 months now. Affecting all of my joints from my feet to neck. Im am currently unable to walk but i feel im on my way to recovery. Its been a long hard road and much to come. I know there are other people out there suffering from the same thing and i would like to meet all of you! Stay strong and keep your chin up. We will prevail! > hey garret! great to c u on here. be strong. we're all in the same boat to recovery. be well my friend. -ken Quote Link to comment Share on other sites More sharing options...
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