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In a message dated 11/2/00 4:14:21 AM Eastern Standard Time, gina@...

writes:

<< esterday afternoon I felt the familiar pangs of bladder infection, after

many months without this problem which had been recurring at intervals of

around 3 to 6 months, since I was 13 years old (I'm now 52). I always >>

I used to run to doctors for prescription medicine when that happened to me.

Now, I immediately begin to drink cranberry juice. I buy the Apple & Eve

brand. This works for me . I keep drinking the juice and I feel better

almost immediately. I generally continue it for a few days. A couple of

years ago the infection was really sever and I had to drink a huge quantity

of juice. But it worked. I haven't had to go to the doctor for that problem

in a few years.

from NJ

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It was explained to me by my gyn that the bladder is located near the uterus and

can get irritated. In my case I had not had sex in l4 years and he felt that

having sex after so long made the bladder feel, I guess, alert to intrusions. I

had antibiotics and the cystitis recurred a day after the pills were gone. I

still have it, it is lessening.

Best wishes.

Cystitis

Dear list

Yesterday afternoon I felt the familiar pangs of bladder infection, after

many months without this problem which had been recurring at intervals of

around 3 to 6 months, since I was 13 years old (I'm now 52). I always

prefer alternative treatments ... except for this! The minute I get it I

reach for the antibiotics. It is always painful and makes me miserable.

I have been taking H202 baths lately but find that after being in the bath

for half an hour my bladder starts to feel 'uncomfortable' (for want of a

better word!) and I have to get out. The feeling lasts for 10 minutes and

then I'm fine. I was rather hoping that these baths would be a

'preventative'.

Over the years I've discovered that if I get overstressed, too cold or too

hot, or stand on my feet for too long or indulge in too much sexual activity

(too much for my bladder, I guess!) then it flares up. My urologist even

gave me antibiotics to take like a 'morning after' pill and that did seem to

be quite effective although I often forget to take them!

Ozone saunas sound amazing but it would have to be bought from overseas and

the cost would be prohibitive. In fact most of the remedies mentioned in

the forum are not available in South Africa - it took me a couple of years

to locate a supplier of 35% food grade H202 and persuade them to sell it to

me. I know of two homeopaths who do ozone therapy but the costs are high.

Having said that I welcome any suggestions and constantly work on attracting

more abundance and prosperity into my life!

Thanks in anticipation

Love and light

eGroups Sponsor

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along with that DMSA is approved( what ever that means) for cystitis IV

Cystitis

> Dear list

>

> Yesterday afternoon I felt the familiar pangs of bladder infection, after

> many months without this problem which had been recurring at intervals of

> around 3 to 6 months, since I was 13 years old (I'm now 52). I always

> prefer alternative treatments ... except for this! The minute I get it I

> reach for the antibiotics. It is always painful and makes me miserable.

>

> I have been taking H202 baths lately but find that after being in the bath

> for half an hour my bladder starts to feel 'uncomfortable' (for want of a

> better word!) and I have to get out. The feeling lasts for 10 minutes and

> then I'm fine. I was rather hoping that these baths would be a

> 'preventative'.

>

> Over the years I've discovered that if I get overstressed, too cold or too

> hot, or stand on my feet for too long or indulge in too much sexual

activity

> (too much for my bladder, I guess!) then it flares up. My urologist even

> gave me antibiotics to take like a 'morning after' pill and that did seem

to

> be quite effective although I often forget to take them!

>

> Ozone saunas sound amazing but it would have to be bought from overseas

and

> the cost would be prohibitive. In fact most of the remedies mentioned in

> the forum are not available in South Africa - it took me a couple of years

> to locate a supplier of 35% food grade H202 and persuade them to sell it

to

> me. I know of two homeopaths who do ozone therapy but the costs are high.

> Having said that I welcome any suggestions and constantly work on

attracting

> more abundance and prosperity into my life!

>

> Thanks in anticipation

>

> Love and light

>

>

>

>

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and

other alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here

are for information and research purposes only. We are people sharing

information we believe in. If you act on ideas found here, you do so at your

own risk. Self-help requires intelligence, common sense, and the ability to

take responsibility for your own actions. By joining the list you agree to

hold yourself FULLY responsible FOR yourself. Do not use any ideas found

here without consulting a medical professional, unless you are a researcher

or health care provider.

>

> You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

> DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of

the message! :

>

> oxyplus-unsubscribeegroups

>

> oxyplus-normalonelist - switch your subscription to normal mode.

>

>

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When I was in Bolivia 3 years ago I was taking 12-14 hour bus rides with no

public restrooms so I didn't drink enough fluids....I started to get a

terrible infection. I went into a restaurant and asked if they had water

with lemon juice (agua con limon). They had limes. I took a lime, cut it in

half and put it in a big glass of water and this got rid of the infection for

me. There wasn't any cranberry juice where I was, but the huge glass of

water with a fresh squeezed lime taken as soon as I began to feel the

symptoms worked for me.

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  • 8 years later...

,

Sorry for the misunderstanding. As Churchill said, we are separated by a

common language.

I am perplexed that your thyroid status is not under more stable

control, but if your achieving a symptom free state is involved with

triggering the infections, you might want to look at whatever you are

taking to get there. Some people are allergic or sensitive to a variety

of foods or additives.

Best,

Chuck

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  • 2 years later...
Guest guest

Hello, I am a new member. I am still learning to navigate this site, so please

forgive me if I am not posting at the appropriate site.

I have a couple of questions. I was first diagnosed with Reiter's Syndrome then

ultimately (thus far) diagnosed with Spondylitis. The Reiter's Syndrome

diagnosis came after over a year of feeling like a jelly fish, a highly venomous

one at that, had taken up residence in my bladder whose favorite pass time was

to send it's stingers down my urethra. It took an OB/Gyn, PCP, and 3 different

urologists and then finally it was the Rheumatologist who put it all together

that it was Reiter's. Of course the review of systems revealed the joint pain

and swelling, the enthesopathies, and the eye inflammation.

In short, over the past 6 months, I have been on 2 different tnf inhibitors

(humira and now simponi) (not simultaneously) and have found great great relief

from my bladder symptoms. But now they seem to be eeking back in. Ick.

Here are my questions:

1) Are any of you on a tnf inhibitor? If so, which one? And how has it

affected your bladder symptoms?

2) When I typed in " cystitis " to the search in this group, I got A LOT of hits,

however, it seemed that they were all for Interstitial Cystitis. So here is my

second set of questions - have you all been diagnosed with BOTH Reiter's and IC?

IF so, what are you doing for the IC? Are you doing this on top of specific

Reiter's treatment? And is it helping?

I appreciate any information you can give me.

Thank you so much,

Mama Quay

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Guest guest

Hi Priscilla,

 

I was wondering if you could tell me more about your bladder condition.  What

are your symptoms?  My grandfather on my mother's side had AS.  My Mom has

occasional boughts with iritis, dry eyes, and styes, but other  then that,

hasn't had any other spondy related diseases.  Lately however, she's been

suffering some bladder issues, and they seem to be getting worse.  She

complains of pain in her bladder and the feeling she has to go to the bathroom

all the time.  The doctors have run a lot of tests, but haven't found a

diagnosis yet.  She has anxiety issues too, and worries that her doctors aren't

taking her seriously and treat her like a hypocondriac.  I hope it's nothing

serious, but I worry it may be another autoimmune disease - we seem to have a

lot of those in the family.

 

From: Hagerty <hgrty777@...>

Subject: Re: Cystitis

Date: Saturday, May 28, 2011, 12:30 PM

 

Hi Mama Quay

Sorry to hear you have so much to deal with there. Do you have a good

urologist? There are many new treatments out. One theory is that treating

the Reiter's also treats the other inflammations. Doesn't always work that

way. Some Rheum docs understand and can treat all things. Otherwise you end

up with a lot of different specialists.

I have Reiter's with Ankylosing spondylitis and Interstial Cystitis. I had

bladder problems when I was 18, then colitis when I was about 25, then

Iritis when I was 28, then Ankylosing Spondy when I was 39, then at age 40 I

got Intersital cystitis. At first they tried everything on my bladder like

DMSO, Elavil, and painful dilations. Now I just ignore my bladder problems

until they get really bad. It is the urgency and frequency that really

bother me the most. I am thinking of getting a new evaluation.

I have tried the tnf's, but don't remember if they helped the bladder. What

helps most is being very careful of what I drink. No cokes, or strong teas

or coffee. Just drink herbal teas all day long. I have Sjogrens so I need

to drink a lot. Also, dairy products can affect the urine flow. And of

course always know where the nearest bathroom is.

Most of us do a lot of research of each of our own illnesses. Education is

key, plus trying different doctors. And lots of prayer.

Hope you can find some answers.

God Bless

Priscilla

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Guest guest

Hi

Good to hear from you. My bladder issues go way back to age 18 when I had

my first bladder infection. Don't know what they treated me with, probably

antibiotics. Then after I was dx with Reiter's, I was dx with the

Interstitial Cystitis at age 40. That was almost 24 years ago. They did

horrible things to me then like dilating the urethra, then later DMSO

treatments. Now that is considered dark ages treatment. I have not kept up

with the latest treatments as it would mean more meds and side effects.

Last time I went they told me about some new procedures.

For me I watch what I eat and drink. If I am at home I will drink more

things. But when I travel then it is only water, no tea, no coffee, no

cokes, no milk or dairy. Over the years I have learned what to avoid. Also,

whenever I take an antibiotic for sinus infections or any other infections,

then my urine flow seems normal. So When I get back from this next trip (a

wedding in California) I hope to see my urologist. I would love to do long

term antibiotic treatments.

How are your eyes holding up? Do you miss Arizona??

God Bless

Priscilla

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