Re: Can peripheral neuropathy and ReA be connected? YES!

[Guest guest]

Yes indeed. I developed full-blown neuropathy symptoms last September and

although they aren't quite as bad as they were at their worst, I still

experience them here and there every day, in semi-random spots all over my body

including my face. Given how frequently I hear from fellow sufferers

(particularly those who've had ReA so long that they've basically given up on

docs entirely -- which helps explain why docs seem to think there's no

connection; they're assuming they have all the facts when in reality, it's their

own fault that they don't have a complete picture because they continue to drive

us away as " undesirable " patients who are more trouble than we're " worth " ) about

this connection, I think it's quite clear that there is one.

This helps explain why, three years ago, I developed radial nerve paralysis of

my right arm (wrist drop, etc all the way up to my shoulder) for almost three

months. I recovered, and I'd never experienced any (other) clear peripheral

neuropathy symptoms before or after until late last year....so I had suspicions,

but nothing to base them on. If we can spread the word about this, which I think

is EXTREMELY important, it could help not only sufferers with neurological

symptoms, but even help scientists better understand the underlying mechanisms

of this disease.

- from Maine

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