Re: how was your day today?

[Guest guest]

Throbbing hands and fingers and aching feet. How was your day? :-(

how was your day today?

how was your day today? what pains did you deal with? you can vent.

:-)

[Guest guest]

I haven't taken photos in months, i miss it...........the Dr. just called today

to say she would be sending my script out to day for humaria?.......i've been

off and on Enbrel 7 years now ...my blood seems to be boiling lately so i went

in and said it's time to change.......I've had what doctors thought was

Reiters........this last one says it's spinalspo//,forgot the spelling, you have

my drift.........8 or 9 years ago i got back into taking pics.......i would ride

my bike around town, walk or just drive the country............getting out made

me feel better, so i got a bike and rode the trails and towns, almost

everywhere....until about 6 years ago ..while i was riding down a hill on a

trail my right handed shifter and break came off.....so here i was trying to

shift into another gear going down hill to fast for the gear i was in....i had

to slow down so i reached for the other break while looking at the other one in

my hand........over i went...i laid

there for a min catching my breath then all of a sudden i realized i couldn't

move....so i laid there in the dirt looking out to the medow then i started to

float, then hover.....this all happened in a matter of seconds......i looked

down at myself and realized i was broke........not exactually knowing what i had

done i just laid there thinking what might happen on the trail way out on a late

march afternoon..........i was a couple miles out each direction but only a few

hundred feet from the express way........so i just laid there listening to cars

go by and thinking.....then all of a sudden this older man appeared, asking what

was wrong.....i said i don't know but i can't move...i asked him if he would go

out to the hwy and flag someone down.....a few mins later he came back saying he

about got run over and no one was stopping........i told him i had a phone under

my see and if he would look.....he finally found it under my arm and i proceeded

to

explain to him on how to use the phone.......finally about 45 mins later i

heard trucks come to a stop out on the hwy and he brought them to me....one guy

i recognized, a firefighter, who stops by the shop now and then.....i asked him

if he knew who i was and told him i think i was messed up good.....he said, yes

and we'll get you to the hospital....as they rolled me over on the board it was

like my body was struck by lightening......volts of electricity going everywhere

and about passed out.........to make this short........the guy yelled under

the cat acan machine and said, whatever you do don't move.....you have a broken

neck.......i laughed and told him, don't worry i can't move anyway.....

after them telling me i may not walk again and be in a wheel chair the rest of

my life......i faught with everything i had to learn to feed myself, brush my

teeth and finally walk out of the hospital 5 weeks lated........with my first

visit to see the neurolagyist, he said come here and let me show you

something......there were 10 or so x-rays from my scan on the wall and he asked,

has your neck been bothering you before the accident..............i said, yes,

how did you know.......he said as he pionted to my vertabres, these here, they

are all fused together.........so while i was laying in the hospitak all the

rest of my vertabres were fused except between 1 and 2...........after a moth

and a half everything hit me......when the bone broke it pinched the spinal cord

and did damage leaving a scar.......in turn the nerves had no way to go and were

rushing thru my back and arms, feeling like a bad sunburn, trying to figure out

where to go.....so after

years of burning, tingeling, and vibrating ........and years of pain killers

and patches.......i went to a pain speciallest that put me on a morphine

pump......it has taken months to adjust it to where it works the best, but i can

somewhat deal with it..and walking around slow and stiff from the damage of my

arthritis, i feel like 90 years old...........so i can't wait to see how the

humaria? does compared to the enbrel.....they wanted me to try the remacade but

i said lets try this first...i don't feel like going and sitting in a hospital

to deal with this unless i have to........so i'm asking, is anyone out there on

this and how does it work for and with you...........sorry about the length of

this, and prob the spelling.......i'm not going back to check............have

a good day everyone......

From: <jr_clost@...>

" " < >

Sent: Tuesday, August 2, 2011 10:26 PM

Subject: how was your day today?

 

i was walking around Niagara Falls today taking photos.

[Guest guest]

Actually feeling a bit better this past week. I think my full dose of

methotrexate is kicking in. I'm on 20 mg (8 pills) a week. I'm not getting

enough exercise though. Really need the weather to cool off, since walking is

about the only thing I can do. That or swimming, but swimming takes a lot of

extra time and effort.

-- Kay

[Guest guest]

i'm sorry. i hope the meds work for you. do you have any support at home? i

hope you (or anyone on here) is going through this all alone. prayers.

>

> I haven't taken photos in months, i miss it...........the Dr. just called

today to say she would be sending my script out to day for humaria?.......i've

been off and on Enbrel 7 years now ...my blood seems to be boiling lately so i

went in and said it's time to change.......I've had what doctors thought was

Reiters........this last one says it's spinalspo//,forgot the spelling, you have

my drift.........8 or 9 years ago i got back into taking pics.......i would ride

my bike around town, walk or just drive the country............getting out made

me feel better, so i got a bike and rode the trails and towns, almost

everywhere....until about 6 years ago ..while i was riding down a hill on a

trail my right handed shifter and break came off.....so here i was trying to

shift into another gear going down hill to fast for the gear i was in....i had

to slow down so i reached for the other break while looking at the other one in

my hand........over i went...i laid

> there for a min catching my breath then all of a sudden i realized i couldn't

move....so i laid there in the dirt looking out to the medow then i started to

float, then hover.....this all happened in a matter of seconds......i looked

down at myself and realized i was broke........not exactually knowing what i had

done i just laid there thinking what might happen on the trail way out on a late

march afternoon..........i was a couple miles out each direction but only a few

hundred feet from the express way........so i just laid there listening to cars

go by and thinking.....then all of a sudden this older man appeared, asking what

was wrong.....i said i don't know but i can't move...i asked him if he would go

out to the hwy and flag someone down.....a few mins later he came back saying he

about got run over and no one was stopping........i told him i had a phone under

my see and if he would look.....he finally found it under my arm and i proceeded

to

> explain to him on how to use the phone.......finally about 45 mins later i

heard trucks come to a stop out on the hwy and he brought them to me....one guy

i recognized, a firefighter, who stops by the shop now and then.....i asked him

if he knew who i was and told him i think i was messed up good.....he said, yes

and we'll get you to the hospital....as they rolled me over on the board it was

like my body was struck by lightening......volts of electricity going everywhere

and about passed out.........to make this short........the guy yelled under

the cat acan machine and said, whatever you do don't move.....you have a broken

neck.......i laughed and told him, don't worry i can't move anyway.....

> after them telling me i may not walk again and be in a wheel chair the rest of

my life......i faught with everything i had to learn to feed myself, brush my

teeth and finally walk out of the hospital 5 weeks lated........with my first

visit to see the neurolagyist, he said come here and let me show you

something......there were 10 or so x-rays from my scan on the wall and he asked,

has your neck been bothering you before the accident..............i said, yes,

how did you know.......he said as he pionted to my vertabres, these here, they

are all fused together.........so while i was laying in the hospitak all the

rest of my vertabres were fused except between 1 and 2...........after a moth

and a half everything hit me......when the bone broke it pinched the spinal cord

and did damage leaving a scar.......in turn the nerves had no way to go and were

rushing thru my back and arms, feeling like a bad sunburn, trying to figure out

where to go.....so after

> years of burning, tingeling, and vibrating ........and years of pain killers

and patches.......i went to a pain speciallest that put me on a morphine

pump......it has taken months to adjust it to where it works the best, but i can

somewhat deal with it..and walking around slow and stiff from the damage of my

arthritis, i feel like 90 years old...........so i can't wait to see how the

humaria? does compared to the enbrel.....they wanted me to try the remacade but

i said lets try this first...i don't feel like going and sitting in a hospital

to deal with this unless i have to........so i'm asking, is anyone out there on

this and how does it work for and with you...........sorry about the length of

this, and prob the spelling.......i'm not going back to check............have

a good day everyone......

>

> From: <jr_clost@...>

> " " < >

> Sent: Tuesday, August 2, 2011 10:26 PM

> Subject: how was your day today?

>

>

>  

> i was walking around Niagara Falls today taking photos.

>

[Guest guest]

so glad to hear.

keep moving mary kay!

>

> Actually feeling a bit better this past week. I think my full dose of

methotrexate is kicking in. I'm on 20 mg (8 pills) a week. I'm not getting

enough exercise though. Really need the weather to cool off, since walking is

about the only thing I can do. That or swimming, but swimming takes a lot of

extra time and effort.

>

> -- Kay

>

[Guest guest]

i feel much empathy with everyone on this board. some of the stories on here

make me feel very sad and i often think that many if not all people on here were

once a young kid and had no pain like we have today. but i guess that is the

life condition we were given....and each one of us has their story to tell.

i've been feeling good. almost normal again at times. i do feel stiffness in

my neck and knees but i was able to jog a little more and walk a mile yesterday.

i embrace each day feeling blessed. my psychologist, family, friends, massage

therapist, meds, exercise, dr's, and supplements are things i believe that have

kept me functional and alive.

i'm almost done with my new album (i'm a musician/music teacher) and will donate

all proceeds to my favorite kids charity, communities in schools.

-ken

>

> how was your day today? what pains did you deal with? you can vent.

> :-)

>