Re: what works for one is not for everyone

[Guest guest]

I certainly relate to Shari's comments. I've had FMS for 30 years, diagnosed for 12 years. I try to go as long as I can between chiropractic treatments but find I need to go a couple of times within 2 to 3 month period of time. My neck feels like it is turning to granite and I get a stabbing pain between my shoulder blades if I don't. I have to have weekly massage to keep the pain in my neck and shoulders at a tolerable level.

As far as exercise, I become very angry when I'm told that exercise cures FMS.. I was on a regular walking program and feeling pretty proud of my self. My hips became so inflamed and painful I had to go into physical therapy. I find I can keep the pain within a livable range if I don't do too much walking. This is a very depressing state of affairs to me. I used to love dance aerobics, but found that every time I tried to go back to it I became very ill with flu like symptoms. I even went to a very gentle water aerobics class and found when I got out of the water that suddenly being non-bouyant was very painful. I find now that the only thing I can really manage is stretching which does help with my symptoms.

As far as medication, I find my insurance company interferring with my doctor's treatment every time I turn around. I went to a sleep doc, after testing I was put on a CPAP machine. I find I cannot reap the full benefit of the sleep machine unless I take sleeping pills along with it. My insurance company will only prescribe 14 pills in a 23 day period of time. What am I supposed to do the other 9 days--not sleep! I've even tried to fight this and get a total run around. My doc prescribed Symbalta--BCBS said he has to get preapproval to prescribe this medication--what a crock!!!

I could not tolerate some of the other meds prescribed for FMS--gabapentein (spelling ?) at a dose strong enough to help with symptoms, it made my brain buzz. Trazadone--groggy all morning--doesn't help with working in a Finance Dept. Had to stop these types of meds just so I could concentrate and string together comprehensive sentences.

My mom also has Fibro, it has gotten worse over the years and now takes a myriad of meds--not sure any of them really help.

Had to put my dog to sleep yesterday, so not in good form today and feeling every pain in my body!!

Deb Halvorson

what works for one is not for everyone

Nadine,

Regarding your post about medications and treatments, I have to comment on a few things you said to remind people of the need to be open minded when it comes to treatments for FMS. I have tried things that I never thought I would, or didn’t really think would work, but needed to do it just so I could say I tried everything.

First, I am sorry you have so much pain and I am glad that you have found some things that work for you. I have degenerative arthritis everywhere which has resulted in 2 surgeries so far, along with my FMS, CFS and other random problems (i.e. meningitis 4 times) – so I know a lot about FMS pain, arthritis pain, surgery pain and headache pain. I know that you are trying to help and you have made some good points; but, using myself as an example, your steps 1-4 below do not represent a treatment regiment that is good for everyone. 1st trigger point massage… if I have a deep massage like that I would be in a flare for a week, not to mention the muscle spasms I get when being pressed on like that. There are other types of gentle P/T and massage however, that do work for me. 2nd: Moist heat is good for some

people, but ice works better for others because of potential swelling. If it can be tolerated, alternating heat and ice is good too. A heated, scented bag (rice bag, lavender, etc) makes me sick to my stomach. I do not tolerate many smells, and am allergic to some of the chemicals in the aroma therapy heat packs. 4th: You are right, water aerobics is good for many people, me included. But, many people cannot even get out of bed let alone go to a facility with a pool and get into a bathing suit to swim. I run an on-line FM support group, and we have had some very heated discussions about exercise. We came to the conclusion that some people just cannot tolerate exercise – period. Also, for people with CFS and ME, exercise can even be dangerous. Your comments about medications come across as being very judgmental: “It in no way helps Fibromyalgia pain, only normal muscle pain

after injury/surgery.” I take pain medication and it is what keeps me off of the couch. I personally take offense to that comment. Whitney made a very good point about the difference between being emotionally addicted and physically addicted to narcotics, and I am sure Dominie has something in her newsletter archives about the subject as well. The theory about the headaches being caused by tight muscles may be true for some people, but over half of the people with FMS suffer with migraines, which is a separate, diagnosable condition within the CSS spectrum of disorders of FMS. So please, don’t downplay the need for medication for migraines because you have your own theory of the origin of the pain. Chiropractic care helps a lot of people by doing more than just giving you exercises. Although it is not my treatment of choice, one shouldn’t be discouraged from trying it – they may be

surprised!

I know you are trying to be supportive of others with your recommendations of treatments and theories, but please try not to be so opinionated. With FMS, there is more unknown than known – so it is very important for everyone to keep an open mind!

Shari Ferbert

On Jan 8, 2008 2:00 PM, nadine redman <nlraccount (DOT) com> wrote:> I have pain too, along with arthritis in both knees, hands, fingers,> feet, and lower back. My neck and back, hips, and shoulders hurt on a daily> basis. Most days after being on my feet at work my heels just scream at> me. I am on Lyrica, Effexor, Seroquil, Synthroid (did everyone know that> most people with Fibro have Thyroid issues?) I also have high BP so I take> Accupril for that. Anyway, my husband is a Physical Therapy Assistant, and> let me tell you what helps tremendously. There are a few things...... 1st is> a

trigger point massage, hurts like hell, but afterwards your body feels> amazing. 2nd heat.....moist heat only. Homemade rice bags are great, and> so are the Chammomile and Lavender wraps from Kohls. 3rd a Paraffin wrap on> your hands and feet. You can find the Paraffin machines at Wal-Mart, Kohls,> Macys, and Meijer stores. That does wonders for hands that hurt and feet> that won't stop throbbing. 4th water aerobics or just walking around in a> heated swimming pool and doing exercises.> For the person on all the meds......wow. You can become very addicted to> Vicodin, Percocet, etc.. Not to mention with that you build up a> tolerance. It in no way helps Fibromyalgia pain, only normal muscle pain> after injury/surgery. Why are you on Imitrex? For the headaches? Does it> help? Honestly most people with Fibro that have the extreme headaches is> because of the knotted

muscles in our necks and upper backs and shoulders.> Try a good massage therapist. They would be a heck of a lot less expensive> than all the medication your on. Chiropractors only help if they give you> the exercises to strengthen the weak areas they keep working on. Yes, pain> is a daily part of all of our lives. Some days are worse than others. I> think a lot of times we expect to have a pain free existance, and well, that> isn't going to happen. I think accepting that has helped me out> tremendously because just accepting that has focused me to living with it> and working with it. There are also doctors that are pain specialists that> some go to. I personally haven't been to one, but there is that help out> there too. Hang in there!!!!!!! !!!! We know how you feel!!!!> Nadine>>

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I'm so sorry about your dog. Grief seems to magnify all the other pain, doesn't it?

Pam

what works for one is not for everyone

Nadine,

Regarding your post about medications and treatments, I have to comment on a few things you said to remind people of the need to be open minded when it comes to treatments for FMS. I have tried things that I never thought I would, or didn’t really think would work, but needed to do it just so I could say I tried everything.

First, I am sorry you have so much pain and I am glad that you have found some things that work for you. I have degenerative arthritis everywhere which has resulted in 2 surgeries so far, along with my FMS, CFS and other random problems (i.e. meningitis 4 times) – so I know a lot about FMS pain, arthritis pain, surgery pain and headache pain. I know that you are trying to help and you have made some good points; but, using myself as an example, your steps 1-4 below do not represent a treatment regiment that is good for everyone. 1st trigger point massage… if I have a deep massage like that I would be in a flare for a week, not to mention the muscle spasms I get when being pressed on like that. There are other types of gentle P/T and massage however, that do work for me. 2nd: Moist heat is good for some people, but ice works better for others because of potential swelling. If it can be tolerated, alternating heat and ice is good too. A heated, scented bag (rice bag, lavender, etc) makes me sick to my stomach. I do not tolerate many smells, and am allergic to some of the chemicals in the aroma therapy heat packs. 4th: You are right, water aerobics is good for many people, me included. But, many people cannot even get out of bed let alone go to a facility with a pool and get into a bathing suit to swim. I run an on-line FM support group, and we have had some very heated discussions about exercise. We came to the conclusion that some people just cannot tolerate exercise – period. Also, for people with CFS and ME, exercise can even be dangerous. Your comments about medications come across as being very judgmental: “It in no way helps Fibromyalgia pain, only normal muscle pain after injury/surgery.” I take pain medication and it is what keeps me off of the couch. I personally take offense to that comment. Whitney made a very good point about the difference between being emotionally addicted and physically addicted to narcotics, and I am sure Dominie has something in her newsletter archives about the subject as well. The theory about the headaches being caused by tight muscles may be true for some people, but over half of the people with FMS suffer with migraines, which is a separate, diagnosable condition within the CSS spectrum of disorders of FMS. So please, don’t downplay the need for medication for migraines because you have your own theory of the origin of the pain. Chiropractic care helps a lot of people by doing more than just giving you exercises. Although it is not my treatment of choice, one shouldn’t be discouraged from trying it – they may be surprised!

I know you are trying to be supportive of others with your recommendations of treatments and theories, but please try not to be so opinionated. With FMS, there is more unknown than known – so it is very important for everyone to keep an open mind!

Shari Ferbert

On Jan 8, 2008 2:00 PM, nadine redman <nlraccount (DOT) com> wrote:> I have pain too, along with arthritis in both knees, hands, fingers,> feet, and lower back. My neck and back, hips, and shoulders hurt on a daily> basis. Most days after being on my feet at work my heels just scream at> me. I am on Lyrica, Effexor, Seroquil, Synthroid (did everyone know that> most people with Fibro have Thyroid issues?) I also have high BP so I take> Accupril for that. Anyway, my husband is a Physical Therapy Assistant, and> let me tell you what helps tremendously. There are a few things...... 1st is> a trigger point massage, hurts like hell, but afterwards your body feels> amazing. 2nd heat.....moist heat only. Homemade rice bags are great, and> so are the Chammomile and Lavender wraps from Kohls. 3rd a Paraffin wrap on> your hands and feet. You can find the Paraffin machines at Wal-Mart, Kohls,> Macys, and Meijer stores. That does wonders for hands that hurt and feet> that won't stop throbbing. 4th water aerobics or just walking around in a> heated swimming pool and doing exercises.> For the person on all the meds......wow. You can become very addicted to> Vicodin, Percocet, etc.. Not to mention with that you build up a> tolerance. It in no way helps Fibromyalgia pain, only normal muscle pain> after injury/surgery. Why are you on Imitrex? For the headaches? Does it> help? Honestly most people with Fibro that have the extreme headaches is> because of the knotted muscles in our necks and upper backs and shoulders.> Try a good massage therapist. They would be a heck of a lot less expensive> than all the medication your on. Chiropractors only help if they give you> the exercises to strengthen the weak areas they keep working on. Yes, pain> is a daily part of all of our lives. Some days are worse than others. I> think a lot of times we expect to have a pain free existance, and well, that> isn't going to happen. I think accepting that has helped me out> tremendously because just accepting that has focused me to living with it> and working with it. There are also doctors that are pain specialists that> some go to. I personally haven't been to one, but there is that help out> there too. Hang in there!!!!!!! !!!! We know how you feel!!!!> Nadine>>

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Debbie, I am a true animal lover, and I know how hard it is to decide "it's time". That just down right sucks! I feel your pain..... I am like you with exercise and was like well, it's all or nothing! I always over-did it and paid for it dearly. I was told to start a stationary bike like at 2-5 minutes every day until I didn't get sore, then gradually build up. Fibro is never cureable, and exercise can just relieve symptoms/stiffness/soreness. Endorphins are magical (LOL!) I used to dance in a parent's dance group and I really miss it. I used to take my dogs on really long walks on our bike path here in town for miles on end, and now I'm trying to build back up, but it's so tedious and frustrating! I just want to be normal! This last year has made my Fibro come out of every part of the woodwork so to say, and I'm thinking that my Rheumatoid Arthritis has made it flare up

even more!!! Okay, back to exercise: try going gradual and see what happens. I know, it seems kinda stupid, but it does make a difference. Prior authorization is a pain the butt. I had to get that with Lyrica, and even for my daughter's Nexium.....when did everything get so complicated? NadinePam Horne <pmarshall@...> wrote: I'm so sorry about your dog. Grief seems to magnify all the other pain, doesn't it? Pam what works for one is not for everyone Nadine, Regarding your post about medications and treatments, I have to comment on a few things you said to remind people of the need to be open minded when it comes to treatments for FMS. I have tried things that I never thought I would, or didn’t really think would work, but needed to do it just so I could say I tried

everything. First, I am sorry you have so much pain and I am glad that you have found some things that work for you. I have degenerative arthritis everywhere which has resulted in 2 surgeries so far, along with my FMS, CFS and other random problems (i.e. meningitis 4 times) – so I know a lot about FMS pain, arthritis pain, surgery pain and headache pain. I know that you are trying to help and you have made some good points; but, using myself as an example, your steps 1-4 below do not represent a treatment regiment that is good for everyone. 1st trigger point massage… if I have a deep massage like that I would be in a flare for a week, not to mention the muscle spasms I get when being pressed on like

that. There are other types of gentle P/T and massage however, that do work for me. 2nd: Moist heat is good for some people, but ice works better for others because of potential swelling. If it can be tolerated, alternating heat and ice is good too. A heated, scented bag (rice bag, lavender, etc) makes me sick to my stomach. I do not tolerate many smells, and am allergic to some of the chemicals in the aroma therapy heat packs. 4th: You are right, water aerobics is good for many people, me included. But, many people cannot even get out of bed let alone go to a facility with a pool and get into a bathing suit to swim. I run an on-line FM support group, and we have had some very heated discussions about exercise. We came to the conclusion that some people just cannot tolerate exercise – period. Also, for people with CFS and ME, exercise can even be dangerous. Your comments about medications

come across as being very judgmental: “It in no way helps Fibromyalgia pain, only normal muscle pain after injury/surgery.” I take pain medication and it is what keeps me off of the couch. I personally take offense to that comment. Whitney made a very good point about the difference between being emotionally addicted and physically addicted to narcotics, and I am sure Dominie has something in her newsletter archives about the subject as well. The theory about the headaches being caused by tight muscles may be true for some people, but over half of the people with FMS suffer with migraines, which is a separate, diagnosable condition within the CSS spectrum of disorders of FMS. So please, don’t downplay the need for medication for migraines because you have your own theory of the origin of the pain. Chiropractic care helps a lot of people by doing more than just giving you exercises. Although it is not

my treatment of choice, one shouldn’t be discouraged from trying it – they may be surprised! I know you are trying to be supportive of others with your recommendations of treatments and theories, but please try not to be so opinionated. With FMS, there is more unknown than known – so it is very important for everyone to keep an open mind! Shari Ferbert On Jan 8, 2008 2:00 PM, nadine redman <nlraccount (DOT) com> wrote:> I have pain too, along with arthritis in both knees, hands, fingers,> feet, and lower back. My neck and back, hips, and shoulders hurt on a daily> basis. Most days after being on my feet at work my heels

just scream at> me. I am on Lyrica, Effexor, Seroquil, Synthroid (did everyone know that> most people with Fibro have Thyroid issues?) I also have high BP so I take> Accupril for that. Anyway, my husband is a Physical Therapy Assistant, and> let me tell you what helps tremendously. There are a few things...... 1st is> a trigger point massage, hurts like hell, but afterwards your body feels> amazing. 2nd heat.....moist heat only. Homemade rice bags are great, and> so are the Chammomile and Lavender wraps from Kohls. 3rd a Paraffin wrap on> your hands and feet. You can find the Paraffin machines at Wal-Mart, Kohls,> Macys, and Meijer stores. That does wonders for hands that hurt and feet> that won't stop throbbing. 4th water aerobics or just walking around in a> heated swimming pool and doing exercises.> For the person on all the meds......wow. You can become very addicted to> Vicodin,

Percocet, etc.. Not to mention with that you build up a> tolerance. It in no way helps Fibromyalgia pain, only normal muscle pain> after injury/surgery. Why are you on Imitrex? For the headaches? Does it> help? Honestly most people with Fibro that have the extreme headaches is> because of the knotted muscles in our necks and upper backs and shoulders.> Try a good massage therapist. They would be a heck of a lot less expensive> than all the medication your on. Chiropractors only help if they give you> the exercises to strengthen the weak areas they keep working on. Yes, pain> is a daily part of all of our lives. Some days are worse than others. I> think a lot of times we expect to have a pain free existance, and well, that> isn't going to happen. I think accepting that has helped me out> tremendously because just accepting that has focused me to living with it> and working with it. There are

also doctors that are pain specialists that> some go to. I personally haven't been to one, but there is that help out> there too. Hang in there!!!!!!! !!!! We know how you feel!!!!> Nadine>> Looking for last minute shopping deals? Find them fast with Search.

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[Guest guest]

I have found something that is working for me... it is an essential

oil called petitgrain. I got it mixed in a glaxal based moistureizer

and it has almost completely relieved my symptoms. If you have not

tried it and are searching for some releif, I would say it is a good

one to try.

Carmen

>

> > I have pain too, along with arthritis in both knees, hands,

fingers,

> > feet, and lower back. My neck and back, hips, and shoulders hurt

on a

> daily

> > basis. Most days after being on my feet at work my heels just

scream at

> > me. I am on Lyrica, Effexor, Seroquil, Synthroid (did everyone

know that

> > most people with Fibro have Thyroid issues?) I also have high BP

so I take

> > Accupril for that. Anyway, my husband is a Physical Therapy

Assistant, and

> > let me tell you what helps tremendously. There are a few

things......1st

> is

> > a trigger point massage, hurts like hell, but afterwards your

body feels

> > amazing. 2nd heat.....moist heat only. Homemade rice bags are

great, and

> > so are the Chammomile and Lavender wraps from Kohls. 3rd a

Paraffin wrap

> on

> > your hands and feet. You can find the Paraffin machines at Wal-

Mart,

> Kohls,

> > Macys, and Meijer stores. That does wonders for hands that hurt

and feet

> > that won't stop throbbing. 4th water aerobics or just walking

around in a

> > heated swimming pool and doing exercises.

> > For the person on all the meds......wow. You can become very

addicted to

> > Vicodin, Percocet, etc.. Not to mention with that you build up a

> > tolerance. It in no way helps Fibromyalgia pain, only normal

muscle pain

> > after injury/surgery. Why are you on Imitrex? For the headaches?

Does it

> > help? Honestly most people with Fibro that have the extreme

headaches is

> > because of the knotted muscles in our necks and upper backs and

shoulders.

> > Try a good massage therapist. They would be a heck of a lot less

expensive

> > than all the medication your on. Chiropractors only help if they

give you

> > the exercises to strengthen the weak areas they keep working on.

Yes, pain

> > is a daily part of all of our lives. Some days are worse than

others. I

> > think a lot of times we expect to have a pain free existance, and

well,

> that

> > isn't going to happen. I think accepting that has helped me out

> > tremendously because just accepting that has focused me to living

with it

> > and working with it. There are also doctors that are pain

specialists that

> > some go to. I personally haven't been to one, but there is that

help out

> > there too. Hang in there!!!!!!!!!!! We know how you feel!!!!

> > Nadine

> >

> >

>

[Guest guest]

Carmen, Thanks...I'm going to check and see if our "holistic" store in my area has that oil. Nadine"carmen.niemi" <carmen@...> wrote: I have found something that is working for me... it is an essential oil called petitgrain. I got it mixed in a glaxal based moistureizer and it has almost completely relieved my symptoms. If you have not tried it and are searching for some releif, I would say it is a good one to try.Carmen> > > I have pain too, along with arthritis in both knees, hands, fingers,> > feet, and lower back. My neck and back, hips, and shoulders hurt on a> daily> > basis. Most days after being on my feet at work my heels just scream at> > me. I am on Lyrica, Effexor, Seroquil, Synthroid (did everyone know that> > most people with Fibro have Thyroid issues?) I also have high BP so I take> > Accupril for that. Anyway, my husband is a Physical Therapy Assistant, and> > let me tell you what helps tremendously. There are a few things......1st> is> > a trigger point massage, hurts like hell, but afterwards

your body feels> > amazing. 2nd heat.....moist heat only. Homemade rice bags are great, and> > so are the Chammomile and Lavender wraps from Kohls. 3rd a Paraffin wrap> on> > your hands and feet. You can find the Paraffin machines at Wal-Mart,> Kohls,> > Macys, and Meijer stores. That does wonders for hands that hurt and feet> > that won't stop throbbing. 4th water aerobics or just walking around in a> > heated swimming pool and doing exercises.> > For the person on all the meds......wow. You can become very addicted to> > Vicodin, Percocet, etc.. Not to mention with that you build up a> > tolerance. It in no way helps Fibromyalgia pain, only normal muscle pain> > after injury/surgery. Why are you on Imitrex? For the headaches? Does it> > help? Honestly most people with Fibro that have the extreme headaches

is> > because of the knotted muscles in our necks and upper backs and shoulders.> > Try a good massage therapist. They would be a heck of a lot less expensive> > than all the medication your on. Chiropractors only help if they give you> > the exercises to strengthen the weak areas they keep working on. Yes, pain> > is a daily part of all of our lives. Some days are worse than others. I> > think a lot of times we expect to have a pain free existance, and well,> that> > isn't going to happen. I think accepting that has helped me out> > tremendously because just accepting that has focused me to living with it> > and working with it. There are also doctors that are pain specialists that> > some go to. I personally haven't been to one, but there is that help out> > there too. Hang in there!!!!!!!!!!! We know how you

feel!!!!> > Nadine> >> >>

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there is evidence (wish i knew were the article was), that shows that people with fibro don't have as many opiod receptors.. so naractics do work with us as well as the rest of the population (or maybe we're less likely to get an addiction problem) my father has a naractics addiction (codiene) and it's sad... all drugs, naractics or not, should be examined to determine if the risks out weight the benefits for YOU... for example, i know provigil as worked for many while for me it got to be down right dangerous (gave me a heart arrythemia, not fun).. though i like ultram while i now others that can't tolerage... we have to make informed descisions about all the treatment options we decide to take and find the combination that works for us. blessed be lizShari Ferbert <shari23@...> wrote: Nadine, Regarding your post about medications and treatments, I have to comment on a few things you said to remind people of the need to be open minded when it comes to treatments for FMS. I have tried things that I never thought I would, or didn’t really think

would work, but needed to do it just so I could say I tried everything. First, I am sorry you have so much pain and I am glad that you have found some things that work for you. I have degenerative arthritis everywhere which has resulted in 2 surgeries so far, along with my FMS, CFS and other random problems (i.e. meningitis 4 times) – so I know a lot about FMS pain, arthritis pain, surgery pain and headache pain. I know that you are trying to help and you have made some good points; but, using myself as an example, your steps 1-4 below do not represent a treatment regiment that is good for everyone. 1st trigger point massage… if I have a deep massage like that I would be in a flare for a week,

not to mention the muscle spasms I get when being pressed on like that. There are other types of gentle P/T and massage however, that do work for me. 2nd: Moist heat is good for some people, but ice works better for others because of potential swelling. If it can be tolerated, alternating heat and ice is good too. A heated, scented bag (rice bag, lavender, etc) makes me sick to my stomach. I do not tolerate many smells, and am allergic to some of the chemicals in the aroma therapy heat packs. 4th: You are right, water aerobics is good for many people, me included. But, many people cannot even get out of bed let alone go to a facility with a pool and get into a bathing suit to swim. I run an on-line FM support group, and we have had some very heated discussions about exercise. We came to the conclusion that some people just cannot tolerate exercise – period. Also, for people with CFS and ME,

exercise can even be dangerous. Your comments about medications come across as being very judgmental: “It in no way helps Fibromyalgia pain, only normal muscle pain after injury/surgery.” I take pain medication and it is what keeps me off of the couch. I personally take offense to that comment. Whitney made a very good point about the difference between being emotionally addicted and physically addicted to narcotics, and I am sure Dominie has something in her newsletter archives about the subject as well. The theory about the headaches being caused by tight muscles may be true for some people, but over half of the people with FMS suffer with migraines, which is a separate, diagnosable condition within the CSS spectrum of disorders of FMS. So please, don’t downplay the need for medication for migraines because you have your own theory of the origin of the pain. Chiropractic care helps a lot of people by

doing more than just giving you exercises. Although it is not my treatment of choice, one shouldn’t be discouraged from trying it – they may be surprised! I know you are trying to be supportive of others with your recommendations of treatments and theories, but please try not to be so opinionated. With FMS, there is more unknown than known – so it is very important for everyone to keep an open mind! Shari Ferbert On Jan 8, 2008 2:00 PM, nadine redman <nlraccount > wrote:> I have pain too, along with arthritis in both knees, hands, fingers,> feet, and lower back. My neck and back, hips, and shoulders hurt on a

daily> basis. Most days after being on my feet at work my heels just scream at> me. I am on Lyrica, Effexor, Seroquil, Synthroid (did everyone know that> most people with Fibro have Thyroid issues?) I also have high BP so I take> Accupril for that. Anyway, my husband is a Physical Therapy Assistant, and> let me tell you what helps tremendously. There are a few things......1st is> a trigger point massage, hurts like hell, but afterwards your body feels> amazing. 2nd heat.....moist heat only. Homemade rice bags are great, and> so are the Chammomile and Lavender wraps from Kohls. 3rd a Paraffin wrap on> your hands and feet. You can find the Paraffin machines at Wal-Mart, Kohls,> Macys, and Meijer stores. That does wonders for hands that hurt and feet> that won't stop throbbing. 4th water aerobics or just walking around in a> heated swimming pool and doing exercises.> For the person

on all the meds......wow. You can become very addicted to> Vicodin, Percocet, etc.. Not to mention with that you build up a> tolerance. It in no way helps Fibromyalgia pain, only normal muscle pain> after injury/surgery. Why are you on Imitrex? For the headaches? Does it> help? Honestly most people with Fibro that have the extreme headaches is> because of the knotted muscles in our necks and upper backs and shoulders.> Try a good massage therapist. They would be a heck of a lot less expensive> than all the medication your on. Chiropractors only help if they give you> the exercises to strengthen the weak areas they keep working on. Yes, pain> is a daily part of all of our lives. Some days are worse than others. I> think a lot of times we expect to have a pain free existance, and well, that> isn't going to happen. I think accepting that has helped me out> tremendously because just accepting

that has focused me to living with it> and working with it. There are also doctors that are pain specialists that> some go to. I personally haven't been to one, but there is that help out> there too. Hang in there!!!!!!!!!!! We know how you feel!!!!> Nadine>>

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Thank you Shari and Whitney! You have both made wonderful points that I have been thinking but not typing. I believe there are so many unknowns with fibro that it is unfair and, well, a bit offensive to hear/read someone's statements so bluntly put, not as helpful suggestions or possibilties (because there are no absolutes here) but as unchangable opinions. Nadine, it's sweet of you and everyone else who tries to help one another. Perhaps it's your choice of words and all the !! that make your posts come off as a little offensive. Though we do greatly appreciate each other's help, we all need to keep an open mind and realize that we are all different. And also realize that new studies are being done, previous thoughts about Fibro are changing, and one very knowledgable Rheum doesn't necessarily know better than another very knowledgable Rheum with a different opinion based on different research. There are just

so many variables here. There may be better ways for some to treat than with narcotics, but what if nothing else works for some? Narcotic pain relievers can help a GREAT deal with musculoskeletal pain. I know many women with pelvic floor pain of musculoskeletal origin and the only way they have been able to break the pain cycle was with the help of narcs combined with PT and various alternative treatments. Together, we researched the incidence of actual addiction to narcotics and it is actually pretty low. The body can become dependent to keep itself out of intense pain, but this is different than addiction. It seemed none of us wanted to take them for fear of becoming addicted, however not one of us has had this problem. And many of us come from families with members who have addictive personalities... Just wanted to share my experience. Anyway, I think we can all agree that we are all

different and have many different symptoms that respond differently to various forms of treatment. All we can do is offer hope and suggestions that may help others

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Tiff, First of all, how dare you? How dare you say I wrote or didn't forward something that was helpful to people out there? Why mention you were thinking something and not typing it? What's that about? Let someone else start the fire? That was really hurtful and for what? A possible misunderstanding? What was so blunt? Afterall, the beginning of all this stupid drama was a list of what I wrote of things that was WORKING FOR ME and thought I'd share that with others out there. Shari took it to mean I was suggesting EVERYONE to try the same things, or more of telling me my "ideas" were wrong. Well, they're not ideas, it's what I do to help me get through pain. Hello.........????? Shari took a lot of things out of context, like me making a comment about the person on all the meds. I was trying just to give some helpful advice, maybe different ideas

to help them, and thus this. She attacked me, so I retaliated. I am fighting the same disease as everyone else, so please do not point fingers! Yes, I have a huge problem with Narcotics. Why don't you come to where my husband works in a lock down facility in Columbus and see exactly HOW MANY PEOPLE DON'T GET ADDICTED TO NARCOTICS! Oh, but wait a minute....they couldn't be chronic pain patients, or Fibro patients, or anything but junkies, right? Well, you are very, very wrong! Yes, that statement was blunt. Why is it everyone gets their feathers all ruffled up when I mention this topic? I find that interesting in itself. Why are some of you so afraid of my statements? Didn't I write whatever people feel is the lesser of 2 evils? Didn't I say that Narcotics can be good for different types of pain? Why are you singling in on one

item? What about all the information I just sent out on Autoimmune, Plumeria plants, Neurologist, the Pharamcological sight for Fibro, the new treatment for Fibro using Growth Hormone etc., etc.. Isn't that helpful information we all could learn from? Is that me being blunt and opioniated? Gee....is that about whose right and wrong, or is that about trying to help each and every one of us battling this disease?????? Didn't you read Dominie's statement about what this support group is supposed to be? Where is your love and understanding towards me? And you don't even know me. You're going off Shari's response to my post and that is extremely hurtful. I'm not saying people are bad for taking Narcotics, I'm just saying there may be a better alternative. By the way, the Rheumatologist that I was referring to was Dr. Flood who is considered one of the best in the Rheumatology

world. One last thing, unchangeable opinions? On narcotics, yes. Obviously you haven't read my replies to others with things I want to try that I'm not already doing. Does that sound like someone who has all the answers? Does that sound like someone who has unchangeable opinions? I don't think I'm the one with unchangeable opinions. Nadine Tiff <bestel63@...> wrote: Thank you Shari and Whitney! You have both made wonderful points that I have

been thinking but not typing. I believe there are so many unknowns with fibro that it is unfair and, well, a bit offensive to hear/read someone's statements so bluntly put, not as helpful suggestions or possibilties (because there are no absolutes here) but as unchangable opinions. Nadine, it's sweet of you and everyone else who tries to help one another. Perhaps it's your choice of words and all the !! that make your posts come off as a little offensive. Though we do greatly appreciate each other's help, we all need to keep an open mind and realize that we are all different. And also realize that new studies are being done, previous thoughts about Fibro are changing, and one very knowledgable Rheum doesn't necessarily know better than another very knowledgable Rheum with a different opinion based on different research. There are just so many variables here. There may be better ways

for some to treat than with narcotics, but what if nothing else works for some? Narcotic pain relievers can help a GREAT deal with musculoskeletal pain. I know many women with pelvic floor pain of musculoskeletal origin and the only way they have been able to break the pain cycle was with the help of narcs combined with PT and various alternative treatments. Together, we researched the incidence of actual addiction to narcotics and it is actually pretty low. The body can become dependent to keep itself out of intense pain, but this is different than addiction. It seemed none of us wanted to take them for fear of becoming addicted, however not one of us has had this problem. And many of us come from families with members who have addictive personalities... Just wanted to share my experience. Anyway, I think we can all agree that we are all different and have many different symptoms that respond differently to various

forms of treatment. All we can do is offer hope and suggestions that may help others Looking for last minute shopping deals? Find them fast with Search.

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,Thank you sooo much for your response! I read it second to the one below but should have read it first. Everything you said is right on and very supportive to all of us. It's nice for me to read someone else's account of their experience with addictive personalities and such. I thought maybe I was the only one that had been given that stereotype - for me it was when I was in high school and everyone around me was experimenting with alcohol and drugs. My aunt told me that I'd better be careful because that addictive personality ran in our family and I could very easily get carried away and get into trouble. I never believed her to begin with but it wasn't until I studied the concept that I immediately thought it was B.S. I didnt' really experiment with anything until after high school but regardless, I've never felt that pull and or strong need to get high and lose control. Anyway, I hope you're okay ;)To Nadine: My pain meds are what I need and as I said to myself last night thinking over this whole conversation that has now been blown way out of proportion, there are many times per day where I don't always take my Percocet because I don't need to - what does that tell you? Well, it should tell you that I'm not addicted to my drugs, nor have I built up much of a tolerance either, because if I went without a dose, I would still experience pain but that is not the case with me, fortunately. Today, this morning, I woke up, took my supplements and my regular meds and didnt' need to take my Percocet dose. I needed to in the afternoon before a walk I took but that was also taken as a preventative measure as well, to prevent myself from flaring up after exercising and to help with the pain that I knew would come on from exercise anyway. Just because someone mentions the word- narcotics, doesn't mean that anyone should be jumping to conclusions about them or their use. I see the words that you type coming across as being VERY negative and VERY close-minded. I would truly hope you are not really like that in person. 's post was very supportive and was a good explanation of her thoughts and feelings. She didn't bash you or try to make you upset or accuse you of anything. She used a personal story of hers and that made things very clear. However, you totally turned around and bashed in return and I really don't understand why. Maybe it's just that you can't see how your own words are coming across to people but they are extremely hurtful, I'm sure to and also to other people who may just be reading all of this but not posting because it has turned into a heated discussion. It seems that you are trying to change our minds about our treatment and you're not going to be able to do that. Why would you want to? What is the point of telling us we should come to the facility that your dad works? How is that supposed to help us? I doubt that any of us are blind to what is going on with the drug war in the real world and we are all very conscious of addiction and what the long term and short term side effects of prescription drugs are and what they can do to us. But I think most of us are under the safe, closely watched care of our doctors and we're doing what they think is best for us. I don't think Shari attacked you at all - I think that is how you are taking it, but it did not come across that way to me at all and I've never known her to treat someone like that. You come across as being extremely opinionated, as if the treatments that you do are what everyone else should do and that we are bad people or addicts if we rely on pain meds and other forms of treatment. The articles you posted on things such as growth hormone - that's great and all, but those are theories!! Those forms of treatment aren't even readily available yet and when they do come out, I doubt they will be something that will be covered by insurance, unless insurance companies are given a good enough reason to cover them, not to mention their cost, which I believe will be catastrophic and most of us can't afford anything that is not covered by our insurance or we can't even see someone who does not take payments. So the articles are not solutions for us and to many people, they are not helpful because they would never even be a possibility as a treatment. This illness is sometimes called the 'rich person's disease' - meaning that only those with money can actually get treated and get somewhat cured or get their illnesses to go into remission. I believe that is why so many people are left untreated and die with this horrible disease. And had a really good point when she said that there are still so many doctors out there who don't even believe in Fibromyalgia, so how are people that have those doctors supposed to get any better either? It's not their fault that their doctors are just handing them prescriptions to put a bandage over their wound. So please have a heart and try not to bash other people for simply speaking their opinions and their own stories. I think maybe you should try to just listen to what people have to say for a while and find your own way in this group. None of us want to be harassed by your email above, it was just really harsh and had way too many unanswerable questions in it - many questions that I think you should be asking yourself. WhitneyOn Jan 12, 2008 8:11 PM, nadine redman <nlraccount@...> wrote:

Tiff, First of all, how dare you? How dare you say I wrote or didn't forward something that was helpful to people out there? Why mention you were thinking something and not typing it? What's that about? Let someone else start the fire? That was really hurtful and for what? A possible misunderstanding? What was so blunt? Afterall, the beginning of all this stupid drama was a list of what I wrote of things that was WORKING FOR ME and thought I'd share that with others out there. Shari took it to mean I was suggesting EVERYONE to try the same things, or more of telling me my " ideas " were wrong. Well, they're not ideas, it's what I do to help me get through pain. Hello.........????? Shari took a lot of things out of context, like me making a comment about the person on all the meds. I was trying just to give some helpful advice, maybe different ideas

to help them, and thus this. She attacked me, so I retaliated. I am fighting the same disease as everyone else, so please do not point fingers! Yes, I have a huge problem with Narcotics. Why don't you come to where my husband works in a lock down facility in Columbus and see exactly HOW MANY PEOPLE DON'T GET ADDICTED TO NARCOTICS! Oh, but wait a minute....they couldn't be chronic pain patients, or Fibro patients, or anything but junkies, right? Well, you are very, very wrong! Yes, that statement was blunt. Why is it everyone gets their feathers all ruffled up when I mention this topic? I find that interesting in itself. Why are some of you so afraid of my statements? Didn't I write whatever people feel is the lesser of 2 evils? Didn't I say that Narcotics can be good for different types of pain? Why are you singling in on one

item? What about all the information I just sent out on Autoimmune, Plumeria plants, Neurologist, the Pharamcological sight for Fibro, the new treatment for Fibro using Growth Hormone etc., etc.. Isn't that helpful information we all could learn from? Is that me being blunt and opioniated? Gee....is that about whose right and wrong, or is that about trying to help each and every one of us battling this disease?????? Didn't you read Dominie's statement about what this support group is supposed to be? Where is your love and understanding towards me? And you don't even know me. You're going off Shari's response to my post and that is extremely hurtful. I'm not saying people are bad for taking Narcotics, I'm just saying there may be a better alternative. By the way, the Rheumatologist that I was referring to was Dr. Flood who is considered one of the best in the Rheumatology

world. One last thing, unchangeable opinions? On narcotics, yes. Obviously you haven't read my replies to others with things I want to try that I'm not already doing. Does that sound like someone who has all the answers? Does that sound like someone who has unchangeable opinions? I don't think I'm the one with unchangeable opinions.

Nadine Tiff <bestel63@...> wrote:

Thank you Shari and Whitney! You have both made wonderful points that I have

been thinking but not typing. I believe there are so many unknowns with fibro that it is unfair and, well, a bit offensive to hear/read someone's statements so bluntly put, not as helpful suggestions or possibilties (because there are no absolutes here) but as unchangable opinions. Nadine, it's sweet of you and everyone else who tries to help one another. Perhaps it's your choice of words and all the !! that make your posts come off as a little offensive. Though we do greatly appreciate each other's help, we all need to keep an open mind and realize that we are all different. And also realize that new studies are being done, previous thoughts about Fibro are changing, and one very knowledgable Rheum doesn't necessarily know better than another very knowledgable Rheum with a different opinion based on different research. There are just so many variables here.

There may be better ways

for some to treat than with narcotics, but what if nothing else works for some? Narcotic pain relievers can help a GREAT deal with musculoskeletal pain. I know many women with pelvic floor pain of musculoskeletal origin and the only way they have been able to break the pain cycle was with the help of narcs combined with PT and various alternative treatments. Together, we researched the incidence of actual addiction to narcotics and it is actually pretty low. The body can become dependent to keep itself out of intense pain, but this is different than addiction. It seemed none of us wanted to take them for fear of becoming addicted, however not one of us has had this problem. And many of us come from families with members who have addictive personalities... Just wanted to share my experience.

Anyway, I think we can all agree that we are all different and have many different symptoms that respond differently to various

forms of treatment. All we can do is offer hope and suggestions that may help others Looking for last minute shopping deals?

Find them fast with Search. Never miss a thing. Make your homepage.

-- Eat, sleep, dream and be the music!Life is short, live each day to its' fullest!Cave softly and leave no trace.Find a cure for chronic pain!Ask about The Purrfect Petsitter and Infinite Creations!

[Guest guest]

Thanks Whitney My mom gave me the same warning your aunt gave you, but to date I've never had any problems. I only take my pain meds when absolutely necessary or as a preventative if I know I'm going on a long drive or flight or something that I know will cause pain. My mom is vary against pills, pills of most kinds actually. So I just don't discuss it with her. I know if I tried to explain how anti-depressants help with pain she would just think I was making excuses for fogging my mind over with pills when all I really have to do is 'not be depressed'. I love my mom, she's my good friend but she just doesn't get some things. Oh well, glad I have you guys now

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Wow! My parents are the same way! I love them as well but I was finally able to tell them to just 'back off' just after the new year because I need to do what works best and what my doctor thinks will work best as well and I just need them to be loving and caring. So they are now left out of lots of those types of details in my life. It's for the best I believe. Glad to know there are others that have had the same problems with other people. Glad I could be of help!

Whitney :)On Jan 13, 2008 12:46 PM, Tiff <bestel63@...> wrote:

Thanks Whitney My mom gave me the same warning your aunt gave you, but to date I've never had any problems. I only take my pain meds when absolutely necessary or as a preventative if I know I'm going on a long drive or flight or something that I know will cause pain. My mom is vary against pills, pills of most kinds actually. So I just don't discuss it with her. I know if I tried to explain how anti-depressants help with pain she would just think I was making excuses for fogging my mind over with pills when all I really have to do is 'not be depressed'. I love my mom, she's my good friend but she just doesn't get some things. Oh well, glad I have you guys now

Never miss a thing. Make your homepage.

-- Eat, sleep, dream and be the music!Life is short, live each day to its' fullest!Cave softly and leave no trace.Find a cure for chronic pain!Ask about The Purrfect Petsitter and Infinite Creations!

[Guest guest]

I also take an anti-depressant (Effexor XR) I'm not sure it helps with pain, but it has helped with others things. Is Cymbalta better for pain? My doctor said Effexor or Cymbalta is usually what works for people with Fibro. Does anyone take anything different (anti depressant) that helps more so with the pain factor? I also supplement with Seroquil on really bad days, but if I take two I'm really, really tired and non motivating the most of the next day. My mom has RA, Fibro, and other health issues, and I cannot convince her either that anti-depressants help. Go figure.....moms (LOL!) Or aunts =). Nadine Whitney <infinite242@...> wrote: Wow! My parents are the same way! I love them as well but I was finally able to tell them to just 'back off' just after the new year because I need to do what works best and what my doctor thinks will work best as well and I just need them to be loving and caring. So they are now left out of lots of those types of details in my life. It's for the best I believe. Glad to know there are others that have had the same problems with other people. Glad I could be of help! Whitney On Jan 13, 2008 12:46 PM, Tiff <bestel63 > wrote: Thanks Whitney My mom gave me the same warning your aunt gave you, but to date I've never had any problems. I only take my pain meds when absolutely necessary or as a preventative if I know I'm going on a long drive or flight or something that I know will cause pain. My mom is vary against pills, pills of most kinds actually. So I just don't discuss it with her. I know if I tried to explain how anti-depressants help with pain she would just think I was making excuses for fogging my mind over with pills when all I really have to do is 'not be depressed'. I love my mom, she's my good friend but she just doesn't get some things. Oh well, glad I have you guys now Never miss a thing. Make your

homepage. -- Eat, sleep, dream and be the music!Life is short, live each day to its' fullest!Cave softly and leave no trace.Find a cure for chronic pain!Ask about The Purrfect Petsitter and Infinite Creations!

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

EFFEXOR HAS TO BE A HIGH ENOUGH DOSEAGE TO GIVE PAIN RELIEF BENEFITS. I FINALLY HAD TO GO OFF IT AS THE SIDE EFFECTS FOR ME WAS TOO BAD AND I WAS ON IT FOR 2-3 YRS.nadine redman <nlraccount@...> wrote: I also take an anti-depressant (Effexor XR) I'm not sure it helps with pain, but it has helped with others things. Is Cymbalta better for pain? My doctor said Effexor or Cymbalta is usually what works for people with Fibro. Does anyone take anything different (anti depressant) that helps more so with the

pain factor? I also supplement with Seroquil on really bad days, but if I take two I'm really, really tired and non motivating the most of the next day. My mom has RA, Fibro, and other health issues, and I cannot convince her either that anti-depressants help. Go figure.....moms (LOL!) Or aunts =). Nadine Whitney <infinite242gmail> wrote: Wow! My parents are the same way! I love them as well but I was finally able to tell them to just 'back off' just after the new year because I need to do what works best and what my doctor thinks will work best as well and I just need them to be loving and caring. So they are now left out of lots of those types of details in my life. It's for the best I believe. Glad to know there are others that have had the same problems with

other people. Glad I could be of help! Whitney On Jan 13, 2008 12:46 PM, Tiff <bestel63 > wrote: Thanks Whitney My mom gave me the same warning your aunt gave you, but to date I've never had any problems. I only take my pain meds when absolutely necessary or as a preventative if I know I'm going on a long drive or flight or something that I know will cause pain. My mom is vary against pills, pills of most kinds actually. So I just don't discuss it with her. I know if I tried to explain how anti-depressants help with pain she would just think I was making excuses for fogging my mind over with pills when all I really have to do is 'not be depressed'. I love my mom,

she's my good friend but she just doesn't get some things. Oh well, glad I have you guys now Never miss a thing. Make your homepage. -- Eat, sleep, dream and be the music!Life is short, live each day to its' fullest!Cave softly and leave no trace.Find a cure for chronic pain!Ask about The Purrfect Petsitter and Infinite Creations! Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

I'm on the highest dose of 225mg 1x day. I don't really have any side effects from it, just no pain relief. I had my weight gain before all this, largely due to my Thyroid, and even though I'm on medicine for that, I still can't get rid of the weight (grr.) Nadine"christina h." <christina-777@...> wrote: EFFEXOR HAS TO BE A HIGH ENOUGH DOSEAGE TO GIVE PAIN RELIEF BENEFITS. I FINALLY HAD TO GO OFF IT AS THE SIDE EFFECTS FOR ME WAS TOO BAD AND I WAS ON IT FOR 2-3 YRS.nadine redman

<nlraccount > wrote: I also take an anti-depressant (Effexor XR) I'm not sure it helps with pain, but it has helped with others things. Is Cymbalta better for pain? My doctor said Effexor or Cymbalta is usually what works for people with Fibro. Does anyone take anything different (anti depressant) that helps more so with the pain factor? I also supplement with Seroquil on really bad days, but if I take two I'm really, really tired and non motivating the most of the next day. My mom has RA, Fibro, and other health issues, and I cannot convince her either that anti-depressants help. Go figure.....moms (LOL!) Or aunts =). Nadine Whitney <infinite242gmail> wrote: Wow! My parents are the same way! I love them as well but I was finally able to tell them to just 'back off' just after the new year because I need to do what works best and what my doctor thinks will work best as well and I just need them to be loving and caring. So they are now left out of lots of those types of details in my life. It's for the best I believe. Glad to know there are others that have had the same problems with other people. Glad I could be of help! Whitney On Jan 13, 2008 12:46 PM, Tiff <bestel63 > wrote: Thanks Whitney My mom gave me the same warning your aunt gave you, but to date

I've never had any problems. I only take my pain meds when absolutely necessary or as a preventative if I know I'm going on a long drive or flight or something that I know will cause pain. My mom is vary against pills, pills of most kinds actually. So I just don't discuss it with her. I know if I tried to explain how anti-depressants help with pain she would just think I was making excuses for fogging my mind over with pills when all I really have to do is 'not be depressed'. I love my mom, she's my good friend but she just doesn't get some things. Oh well, glad I have you guys now Never miss a thing. Make your homepage. -- Eat, sleep, dream and be the music!Life is

short, live each day to its' fullest!Cave softly and leave no trace.Find a cure for chronic pain!Ask about The Purrfect Petsitter and Infinite Creations! Looking for last minute shopping deals? Find them fast with Search.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

elavil and some older drugs act as both an anti-depressant and a muscle relaxer along with sleeping aid... but can cause fatigue problems...cymbalta has been submitted for FDA approval for fibro so there must be some major indication that cymbalta is good for pain.. it's already been approved for neuropathy.. nadine redman <nlraccount@...> wrote: I also take an anti-depressant (Effexor XR) I'm not sure it helps with pain, but it has helped with others things. Is Cymbalta better for pain? My doctor said Effexor or

Cymbalta is usually what works for people with Fibro. Does anyone take anything different (anti depressant) that helps more so with the pain factor? I also supplement with Seroquil on really bad days, but if I take two I'm really, really tired and non motivating the most of the next day. My mom has RA, Fibro, and other health issues, and I cannot convince her either that anti-depressants help. Go figure.....moms (LOL!) Or aunts =). Nadine Whitney <infinite242gmail> wrote: Wow! My parents are the same way! I love them as well but I was finally able to tell them to just 'back off' just after the new year because I need to do what works best and what my doctor thinks will work best as well and I just need them to be loving and caring. So they are now left

out of lots of those types of details in my life. It's for the best I believe. Glad to know there are others that have had the same problems with other people. Glad I could be of help! Whitney On Jan 13, 2008 12:46 PM, Tiff <bestel63 > wrote: Thanks Whitney My mom gave me the same warning your aunt gave you, but to date I've never had any problems. I only take my pain meds when absolutely necessary or as a preventative if I know I'm going on a long drive or flight or something that I know will cause pain. My mom is vary against pills, pills of most kinds actually. So I just don't discuss it with her. I know if I tried to explain how anti-depressants help with pain she

would just think I was making excuses for fogging my mind over with pills when all I really have to do is 'not be depressed'. I love my mom, she's my good friend but she just doesn't get some things. Oh well, glad I have you guys now Never miss a thing. Make your homepage. -- Eat, sleep, dream and be the music!Life is short, live each day to its' fullest!Cave softly and leave no trace.Find a cure for chronic pain!Ask about The Purrfect Petsitter and Infinite Creations! Looking for last minute shopping deals? Find them fast with Search.

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

possibly another thing to think about in the use of anti-depressants for pain or anything else.. if there is a family or personal history of bipolar disorder, then anti-depressants can actually by too strong and cause a manic stage (which is not a good place to be).. this is why i can't take cymbalta.. i go manic, i get pissed and irritable to say the least, and have an *increase* in pain... i find it interesting that there's a group of people that cymbalta works great for fibro while another group (like myself) have such a negative response... just makes me wonder... Gamble <eagamble@...> wrote: elavil and some older drugs act as both an anti-depressant and a muscle relaxer along with sleeping aid... but can cause fatigue problems...cymbalta has been submitted for FDA approval for fibro so there must be some major indication that cymbalta is good for pain.. it's already been approved for neuropathy.. nadine redman <nlraccount > wrote: I also take an anti-depressant (Effexor XR) I'm not sure it helps with pain, but it has helped with others things. Is Cymbalta better for pain? My doctor said Effexor or Cymbalta is usually what works for people with Fibro. Does anyone take anything different (anti depressant) that helps more so with the pain factor? I also supplement with

Seroquil on really bad days, but if I take two I'm really, really tired and non motivating the most of the next day. My mom has RA, Fibro, and other health issues, and I cannot convince her either that anti-depressants help. Go figure.....moms (LOL!) Or aunts =). Nadine Whitney <infinite242gmail> wrote: Wow! My parents are the same way! I love them as well but I was finally able to tell them to just 'back off' just after the new year because I need to do what works best and what my doctor thinks will work best as well and I just need them to be loving and caring. So they are now left out of lots of those types of details in my life. It's for the best I believe. Glad to know there are others that have had the same problems with other people. Glad I could be of help!

Whitney On Jan 13, 2008 12:46 PM, Tiff <bestel63 > wrote: Thanks Whitney My mom gave me the same warning your aunt gave you, but to date I've never had any problems. I only take my pain meds when absolutely necessary or as a preventative if I know I'm going on a long drive or flight or something that I know will cause pain. My mom is vary against pills, pills of most kinds actually. So I just don't discuss it with her. I know if I tried to explain how anti-depressants help with pain she would just think I was making excuses for fogging my mind over with pills when all I really have to do is 'not be depressed'. I love my mom, she's my good friend but she just doesn't

get some things. Oh well, glad I have you guys now Never miss a thing. Make your homepage. -- Eat, sleep, dream and be the music!Life is short, live each day to its' fullest!Cave softly and leave no trace.Find a cure for chronic pain!Ask about The Purrfect Petsitter and Infinite Creations! Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search.

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

My doctor and I talked about Cymbalta and I decided against it for now because I would go through "side effects" so to say changing medication and would have the "effects" of change for about 4 weeks. I did this already changing from Lexapro to Effexor a year ago and thanks but no thanks. Interesting note on Elavil....I didn't have any relief, or any side effects from it. It was like I was popping candy, in other words, not even taking medication. Nadine Gamble <eagamble@...> wrote: possibly another thing to think about in the use of anti-depressants for pain or anything else.. if there is a family or personal history of bipolar disorder, then anti-depressants can actually by too strong and cause a manic stage (which is not a good place to be).. this is why i can't take cymbalta.. i go manic, i get pissed and irritable to say the least, and have an *increase* in pain... i find it interesting that there's a group of people that cymbalta works great for fibro while another group (like myself) have such a negative response... just makes me wonder... Gamble <eagamble > wrote: elavil and some older drugs act as both an anti-depressant and a muscle relaxer along with sleeping aid... but can cause fatigue problems...cymbalta has been submitted

for FDA approval for fibro so there must be some major indication that cymbalta is good for pain.. it's already been approved for neuropathy.. nadine redman <nlraccount > wrote: I also take an anti-depressant (Effexor XR) I'm not sure it helps with pain, but it has helped with others things. Is Cymbalta better for pain? My doctor said Effexor or Cymbalta is usually what works for people with Fibro. Does anyone take anything different (anti depressant) that helps more so with the pain factor? I also supplement with Seroquil on really bad days, but if I take two I'm really, really tired and non motivating the most of the next day. My mom has RA, Fibro, and other health issues, and I cannot convince her either that anti-depressants help. Go figure.....moms

(LOL!) Or aunts =). Nadine Whitney <infinite242gmail> wrote: Wow! My parents are the same way! I love them as well but I was finally able to tell them to just 'back off' just after the new year because I need to do what works best and what my doctor thinks will work best as well and I just need them to be loving and caring. So they are now left out of lots of those types of details in my life. It's for the best I believe. Glad to know there are others that have had the same problems with other people. Glad I could be of help! Whitney On Jan 13, 2008 12:46 PM, Tiff <bestel63 > wrote: Thanks Whitney My mom gave me the same warning your aunt gave you, but to date I've never had any problems. I only take my pain meds when absolutely necessary or as a preventative if I know I'm going on a long drive or flight or something that I know will cause pain. My mom is vary against pills, pills of most kinds actually. So I just don't discuss it with her. I know if I tried to explain how anti-depressants help with pain she would just think I was making excuses for fogging my mind over with pills when all I really have to do is 'not be depressed'. I love my mom, she's my good friend but she just doesn't get some things. Oh well, glad I have you guys now Never miss a thing. Make your

homepage. -- Eat, sleep, dream and be the music!Life is short, live each day to its' fullest!Cave softly and leave no trace.Find a cure for chronic pain!Ask about The Purrfect Petsitter and Infinite Creations! Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search.

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[Guest guest]

I took Cymbalta for 5 or 6 months and it really helped with pain and depression. I've heard from many others with neuropathic pain that it has been very helpful, as has Lyrica. Lyrica seems to have more occurrence of side effects with the people I have spoken with. Especially weight gain - yuck! Of course, we have to weigh the pros and cons. I just think weight gain, for me, would add to any depression issues at this time Tiff

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[Guest guest]

that's how I felt with Lyrica. Though I was only taking 150mg a day and I know the recommended dosagae for fibro is 300mg a day. Still you would think I would have felt some relief from some of my nerve pain or maybe even some side effects. I'm hesitant to try it again, but the pain is getting to be unbearable. Tiff

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[Guest guest]

In reference to your note about Elavil, I had a somewhat similar

situation with Cymbalta. I was on Cymbalta for 3 months. I had all

the side effects (which were very mild and not an issue) but i didnt

benefit from it, so I figured there was no point in taking it. that

was 3 years ago previous to taking it and since i have not taken any

prescription meds for pain or depression.

>

> Thanks Whitney

>

> My mom gave me the same warning your aunt gave you, but to date

I've never had any problems. I only take my pain meds when absolutely

necessary or as a preventative if I know I'm going on a long drive or

flight or something that I know will cause pain. My mom is vary

against pills, pills of most kinds actually. So I just don't discuss

it with her. I know if I tried to explain how anti-depressants help

with pain she would just think I was making excuses for fogging my

mind over with pills when all I really have to do is 'not be

depressed'. I love my mom, she's my good friend but she just doesn't

get some things. Oh well, glad I have you guys now

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

>

>

>

>

>

>

> --

> Eat, sleep, dream and be the music!

> Life is short, live each day to its' fullest!

> Cave softly and leave no trace.

> Find a cure for chronic pain!

> Ask about The Purrfect Petsitter and Infinite Creations!

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

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