Re: Whats left.....Fibromyalgia Meds.

August 2, 2008

>

elavil is an old antidepressant that is used to help us sleep

better.I am on 50 mg of it.your Tylenol can affect your liver too.

Then your Ultram ( AKA Tramdol can cause s dizziness,constipation,

dry mouth also sleep disturbances.Flexeril is a muscle relaxant and

also causes dizziness.

You need to get a new Dr,Get all your medications straightened out.

from what i see you are a first responders worse nightmare.I should

know I am a VOL First responder. Fire this Dr get a new one and give

your body time to get rid of some of these medicines. I see allot

that do the same thing one can upset your stomach and one can affect

your liver and one can do damage to your heart.

You really need to find other ways to help with your pain. OK

here are mine Synthroid 3/4 of thyroid removed in Am in Afternoon

HCT,Altace,Potassium and 1 300 gabapentin for my heart I have had

prior heart attacks.IN even ing my 40 mg of liptor and my 50 of

elavil to help me sleep and my 2 gabapentin.

Now for my supplements I take 6,000-8,000 mg fish oil my neuro

endocrine Dr told me to for it helps with our brain fog, then my

vitamin e, my Mag with malic acid, super b complex, Co q-10 cause I

am on a statin, Acidelophus, olive leaf, calcium with vitamin D3 in

it I take those in afternoon around 1-3.

I also don't eat white stuff changing from sugar to stevia I stay

away from MSG and aspartame the worst for people with fibromyalghia,

NO fast foods or nothing from Deli or bakery at ll. No trans fats. we

do eat allot of fish and chicken skin removed, no canned veggies

fresh or frozen. Then nothing fried either.I eat right and when I

have a flare I remember what i ate the day before or the same day

too. so I can take it away from my eating plan then slowly a it back

in.

I am not trying to make you mad at me but I think from my medical

standpoint you are on too many Rx's and OTC's which counteract you.

Please get a new Dr or have your Dr or even a nutrient go over your

medication with you my friend. I and I know your wife and kids and

family want to see you around along long time. Remember to be

grateful for what you can do and concrate on that than what you

cannot do.

Now for your celebrex watch out if you have any heart problems my

cardiologist took me of it. He told me Celebrex and asprin are a bad

combo. But I mean it be thankful even for the litle things too Ok

Scot you are much needed here too so pplease try to get off some of

the OTC's ok budy. gentle fibro hugs heidi

> Here are the list of meds that I have been on.

> flexeril 10mg , slow to notice any effect, to fleeting.

> Elivil 25 mg , I don't feel depressed, so whats the point.

> celebrex 200 mg , I saw each of these pills twice.

> ultram 50mg, Worked to some very little effect.

> Lyrica 50mg. Hmm...seeing sideways is ok if I'm laying down.

> Other meds taken without long lasting positive results.

> Extra Strenth Tylenol 500mg, I can still taste this.

> Calcet for leg cramps, well this makes me sick for sure.

> Aleve 220mg. no effect, is this a sugar pill ?

> Equate Extra strenth pain reliever 500 mg. nothing I notice.

> Tylenol Arthritis 650mg. tastes stronger then the 500mg.

> Advil Ibuprofen 200mg. nothing I can tell.

> Glucosamine Chondroitin MSM. Ok this is boring me....

> Borage oil , three months is a long time to wait only to find no

> difference......

> other herbal stuff. Hmm where is my money going ? lol.

> So whats left ? ...

>

> Ok I have a sense of humor about me. But of the list about the only

> thing that has given relief the pain for any length is a Lyrica

50mg

> 3 times per day, and ultram 50mg 2 times per day. the side effect

is

> the world is laying down, and 3 hours after taking them the meds

wear

> off and the pains hits back. Plus a strange effect of feeling like

> there is something on my back crawling around under my skin. like a

> bug about 5 inches long. I can't understand why the meds wear off so

> quick. The doctor I am seeing says that my body is metabolizing the

> meds too fast. I have taken with food and without food. Same

results.

> He says that upping the Lyrica is out of the question. So what is

left

> ? What works for you ?

> What meds have you tried ? what experience or side effects did they

> have on you ? Would love to here from anyone with Fibromyalgia that

is

> on meds.

>

August 2, 2008

Heidi,

In the last 3 years I have been seen by, on the low side 12 different

doctors. State run training hospital. Kind of a lab rat experience.

the last time I was there I was looked at for 5 whole min. by a

trainer before getting booted out of the system again. It seams this

state does not Fibromyalgia as a real problem, it is an imagined

disease because it does not show up on their tests or xrays. I managed

after 2 1/2 years of trying to see the rheumatologist, and when I did

get to see the " doctor instructor " he grilled me on where did I get

this " diagnonsense " and how much money did they scam out of me. let me

know that the point was mute in further discussion. But some young

doctors in training would be happy to write down some prescription to

try. But there was never any follow up to the simple question is this

doing you any good. I did lose the fear of giving blood. every time

give blood for testing. sometimes two or three tests. I know you might

be thinking why stick with a program that is doing you no good... Well

at the time it was down to $$ . But with some new ideas and selling

off odds and ends, I have left the system, for " expensive " doctors.

And what good has it done, so far nothing. I do not take all those

meds at one time. As for flexeril 10mg, it raised my blood pressure

and heart rate until I had a heart attack. It was just a " small one "

(if there is such a thing) according to the doctor. but the very first

problems when I knew something was wrong, after an accident, broke 3

ribs, dislocated knee, several cuts and concussion. I never felt like

I got well after that. I was always hurting. the xrays show everything

is fine, but nothing feels fine. pain spread like poison ivy. I worked

to forget it, but each day reality set in more. stiffens every morning

that took more time to get worked out. After 2 1/2 to 3 hours I can

move around. but the pain never really goes away.

As for wife and kids, there is no more. An a subject not debated

anywhere. Not that you or anyone could have known, but that is just

the way it will be, ok.

But I will have to do some reading to see what changes can or would

effect me. As for foods, the only meat I eat or have been eating is

fish. Herring and salmon but not anything with high salt content.

Don't do dairy, lactose intolerance, And soy milk and soy products

ruin thyroid function, Do a search " Soy suppresses thyroid

function " so thats out. As for goat milk... I rest my case, yuck. I

know soda, tea and coffee are no no's. And How could I be mad at you,

I am not offended, nor do I know you. So Hello....

Ps. Well this pencil is wore out now....

> >

>

> elavil is an old antidepressant that is used to help us sleep

> better.I am on 50 mg of it.your Tylenol can affect your liver too.

> Then your Ultram ( AKA Tramdol can cause s dizziness,constipation,

> dry mouth also sleep disturbances.Flexeril is a muscle relaxant and

> also causes dizziness.

>

> You need to get a new Dr,Get all your medications straightened out.

> from what i see you are a first responders worse nightmare.I should

> know I am a VOL First responder. Fire this Dr get a new one and give

> your body time to get rid of some of these medicines. I see allot

> that do the same thing one can upset your stomach and one can affect

> your liver and one can do damage to your heart.

> You really need to find other ways to help with your pain. OK

> here are mine Synthroid 3/4 of thyroid removed in Am in Afternoon

> HCT,Altace,Potassium and 1 300 gabapentin for my heart I have had

> prior heart attacks.IN even ing my 40 mg of liptor and my 50 of

> elavil to help me sleep and my 2 gabapentin.

> Now for my supplements I take 6,000-8,000 mg fish oil my neuro

> endocrine Dr told me to for it helps with our brain fog, then my

> vitamin e, my Mag with malic acid, super b complex, Co q-10 cause I

> am on a statin, Acidelophus, olive leaf, calcium with vitamin D3 in

> it I take those in afternoon around 1-3.

>

> I also don't eat white stuff changing from sugar to stevia I stay

> away from MSG and aspartame the worst for people with fibromyalghia,

> NO fast foods or nothing from Deli or bakery at ll. No trans fats. we

> do eat allot of fish and chicken skin removed, no canned veggies

> fresh or frozen. Then nothing fried either.I eat right and when I

> have a flare I remember what i ate the day before or the same day

> too. so I can take it away from my eating plan then slowly a it back

> in.

>

> I am not trying to make you mad at me but I think from my medical

> standpoint you are on too many Rx's and OTC's which counteract you.

> Please get a new Dr or have your Dr or even a nutrient go over your

> medication with you my friend. I and I know your wife and kids and

> family want to see you around along long time. Remember to be

> grateful for what you can do and concrate on that than what you

> cannot do.

>

> Now for your celebrex watch out if you have any heart problems my

> cardiologist took me of it. He told me Celebrex and asprin are a bad

> combo. But I mean it be thankful even for the litle things too Ok

> Scot you are much needed here too so pplease try to get off some of

> the OTC's ok budy. gentle fibro hugs heidi

>

> > Here are the list of meds that I have been on.

> > flexeril 10mg , slow to notice any effect, to fleeting.

> > Elivil 25 mg , I don't feel depressed, so whats the point.

> > celebrex 200 mg , I saw each of these pills twice.

> > ultram 50mg, Worked to some very little effect.

> > Lyrica 50mg. Hmm...seeing sideways is ok if I'm laying down.

> > Other meds taken without long lasting positive results.

> > Extra Strenth Tylenol 500mg, I can still taste this.

> > Calcet for leg cramps, well this makes me sick for sure.

> > Aleve 220mg. no effect, is this a sugar pill ?

> > Equate Extra strenth pain reliever 500 mg. nothing I notice.

> > Tylenol Arthritis 650mg. tastes stronger then the 500mg.

> > Advil Ibuprofen 200mg. nothing I can tell.

> > Glucosamine Chondroitin MSM. Ok this is boring me....

> > Borage oil , three months is a long time to wait only to find no

> > difference......

> > other herbal stuff. Hmm where is my money going ? lol.

> > So whats left ? ...

> >

> > Ok I have a sense of humor about me. But of the list about the only

> > thing that has given relief the pain for any length is a Lyrica

> 50mg

> > 3 times per day, and ultram 50mg 2 times per day. the side effect

> is

> > the world is laying down, and 3 hours after taking them the meds

> wear

> > off and the pains hits back. Plus a strange effect of feeling like

> > there is something on my back crawling around under my skin. like a

> > bug about 5 inches long. I can't understand why the meds wear off so

> > quick. The doctor I am seeing says that my body is metabolizing the

> > meds too fast. I have taken with food and without food. Same

> results.

> > He says that upping the Lyrica is out of the question. So what is

> left

> > ? What works for you ?

> > What meds have you tried ? what experience or side effects did they

> > have on you ? Would love to here from anyone with Fibromyalgia that

> is

> > on meds.

> >

>

August 2, 2008

- Check out my Men with Fibro page at www.fms-help.com/men.htm -

Dominie

August 3, 2008

;

Please check out Domini's site she suggested OK.

It took me about 12 years to get a DX of fibromyalgia.

I started to show symptoms in 1994 and my PCP back then didn't

believe in fibromyalgia,CFIDS etc those diseases I had to stick with

her for insurance reasons. I have had X-ray's MRI's with and without

contrast, Upper and lower Scopes twice and also Cat scans etc been

through the system with the tests more than once.

Even had a complete blood work up too. I was finally Dx'd in July of

2006.I knew I had it too. But yes I am glad you red up on things

too.

Thanks for the explanation.I don't know what state you liv e in but

try the Teaching hospitals I got to UF & Shands in JAX.. my Neuro-

endocrine Dr is also a teacher at UF & Shands in Gainesville all my

are professors. Yes there is such a thing as a small heart attack

where it doesn't do much damage to muscles.I know a lady that has had

3 heart attacks due to her fibro and chronditis in her chest.The Dr

thought it was her fibromyalgia sent her home and they had to call

rescue to.

so just be careful my friend OK. And please check dominies site for

men too.

Hugs Hedi

August 4, 2008

> >hi im new but im one of the lucky ones lyrica works for me i

still get flare ups but not as bad when the the flare goes the lyrica

helps the pain and stiffiness. im on seroquel at night 200 mg and

percocet when the pain is bad. i have been on these meds for a 1 1/2

now and am feeling better than in 5 years.

>

> elavil is an old antidepressant that is used to help us

sleep

> better.I am on 50 mg of it.your Tylenol can affect your liver too.

> Then your Ultram ( AKA Tramdol can cause s dizziness,constipation,

> dry mouth also sleep disturbances.Flexeril is a muscle relaxant and

> also causes dizziness.

>

> You need to get a new Dr,Get all your medications straightened out.

> from what i see you are a first responders worse nightmare.I should

> know I am a VOL First responder. Fire this Dr get a new one and

give

> your body time to get rid of some of these medicines. I see allot

> that do the same thing one can upset your stomach and one can

affect

> your liver and one can do damage to your heart.

> You really need to find other ways to help with your pain. OK

> here are mine Synthroid 3/4 of thyroid removed in Am in

Afternoon

> HCT,Altace,Potassium and 1 300 gabapentin for my heart I have had

> prior heart attacks.IN even ing my 40 mg of liptor and my 50 of

> elavil to help me sleep and my 2 gabapentin.

> Now for my supplements I take 6,000-8,000 mg fish oil my neuro

> endocrine Dr told me to for it helps with our brain fog, then my

> vitamin e, my Mag with malic acid, super b complex, Co q-10 cause

I

> am on a statin, Acidelophus, olive leaf, calcium with vitamin D3 in

> it I take those in afternoon around 1-3.

>

> I also don't eat white stuff changing from sugar to stevia I stay

> away from MSG and aspartame the worst for people with

fibromyalghia,

> NO fast foods or nothing from Deli or bakery at ll. No trans fats.

we

> do eat allot of fish and chicken skin removed, no canned veggies

> fresh or frozen. Then nothing fried either.I eat right and when I

> have a flare I remember what i ate the day before or the same day

> too. so I can take it away from my eating plan then slowly a it

back

> in.

>

> I am not trying to make you mad at me but I think from my medical

> standpoint you are on too many Rx's and OTC's which counteract you.

> Please get a new Dr or have your Dr or even a nutrient go over your

> medication with you my friend. I and I know your wife and kids and

> family want to see you around along long time. Remember to be

> grateful for what you can do and concrate on that than what you

> cannot do.

>

> Now for your celebrex watch out if you have any heart problems my

> cardiologist took me of it. He told me Celebrex and asprin are a

bad

> combo. But I mean it be thankful even for the litle things too Ok

> Scot you are much needed here too so pplease try to get off some

of

> the OTC's ok budy. gentle fibro hugs heidi

>

> > Here are the list of meds that I have been on.

> > flexeril 10mg , slow to notice any effect, to fleeting.

> > Elivil 25 mg , I don't feel depressed, so whats the point.

> > celebrex 200 mg , I saw each of these pills twice.

> > ultram 50mg, Worked to some very little effect.

> > Lyrica 50mg. Hmm...seeing sideways is ok if I'm laying down.

> > Other meds taken without long lasting positive results.

> > Extra Strenth Tylenol 500mg, I can still taste this.

> > Calcet for leg cramps, well this makes me sick for sure.

> > Aleve 220mg. no effect, is this a sugar pill ?

> > Equate Extra strenth pain reliever 500 mg. nothing I notice.

> > Tylenol Arthritis 650mg. tastes stronger then the 500mg.

> > Advil Ibuprofen 200mg. nothing I can tell.

> > Glucosamine Chondroitin MSM. Ok this is boring me....

> > Borage oil , three months is a long time to wait only to find no

> > difference......

> > other herbal stuff. Hmm where is my money going ? lol.

> > So whats left ? ...

> >

> > Ok I have a sense of humor about me. But of the list about the

only

> > thing that has given relief the pain for any length is a Lyrica

> 50mg

> > 3 times per day, and ultram 50mg 2 times per day. the side

effect

> is

> > the world is laying down, and 3 hours after taking them the meds

> wear

> > off and the pains hits back. Plus a strange effect of feeling like

> > there is something on my back crawling around under my skin. like

a

> > bug about 5 inches long. I can't understand why the meds wear off

so

> > quick. The doctor I am seeing says that my body is metabolizing

the

> > meds too fast. I have taken with food and without food. Same

> results.

> > He says that upping the Lyrica is out of the question. So what is

> left

> > ? What works for you ?

> > What meds have you tried ? what experience or side effects did

they

> > have on you ? Would love to here from anyone with Fibromyalgia

that

> is

> > on meds.

> >

>

August 4, 2008

Hi ,

I was diagnosed with Fibromyalgia two weeks ago. My rheumatologist

prescribed the generic form of Darvocet up to four times a day as I

tend to resist taking drugs yet need pain medication. If it doesn't

work, he wants me to take Neurontin or Lyrica. A friend of ours whom

is a nurse practitioner told me that Lyrica is the best one to take.

Darvocet takes the edge off the pain at best. It helps me loosen up

when I work out and when I walk any distance to speak of. I don't

think it will help me at all when the pain is severe. When I call

him to tell him how I'm doing, I'm going to ask him if I can take

Darvocet when the pain is moderate and Lyrica when the pain is

severe. I'm not real familiar with Lyrica and I don't know if I can

alternate it with Darvocet.

Like you I have a sense of humor. I've read that laughter is the

best medicine, something that I totally agree with.

Please keep us posted about how you are doing.

August 4, 2008

,

I take Flexeril, Lyrica 75mg, 3x a day and Percocet 10mg. 4x a day. The Flexeril I have been taking for over 30 yrs. ago when I first had symptoms of Fibro. It doesn't do much for me anymore. I have been taking Lyrica for about 4 months now and it helps some. stretching exercises help me alot first thing in the morning. And the Percocet I take for all the other chronic pain I have, due to OA, Lupus, Fibro and it takes the edge off. It is a step up from Darvocet, which I used to take. i also used to take Lortabs, but the Percocet seems to work better for me. I need knee replacement surgery and I am a big chicken and won't get it done and I use a walker or a cane now most of the time when I go out, which is about once a week. And also my regular Dr. appts. I also have Bipolar Disorder, but that is a whole other problem! I take meds for that also. Abilify, Visteril and Elavil. And a host of other meds for other problems. Sorry you have Fibro, but I am glad you got a DX, and y ou were not told it is all in your head......

Thanks for listening,

from TN.**************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 )

August 4, 2008

,

Lyrica has strong side effects that do not pass until you've taken the

medication for a couple of weeks (consecutively) and sometimes still don't go

away. Lyrica isn't a pain med and it wouldn't work well if it's not taken

consecutively. I would suggest small doses of methadone to alternate with the

Darvocet. 5mg to start with. It's worked very well for me, especially since it

lasts for 8 hrs. If I maintain a good schedule and keep the med in my system I

can go the day without any pain spikes you get when the med wears off. Ikve been

using it for about 9mo now, starting at 2.5mg 2xday to now I take 10mg 4xday

since my system has gotten used to it.

Hope this helps and welcome to the group. It's a wonderful resource!

-Cat

- Re: Whats left.....Fibromyalgia Meds.