(No subject)

[Guest guest]

I have always believed in he power of positive thinking and the doctrine

that positive thinking and a healthy spiritual life can help a person

through any struggle. I have been tested in the past and have persevered.

The first year I found my fibro was affecting my life I tried

prayer,positive thinking and other techniques that I knew would help.I would

get some relief at times so minimal however I thought it was a huge

success.Now four years into this arranged marriage with a disease I had

never heard of,Fibromyalgia,I feel so beaten down. I do not remember any

other time I have felt so poorly.This active successful person has changed

into an exhausted mother that is unsure of herself and no longer has trust

in her own body or mind.

Knowing there are people who have benefited from treatment inspires those of

us that have not and gives us some hope in an almost hopeless situation. I

am not one who cannot see and appreciate the success of others and feel

guilty when I think " Oh Yeah,but what about me? "

I pray for help for everyone out there and have some comfort knowing we are

a community of people,Dom's group, that are not quitters and will reach out

to a stranger.

Thank all of you for your advice and your help.I am making an oath to myself

and to all of you,

I will make an effort to post no less than three positive things about

myself or my life so that I can bring myself out of this funk I am in. I

just need people to be accountable too other than myself. i will post of

love,children,pets,health or whatever I can see positive aspects of.

In my prayers,

>From: " Liz Mast " <lizmast@...>

>Reply-dominie

>dominie

>Subject: Re: Clinical Trials

>Date: Fri, 13 Jun 2008 19:43:32 -0400

>

>i know that there are plenty of people with fibro that still suffer greatly

>even with medication.. but then there are people like myself that have

>found

>that right combination of medications and lifestyle adjustments that means

>symopmtoms are under control... and because i have found control my family

>thinks everything is better.. do those of us that have minimual problems

>have fibro any less? yes, i know i am on of lucky ones. yes, i want much

>more research done and trials are not in the areas i would like to see

>either.. but i would love to see a more positive attitude the improvements

>can be made (and for some people these commericals are not unrealistics)

>

> >>>still grit my teeth at the Fibro commercials where after taking

>lyrica they can garden, reach their hands over their head, paint,

>and lift children! Some of the studies are so that pharm companies

>can get their hand in the candy jar with something that won't really

>help us - but won't really hurt us either.

>

>On Fri, Jun 13, 2008 at 6:43 PM, CJ <alliekeel@...> wrote:

>

> > http://clinicaltrials.gov/ct2/results?term=fibromyalgia

> >

> > There are currently 158 clinical trials going on right now for

> > fibromyalgia. That is a good thing! At least they believe it is a

> > substantial disease to study. However, I see that most are

> > cognitive-behavioral, exercise, ANTIDEPRESSANTS, muscle relaxants,

> > botulism and pain meds that have been studied over and over again.

> >

> > I still grit my teeth at the Fibro commercials where after taking

> > lyrica they can garden, reach their hands over their head, paint,

> > and lift children! Some of the studies are so that pharm companies

> > can get their hand in the candy jar with something that won't really

> > help us - but won't really hurt us either.

> >

> > Anyway, some of you may be interested in participating.

> >

> > Let me know if anyone out there is currently in a study.

> >

> > Thanks for listening to me this week!

> >

> >

> >