Re: Presentation on Fibromyalgia by local Neurologist

[Guest guest]

Wow! I bet you were just shocked! Somehow I find that easy to believe happening. I actually did a focus group for a pharmacologist group in SF, it actually ended up being the people who made that commercial for Lyrica that you see on tv for Fibromyalgia. so its interesting when I see the commercial, knowing that I helped with that input because they otherwise would have no idea what to say to people. Thanks for sharing your experience!

Whitney On Jan 11, 2008 4:13 AM, kernsbrenda <bkerns3787@...> wrote:

My husband and I attended a presentation last evening on Fibromyalgia.

The event was sponsored by Pfiser, makers of Lyrica. The neurologist

had no insight into Fibromyalgia. Most of his answers were " I don't

know " . Many questions were asked by the audience (most of them were

asked more than once-must have been Fibro Fog). At no point in time

did this MD offer Lyrica as relevant treatment for Fibro. The Drug Rep

had to interrupt and said, " But have you told them the good news?

There is Lyrica. " This MD continued on without endorsing or not

endorsing Lyrica. He did say he would try it on some of his patients.

We had gone with the vision of getting tips on coping with pain and how

to live with this terrible disease. It seems that all the medical

profession wants is to drain you of all your finances and then tell

you " I don't know " . I have worked in the HealthCare field for 28 years

and medicine seems to be more pathetic than ever. Younger physicians

are not willing to listen to your symptoms and you are made to feel

like you are stupid. When you go to the Emergency Room and you are

told by the ER physician " I don't know " then I think you are better off

staying away from physicians.

-- Eat, sleep, dream and be the music!Life is short, live each day to its' fullest!Cave softly and leave no trace.Find a cure for chronic pain!Ask about The Purrfect Petsitter and Infinite Creations!

[Guest guest]

personally i loved it when my family doc said "i don't know"... i loved the honesty personally and she helped get through the time.. she also told me at the same time she believed my sympotoms are real... though on the neurologist... i believe that fibro people are the experts in this field over the doctors.. i think they could learn a lot by being on a group list like this... we have come up with solutions, noticed patterns that doctors just haven't... kernsbrenda <bkerns3787@...> wrote: My husband and I attended a presentation last evening on Fibromyalgia. The event was sponsored by Pfiser, makers of Lyrica. The neurologist had no insight into Fibromyalgia. Most of his answers were "I don't know". Many questions were asked by the audience (most of them were asked more than once-must have been Fibro Fog). At no point in time did this MD offer Lyrica as relevant treatment for Fibro. The Drug Rep had to interrupt and said, "But have you told them the good news? There is Lyrica." This MD continued on without endorsing or not endorsing Lyrica. He did say he would try it on some of his patients. We had gone with the vision of getting tips on coping with pain and how to live with this terrible disease. It seems that all the medical profession wants is to drain you of all your finances and then tell you "I don't know". I have worked in the HealthCare field for 28 years and medicine seems to

be more pathetic than ever. Younger physicians are not willing to listen to your symptoms and you are made to feel like you are stupid. When you go to the Emergency Room and you are told by the ER physician "I don't know" then I think you are better off staying away from physicians.

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[Guest guest]

Good idea! It would be great if the doctors, Neurologists, and Rheumatologists would get into this group with us! I think it would be an eye opening experience for most of them, and a welcome one for us. I have to go to my family doctor on Monday, and I'm going to ask him if he'll "take a gander" at this group. Nadine personally i loved it when my family doc said "i don't know"... i loved the honesty personally and she helped get through the time.. she also told me at the same time she believed my

sympotoms are real... though on the neurologist... i believe that fibro people are the experts in this field over the doctors.. i think they could learn a lot by being on a group list like this... we have come up with solutions, noticed patterns that doctors just haven't... kernsbrenda <bkerns3787embarqmail> wrote: My husband and I attended a presentation last evening on Fibromyalgia. The event was sponsored by Pfiser, makers of Lyrica. The neurologist had no insight into Fibromyalgia. Most of his answers were "I don't know". Many questions were asked by the audience (most of them were asked more than once-must have been Fibro Fog). At no point in time did this MD offer Lyrica as relevant treatment for Fibro. The Drug Rep had to interrupt and said,

"But have you told them the good news? There is Lyrica." This MD continued on without endorsing or not endorsing Lyrica. He did say he would try it on some of his patients. We had gone with the vision of getting tips on coping with pain and how to live with this terrible disease. It seems that all the medical profession wants is to drain you of all your finances and then tell you "I don't know". I have worked in the HealthCare field for 28 years and medicine seems to be more pathetic than ever. Younger physicians are not willing to listen to your symptoms and you are made to feel like you are stupid. When you go to the Emergency Room and you are told by the ER physician "I don't know" then I think you are better off staying away from physicians. Looking for last minute shopping deals? Find them fast with Search.

Looking for last minute shopping deals? Find them fast with Search.