Guest guest Posted August 27, 2007 Report Share Posted August 27, 2007 I have been on antibiotics many times and never been told it is bad for the liver.I feel that if the doctor thinks you should be on an antibiotic then you should. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of SegalSent: August 26, 2007 12:01 PMTo: HepatitisCSupportGroupForDummies Subject: Re: fever How does Pentilcilin or their direvitives effect the liver ? Regards Bill RE: fever I use tylenol for fever. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of SegalSent: August 26, 2007 1:09 AMTo: HepatitisCSupportGroupForDummies Subject: fever What can I use for fever> I am not on TX but I am concerned .How about Aspirin and Mylanta ? Regards Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2007 Report Share Posted August 27, 2007 I have been on antibiotics many times and never been told it is bad for the liver.I feel that if the doctor thinks you should be on an antibiotic then you should. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of SegalSent: August 26, 2007 12:01 PMTo: HepatitisCSupportGroupForDummies Subject: Re: fever How does Pentilcilin or their direvitives effect the liver ? Regards Bill RE: fever I use tylenol for fever. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of SegalSent: August 26, 2007 1:09 AMTo: HepatitisCSupportGroupForDummies Subject: fever What can I use for fever> I am not on TX but I am concerned .How about Aspirin and Mylanta ? Regards Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 I make sure I know what antibiotics is for.I find that my immune system is very impaired and i get frequent urinary and kidney infections and don't take antibiotics unless I have to.Once the kidney pain gets bad it is time for antibiotics. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of VickieGSent: August 27, 2007 1:46 PMTo: HepatitisCSupportGroupForDummies Subject: RE: feverGail, dr's make mistakes, too. You are closest to your medical problems. Make sure that what is prescribed for you makes sense for you. When my daughter was a teen, a dr. prescribed something for her, then a week later changed the prescription to something else. I asked my daughter if she was to continue the first one or stop taking it. She didn't know. I had to call the dr's office to find out. I was told to discontinue the first one. Otherwise, she may have hurt herself taking both prescriptions. Hugs. VGgail wrote: I have been on antibiotics many times and never been told it is bad for the liver.I feel that if the doctor thinks you should be on an antibiotic then you should. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of SegalSent: August 26, 2007 12:01 PMTo: HepatitisCSupportGroupForDummies Subject: Re: fever How does Pentilcilin or their direvitives effect the liver ? Regards Bill RE: fever I use tylenol for fever. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of SegalSent: August 26, 2007 1:09 AMTo: HepatitisCSupportGroupForDummies Subject: fever What can I use for fever> I am not on TX but I am concerned .How about Aspirin and Mylanta ? Regards Bill Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 We've been through that a number of times- mostly prior to IVIG. Peace be with you, Pattie " Each small task of everyday life is a part of the harmony of the universe. " ~St. Therese of Lisieux Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Hi Jodi, This has been the case for my daughter almost all the time ever since she has been off IVIG since April. We just started keeping a journal too. Her temperature runs 99.5 up to 100.9 .....sometimes normal though too. She can tell though when she has an elevated temperature. When she gets flat-out sick (like with pneumonia) it goes way up from there though. > > Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. > > Jodi > > > --------------------------------- > Pinpoint customers who are looking for what you sell. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 We go through that with my daughter Sasha. So far - they just decided that her temps being between 100.4-101 and sometimes above is just HER and nothing else. We took her temps for a month - 2 x a day - between 7-8 a.m. and between 7-8 p.m. She was 95.1 - 98.0 or so on average in the a.m. and between 100.4- 101 average at night. I wish I had an answer for you - we are looking for one for us too..... Thanks for posting this. I posted this type of question a while back and didn't get any responses - so I am very glad to read some more on this subject! Take Care Stef > > Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. > > Jodi > > > --------------------------------- > Pinpoint customers who are looking for what you sell. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 We are newly diagnoised...he just finished with a round of antibiotics...he has always been consistnet with 97...since he started school in August we have had fever. I wonder if your norm can change. " picasso.moon " <picasso.moon@...> wrote: We go through that with my daughter Sasha. So far - they just decided that her temps being between 100.4-101 and sometimes above is just HER and nothing else. We took her temps for a month - 2 x a day - between 7-8 a.m. and between 7-8 p.m. She was 95.1 - 98.0 or so on average in the a.m. and between 100.4- 101 average at night. I wish I had an answer for you - we are looking for one for us too..... Thanks for posting this. I posted this type of question a while back and didn't get any responses - so I am very glad to read some more on this subject! Take Care Stef > > Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. > > Jodi > > > --------------------------------- > Pinpoint customers who are looking for what you sell. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 We have the opposite problem - my son doesn't get a fever even with full-blown pneumonia and a WBC of 60. For us, a slight fever (99) means that he is fighting a infection and we start a full course of antibiotics (in addition to his daily dose of Septra, usually Clinda) and depending on what else is going on (not eating, lethargic, abdominal or chest pain) we head to emerg. Our docs have told us to watch for the " other " signs, not just temp, and know your kid. These are better indications that something is wrong than just a themometer reading. Kim, mom to , 5 (probably Hyper IgE - Job Syndrome) >From: Jodi Tyra <tyrajodi@...> >Reply- > >Subject: Re: Re: Fever >Date: Tue, 25 Sep 2007 19:17:29 -0700 (PDT) > >We are newly diagnoised...he just finished with a round of antibiotics...he >has always been consistnet with 97...since he started school in August we >have had fever. I wonder if your norm can change. > > " picasso.moon " <picasso.moon@...> wrote: We go through that >with my daughter Sasha. > >So far - they just decided that her temps being between 100.4-101 and >sometimes above is just HER and nothing else. > >We took her temps for a month - 2 x a day - between 7-8 a.m. and >between 7-8 p.m. > >She was 95.1 - 98.0 or so on average in the a.m. and between 100.4- >101 average at night. > >I wish I had an answer for you - we are looking for one for us >too..... > >Thanks for posting this. I posted this type of question a while back >and didn't get any responses - so I am very glad to read some more on >this subject! >Take Care >Stef > > > > > > Hi all thanks for all of the information. I have probably asked >this already, but I am very absent-minded these days. Does anyone >experience their child having a low grade temperature all the time? > has been running a low grade fever. His normal temp is like >97, but he has been running high 99 to 101. The doctors have told us >to keep a journal, so I am. Just wondering what everyone else has >experienced. > > > > Jodi > > > > > > --------------------------------- > > Pinpoint customers who are looking for what you sell. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 We've got that issue,too-with cellulitis so bad they thought he had a joint effusion, J never ran a temp..ditto for ear infections. We've always got to be on our toes. Peace be with you, Pattie " Each small task of everyday life is a part of the harmony of the universe. " ~St. Therese of Lisieux We have the opposite problem - my son doesn't get a fever even with full-blown pneumonia and a WBC of 60. For us, a slight fever (99) means that he is fighting a infection and we start a full course of antibiotics (in addition to his daily dose of Septra, usually Clinda) and depending on what else is going on (not eating, lethargic, abdominal or chest pain) we head to emerg. Our docs have told us to watch for the " other " signs, not just temp, and know your kid. These are better indications that something is wrong than just a themometer reading. Kim, mom to , 5 (probably Hyper IgE - Job Syndrome) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 has autonomic nervous system dysfunction, so has poor temperature regulation- cellutis-no fever, sinus infections-no fever, ear infections-no fever, bacteremia-mild fever. Temperature is a poor indicator of illness for us - in CT- mom to sEan 5 years 10 months ________________________________ From: [mailto: ] On Behalf Of Pattie Curran Sent: Wednesday, September 26, 2007 11:04 AM Subject: RE: Re: Fever We've got that issue,too-with cellulitis so bad they thought he had a joint effusion, J never ran a temp..ditto for ear infections. We've always got to be on our toes. Peace be with you, Pattie " Each small task of everyday life is a part of the harmony of the universe. " ~St. Therese of Lisieux We have the opposite problem - my son doesn't get a fever even with full-blown pneumonia and a WBC of 60. For us, a slight fever (99) means that he is fighting a infection and we start a full course of antibiotics (in addition to his daily dose of Septra, usually Clinda) and depending on what else is going on (not eating, lethargic, abdominal or chest pain) we head to emerg. Our docs have told us to watch for the " other " signs, not just temp, and know your kid. These are better indications that something is wrong than just a themometer reading. Kim, mom to , 5 (probably Hyper IgE - Job Syndrome) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 Hi Jodi, No suprise to say that Gabby has the same problem with fever. She ran the same low temps for so long I stopped taking it because nothing ever happened. With her if it was a problem something would have happened. I can't believe how many similar issues our kids have. The only advice my doctor said was when I take her temp to NOT use an ear thermometer. If you want it to be accurate, rectal. No one is a fan of that but apparently that is the most consistant place to check. The fevers come and go and little else happens. Still random hives and much belly pain. Still not infusing. The doctor said also to journal. Be sure to note activity at the time. Have had more humid days here which seem to give her trouble. Glad we all have each other to bounce ideas off of. Kyla Jodi Tyra <tyrajodi@...> wrote: Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. Jodi --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 Hey good to hear from you again. Do you give Gabby Tylenol everytime she has a fever? Right now is asleep for the night...has been asleep since 4:00. He will sleep all night...however he has a fever. I have been giving him Tylenol or Motrin, which ever I have at the moment...I am scared to give him Tylenol all the time due to the side effects with the kidneys and then getting rebound headaches from taking it...I don't know what to do...I am journaling...we are also monitoring his oxygen level after PE...it is quite low, verifying the need for a treatment. Jodi Kyla Burg <kyla_burg@...> wrote: Hi Jodi, No suprise to say that Gabby has the same problem with fever. She ran the same low temps for so long I stopped taking it because nothing ever happened. With her if it was a problem something would have happened. I can't believe how many similar issues our kids have. The only advice my doctor said was when I take her temp to NOT use an ear thermometer. If you want it to be accurate, rectal. No one is a fan of that but apparently that is the most consistant place to check. The fevers come and go and little else happens. Still random hives and much belly pain. Still not infusing. The doctor said also to journal. Be sure to note activity at the time. Have had more humid days here which seem to give her trouble. Glad we all have each other to bounce ideas off of. Kyla Jodi Tyra <tyrajodi@...> wrote: Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. Jodi --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2007 Report Share Posted September 26, 2007 Generally it is not necessary to give Tylenol or Advil unless the temp is over 101 and some docs even push it to 102. It is believed by many doctors that a fever has a purpose of burning out whatever the issue is. I generally do not give anything for a low grade fever.<100.8. I only give a med if my kids are really uncomfortable or irritable. Or if there is some sort of inflammation that I am aware of such as an infected wound or something. I also use alternating of tylenol and advil when we have a high fever. It seems to work better and has broader symptom control. Meds can also mask other symptoms or give a child more energy when they should be resting. I think the body has some natural ways of using the fever to control the infection am more likely to give a warm/tepid bath or use cool compresses than to give meds. My daughter who does not have a PID but does have several congenital anomalies had a fever for over 18 months spiking as high as 104. We eventually found out she had a duplicate renal system or in other words she has 3 kidneys and ureters. Other things we checked were urines, CBCs and sed rates to make sure nothing was being missed. I know it is really tough when you do not know what is going on and a chronic fever is so tiring. I will be praying for your kids. BARBIE mom to Lucas 11, CVID, Bipolar, SubQ IG since he was 4. Jodi Tyra <tyrajodi@...> wrote: Hey good to hear from you again. Do you give Gabby Tylenol everytime she has a fever? Right now is asleep for the night...has been asleep since 4:00. He will sleep all night...however he has a fever. I have been giving him Tylenol or Motrin, which ever I have at the moment...I am scared to give him Tylenol all the time due to the side effects with the kidneys and then getting rebound headaches from taking it...I don't know what to do...I am journaling...we are also monitoring his oxygen level after PE...it is quite low, verifying the need for a treatment. Jodi Kyla Burg <kyla_burg@...> wrote: Hi Jodi, No suprise to say that Gabby has the same problem with fever. She ran the same low temps for so long I stopped taking it because nothing ever happened. With her if it was a problem something would have happened. I can't believe how many similar issues our kids have. The only advice my doctor said was when I take her temp to NOT use an ear thermometer. If you want it to be accurate, rectal. No one is a fan of that but apparently that is the most consistant place to check. The fevers come and go and little else happens. Still random hives and much belly pain. Still not infusing. The doctor said also to journal. Be sure to note activity at the time. Have had more humid days here which seem to give her trouble. Glad we all have each other to bounce ideas off of. Kyla Jodi Tyra <tyrajodi@...> wrote: Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. Jodi --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2007 Report Share Posted September 27, 2007 Hey Jodi, I initially gave Gabby Motrin for her fever then she had the fever for so long I stopped giving it to her. You can only give it to them for so long. I just watched and made sure that the fever didn't go up any highr than 101. Eventually she didn't have a fever and then a few days later the fever would be back. She did not show any other symptoms. She was functioning normally. Does receive asthma meds at school at all? I have a doctor order for le to have her Albuterol either before Gym class or after. She also can have it as needed. She lets the teachers know when she is having a problem. I have spare meds and her spacer at school so they have it. I never give Gabby Tylenol( I had to alternate both once when her fever was 104-105 with Pneumonia). I have always given my girls Motrin. Hope this helps you. Best wishes Kyla --- Jodi Tyra <tyrajodi@...> wrote: > Hey good to hear from you again. Do you give Gabby > Tylenol everytime she has a fever? Right now > is asleep for the night...has been asleep > since 4:00. He will sleep all night...however he > has a fever. I have been giving him Tylenol or > Motrin, which ever I have at the moment...I am > scared to give him Tylenol all the time due to the > side effects with the kidneys and then getting > rebound headaches from taking it...I don't know what > to do...I am journaling...we are also monitoring his > oxygen level after PE...it is quite low, verifying > the need for a treatment. > > Jodi > > Kyla Burg <kyla_burg@...> wrote: > Hi Jodi, No suprise to say that Gabby has > the same problem with fever. She ran the same low > temps for so long I stopped taking it because > nothing ever happened. With her if it was a problem > something would have happened. I can't believe how > many similar issues our kids have. The only advice > my doctor said was when I take her temp to NOT use > an ear thermometer. If you want it to be accurate, > rectal. No one is a fan of that but apparently that > is the most consistant place to check. The fevers > come and go and little else happens. Still random > hives and much belly pain. Still not infusing. The > doctor said also to journal. Be sure to note > activity at the time. Have had more humid days here > which seem to give her trouble. Glad we all have > each other to bounce ideas off of. > Kyla > > Jodi Tyra <tyrajodi@...> wrote: > Hi all thanks for all of the information. I have > probably asked this already, but I am very > absent-minded these days. Does anyone experience > their child having a low grade temperature all the > time? has been running a low grade fever. > His normal temp is like 97, but he has been running > high 99 to 101. The doctors have told us to keep a > journal, so I am. Just wondering what everyone else > has experienced. > > Jodi > > --------------------------------- > Pinpoint customers who are looking for what you > sell. > > [Non-text portions of this message have been > removed] > > --------------------------------- > Luggage? GPS? Comic books? > Check out fitting gifts for grads at Search. > > [Non-text portions of this message have been > removed] > > > > > > > --------------------------------- > Got a little couch potato? > Check out fun summer activities for kids. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Got a little couch potato? Check out fun summer activities for kids. http://search./search?fr=oni_on_mail & p=summer+activities+for+kids & cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2007 Report Share Posted September 27, 2007 Hi Kyla, I am so glad that we have this group. I don't get as stressed when stuff happens, because I know that it is happening to all of us. Yes, he does take his medication at school, just Albuterol and sometimes Hydroxozine as needed. We were doing a treatment twice a day, but have cut back to right after PE since that is when the Oxygen levels tends to dip really low. I guess I will continue with the journal and see what they tell me when we go next week. Thanks for the input. Hope you have a great Friday. Jodi Kyla Burg <kyla_burg@...> wrote: Hey Jodi, I initially gave Gabby Motrin for her fever then she had the fever for so long I stopped giving it to her. You can only give it to them for so long. I just watched and made sure that the fever didn't go up any highr than 101. Eventually she didn't have a fever and then a few days later the fever would be back. She did not show any other symptoms. She was functioning normally. Does receive asthma meds at school at all? I have a doctor order for le to have her Albuterol either before Gym class or after. She also can have it as needed. She lets the teachers know when she is having a problem. I have spare meds and her spacer at school so they have it. I never give Gabby Tylenol( I had to alternate both once when her fever was 104-105 with Pneumonia). I have always given my girls Motrin. Hope this helps you. Best wishes Kyla --- Jodi Tyra <tyrajodi@...> wrote: > Hey good to hear from you again. Do you give Gabby > Tylenol everytime she has a fever? Right now > is asleep for the night...has been asleep > since 4:00. He will sleep all night...however he > has a fever. I have been giving him Tylenol or > Motrin, which ever I have at the moment...I am > scared to give him Tylenol all the time due to the > side effects with the kidneys and then getting > rebound headaches from taking it...I don't know what > to do...I am journaling...we are also monitoring his > oxygen level after PE...it is quite low, verifying > the need for a treatment. > > Jodi > > Kyla Burg <kyla_burg@...> wrote: > Hi Jodi, No suprise to say that Gabby has > the same problem with fever. She ran the same low > temps for so long I stopped taking it because > nothing ever happened. With her if it was a problem > something would have happened. I can't believe how > many similar issues our kids have. The only advice > my doctor said was when I take her temp to NOT use > an ear thermometer. If you want it to be accurate, > rectal. No one is a fan of that but apparently that > is the most consistant place to check. The fevers > come and go and little else happens. Still random > hives and much belly pain. Still not infusing. The > doctor said also to journal. Be sure to note > activity at the time. Have had more humid days here > which seem to give her trouble. Glad we all have > each other to bounce ideas off of. > Kyla > > Jodi Tyra <tyrajodi@...> wrote: > Hi all thanks for all of the information. I have > probably asked this already, but I am very > absent-minded these days. Does anyone experience > their child having a low grade temperature all the > time? has been running a low grade fever. > His normal temp is like 97, but he has been running > high 99 to 101. The doctors have told us to keep a > journal, so I am. Just wondering what everyone else > has experienced. > > Jodi > > --------------------------------- > Pinpoint customers who are looking for what you > sell. > > [Non-text portions of this message have been > removed] > > --------------------------------- > Luggage? GPS? Comic books? > Check out fitting gifts for grads at Search. > > [Non-text portions of this message have been > removed] > > > > > > > --------------------------------- > Got a little couch potato? > Check out fun summer activities for kids. > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Got a little couch potato? Check out fun summer activities for kids. http://search./search?fr=oni_on_mail & p=summer+activities+for+kids & cs=bz --------------------------------- oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2007 Report Share Posted September 27, 2007 Thanks Barbara for the prayers and advice. I do agree that Tylenol or Advil isn't necessary all the time, while he is at school, I have to keep the fever down. Even though they know that his temperature will flucuate if it gets over 100.5 he has to be sent home. I can't afford that and neither can he for academic reasons. We were told to live as normal a life as possible. It is all so contradicting in some aspects. Who really knows. We are journaling for our next visit. Since this is occuring, would you as a mother request he be on antibiotics for a long time period? Barbara Jimenez <mother5590@...> wrote: Generally it is not necessary to give Tylenol or Advil unless the temp is over 101 and some docs even push it to 102. It is believed by many doctors that a fever has a purpose of burning out whatever the issue is. I generally do not give anything for a low grade fever.<100.8. I only give a med if my kids are really uncomfortable or irritable. Or if there is some sort of inflammation that I am aware of such as an infected wound or something. I also use alternating of tylenol and advil when we have a high fever. It seems to work better and has broader symptom control. Meds can also mask other symptoms or give a child more energy when they should be resting. I think the body has some natural ways of using the fever to control the infection am more likely to give a warm/tepid bath or use cool compresses than to give meds. My daughter who does not have a PID but does have several congenital anomalies had a fever for over 18 months spiking as high as 104. We eventually found out she had a duplicate renal system or in other words she has 3 kidneys and ureters. Other things we checked were urines, CBCs and sed rates to make sure nothing was being missed. I know it is really tough when you do not know what is going on and a chronic fever is so tiring. I will be praying for your kids. BARBIE mom to Lucas 11, CVID, Bipolar, SubQ IG since he was 4. Jodi Tyra <tyrajodi@...> wrote: Hey good to hear from you again. Do you give Gabby Tylenol everytime she has a fever? Right now is asleep for the night...has been asleep since 4:00. He will sleep all night...however he has a fever. I have been giving him Tylenol or Motrin, which ever I have at the moment...I am scared to give him Tylenol all the time due to the side effects with the kidneys and then getting rebound headaches from taking it...I don't know what to do...I am journaling...we are also monitoring his oxygen level after PE...it is quite low, verifying the need for a treatment. Jodi Kyla Burg <kyla_burg@...> wrote: Hi Jodi, No suprise to say that Gabby has the same problem with fever. She ran the same low temps for so long I stopped taking it because nothing ever happened. With her if it was a problem something would have happened. I can't believe how many similar issues our kids have. The only advice my doctor said was when I take her temp to NOT use an ear thermometer. If you want it to be accurate, rectal. No one is a fan of that but apparently that is the most consistant place to check. The fevers come and go and little else happens. Still random hives and much belly pain. Still not infusing. The doctor said also to journal. Be sure to note activity at the time. Have had more humid days here which seem to give her trouble. Glad we all have each other to bounce ideas off of. Kyla Jodi Tyra <tyrajodi@...> wrote: Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. Jodi --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2007 Report Share Posted September 27, 2007 I do not remember what his issues were. Fill me in on what his diagnosis is and if you have been on IVIG or Sub Q and what kind of lab work have they drawn recently; Is he having any other symptoms? Jodi Tyra <tyrajodi@...> wrote: Thanks Barbara for the prayers and advice. I do agree that Tylenol or Advil isn't necessary all the time, while he is at school, I have to keep the fever down. Even though they know that his temperature will flucuate if it gets over 100.5 he has to be sent home. I can't afford that and neither can he for academic reasons. We were told to live as normal a life as possible. It is all so contradicting in some aspects. Who really knows. We are journaling for our next visit. Since this is occuring, would you as a mother request he be on antibiotics for a long time period? Barbara Jimenez <mother5590@...> wrote: Generally it is not necessary to give Tylenol or Advil unless the temp is over 101 and some docs even push it to 102. It is believed by many doctors that a fever has a purpose of burning out whatever the issue is. I generally do not give anything for a low grade fever.<100.8. I only give a med if my kids are really uncomfortable or irritable. Or if there is some sort of inflammation that I am aware of such as an infected wound or something. I also use alternating of tylenol and advil when we have a high fever. It seems to work better and has broader symptom control. Meds can also mask other symptoms or give a child more energy when they should be resting. I think the body has some natural ways of using the fever to control the infection am more likely to give a warm/tepid bath or use cool compresses than to give meds. My daughter who does not have a PID but does have several congenital anomalies had a fever for over 18 months spiking as high as 104. We eventually found out she had a duplicate renal system or in other words she has 3 kidneys and ureters. Other things we checked were urines, CBCs and sed rates to make sure nothing was being missed. I know it is really tough when you do not know what is going on and a chronic fever is so tiring. I will be praying for your kids. BARBIE mom to Lucas 11, CVID, Bipolar, SubQ IG since he was 4. Jodi Tyra <tyrajodi@...> wrote: Hey good to hear from you again. Do you give Gabby Tylenol everytime she has a fever? Right now is asleep for the night...has been asleep since 4:00. He will sleep all night...however he has a fever. I have been giving him Tylenol or Motrin, which ever I have at the moment...I am scared to give him Tylenol all the time due to the side effects with the kidneys and then getting rebound headaches from taking it...I don't know what to do...I am journaling...we are also monitoring his oxygen level after PE...it is quite low, verifying the need for a treatment. Jodi Kyla Burg <kyla_burg@...> wrote: Hi Jodi, No suprise to say that Gabby has the same problem with fever. She ran the same low temps for so long I stopped taking it because nothing ever happened. With her if it was a problem something would have happened. I can't believe how many similar issues our kids have. The only advice my doctor said was when I take her temp to NOT use an ear thermometer. If you want it to be accurate, rectal. No one is a fan of that but apparently that is the most consistant place to check. The fevers come and go and little else happens. Still random hives and much belly pain. Still not infusing. The doctor said also to journal. Be sure to note activity at the time. Have had more humid days here which seem to give her trouble. Glad we all have each other to bounce ideas off of. Kyla Jodi Tyra <tyrajodi@...> wrote: Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. Jodi --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 He has hypogammaglobulinemia...he also has asthma, allergies, heart murmurs. We went to the doctor today, sinus infection...has three different bacteria cells in the nasal swab they did. They put him on Omnicef for ten days. His Ige and IgM levels were below normal...he also had low titers on his immunzations and was recently reimmunized. He goes monday to have a blood draw to check his titers again and to check the cell functions for the immune system. Barbara Jimenez <mother5590@...> wrote: I do not remember what his issues were. Fill me in on what his diagnosis is and if you have been on IVIG or Sub Q and what kind of lab work have they drawn recently; Is he having any other symptoms? Jodi Tyra <tyrajodi@...> wrote: Thanks Barbara for the prayers and advice. I do agree that Tylenol or Advil isn't necessary all the time, while he is at school, I have to keep the fever down. Even though they know that his temperature will flucuate if it gets over 100.5 he has to be sent home. I can't afford that and neither can he for academic reasons. We were told to live as normal a life as possible. It is all so contradicting in some aspects. Who really knows. We are journaling for our next visit. Since this is occuring, would you as a mother request he be on antibiotics for a long time period? Barbara Jimenez <mother5590@...> wrote: Generally it is not necessary to give Tylenol or Advil unless the temp is over 101 and some docs even push it to 102. It is believed by many doctors that a fever has a purpose of burning out whatever the issue is. I generally do not give anything for a low grade fever.<100.8. I only give a med if my kids are really uncomfortable or irritable. Or if there is some sort of inflammation that I am aware of such as an infected wound or something. I also use alternating of tylenol and advil when we have a high fever. It seems to work better and has broader symptom control. Meds can also mask other symptoms or give a child more energy when they should be resting. I think the body has some natural ways of using the fever to control the infection am more likely to give a warm/tepid bath or use cool compresses than to give meds. My daughter who does not have a PID but does have several congenital anomalies had a fever for over 18 months spiking as high as 104. We eventually found out she had a duplicate renal system or in other words she has 3 kidneys and ureters. Other things we checked were urines, CBCs and sed rates to make sure nothing was being missed. I know it is really tough when you do not know what is going on and a chronic fever is so tiring. I will be praying for your kids. BARBIE mom to Lucas 11, CVID, Bipolar, SubQ IG since he was 4. Jodi Tyra <tyrajodi@...> wrote: Hey good to hear from you again. Do you give Gabby Tylenol everytime she has a fever? Right now is asleep for the night...has been asleep since 4:00. He will sleep all night...however he has a fever. I have been giving him Tylenol or Motrin, which ever I have at the moment...I am scared to give him Tylenol all the time due to the side effects with the kidneys and then getting rebound headaches from taking it...I don't know what to do...I am journaling...we are also monitoring his oxygen level after PE...it is quite low, verifying the need for a treatment. Jodi Kyla Burg <kyla_burg@...> wrote: Hi Jodi, No suprise to say that Gabby has the same problem with fever. She ran the same low temps for so long I stopped taking it because nothing ever happened. With her if it was a problem something would have happened. I can't believe how many similar issues our kids have. The only advice my doctor said was when I take her temp to NOT use an ear thermometer. If you want it to be accurate, rectal. No one is a fan of that but apparently that is the most consistant place to check. The fevers come and go and little else happens. Still random hives and much belly pain. Still not infusing. The doctor said also to journal. Be sure to note activity at the time. Have had more humid days here which seem to give her trouble. Glad we all have each other to bounce ideas off of. Kyla Jodi Tyra <tyrajodi@...> wrote: Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. Jodi --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 From the way we have treated our son and they have very similar issues. except that my son has hight IgE. It would make sense to put him on an Antibiotic until you get things under control. It is generally a smaller dose and what it does is keep the infections at bay so they do not take control. it sounds like he is being treated now for an active infection. You might ask the doctor whether propholactic antibiotics might be indicated after he finished this round and all the testing is done. Then you can choose the course of treatment without having a really really sick kiddo. In our case the sinus stuff always moved into his chest and then we would get pneumonia; It sounds like the sinus infection may be making him feel so yuchy I have been told by several ENTs that sinus infections do not cause fever. I do not know but I would expect it is the lungs that cause the fever. Sinus' are encapsulated so they say that they do not get into the blood system so do not cause a fever; I do not know except when our little ones feel so bad we just want to give them all the energy we can. Does this answer your questions? BARBIE Jodi Tyra <tyrajodi@...> wrote: He has hypogammaglobulinemia...he also has asthma, allergies, heart murmurs. We went to the doctor today, sinus infection...has three different bacteria cells in the nasal swab they did. They put him on Omnicef for ten days. His Ige and IgM levels were below normal...he also had low titers on his immunzations and was recently reimmunized. He goes monday to have a blood draw to check his titers again and to check the cell functions for the immune system. Barbara Jimenez <mother5590@...> wrote: I do not remember what his issues were. Fill me in on what his diagnosis is and if you have been on IVIG or Sub Q and what kind of lab work have they drawn recently; Is he having any other symptoms? Jodi Tyra <tyrajodi@...> wrote: Thanks Barbara for the prayers and advice. I do agree that Tylenol or Advil isn't necessary all the time, while he is at school, I have to keep the fever down. Even though they know that his temperature will flucuate if it gets over 100.5 he has to be sent home. I can't afford that and neither can he for academic reasons. We were told to live as normal a life as possible. It is all so contradicting in some aspects. Who really knows. We are journaling for our next visit. Since this is occuring, would you as a mother request he be on antibiotics for a long time period? Barbara Jimenez <mother5590@...> wrote: Generally it is not necessary to give Tylenol or Advil unless the temp is over 101 and some docs even push it to 102. It is believed by many doctors that a fever has a purpose of burning out whatever the issue is. I generally do not give anything for a low grade fever.<100.8. I only give a med if my kids are really uncomfortable or irritable. Or if there is some sort of inflammation that I am aware of such as an infected wound or something. I also use alternating of tylenol and advil when we have a high fever. It seems to work better and has broader symptom control. Meds can also mask other symptoms or give a child more energy when they should be resting. I think the body has some natural ways of using the fever to control the infection am more likely to give a warm/tepid bath or use cool compresses than to give meds. My daughter who does not have a PID but does have several congenital anomalies had a fever for over 18 months spiking as high as 104. We eventually found out she had a duplicate renal system or in other words she has 3 kidneys and ureters. Other things we checked were urines, CBCs and sed rates to make sure nothing was being missed. I know it is really tough when you do not know what is going on and a chronic fever is so tiring. I will be praying for your kids. BARBIE mom to Lucas 11, CVID, Bipolar, SubQ IG since he was 4. Jodi Tyra <tyrajodi@...> wrote: Hey good to hear from you again. Do you give Gabby Tylenol everytime she has a fever? Right now is asleep for the night...has been asleep since 4:00. He will sleep all night...however he has a fever. I have been giving him Tylenol or Motrin, which ever I have at the moment...I am scared to give him Tylenol all the time due to the side effects with the kidneys and then getting rebound headaches from taking it...I don't know what to do...I am journaling...we are also monitoring his oxygen level after PE...it is quite low, verifying the need for a treatment. Jodi Kyla Burg <kyla_burg@...> wrote: Hi Jodi, No suprise to say that Gabby has the same problem with fever. She ran the same low temps for so long I stopped taking it because nothing ever happened. With her if it was a problem something would have happened. I can't believe how many similar issues our kids have. The only advice my doctor said was when I take her temp to NOT use an ear thermometer. If you want it to be accurate, rectal. No one is a fan of that but apparently that is the most consistant place to check. The fevers come and go and little else happens. Still random hives and much belly pain. Still not infusing. The doctor said also to journal. Be sure to note activity at the time. Have had more humid days here which seem to give her trouble. Glad we all have each other to bounce ideas off of. Kyla Jodi Tyra <tyrajodi@...> wrote: Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. Jodi --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Barbara, this all does make sense...I really appreciate your advice. Now my question, the immunologist we are seeing for all the testing only wants to see in back in six month to recheck levels and she will call with the results from Monday, we see an immunologist who isn't affiliated with Texas Childrens but is communicating with the doctors. Can I make the suggestion for him to be put on a propholatic antibiotic? Do I have the right to push for this...I am new to this so I am not sure how far to push to get what we want. Jodi Barbara Jimenez <mother5590@...> wrote: From the way we have treated our son and they have very similar issues. except that my son has hight IgE. It would make sense to put him on an Antibiotic until you get things under control. It is generally a smaller dose and what it does is keep the infections at bay so they do not take control. it sounds like he is being treated now for an active infection. You might ask the doctor whether propholactic antibiotics might be indicated after he finished this round and all the testing is done. Then you can choose the course of treatment without having a really really sick kiddo. In our case the sinus stuff always moved into his chest and then we would get pneumonia; It sounds like the sinus infection may be making him feel so yuchy I have been told by several ENTs that sinus infections do not cause fever. I do not know but I would expect it is the lungs that cause the fever. Sinus' are encapsulated so they say that they do not get into the blood system so do not cause a fever; I do not know except when our little ones feel so bad we just want to give them all the energy we can. Does this answer your questions? BARBIE Jodi Tyra <tyrajodi@...> wrote: He has hypogammaglobulinemia...he also has asthma, allergies, heart murmurs. We went to the doctor today, sinus infection...has three different bacteria cells in the nasal swab they did. They put him on Omnicef for ten days. His Ige and IgM levels were below normal...he also had low titers on his immunzations and was recently reimmunized. He goes monday to have a blood draw to check his titers again and to check the cell functions for the immune system. Barbara Jimenez <mother5590@...> wrote: I do not remember what his issues were. Fill me in on what his diagnosis is and if you have been on IVIG or Sub Q and what kind of lab work have they drawn recently; Is he having any other symptoms? Jodi Tyra <tyrajodi@...> wrote: Thanks Barbara for the prayers and advice. I do agree that Tylenol or Advil isn't necessary all the time, while he is at school, I have to keep the fever down. Even though they know that his temperature will flucuate if it gets over 100.5 he has to be sent home. I can't afford that and neither can he for academic reasons. We were told to live as normal a life as possible. It is all so contradicting in some aspects. Who really knows. We are journaling for our next visit. Since this is occuring, would you as a mother request he be on antibiotics for a long time period? Barbara Jimenez <mother5590@...> wrote: Generally it is not necessary to give Tylenol or Advil unless the temp is over 101 and some docs even push it to 102. It is believed by many doctors that a fever has a purpose of burning out whatever the issue is. I generally do not give anything for a low grade fever.<100.8. I only give a med if my kids are really uncomfortable or irritable. Or if there is some sort of inflammation that I am aware of such as an infected wound or something. I also use alternating of tylenol and advil when we have a high fever. It seems to work better and has broader symptom control. Meds can also mask other symptoms or give a child more energy when they should be resting. I think the body has some natural ways of using the fever to control the infection am more likely to give a warm/tepid bath or use cool compresses than to give meds. My daughter who does not have a PID but does have several congenital anomalies had a fever for over 18 months spiking as high as 104. We eventually found out she had a duplicate renal system or in other words she has 3 kidneys and ureters. Other things we checked were urines, CBCs and sed rates to make sure nothing was being missed. I know it is really tough when you do not know what is going on and a chronic fever is so tiring. I will be praying for your kids. BARBIE mom to Lucas 11, CVID, Bipolar, SubQ IG since he was 4. Jodi Tyra <tyrajodi@...> wrote: Hey good to hear from you again. Do you give Gabby Tylenol everytime she has a fever? Right now is asleep for the night...has been asleep since 4:00. He will sleep all night...however he has a fever. I have been giving him Tylenol or Motrin, which ever I have at the moment...I am scared to give him Tylenol all the time due to the side effects with the kidneys and then getting rebound headaches from taking it...I don't know what to do...I am journaling...we are also monitoring his oxygen level after PE...it is quite low, verifying the need for a treatment. Jodi Kyla Burg <kyla_burg@...> wrote: Hi Jodi, No suprise to say that Gabby has the same problem with fever. She ran the same low temps for so long I stopped taking it because nothing ever happened. With her if it was a problem something would have happened. I can't believe how many similar issues our kids have. The only advice my doctor said was when I take her temp to NOT use an ear thermometer. If you want it to be accurate, rectal. No one is a fan of that but apparently that is the most consistant place to check. The fevers come and go and little else happens. Still random hives and much belly pain. Still not infusing. The doctor said also to journal. Be sure to note activity at the time. Have had more humid days here which seem to give her trouble. Glad we all have each other to bounce ideas off of. Kyla Jodi Tyra <tyrajodi@...> wrote: Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. Jodi --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Jodi, I am a Pediatric RN but what I mainly learned is from my kids and interacting over time with their doctors. Most docs but not all have EGOS and they want to be the ones to suggest things. Over the years I have found a few exceptions ( some at the IDF conference who were quite humble). So the way I usually handle things is that : 1. I do my research and find out what the usual " standard of care " is. I may look on line at treatments and their usual course, I may check with other parents, I may get a second opinion and I may also check with IDF to see what everyone else is doing. (Not to say our kids are all the same). I just want to know what the research is and what has been successful in what circumstances. 2. I also want to be able to understand the docs to follow their train of thought and figure out whether they know what they are talking about.;( I have found that with PIDS many of the docs that are not actively treating PID kids have very little knowlege of what the standards are. ( this also goes for the nursing staff in infusion centers or even home health (some have no experience in PEDS and some have not experience with Ig therapies.) So I may ask how many patients they have on IVIg or Sub Q and how many of them are kids. (YOu can also ask the staff.) Is it a Immunologist or a Allergist, or ID or Pediatrician they all have different expertise. So it depends on who you are asking. I sometimes went around one to get what I needed from another. but usually used each one as the specialist they were. 3.So.... I would say something about my source of information and then ask whether this " sounds reasonable " and " if not then " what would they suggest under the circumstances.? What you are going to find over time is that you need to become a team with your childs doctors. You need to be able to make decisions " with them " since you will know more about your child and almost as much as they do about " his disease " (if not more). So you can ask for anything. The question is whether it is the best for your child at that time and why.? I know it sounds complicated but re-read this slowly and realize that what we have to do is the research ourselves so that we can know what they are talking about when they give us info. Then be able to make informed decisions about their treatments. You are his BEST advocate since you know him and have the most invested in him. The doctor only knows a tiny snapshot in his life. You will need to keep advocating for him for years to come. whether you move or change doctors or whatever. So get involved as you are doing, Ask lots of quesitons. Keep a journal and notebook of his care, labs and meds. Learn everything that you can and advocate for him. You know not being on it is making him feel terrible and you just want him to get better and not get sicker. So ask what needs to be done to get him the best quality of life as possible. It sounds reasonable to me that he be on an antibiotic propholactically and it is the standard of care in many places as a preventative of severe illness or breakthrough illnesses. But ,to get that teamwork started you need to ask " what does the doctor think and why? " What is their course of action after all of the testing. (What is the plan?) Depending on what comes back. From what you have said. He has all of the indications my doctor would use to start him on SubQ but what else do they need to test for before that time or what other parameters need to be met before you can do that? ( also keep in mind that treatment is different in different parts of the country and for different age groups. And per doctor preference. So here is the very long answer to your question. I think it can give you some things to think about and allow you to realize that this is your job to ask questions and make suggestions for your child. YOU know what is best for your child. That is quality of life under the circumstances. Jodi Tyra <tyrajodi@...> wrote: Barbara, this all does make sense...I really appreciate your advice. Now my question, the immunologist we are seeing for all the testing only wants to see in back in six month to recheck levels and she will call with the results from Monday, we see an immunologist who isn't affiliated with Texas Childrens but is communicating with the doctors. Can I make the suggestion for him to be put on a propholatic antibiotic? Do I have the right to push for this...I am new to this so I am not sure how far to push to get what we want. Jodi Barbara Jimenez <mother5590@...> wrote: From the way we have treated our son and they have very similar issues. except that my son has hight IgE. It would make sense to put him on an Antibiotic until you get things under control. It is generally a smaller dose and what it does is keep the infections at bay so they do not take control. it sounds like he is being treated now for an active infection. You might ask the doctor whether propholactic antibiotics might be indicated after he finished this round and all the testing is done. Then you can choose the course of treatment without having a really really sick kiddo. In our case the sinus stuff always moved into his chest and then we would get pneumonia; It sounds like the sinus infection may be making him feel so yuchy I have been told by several ENTs that sinus infections do not cause fever. I do not know but I would expect it is the lungs that cause the fever. Sinus' are encapsulated so they say that they do not get into the blood system so do not cause a fever; I do not know except when our little ones feel so bad we just want to give them all the energy we can. Does this answer your questions? BARBIE Jodi Tyra <tyrajodi@...> wrote: He has hypogammaglobulinemia...he also has asthma, allergies, heart murmurs. We went to the doctor today, sinus infection...has three different bacteria cells in the nasal swab they did. They put him on Omnicef for ten days. His Ige and IgM levels were below normal...he also had low titers on his immunzations and was recently reimmunized. He goes monday to have a blood draw to check his titers again and to check the cell functions for the immune system. Barbara Jimenez <mother5590@...> wrote: I do not remember what his issues were. Fill me in on what his diagnosis is and if you have been on IVIG or Sub Q and what kind of lab work have they drawn recently; Is he having any other symptoms? Jodi Tyra <tyrajodi@...> wrote: Thanks Barbara for the prayers and advice. I do agree that Tylenol or Advil isn't necessary all the time, while he is at school, I have to keep the fever down. Even though they know that his temperature will flucuate if it gets over 100.5 he has to be sent home. I can't afford that and neither can he for academic reasons. We were told to live as normal a life as possible. It is all so contradicting in some aspects. Who really knows. We are journaling for our next visit. Since this is occuring, would you as a mother request he be on antibiotics for a long time period? Barbara Jimenez <mother5590@...> wrote: Generally it is not necessary to give Tylenol or Advil unless the temp is over 101 and some docs even push it to 102. It is believed by many doctors that a fever has a purpose of burning out whatever the issue is. I generally do not give anything for a low grade fever.<100.8. I only give a med if my kids are really uncomfortable or irritable. Or if there is some sort of inflammation that I am aware of such as an infected wound or something. I also use alternating of tylenol and advil when we have a high fever. It seems to work better and has broader symptom control. Meds can also mask other symptoms or give a child more energy when they should be resting. I think the body has some natural ways of using the fever to control the infection am more likely to give a warm/tepid bath or use cool compresses than to give meds. My daughter who does not have a PID but does have several congenital anomalies had a fever for over 18 months spiking as high as 104. We eventually found out she had a duplicate renal system or in other words she has 3 kidneys and ureters. Other things we checked were urines, CBCs and sed rates to make sure nothing was being missed. I know it is really tough when you do not know what is going on and a chronic fever is so tiring. I will be praying for your kids. BARBIE mom to Lucas 11, CVID, Bipolar, SubQ IG since he was 4. Jodi Tyra <tyrajodi@...> wrote: Hey good to hear from you again. Do you give Gabby Tylenol everytime she has a fever? Right now is asleep for the night...has been asleep since 4:00. He will sleep all night...however he has a fever. I have been giving him Tylenol or Motrin, which ever I have at the moment...I am scared to give him Tylenol all the time due to the side effects with the kidneys and then getting rebound headaches from taking it...I don't know what to do...I am journaling...we are also monitoring his oxygen level after PE...it is quite low, verifying the need for a treatment. Jodi Kyla Burg <kyla_burg@...> wrote: Hi Jodi, No suprise to say that Gabby has the same problem with fever. She ran the same low temps for so long I stopped taking it because nothing ever happened. With her if it was a problem something would have happened. I can't believe how many similar issues our kids have. The only advice my doctor said was when I take her temp to NOT use an ear thermometer. If you want it to be accurate, rectal. No one is a fan of that but apparently that is the most consistant place to check. The fevers come and go and little else happens. Still random hives and much belly pain. Still not infusing. The doctor said also to journal. Be sure to note activity at the time. Have had more humid days here which seem to give her trouble. Glad we all have each other to bounce ideas off of. Kyla Jodi Tyra <tyrajodi@...> wrote: Hi all thanks for all of the information. I have probably asked this already, but I am very absent-minded these days. Does anyone experience their child having a low grade temperature all the time? has been running a low grade fever. His normal temp is like 97, but he has been running high 99 to 101. The doctors have told us to keep a journal, so I am. Just wondering what everyone else has experienced. 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Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 My sister's and mine always run below 98.6. If I get up to 99 I know I'm sick. I suppose the opposite is also possible. Do you feel well? Pat**************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 If you always feel warm as well I'd check with a doctor. It's easy to write things off to be tired because of our various overscheduling issues, and it's easy to put everything else before our health. I'd take a little time to persue the reason and not let doctors give you a you're just tired answer considering how long this has been going on. It could be because of any number of low grade infections or a lingering virus. Pat**************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 Yes, I feel well but seem to feel tired a lot. Not sure if it is because of not getting enough sleep along with having a 2 and 3 year old or if it is something else. I just always feel warm though. From: pkennedy16@... <pkennedy16@...>Subject: Re: Fever Date: Thursday, September 4, 2008, 6:53 PM My sister's and mine always run below 98.6. If I get up to 99 I know I'm sick. I suppose the opposite is also possible. Do you feel well?Pat************ **It's only a deal if it's where you want to go. Find your travel deal here.(http://information .travel.aol. com/deals? ncid=aoltrv00050 000000047) Quote Link to comment Share on other sites More sharing options...
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