Drug Approved. Is Disease Real?

[Guest guest]

In Dominie’s

recent newsletter she talks about the outrageous article questioning the

validity of fibromyalgia.

Drug Approved.

Is Disease Real?

By ALEX

BERENSON,

(link:

http://www.nytimes.com/2008/01/14/health/14pain.html)

This article is

pathetic for many reasons. Just when the fibromyalgia community is taking

a sigh of relief and feeling some validation, we take such a huge blow.

As if it isn’t bad enough to have FMS slammed in the press, we have to

read about a pioneer FMS researcher turning on us and totally discrediting

fibro as being real.

If anyone cares

to write to the NY Times to let them know your opinion of their article, you

can respond in several ways… you can email the writer directly, or use

their general feedback methods. Details of how to do each option is

described below.

I suggest we

give them some feedback! We should try to remain composed – if we

come off as a bunch of lunatics ranting and raving, that will not make us look

credible. Be as professional as possible, state facts as you know them,

and let them know how disappointing this is. If you have had success with

Lyrica, let them know that too!

This is where

advocating for Fibromyalgia is important – and you CAN make a difference!

Shari Ferbert

********************************************

FROM THE NY

TIMES WEBSITE:

1)Send a

Message to ALEX BERENSON (writer of article)

http://topics.nytimes.com/top/reference/timestopics/people/b/alex_berenson/index.html?inline=nyt-per

Delivery of

this e-mail may be delayed. If you need to reach The Times immediately, please

call 212-556-1234.

2) Feedback on

Health Section

The Times

welcomes comments and suggestions, or complaints about errors that warrant

correction.

Messages on

news coverage can be e-mailed to nytnews@... or left toll-free at

1-888-NYT-NEWS (1-888-698-6397). Comments on editorials may be e-mailed to

letters@... or faxed to (212) 556-3622. To reach the author of a

particular article, including Jane E. Brody and Kolata, click on the

bylines to access a form to e-mail them directly.

If you have a general question about the Web site or require assistance with

the Premium Archive, Premium Crosswords, E-Mail Updates or other parts of the site,

please e-mail Customer Service instead.

************************************************************************************

[Guest guest]

Thanks, Shari for all this detailed info. My local Fibro support

group in Chicago sent an email to all our membership asking everyone

to respond directly to Berenson and to the NYTimes.

>

> In Dominie's recent newsletter she talks about the outrageous

article

> questioning the validity of fibromyalgia.

>

>

>

> Drug Approved. Is Disease Real?

>

> By ALEX BERENSON,

>

> (link: http://www.nytimes.com/2008/01/14/health/14pain.html)

>

>

>

> This article is pathetic for many reasons. Just when the

fibromyalgia

> community is taking a sigh of relief and feeling some validation,

we take

> such a huge blow. As if it isn't bad enough to have FMS slammed in

the

> press, we have to read about a pioneer FMS researcher turning on us

and

> totally discrediting fibro as being real.

>

>

>

> If anyone cares to write to the NY Times to let them know your

opinion of

> their article, you can respond in several ways. you can email the

writer

> directly, or use their general feedback methods. Details of how to

do each

> option is described below.

>

>

>

> I suggest we give them some feedback! We should try to remain

composed - if

> we come off as a bunch of lunatics ranting and raving, that will

not make us

> look credible. Be as professional as possible, state facts as you

know

> them, and let them know how disappointing this is. If you have had

success

> with Lyrica, let them know that too!

>

>

>

> This is where advocating for Fibromyalgia is important - and you

CAN make a

> difference!

>

>

>

> Shari Ferbert

>

> ********************************************

>

> FROM THE NY TIMES WEBSITE:

>

>

>

> 1)Send a Message to ALEX BERENSON (writer of article)

>

>

http://topics.nytimes.com/top/reference/timestopics/people/b/alex_bere

nson/i

> ndex.html?inline=nyt-per

>

> Delivery of this e-mail may be delayed. If you need to reach The

Times

> immediately, please call 212-556-1234.

>

>

>

> 2) Feedback on Health Section

>

>

>

> The Times welcomes comments and suggestions, or complaints about

errors that

> warrant correction.

>

>

>

> Messages on news coverage can be e-mailed to nytnews@... or left

> toll-free at 1-888-NYT-NEWS (1-888-698-6397). Comments on

editorials may be

> e-mailed to letters@... or faxed to (212) 556-3622. To reach the

> author of a particular article, including Jane E. Brody and

Kolata,

> click on the bylines to access a form to e-mail them directly.

>

> If you have a general question about the Web site or require

assistance with

> the Premium Archive, Premium Crosswords, E-Mail Updates or other

parts of

> the site, please e-mail Customer Service instead.

>

>

**********************************************************************

******

> ********

>

[Guest guest]

HAVE ALREADY WROTE HIM AND I DON'T KNOW IF HE WILL EVER READ IT, BUT MAYBE THE VOLUMN WILL GET HIS ATTENTION. Shari Ferbert <shari23@...> wrote: In Dominie’s recent newsletter she talks about the outrageous article questioning the validity of fibromyalgia. Drug Approved. Is Disease Real? By ALEX BERENSON, (link: http://www.nytimes.com/2008/01/14/health/14pain.html) This article is pathetic for many reasons. Just when the fibromyalgia community is taking a sigh of relief and feeling some validation, we take such a huge blow. As if it isn’t bad enough to have FMS slammed in the press, we have to read about a pioneer FMS researcher turning on us and totally discrediting fibro as being real. If anyone cares to write to the NY Times to let them know your opinion of their

article, you can respond in several ways… you can email the writer directly, or use their general feedback methods. Details of how to do each option is described below. I suggest we give them some feedback! We should try to remain composed – if we come off as a bunch of lunatics ranting and raving, that will not make us look credible. Be as professional as possible, state facts as you know them, and let them know how disappointing this is. If you have had success with Lyrica, let them know that too! This is where advocating for Fibromyalgia is important – and you CAN make a difference! Shari Ferbert ******************************************** FROM THE NY TIMES WEBSITE: 1)Send a Message to ALEX BERENSON (writer of article) http://topics.nytimes.com/top/reference/timestopics/people/b/alex_berenson/index.html?inline=nyt-per Delivery of this e-mail may be delayed. If you need to reach The Times immediately, please call 212-556-1234. 2) Feedback on Health Section The Times welcomes comments and suggestions, or complaints about errors that warrant correction. Messages on news coverage can be e-mailed to nytnewsnytimes or left toll-free at 1-888-NYT-NEWS (1-888-698-6397). Comments on editorials may be e-mailed to lettersnytimes or faxed to (212) 556-3622. To reach the author of a particular article, including Jane E. Brody

and Kolata, click on the bylines to access a form to e-mail them directly.If you have a general question about the Web site or require assistance with the Premium Archive, Premium Crosswords, E-Mail Updates or other parts of the site, please e-mail Customer Service instead. ************************************************************************************