Living With Fibromyalgia and Chronic Fatigue

[Guest guest]

> Great article why I want to get off of my Elavil and use an OTC

Dominie suggested if I can. tried to not take it one night used a

Tylenol PM with sleep aid i was wide awake till almost 2:30 am and

slept and up[ at 6 am after being up night before with hubby aching

all over. But yes want to get of my elavil for sleep. dong some

things domi suggested. hugs Heidi

> Living With Fibromyalgia and Chronic Fatigue

>

> Lifestyle changes and the right medications can help ease fatigue

and

> restless sleep from fibromyalgia.

> http://www.webmd.com/fibromyalgia/features/living-with-fibromyalgia-

and-chro

> nic-fatigue?ecd=wnl_cbp_042408

>

>

>

>

>

> Shari Ferbert

> President, AFFTER

> Advocates for Fibromyalgia Funding,

> Treatment, Education and Research

> www.affter.org <http://www.affter.org/>

>

[Guest guest]

My best med for sleep in zolpidem (generic ambien) 10 mg. Then when I

wake up halfway through the night, I take 1 mg of lorazepam (generic

ativan, an anti-anxiety med) and sleep another 3-4 hours. This combo

works for me, but it took years of experimenting. A list of everything

I've tried for sleep is at http://www.fms-help.com/sleep.htm - and a

list of everything I use currently is at http://www.fms-

help.com/what.htm Everyone is different in regard to sleep meds. It

helps to have a doc who will work with you as you try to find what

helps you.

And yes! If OTC sleep meds work for you - and they did for me when I

was younger, then that is the least expensive and probably safest way

to go. At my present age of 56, I am just glad to get restorative

sleep because I have to keep working with no retirement in sight. And

without sleep, you feel terrible, can't function and your immune system

is wrecked! My insomnia started when I was about 16 - my story is at

http://www.fms-help.com/insomnia.htm

[Guest guest]

>will ask my neuro-endocrine Dr when I see her Wed about those

medication's Dominie. You are 4 years older than me I need to find a

job doing something I can do with my aches,pains and fibro fog

sometimes which some weeks it is good then wham bam it hits me and I

have it for a day or two. Plus don't drive know how but hubby says

no. so i don't. And everything is far away and the price of gas now

a days too sticker shock.

But will let you know what the Dr tells me on wed. hugs Heidi

> My best med for sleep in zolpidem (generic ambien) 10 mg. Then

when I

> wake up halfway through the night, I take 1 mg of lorazepam

(generic

> ativan, an anti-anxiety med) and sleep another 3-4 hours. This

combo

> works for me, but it took years of experimenting. A list of

everything

> I've tried for sleep is at http://www.fms-help.com/sleep.htm - and

a

> list of everything I use currently is at http://www.fms-

> help.com/what.htm Everyone is different in regard to sleep meds. It

> helps to have a doc who will work with you as you try to find what

> helps you.

>

> And yes! If OTC sleep meds work for you - and they did for me

when I

> was younger, then that is the least expensive and probably safest

way

> to go. At my present age of 56, I am just glad to get restorative

> sleep because I have to keep working with no retirement in sight.

And

> without sleep, you feel terrible, can't function and your immune

system

> is wrecked! My insomnia started when I was about 16 - my story is

at

> http://www.fms-help.com/insomnia.htm

>

[Guest guest]

I am fortunate to be able to set my own hours as a piano teacher

(afternoons and evenings only - NO MORNINGS!!!!!!!) I work at a

school of music Mon.-Thurs. and teach in private homes on Fridays.

Without my meds and supplements, I wouldn't be able to do any of

this! But everyone is so different as to what helps them! That's

what baffles the docs and us patients too. I experimented for many

years - since 1982 when I was diagnosed. A current list of things I

use is at http://www.fms-help.com/what.htm - I know how frustrating

it can be to try to find meds that will help. You really need a nice

doc who will work with you on it. I have had some really awful

experiences with meds, so I found it is wise to take as little as

possible just in case a particular med has a bad side effect. I felt

like a guinea pig for so many years as I tried this and that. I have

my regimen together now, but oh the pain and agony (physically and

emotionally the " let-downs " ) before finding things that helped. It

was also expensive (we have " Millionaire's Disease " !!!) - Dominie

> >will ask my neuro-endocrine Dr when I see her Wed about those

> medication's Dominie. You are 4 years older than me I need to find

a

> job doing something I can do with my aches,pains and fibro fog

> sometimes which some weeks it is good then wham bam it hits me and

I

> have it for a day or two. Plus don't drive know how but hubby says

> no. so i don't. And everything is far away and the price of gas

now

> a days too sticker shock.

> But will let you know what the Dr tells me on wed. hugs Heidi

>

>

> > My best med for sleep in zolpidem (generic ambien) 10 mg. Then

> when I

> > wake up halfway through the night, I take 1 mg of lorazepam

> (generic

> > ativan, an anti-anxiety med) and sleep another 3-4 hours. This

> combo

> > works for me, but it took years of experimenting. A list of

> everything

> > I've tried for sleep is at http://www.fms-help.com/sleep.htm -

and

> a

> > list of everything I use currently is at http://www.fms-

> > help.com/what.htm Everyone is different in regard to sleep meds.

It

> > helps to have a doc who will work with you as you try to find

what

> > helps you.

> >

> > And yes! If OTC sleep meds work for you - and they did for me

> when I

> > was younger, then that is the least expensive and probably safest

> way

> > to go. At my present age of 56, I am just glad to get

restorative

> > sleep because I have to keep working with no retirement in

sight.

> And

> > without sleep, you feel terrible, can't function and your immune

> system

> > is wrecked! My insomnia started when I was about 16 - my story

is

> at

> > http://www.fms-help.com/insomnia.htm

> >

>

[Guest guest]

Living With Fibromyalgia and Chronic Fatigue

http://www.webmd.com/fibromyalgia/fibromyalgia-what-you-need-to-know/coping

Lifestyle changes and

the right medications can help ease fatigue and restless sleep from

fibromyalgia.

Shari Ferbert

www.AFFTER.org