book list

[Guest guest]

Hi Dana, I don't think we do have a book list though I think it would be a

good idea. For a quick fix, you could search the archives and print out a

few of the posts which list books.

From what you write, your parenting consulting meetings seem to loop fairly

regularly. I hope the reading material is helpful to get everyone's

understanding of OCD to a similar level. Now if all involved will actually

read the books, rather than just add them to a " to do " pile. :-)

Kathy R in Indiana

----- Original Message -----

From: " dana carvalho " <danacar@...>

> I thought that someone compiled a recommended reading list awhile back

> but i just looked in our files and didn't see one. Is there one

> somewhere or have we just talked about books in our posts.

[Guest guest]

Dana,

I was about to look for the list we made, but realized that the OC

Foundation has a book store!!

http://www.ocfoundation.org/ocf1110a.htm

There is a fairly complete list of guidelines and books. It might be easier

to print that out than create another one?????

Hey, you've been quiet - everything ok????

wendy, in canada

________________________________________________________________________________\

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[Guest guest]

Here are some Book suggestions from the Parent Resouce Library I run , some titles I got from posts on the list---Joy:

Polly¹s Magic Games: A Childs View of Obsessive Compulsive Disorder. Constance H. 1 Copy

Brain Lock:Free yourself from Obsessive-Compulsive Behaviors, M. Schwartz,M.D.Harper- Pub,N.Y. 1996 1 Copy

Freeing Your Child From Obsessive-Compulsive Disorder,Tamar E. Chansky, Ph.D. Crown Pub. N.Y.

2000 1 Copy

Getting Control : Overcoming Your Obsessions and Compulsions, Lee Baer, Ph.D. A Plume Book, N.Y. 1992 1 Copy

Obsessive Compulsive Disorder in Children And Adolescents, The University of Wisconsin-Madison Dept. of Psychiatry, Childrens Psychopharmacology Information Service. 1997 1 Copy (Bklt)

Obsessive Compulsive Disorder: A Complete Guide To Getting Well and Staying Well, Fred Penzel, Ph.D.

Oxford Press, N.Y. 2000 1 Copy

Obsessive Compulsive Disorder: New Help for the Family. Herbert L. Gravitz, Ph.D. Healing Vissions Press, Ca. 1998 1 Copy

OCD in Children and Adolescents:A Cognitive-Behavioral Treatment Manual,john S. March, Mulle. The Guilford Press, N.Y. 1998 1 Copy

The Bipolar Child: The Definitive and Reassuring Guide To Childhood¹s Most Misunderstood Disorder.

Demitri Papolos,M.D. & Janice Papolos. Broadway Books, N.Y. 1999 1 Copy

The Boy Who Couldn¹t Stop Washing : The Experience And Treatment of Obsessive-compulsive Disorder, Judith L. Rapport,M.D. ASignet Book, N.Y. 1991 1 Copy

The Defiant Child: A Parent¹s guide to Oppositional Defiant Disorder, Dr. A. Riley Pub. Co. Dallas Texas. 1997 1 Copy

The OCD Workbook: Your Guide to Breaking Free from Obsessive-Compulsive Disorder. Bruce M. Hyman & Cherry Pedrick, R.N. New Harbinger Pub. Inc. Ca 1999 1 Copy

From: " Kathy " <klr@...>

Reply-egroups

Date: Fri, 8 Dec 2000 21:36:58 -0500

<egroups>

Subject: Re: book list

Hi Dana, I don't think we do have a book list though I think it would be a

good idea. For a quick fix, you could search the archives and print out a

few of the posts which list books.

>From what you write, your parenting consulting meetings seem to loop fairly

regularly. I hope the reading material is helpful to get everyone's

understanding of OCD to a similar level. Now if all involved will actually

read the books, rather than just add them to a " to do " pile. :-)

Kathy R in Indiana

----- Original Message -----

From: " dana carvalho " <danacar@...>

> I thought that someone compiled a recommended reading list awhile back

> but i just looked in our files and didn't see one. Is there one

> somewhere or have we just talked about books in our posts.

eGroups Sponsor

You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , Roman, and Jackie Stout. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... .

[Guest guest]

Thanks, , this is a great suggestion. And I think Kathy has a good point

that our parenting consultant sessions seem to be looping.

I've been quiet because i've been gone. I thought I'd have access to email but

i didn't so that's why I've been silent since last Friday. Clay and I went to

an AIDS Conference in Washington DC. and just got back this afternoon. Boy, I

thought we had a lot of letters to keep track of; it's nothing compared to

scientists and committees. I'm on the AIDS CAB at the hospital (not to be

confused with the IRB) and so is my husband who is also soon to be on the CCG

and we went to the AACTG meetings and the RAC meetings. And more I can't even

remember..............Carrrumba! It was hard to keep it all straight and know

what people were talking about. And the scientists, fugetaboudit, I

wish I had paid more attention in school. Bar graph, shmar graph.

It was a nice break, though. I learned a lot and we stayed at a fancy hotel and

ate good food I didn't cook. This may have been our last " calm before the

storm " for awhile. Clay informed me that he decided to stop taking his Paxil.

He thinks he can control the OCD himself with the things he learned in a few

E & RP therapy sessions. I asked him what about the Depression. He said he and

his doctor talked about it and agreed he could stop. His doctor is not a

psychiatrist and knows nothing about OCD. He is an AIDS research scientist.

This makes me furious. I plan to tell Clay that i want to meet with him and his

doctor to come up with a plan of action in case his Depression returns

and takes the same course it has twice in the past, where Clay begins obsessing

that I'm disrespecting him in some way and he gets withdrawn and hostile. Both

times he was either not on medication or not at an OCD dose.

Here we were at this conference on AIDS (Clay's doctor was there too) and in one

room the community activists and people living with AIDS (PWA's) were discussing

how Depression is the #1 problem for quality of life and drug treatment

compliance issues and then in the next room the doctors and scientists are

discussing the latest viral therapy theories. And yet Clay's doctor takes him

off paxil without suggesting a new medication or a plan for dealing with his

Depression. And no one mentions how this might effect me or what I think about

it.

There were a ton of messages on my answering machine , one from Ava's school

saying that she had been sent to the " time out " place and to call. When I

checked my email there was one from her science teacher, who said she sent Ava

there because she asked the same question concerning directions 5 times. So I

called the time out guy (he's a coach and he likes Ava a lot) and he was

surprised that the teacher had even sent her to him. He didn't even know she

had OCD or a 504 plan, or he didn't remember. Anyway he said he made her write

up a behavior plan and i told him that if it was successful he could market it

because meds and E & RP were the only thing I knew of that worked with OCD.

He laughed and agreed that now that he knows the real deal he won't waste his

time with that again, at least not a conventional plan. I think I need to go in

and talk to him and we can figure out how to use his room as Ava's safe, or

cooling off place. Supposedly she's supposed to be able to go to the office and

hang out in the counselor's office when she's OCD stressing but that never

happens because either the counselor isn't in or the teacher is mad and forgets

or doesn't understand OCD and thinks she trying to be annoying rather than

getting stuck in an OCD behavior (like reassurance/checking).

It's good to be back. I haven't finished reading all my emails but so far I'm

all for simpler holidays. Ava's favorite Christmas Eve so far turns out to be

the one where the power went out and we ordered Chinese food and ate it by

candlelight in front of the space heater. You think I'm cookin' a big spread

after I heard her say that? No Way!

Dana in NC

W. Birkhan wrote:

> Dana,

>

> I was about to look for the list we made, but realized that the OC

> Foundation has a book store!!

> http://www.ocfoundation.org/ocf1110a.htm

>

> There is a fairly complete list of guidelines and books. It might be easier

> to print that out than create another one?????

>

> Hey, you've been quiet - everything ok????

>

> wendy, in canada

>

________________________________________________________________________________\

_____

> Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

>

>

> You may subscribe to the OCD-L by emailing listserv@... . In the

body of your message write: subscribe OCD-L your name. You may subscribe to

the Parents of Adults with OCD List at

parentsofadultswithOCD . You may access the

files, links, and archives for our list at

. Our list advisors are Tamar

Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are

Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , Roman,

and Jackie Stout. Subscription issues, problems, or suggestions may be

addressed to Louis Harkins, list owner, at louisharkins@... .

[Guest guest]

HI Dana:

Thanks for the update on your activities. It sounds like you had a very

interesting time even though you were buried under acronyms!

I don't think AIDS docs are alone with feeling uncomfortable about

depression and the care of their patients. This is also a big issue with

cancer patients. Some of the docs are starting to realize yes, cancer is

" depressing " in the colloquial sense, but a cancer patient with depression

needs treatment for the depression (as well as their cancer). They feel

awkward about what to do is what I notice, perhaps guilty about how the

treatments can cause depression. I hope that if Clay's depression comes

back you can both intervene before it causes strain between you two.

Sometimes Steve can tell when his depression needs action, other times it

seems to come up so silently and suddenly has has not a clue. You have an

advantage this time as you are anticipating it and it will be easier for

you to recognize. Now I know when I get that sense of being on eggshells,

it is the depression rearing its ugly head in Steve's life.

What the teacher is doing with time out for repeated questioning is a big

no-no. You may find it necessary to give a list of tips to the teacher or

ask Ava to choose a number of times she can ask for reassurance before she

will take a break herself. It seems that when our beloved OCDers feel they

can control the number of instances, this makes it easier for them to

achieve than telling them they cannot ever do it. This teacher needs some

rapid OCD education, it is very wrong to discipline Ava for symptoms of her

NBD.

Last year we went hiking for Xmas, wonderful picnic of veggie wraps! This

year the boys refuse and will hike any other holiday but insist Xmas is at

home. Nevertheless I am aiming for something simple too. No Martha

here I can assure you. Take care, aloha, Kathy (H)

kathyh@...

P.S. I would do up a reading list, but then WW will kid me mercilessly

about not controlling my GAD symptoms. <VBG> K.

At 02:10 PM 12/13/2000 -0500, you wrote:

>Thanks, , this is a great suggestion. And I think Kathy has a good

point that our parenting consultant sessions seem to be looping.

>I've been quiet because i've been gone. I thought I'd have access to

email but i didn't so that's why I've been silent since last Friday. Clay

and I went to an AIDS Conference in Washington DC. and just got back this

afternoon. Boy, I thought we had a lot of letters to keep track of; it's

nothing compared to scientists and committees. I'm on the AIDS CAB at the

hospital (not to be confused with the IRB) and so is my husband who is also

soon to be on the CCG and we went to the AACTG meetings and the RAC

meetings. And more I can't even remember..............Carrrumba! It was

hard to keep it all straight and know what people were talking about. And

the scientists, fugetaboudit, I

>wish I had paid more attention in school. Bar graph, shmar graph.

>

>It was a nice break, though. I learned a lot and we stayed at a fancy

hotel and ate good food I didn't cook. This may have been our last " calm

before the storm " for awhile. Clay informed me that he decided to stop

taking his Paxil. He thinks he can control the OCD himself with the things

he learned in a few E & RP therapy sessions. I asked him what about the

Depression. He said he and his doctor talked about it and agreed he could

stop. His doctor is not a psychiatrist and knows nothing about OCD. He is

an AIDS research scientist. This makes me furious. I plan to tell Clay

that i want to meet with him and his doctor to come up with a plan of

action in case his Depression returns

>and takes the same course it has twice in the past, where Clay begins

obsessing that I'm disrespecting him in some way and he gets withdrawn and

hostile. Both times he was either not on medication or not at an OCD dose.

>

>Here we were at this conference on AIDS (Clay's doctor was there too) and

in one room the community activists and people living with AIDS (PWA's)

were discussing how Depression is the #1 problem for quality of life and

drug treatment compliance issues and then in the next room the doctors and

scientists are discussing the latest viral therapy theories. And yet

Clay's doctor takes him off paxil without suggesting a new medication or a

plan for dealing with his Depression. And no one mentions how this might

effect me or what I think about it.

>

>There were a ton of messages on my answering machine , one from Ava's

school saying that she had been sent to the " time out " place and to call.

When I checked my email there was one from her science teacher, who said

she sent Ava there because she asked the same question concerning

directions 5 times. So I called the time out guy (he's a coach and he

likes Ava a lot) and he was surprised that the teacher had even sent her to

him. He didn't even know she had OCD or a 504 plan, or he didn't remember.

Anyway he said he made her write up a behavior plan and i told him that if

it was successful he could market it because meds and E & RP were the only

thing I knew of that worked with OCD.

>He laughed and agreed that now that he knows the real deal he won't waste

his time with that again, at least not a conventional plan. I think I need

to go in and talk to him and we can figure out how to use his room as Ava's

safe, or cooling off place. Supposedly she's supposed to be able to go to

the office and hang out in the counselor's office when she's OCD stressing

but that never happens because either the counselor isn't in or the teacher

is mad and forgets or doesn't understand OCD and thinks she trying to be

annoying rather than getting stuck in an OCD behavior (like

reassurance/checking).

>

>It's good to be back. I haven't finished reading all my emails but so far

I'm all for simpler holidays. Ava's favorite Christmas Eve so far turns

out to be the one where the power went out and we ordered Chinese food and

ate it by candlelight in front of the space heater. You think I'm cookin'

a big spread after I heard her say that? No Way!

>

>Dana in NC

[Guest guest]

, I have compiled a large list of really great books about Down syndrome on

our Amazon page at Reece's Rainbow. If anyone is interested in browsing it,

please feel free! www.reecesrainbow.com/amazondownsyndrome.htm

Any purchases made from this link mean a small percentage is given back to

Reece's Rainbow to help with our adoption grants for orphans with Down syndrome

around the world.

Reece's Rainbow

www.reecesrainbow.com

book list

Hello to all. This weekend is my son Wyatt's third birthday. When he was first

born, a nice nurse suggested I read Expecting Adam and it was my best friend

that first week/month while I sat alone in a room while my son was in ICU. Now,

every year on his birthday, I reread it. I was wondering if others might like to

help put together a list of favorite books for parents and families. I am just

finishing Down is Up for Eagle and also enjoyed this motivational story.

Just an idea. -

---------------------------------

Get your email and more, right on the new .com

[Guest guest]

I just started a book list for our group. To access, click on database

on the left of the page. If you know of helpful books about

FMS/CFIDS/ME, you can add them there. Thanks! - Dominie

[Guest guest]

>Thanks dominie;

If mine I have read are not on it I will add them.

Again thanks .The new file looks so interesting too. Saved it with

others ,I will read and print out too. heidi

> I just started a book list for our group. To access, click on

database

> on the left of the page. If you know of helpful books about

> FMS/CFIDS/ME, you can add them there. Thanks! - Dominie

>

[Guest guest]

I think reading books on our health issues are so important. It was Devin Starlanyl's "Fibromyalgia & chronoic Myofascial Pain" that really told me what was going on with my FMS & MPS and my body. It actually gave me hope that I could cope with it and I do! ElaineDominie Bush <dombush@...> wrote: I just started a book list for our group. To access, click on database on the left of the page. If you know of helpful books about FMS/CFIDS/ME, you can add them there. Thanks! -

Dominie

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.

[Guest guest]

I agree with you Elaine. I at one time had 15 books on fibromyalgia, but have given them to others that were newly diagnosed, I keep my Devin Starnyl books, and one that I got from the Arthritis foundation but can't remember the name of it. It was a great one in helping me to get my SSD. I think I still have it packed in one of the 4 boxes of books that have not been unpacked yet. Sandie -- Re: book list I think reading books on our health issues are so important. It was Devin Starlanyl's "Fibromyalgia & chronoic Myofascial Pain" that really told me what was going on with my FMS & MPS and my body. It actually gave me hope that I could cope with it and I do! ElaineDominie Bush <dombush@...> wrote: I just started a book list for our group. To access, click on database on the left of the page. If you know of helpful books about FMS/CFIDS/ME, you can add them there. Thanks! - Dominie You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.