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To and ,

Thanks for the input. , almost all of the work I've had done over the

past year and a half at the p.t. clinic was MFR. One of the therapists was

actually trained by and has had numerous sessions with him. And

I've read his book. What she tells me is that by going to her clinic a few

times a week, I'm only able to get them to " pick away at the problem, " whereas

if I go to the clinic I'd get intensive therapy over a 5 day period,

which would be more productive. Has your therapy, which you say hasn't really

helped, been at anything like that level?

Also, you mention Somatics. I was told by a yoga teacher in Baltimore that you

can stretch the fascia yourself via exercises, but a MFR therapist told me

that's incorrect, that the fascia has to be stretched and released by another

person. Have you tried Somatics yourself? Or do you know anyone who has?

And , you mention prolotherapy. There's a doc in the D.C. area who does

it. I understand it's a series of injections in the area of the problem. My

problems are throughout the body, so I wonder whether that's an approach that

would work for me. Do you have any direct experience of it yourself?

Thanks again to you both for responding. I'm desperate about the limitations on

my activities caused by this problem, and the fact that the only solution being

offered is outrageously expensive.

Peggy

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Tim and/or Peggy Walters wrote:

> Also, you mention Somatics. I was told by a yoga teacher in Baltimore that

you can stretch the fascia yourself via exercises, but a MFR therapist told me

that's incorrect, that the fascia has to be stretched and released by another

person.

I had fascia that had been bundled or tightly wrapped around muscles

which had had trauma, such as from the car wreck I'd been in and

subsequent casts on my leg. I underwent a series of deep tissue massage

which released the fascia and greatly relieved my pain in the leg in

question. I couldn't walk far without pain in the calf of my right leg

until I had the fascia released and it was like night and day in the

difference it made.

Diane

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Tim and/or Peggy Walters wrote:

> Also, you mention Somatics. I was told by a yoga teacher in Baltimore that

you can stretch the fascia yourself via exercises, but a MFR therapist told me

that's incorrect, that the fascia has to be stretched and released by another

person.

I had fascia that had been bundled or tightly wrapped around muscles

which had had trauma, such as from the car wreck I'd been in and

subsequent casts on my leg. I underwent a series of deep tissue massage

which released the fascia and greatly relieved my pain in the leg in

question. I couldn't walk far without pain in the calf of my right leg

until I had the fascia released and it was like night and day in the

difference it made.

Diane

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  • 6 years later...

I think I spelled it right... Has anyone been told they have fibro ,

but also myofascial pain in arms, back etc. ? Do you do any things

different for that ? Or just the same as for the fibro pain? Has

anyone tryed cranial sacrial (SP.) work? I hae a place on my back

that stays so sore and achy.

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I think you mean myofascial pain. The fascia is the

connective tissue that literally links all bones,

muscles and tendons in a 3D sheath inside the body.

Myofascial mean a combination of muscle and fascia

pain.

One of the things that can help relieve this type of

pain is massage. My daughter's an LMT and does a

wonderful job. The only thing she has to remember

with me is to use a lighter touch than she might with

another client.

I also see a chiropractor who does cranial sacral

therapy and I've gotten a lot of relief, particularly

in the upper body, from that.

Janice

--- dixie1340 <missmagnolia2007@...> wrote:

> I think I spelled it right... Has anyone been

> told they have fibro , but also myofascial

> pain in arms, back etc. ? Do you do any things

> different for that ? Or just the same as

> for the fibro pain? Has anyone tryed cranial

> sacrial (SP.) work? I hae a place on my back

> that stays so sore and achy.

>

>

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

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>

> > I think I spelled it right... Has anyone been

> > told they have fibro , but also myofascial

> > pain in arms, back etc. ? Do you do any things

> > different for that ? Or just the same as

> > for the fibro pain? Has anyone tryed cranial

> > sacrial (SP.) work? I hae a place on my back

> > that stays so sore and achy.

> >

> >

>

> I also haveit in my aabdominal and lower back, knees too my Dr.

told me.

But I also was a Cheerleader in High School and danced on roller

skates the 4 wheel kind too in my youth. so all that with the falls

didnot help much but wioth X-Ray's and tests they said it was

Myfascial pain. heidi

>

>

______________________________________________________________________

______________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

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Also, if the fascia is tight, that can set up trigger points. Trigger point therapy along with the others mentioned will help.

Is this pain near your shoulder blades about midway? For self-help, try this: Put a tennis ball in a tube sock. Throw the tube sock over your shoulder. Have the tennis ball right where the pain is. Back up against a wall and roll that tennis ball around on the painful area. Do this on muscle, not bone

HTH

-

Re: myofascial pain

I think you mean myofascial pain. The fascia is theconnective tissue that literally links all bones,muscles and tendons in a 3D sheath inside the body. Myofascial mean a combination of muscle and fasciapain. One of the things that can help relieve this type ofpain is massage. My daughter's an LMT and does awonderful job. The only thing she has to rememberwith me is to use a lighter touch than she might withanother client.I also see a chiropractor who does cranial sacraltherapy and I've gotten a lot of relief, particularlyin the upper body, from that.Janice--- dixie1340 <missmagnolia2007webtv (DOT) net> wrote:> I think I spelled it right... Has anyone been> told they have fibro , but also myofascial > pain in arms, back etc. ? Do you do any things> different for that ? Or just the same as > for the fibro pain? Has anyone tryed cranial > sacrial (SP.) work? I hae a place on my back > that stays so sore and achy. > > __________________________________________________________Never miss a thing. Make your home page. http://www./r/hs

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I have all of this fibromyalgia myalgia myfascial tmj ibs rls cfs osteoarthritis migraines anxiety depression multiple sensitive disorder chronic yeast and the most recent they found a black dead spot in the basal ganglia on the left side of the brain. all of the drugs they have me on are imitrex injections lyrica diclofenac vicodin darvocet effexor xr flexeril zanaflex estradiol diflucan vitamin d and b12 my myofascial is in my lower back and shoulder all of the time and it is unbearable even with all of the meds dixie1340

<missmagnolia2007@...> wrote: I think I spelled it right... Has anyone been told they have fibro , but also myofascial pain in arms, back etc. ? Do you do any things different for that ? Or just the same as for the fibro pain? Has anyone tryed cranial sacrial (SP.) work? I hae a place on my back that stays so sore and achy.

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Dixie, I have fibro along with Myofacial Pain Syndrome. When first diagnosed, I received massage therapy for it. My therapist instructed me on how to release the Myofacia myself, when it gets so it involves the back more I go in for a release. I have had cranial sacral therapy also and it is fantastic. I do use heat also to aid in the release. Sandie -- myofascial pain I think I spelled it right... Has anyone been told they have fibro , but also myofascial pain in arms, back etc. ? Do you do any things different for that ? Or just the same as for the fibro pain? Has anyone tryed cranial sacrial (SP.) work? I hae a place on my back that stays so sore and achy.

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Hi - I have not been diagnosed with myofascial pain but I suspect I have that also. My massage thereapist does some cranial sacrial on my and also lymph drainage really helps a lot. dixie1340 <missmagnolia2007@...> wrote: I think I spelled it right... Has anyone been told they have fibro , but also myofascial pain in arms, back etc. ? Do you do any things different for that ? Or just the same as for the fibro pain? Has anyone tryed cranial sacrial (SP.) work? I hae a place on my back that stays so sore and achy.

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I have chronic myofascial pain as well as fibromyalgia. What works best for me is to get either trigger point release massotherapy or myofascial release.

I highly recommend the book "The Trigger Point Therapy Workbook: Second Edition" by Clair Davies. You look up where you have pain and it will show you all the trigger points that could be causing the pain and how to release them. I use a lacrosse ball against the wall and a theracane to release my trigger points every night and it helps a lot.

I also have Dr. Pellegrino give me trigger point injections in my hips now and then which helps a lot for quite a while. The pain there is caused by a combination of fibro, trigger points, and adhesions along the sciatic nerve from my spinal fusion in 1998.

I also used to get cranial sacral therapy from a wonderful physcial therapist and I think it is the most relaxing and effective therapy for pain. But she closed her business after having a huge problem with medicare which is a shame because she was so good. Many massotherapists also do cranial sacral as well.

sue in ohio

>> I think I spelled it right... Has anyone been told they have fibro , but also myofascial pain in arms, back etc. ? Do you do any things different for that ? Or just the same as for the fibro pain? Has anyone tryed cranial sacrial (SP.) work? I hae a place on my back that stays so sore and achy.>

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Nadine,I'm sure we all appreciate your concern about the pain meds but please do not confuse Addiction with tolerance and dependence. It is very hard to become addicted to a drug, dependent on it yes - your body does this with any drug over time and sometimes in a short amount of time depending on the type of med and your reaction or sensitivity to it. Addiction is what happens when someone does not follow their doctor's orders on how to take the medication AND/OR when someone takes a medication JUST TO GET HIGH!!! So please do not use the term addiction here. There are many people in severe chronic pain who cannot live without the pain meds, I myself am included! If it wasn't for the MS Contin and Percocet and sometimes more, I would not be alive. My pain is that bad! Whitney On Jan 8, 2008 2:00 PM, nadine redman <nlraccount@...> wrote:

I have pain too, along with arthritis in both knees, hands, fingers, feet, and lower back. My neck and back, hips, and shoulders hurt on a daily basis. Most days after being on my feet at work my heels just scream at me. I am on Lyrica, Effexor, Seroquil, Synthroid (did everyone know that most people with Fibro have Thyroid issues?) I also have high BP so I take Accupril for that. Anyway, my husband is a Physical Therapy Assistant, and let me tell you what helps tremendously. There are a few things......1st is a trigger point massage, hurts like hell, but afterwards your body feels amazing. 2nd heat.....moist heat only. Homemade rice bags are great, and so are the Chammomile and Lavender wraps from Kohls. 3rd a Paraffin wrap on your hands and feet. You can find the Paraffin machines at Wal-Mart, Kohls, Macys, and Meijer stores. That does wonders for hands that hurt and feet that won't stop

throbbing. 4th water aerobics or just walking around in a heated swimming pool and doing exercises. For the person on all the meds......wow. You can become very addicted to Vicodin, Percocet, etc.. Not to mention with that you build up a tolerance. It in no way helps Fibromyalgia pain, only normal muscle pain after injury/surgery. Why are you on Imitrex? For the headaches? Does it help? Honestly most people with Fibro that have the extreme headaches is because of the knotted muscles in our necks and upper backs and shoulders. Try a good massage therapist. They would be a heck of a lot less expensive than all the medication your on. Chiropractors only help if they give you the exercises to strengthen the weak areas they keep working on. Yes, pain is a daily part of all of our lives. Some days are worse than others. I think a lot of times

we expect to have a pain free existance, and well, that isn't going to happen. I think accepting that has helped me out tremendously because just accepting that has focused me to living with it and working with it. There are also doctors that are pain specialists that some go to. I personally haven't been to one, but there is that help out there too. Hang in there!!!!!!!!!!! We know how you feel!!!!

Nadine Shirley Godbout <prywarr@...> wrote:

All I can say is welcome to the club (LOL). I take nothing for my pain during the day. I take supplements in the a.m. and sleep/antidepressants at night for sleep. I don't think there is a whole lot one can do. You are on some serious pain meds. I was taking Gabapentin for about a year or so for the rls but it doesn't work very good any more. The pain isn't as bad as it used to me but still keeps me up at night sometimes. The shoulder,neck, back pain, etc. I do nothing for but go to the chiropractor which helps some. God gives me the strength to do what I need to do so I have Him to thank for all that I can do which compared to some is a whole lot. God bless.

Shirley Godbout

Re: myofascial pain I have all of this fibromyalgia myalgia myfascial tmj ibs rls cfs osteoarthritis migraines anxiety depression multiple sensitive disorder chronic yeast and the most recent they found a black dead spot in the basal ganglia on the left side of the brain.

all of the drugs they have me on

are imitrex injections lyrica diclofenac vicodin darvocet effexor xr flexeril zanaflex estradiol diflucan

vitamin d and b12 my myofascial is in my lower back and shoulder all of the time and it is unbearable even with all of the meds

dixie1340 <missmagnolia2007@ webtv.net> wrote: I think I spelled it right... Has anyone been told they have fibro , but also myofascial pain in arms, back etc. ? Do you do any things different for that ? Or just the same as for the fibro pain? Has anyone tryed cranial sacrial (SP.) work? I hae a place on my back that stays so sore and achy.

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I'm sorry, you didn't answer the question at all nor did the articles. Could you please explain so we can understand your point? Thanks :)

Never miss a thing. Make your homepage.

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