Update

[Guest guest]

Hi , Thank you for your support. It is awful, I am praying that things

get better as he gets older. The dilation took place at Parkland Hospital which

is suppose to be one of the best even if its a county hospital. Do you know what

happens if there is some peristalsis? I'm nervous about the test and the outcome

since there is so much scar tissue from the dilations.  

From: Cipresse <steph@...>

achalasia

Sent: Tuesday, August 16, 2011 12:01 PM

Subject: Re: update

Hi -

You and your son are really going through a rough time.  I wish the medical

staff could offer you some relief or at least sympathy.  How awful.

A motility test shows how much peristalsis (if any) is happening.  Those are the

wave like involuntary muscle contractions that push things down the esophagus.

It is also called a manometry test. For me, I had no peristalsis  -- so

swallowing is a combination of the voluntary muscles at top and gravity.

On Aug 16, 2011, at 9:36 AM, Monicqua wrote:

> Good morning. To get right down to it, last week was terrible for my son and

I. On Monday, I left work early cause he called me saying that he was vomiting.

That night around 8 pm he was admitted in the hospital since I took him to the

ER earlier that day. He didnt eat anything until Tuesday evening around 7 pm and

then he had a chest x-ray on Wednesday, the doctors nor the nurses did anything

to comfort us. It was like we were there just living while waiting on them to

say something or do something. Finally Wednesday at 6:30 pm the surgeon that I

had been requesting to see came to the room. We talked about the options and

what he thought was best, he did the heller on my son in 2007 only opening the

top of his esophagus, now he wants to do the same to the bottom. Dr. Schindler

also suggested I go ahead with the dilation on Thursday for some relieve for now

at 40 cm ( the adult level). That took place on at noon followed by a barium

swallow to make

> sure no holes were in the esophagus. Friday morning my son was vomiting again,

he only had jello and gatarade to drink but that came up because the barium was

still sitting there. By Friday evening after another x-ray it showed that it had

moved down into his intestines good sign. Saturday we left the hospital waiting

now for a motility test and the follow up visit next week. What does the

motility test prove? His esophagus is already damaged from 17 dilations.

> 

>    Monicqua

>

>

[Guest guest]

I don't know much about what the results indicate -- I hope that the GI and

surgeon you work with are achalasia experts and able to offer your son the best

possible options.

On Aug 16, 2011, at 10:17 AM, Monicqua wrote:

> Hi , Thank you for your support. It is awful, I am praying that

things get better as he gets older. The dilation took place at Parkland Hospital

which is suppose to be one of the best even if its a county hospital. Do you

know what happens if there is some peristalsis? I'm nervous about the test and

the outcome since there is so much scar tissue from the dilations.

>

> From: Cipresse <steph@...>

> achalasia

> Sent: Tuesday, August 16, 2011 12:01 PM

> Subject: Re: update

>

> Hi -

> You and your son are really going through a rough time. I wish the medical

staff could offer you some relief or at least sympathy. How awful.

>

> A motility test shows how much peristalsis (if any) is happening. Those are

the wave like involuntary muscle contractions that push things down the

esophagus. It is also called a manometry test. For me, I had no peristalsis --

so swallowing is a combination of the voluntary muscles at top and gravity.

>

>

> On Aug 16, 2011, at 9:36 AM, Monicqua wrote:

>

> > Good morning. To get right down to it, last week was terrible for my son and

I. On Monday, I left work early cause he called me saying that he was vomiting.

That night around 8 pm he was admitted in the hospital since I took him to the

ER earlier that day. He didnt eat anything until Tuesday evening around 7 pm and

then he had a chest x-ray on Wednesday, the doctors nor the nurses did anything

to comfort us. It was like we were there just living while waiting on them to

say something or do something. Finally Wednesday at 6:30 pm the surgeon that I

had been requesting to see came to the room. We talked about the options and

what he thought was best, he did the heller on my son in 2007 only opening the

top of his esophagus, now he wants to do the same to the bottom. Dr. Schindler

also suggested I go ahead with the dilation on Thursday for some relieve for now

at 40 cm ( the adult level). That took place on at noon followed by a barium

swallow to make

> > sure no holes were in the esophagus. Friday morning my son was vomiting

again, he only had jello and gatarade to drink but that came up because the

barium was still sitting there. By Friday evening after another x-ray it showed

that it had moved down into his intestines good sign. Saturday we left the

hospital waiting now for a motility test and the follow up visit next week. What

does the motility test prove? His esophagus is already damaged from 17

dilations.

> >

> > Monicqua

> >

> >

[Guest guest]

I am sorry you are having such a difficult time with your son , how old

is he?

 

> Good morning. To get right down to it, last week was terrible for my son and

I. On Monday, I left work early cause he called me saying that he was vomiting.

That night around 8 pm he was admitted in the hospital since I took him to the

ER earlier that day. He didnt eat anything until Tuesday evening around 7 pm and

then he had a chest x-ray on Wednesday, the doctors nor the nurses did anything

to comfort us. It was like we were there just living while waiting on them to

say something or do something. Finally Wednesday at 6:30 pm the surgeon that I

had been requesting to see came to the room. We talked about the options and

what he thought was best, he did the heller on my son in 2007 only opening the

top of his esophagus, now he wants to do the same to the bottom. Dr. Schindler

also suggested I go ahead with the dilation on Thursday for some relieve for now

at 40 cm ( the adult level). That took place on at noon followed by a barium

swallow to make

> sure no holes were in the esophagus. Friday morning my son was vomiting again,

he only had jello and gatarade to drink but that came up because the barium was

still sitting there. By Friday evening after another x-ray it showed that it had

moved down into his intestines good sign. Saturday we left the hospital waiting

now for a motility test and the follow up visit next week. What does the

motility test prove? His esophagus is already damaged from 17 dilations.

> 

>    Monicqua

>

>

[Guest guest]

Hello. He is 15 turning 16 next month. He was diagnosed at age 10.

From: <blondie1677@...>

achalasia

Sent: Tuesday, August 16, 2011 12:32 PM

Subject: Re: update

 

I am sorry you are having such a difficult time with your son , how old

is he?

 

> Good morning. To get right down to it, last week was terrible for my son and

I. On Monday, I left work early cause he called me saying that he was vomiting.

That night around 8 pm he was admitted in the hospital since I took him to the

ER earlier that day. He didnt eat anything until Tuesday evening around 7 pm and

then he had a chest x-ray on Wednesday, the doctors nor the nurses did anything

to comfort us. It was like we were there just living while waiting on them to

say something or do something. Finally Wednesday at 6:30 pm the surgeon that I

had been requesting to see came to the room. We talked about the options and

what he thought was best, he did the heller on my son in 2007 only opening the

top of his esophagus, now he wants to do the same to the bottom. Dr. Schindler

also suggested I go ahead with the dilation on Thursday for some relieve for now

at 40 cm ( the adult level). That took place on at noon followed by a barium

swallow to make

> sure no holes were in the esophagus. Friday morning my son was vomiting again,

he only had jello and gatarade to drink but that came up because the barium was

still sitting there. By Friday evening after another x-ray it showed that it had

moved down into his intestines good sign. Saturday we left the hospital waiting

now for a motility test and the follow up visit next week. What does the

motility test prove? His esophagus is already damaged from 17 dilations.

> 

>    Monicqua

>

>

[Guest guest]

Monicqua,

So sorry to hear what you and your son are going through.  Please stay strong

for him and continue to search for top rated achalasia specialist that can help

him.

I totally understand the cold attitude sometimes seen in the hospitals, seems

like some of them get so immune to patients that they have no sympathy to show

any longer.

I wish you and him the best..We pray that he feels better soon.

Take Care,

Priti

________________________________

From: Monicqua <monicqua2002@...>

" achalasia " <achalasia >

Sent: Tuesday, August 16, 2011 12:36 PM

Subject: update

 

Good morning. To get right down to it, last week was terrible for my son and I.

On Monday, I left work early cause he called me saying that he was vomiting.

That night around 8 pm he was admitted in the hospital since I took him to the

ER earlier that day. He didnt eat anything until Tuesday evening around 7 pm

and then he had a chest x-ray on Wednesday, the doctors nor the nurses did

anything to comfort us. It was like we were there just living while waiting on

them to say something or do something. Finally Wednesday at 6:30 pm the surgeon

that I had been requesting to see came to the room. We talked about the options

and what he thought was best, he did the heller on my son in 2007 only opening

the top of his esophagus, now he wants to do the same to the bottom. Dr.

Schindler also suggested I go ahead with the dilation on Thursday for some

relieve for now at 40 cm ( the adult level). That took place on at noon followed

by a barium swallow to make

sure no holes were in the esophagus. Friday morning my son was vomiting again,

he only had jello and gatarade to drink but that came up because the barium was

still sitting there. By Friday evening after another x-ray it showed that it

had moved down into his intestines good sign. Saturday we left the hospital

waiting now for a motility test and the follow up visit next week. What does the

motility test prove? His esophagus is already damaged from 17 dilations.

 

   Monicqua

[Guest guest]

A short while ago I wrote about the situation with the chest xray and the

fact that I was going to have to have a CAT scan as they saw something

abnormal.

Oddly, no one responded to my post. Maybe it did not go through somehow.

At any rate the CAT scan showed some nodules in my lungs that they are not

sure about. The dr thought maybe they are scar tissue. I did have

pneumonia at age 10. Also the sjogrens might be doing something in there.

They are going to follow up in a few months. I also had my work up from

Nebraska sent to them which told of the checking they did back then.

Thanks!

Liz Kilpatrick

On the banks of the Mighty Mississippi River, Davenport,IA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

(A)PERSON with big dreams is more powerful than one with all the

facts! *H. Brown,Jr.**************************************

LIFE isn't about waiting for the storm to pass. It's about learning

how to dance in the rain! *Vivian Greene*************************

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... WEBSITE: http://members.tripod.com/~LizK

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

Sandy wrote:

>

> ... the surgery seems to trigger a series of spasms, much like the

> aftershocks of an earthquake. Of course you could be different! But

> there are often very strong spasms after surgery that taper off over a

> few months to a year. ...

>

I agree. It isn't just something that happens to us. But we already have

some nerve damage so the surgery trauma adds to that. Muscles around

other injuries, including surgery, can spasm. When I broke my ankles and

feet the muscles in my feet and legs below the knees would spasm

(cramp). There was always one or more muscles in spasm at a time until I

was given a muscle relaxant to stop it. You don't know cramps until you

have one with broken bones and hypersensitive due to lots of nerve damage.

notan