Update

[Guest guest]

<<Their are more recent articles on CLA in the search engines but I found

this interesting in case anyone were to increase linoleic acid without first

looking into it. That could be a mistake. This page did not go into detail

about how much CLA would be beneficial, maybe Cliff has more details on that

aspect.

http://www.acsh.org/Publications/Priorities/0804/cla.html>>

This link is to American Council on Science and Health.

Barrett and a number of the Quack Watch vigilantes

are on the Advisory Board there. There is a strong possibility

that this organization is a front for Barrett, and he began this

organization.

I wouldn't use their site for research.

Regards,

[Guest guest]

Hi ,

I was not aware of the connection and simply did a quick search in google.

Here are two other articles that might help. Source site links at the end of

each.

Eileen

Health Benefits of CLA

Many people are taking CLA as an expensive supplement for the benefits

described below. But wouldn't it make much more sense to get it for free in

your food?

There is a new reason why it may be beneficial to allow cows to graze on

pasture. That reason involves a compound called conjugated linoleic acid

(CLA).

CLA is a fatty acid found in beef and dairy fats. Scientific interest in CLA

was stimulated in 1988 when a University of Wisconsin researcher discovered

its cancer-fighting properties in a study of rats fed fried hamburger. CLA

cannot be produced by the human body, but it can be obtained through foods

such as whole milk, butter, beef, and lamb.

" The interesting thing is that dairy cattle that graze produce higher

amounts of CLA in their milk than those which receive conserved feed, such

as grain, hay, and silage, " says Agricultural Research dairy scientist Larry

Satter. This is true even when the nongrazers eat pasture grass conserved as

hay.

Satter, who is based at the Dairy Forage Research Center in Madison,

Wisconsin, conducted a study comparing the amount of CLA in milk from cows

grazing on pasture to the amount from cows fed hay or silage.

His findings:

Pasture-grazed cows had 500% more CLA in their milk than those fed silage.

Larry Satter is at the USDA-ARS U.S. Dairy Forage Research Center, 1950

Linden Lane, University of Wisconsin, Madison, WI 53706; phone (608)

264-5353, fax (608) 264-5147.

CLA may be one of the most potent cancer-fighting substances in our diet.

In animal studies, as little as one half of one percent CLA in the diet has

reduced tumor burden by more than 50 percent.

CLA has also been shown to reduce body fat in people who are overweight.

by Shomon

A double-blind, randomized, placebo-controlled study, published in the

December 2000 issue of the Journal of Nutrition found that CLA reduces fat

and preserves muscle tissue. According to the research project manager, an

average reduction of six pounds of body fat was found in the group that took

CLA, compared to a placebo group.

The study found that approximately 3.4 grams of CLA per day is the level

needed to obtain the beneficial effects of CLA on body fat.

Dr. Pariza, who conducted research on CLA with the University of

Wisconsin-Madison, reported in August 2000 to the American Chemical Society

that " It doesn't make a big fat cell get little. What it rather does is keep

a little fat cell from getting big. "

Pariza's research did not find weight loss in his group of 71 overweight

people, but what he did find was that when the dieters stopped dieting, and

gained back weight, those taking CLA " were more likely to gain muscle and

not fat.'' In a separate study conducted at Purdue University in Indiana,

CLA was found to improve insulin levels in about two-thirds of diabetic

patients, and moderately reduced the blood glucose level and triglyceride

levels.

CLA has been the subject of a variety of research in the past several years,

and findings also suggest that some of the other benefits of CLA include the

following:

Increases metabolic rate -- This would obviously be a positive benefit for

thyroid patients, as hypothyroidism -- even when treated -- can reduce the

metabolic rate in some people.

Decreases abdominal fat -- Adrenal imbalances and hormonal shifts that are

common in thyroid patients frequently cause rapid accumulation of abdominal

fat, so this benefit could be quite helpful.

Enhances muscle growth -- Muscle burns fat, which also contributes to

increased metabolism, which is useful in weight loss and management.

Lowers cholesterol and triglycerides -- Since many thyroid patients have

elevated cholesterol and triglyceride levels, even with treatment, this

benefit can have an impact on a thyroid patient's health.

Lowers insulin resistance -- Insulin resistance is a risk for some

hypothyroid patients, and lowering it can also help prevent adult-onset

diabetes and make it easier to control weight.

Reduces food-induced allergic reactions -- Since food allergies can be at

play when weight loss becomes difficult, this can be of help to thyroid

patients.

Enhances immune system -- Since most cases of thyroid disease are autoimmune

in nature, enhancing the immune system's ability to function properly is a

positive benefit.

If you're interested in taking CLA to help with weight loss, keep in mind

that it's not a magic, and you will need to start a program of diet and

exercise in order to successfully lose weight and keep it off.

Conjugated linoleic acid (CLA) is a mixture of positional and geometric

isomers of linoleic acid, which is found preferentially in dairy products

and meat. Preliminary studies indicate that CLA is a powerful anticancer in

the rat breast tumor model with an effective range of 0.1-1% in the diet.

Conjugated linoleic acid is unique because it is present in food from animal

sources, and its anticancer efficacy is expressed at concentrations close to

human consumption levels.

Conjugated linoleic acid and atherosclerosis in rabbits Lee K.N.;

Kritchevsky D.; Pariza M.W. Food Research Institute, Dept. Food

Microbiology/Toxicology, University of Wisconsin-Madison, 1925 Willow Drive,

Madison, WI 53706 USA Atherosclerosis (Ireland), 1994, 108/1 (19-25)

http://www.mercola.com/beef/cla.htm

Fat Factor

So how does melatonin work? Scientists aren't sure yet, but one possibility

may have to do with its ability to interfere with a type of fat called

linoleic acid.

Linoleic acid is a nutrient that has been linked to various diseases

including cancer. It tends to promote the growth and reproduction of

cells--which is usually a good thing--but unfortunately it also encourages

cancer cells. " Although linoleic acid is important for normal structure and

function of cells, it has a downside in that it acts as a stimulating factor

in cancer cell growth, " says Blask.

" We discovered serendipitously that [melatonin] reduced the ability of

tumors to take up linoleic acid, " he says. This is an important area for

further research not only because it seems to show how melatonin fights

cancer but also because it suggests how melatonin might be useful in

treating other diseases as well.

" Melatonin is not a magic bullet, " Blask says. " It's just another piece of a

very complex puzzle. "

Amy Paturel is an epidemiology analyst and health writer in Los Angeles,

California. She has a master's degree in nutrition and a master's degree in

public health, both from Tufts University (Boston).

Reviewer: Beth Israel Deaconess Medical Center. Reviewed for medical

accuracy by physicians at Beth Israel Deaconess Medical Center (BIDMC),

Harvard Medical School. BIDMC does not endorse any products or services

advertised on this Web site.

http://health.medscape.com/cx/viewarticle/403501_4

Re: Re: Update

<<Their are more recent articles on CLA in the search engines but I found

this interesting in case anyone were to increase linoleic acid without first

looking into it. That could be a mistake. This page did not go into detail

about how much CLA would be beneficial, maybe Cliff has more details on that

aspect.

http://www.acsh.org/Publications/Priorities/0804/cla.html>>

This link is to American Council on Science and Health.

Barrett and a number of the Quack Watch vigilantes

are on the Advisory Board there. There is a strong possibility

that this organization is a front for Barrett, and he began this

organization.

I wouldn't use their site for research.

Regards,

_________________________________________________________

[Guest guest]

I don't have more info on CLA. I am glad for this article. I am going to

use one capsule in addition to three tablespoons of FO/CC and the Beta

Glucan and see what happens in six weeks.

I don't know whether the Beta Glucan and vitamin C and some other things

have helped the cancer or not, but they have certainly kept us from colds

and other things this winter which makes it well worth the price and effort.

Cliff

Re: Re: Update

><<Their are more recent articles on CLA in the search engines but I found

>this interesting in case anyone were to increase linoleic acid without

first

>looking into it. That could be a mistake. This page did not go into detail

>about how much CLA would be beneficial, maybe Cliff has more details on

that

>aspect.

>

>http://www.acsh.org/Publications/Priorities/0804/cla.html>>

>

>

> This link is to American Council on Science and Health.

> Barrett and a number of the Quack Watch vigilantes

>are on the Advisory Board there. There is a strong possibility

>that this organization is a front for Barrett, and he began this

>organization.

>

> I wouldn't use their site for research.

>

>Regards,

>

>

>

>

>Get HUGE info at http://www.cures for cancer.ws, and post your own links there.

Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by

visiting http://www.bobhurt.com/subunsub.mv

>

>

[Guest guest]

hi stephen ......

it's great to hear that things are going well for you now ...... good

luck with the sports

i live in Calgary, Canada but have a friend in Spartenburg, are you

anywhere near there?

spmiller20 wrote:

hey everyone...

just wanted to give an update on myself to every one...i have enjoyed

reading all of the posts here for a lot of information that we

did

not know...

i had my surgery on july 30th...began school late this year due

to

it...i am 16 yrs old and really enjoy playing sports for my

school...i am from south carolina....any one else in the group

close

to me?

i had a lot of spasms right after my surgery and was even scared

to

go to school due to them....my gi dr put me on prevacid...i had

two

more after beginning the medicine but none since....i have been

on it

for about two weeks...i do have feelings at times that i have one

wanting to start but then goes away....

i have put on at least 8 of my 11 pounds that i had lost in the

few

months before surgery...i was just diagnosed in june this year...

i am 6'2" and weighed 140 lbs before surgery....so needless

to say i

need to put the weight back on...i do get full fast...but trying

to

eat more often....still drinking boost to help with the weight..

i am

eating alot better and can feel my food going down with no problems...

i am practing with my cross country team but not competing...but

should be ready for basketball season....

everything is going great now...hope that it continues....i do

read

all of your email ..

stephen

[Guest guest]

Soooooooooooooooooo happy for you My son did cross country through college He still runs Ran the race in Washington last year He did finish his time??? don't know I have "a" for about 13 years Had surgery 3 years ago It didn't work Managing with diet and small portions many times a day Spasms?? I get them when I rush or can't eat Then it'd procardia ice water and a hard cookie I sip wine when I go out for dinner It relaxes my "E" and even though I watch what I eat I don't worry about food coming up I rarely have food come up I do have phlegm blocking the passage of food And thats what comes up Oh I am 68 yrs old If that means anything I think my eating or not eating bothers my family more then me

Hey stop and smell the roses Life is tooooooooooooooo short

Re: update

hi stephen ...... it's great to hear that things are going well for you now ...... good luck with the sports i live in Calgary, Canada but have a friend in Spartenburg, are you anywhere near there? spmiller20 wrote: hey everyone... just wanted to give an update on myself to every one...i have enjoyed reading all of the posts here for a lot of information that we did not know... i had my surgery on july 30th...began school late this year due to it...i am 16 yrs old and really enjoy playing sports for my school...i am from south carolina....any one else in the group close to me? i had a lot of spasms right after my surgery and was even scared to go to school due to them....my gi dr put me on prevacid...i had two more after beginning the medicine but none since....i have been on it for about two weeks...i do have feelings at times that i have one wanting to start but then goes away.... i have put on at least 8 of my 11 pounds that i had lost in the few months before surgery...i was just diagnosed in june this year... i am 6'2" and weighed 140 lbs before surgery....so needless to say i need to put the weight back on...i do get full fast...but trying to eat more often....still drinking boost to help with the weight.. i am eating alot better and can feel my food going down with no problems... i am practing with my cross country team but not competing...but should be ready for basketball season.... everything is going great now...hope that it continues....i do read all of your email .. stephen

[Guest guest]

Me, too! The others can probably help more, but I also noticed that my rods

looked bent in

my x-rays. Will talk to the Doc about it in May...

> Hi Everyone, Just wanted to update on my doctor's appt today, I found

> out that i have a hurniated disk in my neck above from my top fusion

> of the rod. Iam going to be starting physical theropy wendsday, never

> had a hurnated disk before. So this is new to me, I also had a

> updated x-rays on my rod today too. I go back to see the doc in 4

> weeks for the result's, I took a short glimse of them today and it

> looks like my rod is bent with the curve of my spine. It doesn't look

> straight like it use too. If anyone has had similar symtoms I would

> love to hear about it. Thanks Conny

[Guest guest]

Hang in there Teri. You gonna post the pretty pictures they give you?

-- Update

Hi Guys, Here's the scoop!!!! I'm on an all liquid diet today! Oh boy!!! I took the first ucky crap and will take the rest 3hrs. before I have to head to Des Moines. My Daughter is taking me to have a wonderful colonoscopy!!! I can hardly wait and have been shitting my brains out!!!! LOL

The nice lemon flavor along with six ounces of Code Red Mt. Dew may cause me to never like it again!! LOL Will have to get as much liquids in me before midnight or I will be starving and dehydrating!!!

I still have so much to unpack and do but am doing a real good cleaning job of everything I do so hopefully then I can maintain it! Ha ha I bought me a new light fixture today to put over my bathroom medicine cabinet because I can't see in it because the light is in the center of the room! And when you can't see up close anymore it makes it very difficult!! I also bought me one of those rolling 3drawer plastic jobs so I can put a lot of my computer stuff in them!! So will probably do that here later tonight! Don't think I'm going to get much sleeping done!

Well I really meant to get more in here but by the time I got my box cleared out you can see what time it is and my day will be a long one! I love you all!

Hey think about me today and send good thoughts my way! Love You,

Teri

[Guest guest]

Thanks Liz!!! But damnit, they didn't give me any pretty pictures! Was for my viewing only! LOL Well it wasn't the most aful thing I ever had to do! But that is some nasty tasting shit!! I'm off to take a nap! They found a small pulip and I have Diverticular Disease, so my Dr. wants me to get more fiber into my diet! So I guess I will live!LOL

Thank you for caring!

Love,Teri

[Guest guest]

Hi Penny,

What do you mean with 'the lift' ???? Do you have a pouch ??? And I can totally relate to your frustration about the waiting period of 4 months. I have been put on the waitinglist for open surgery 2 weeks ago and the waitinglist in that hospital is 5 months.

Hang in there (allthough I know that's easier said than done).

Hugs,

Biancka

Update

Just found out I will be getting the dialation on the 22 to help me untill the surgery >i go see the doc in london the 24 for pre op screening but there is a posible wait of 4 months for surgery .Not a good thing have no eaten in 3 days and last night spams were terrible no sleep again. Also wondering aprox how long is the stay inhospital after they are also doing the lift any info woul be greatly appreciated

[Guest guest]

Penny, have you tried using any of the drugs to tide you over until you can have surgery??? Most surgeons prefer that the LES not be treated with dilation or botox to make the surgery easier for them to perform (dilation and botox can cause scarring that makes it harder for them to do the myotomy.) Medications such as Calcium Channel Blockers and Nitroglycerine are helpful in the short-term for some people. If the medications don't work for you then obviously you'll need to do SOMEthing if they won't operate on you for 4 more months, but if you are able to avoid the dilation, then that's what I would do in your situation.

Hospital stay is generally anywhere from 2-4 days for a laparoscopic surgery (most seem to be 2-3 days), and 5-10 days for an open surgery (most seem to be right around a week). Recuperation time (time off work, etc.) is generally 2 weeks for lap and 4-6 weeks for open. So you'd need to ask if your surgeon will be doing a lap. or open Heller Myotomy.

Have you tried any of the medications to stop the spasm pains??? Sometimes I can get mine to stop by drinking lots of warm (not hot) water, but when that doesn't work I have always been able to get one to stop by taking nifedipine.

I hope you can find something that works for you!Debbi in Michigan

Just found out I will be getting the dialation on the 22 to help me untill the surgery >i go see the doc in london the 24 for pre op screening but there is a posible wait of 4 months for surgery .Not a good thing have no eaten in 3 days and last night spams were terrible no sleep again. Also wondering aprox how long is the stay inhospital after they are also doing the lift any info woul be greatly appreciated

[Guest guest]

Hi Florida (sorry, don't know your first name)

Ain't that the truth! I should know by now to bring a list of

questions. There's a good list of things to ask in the " Files "

section of this website, by the way. I discovered it AFTER my

appointment with Rand. That's my brain on vicadin, a veritable steel

trap!

My best, Dianne

> Dianne,

>

> I wish you lot's of luck on your surgery. I know how it

feels after you leave the doctor you get all these questions you

should have asked or forgot to ask. There lucky we can't reach them

by phone easily. LOL

>

[Guest guest]

Hi Dianne,

I went to the home page and saw " files " but it wouldn't let me click on it. How

do I get there? I am so stupid when it comes to computers. I would love to see

the list of questions to ask the doctor.

Joyce

Re: Update

Hi Florida (sorry, don't know your first name)

Ain't that the truth! I should know by now to bring a list of

questions. There's a good list of things to ask in the " Files "

section of this website, by the way. I discovered it AFTER my

appointment with Rand. That's my brain on vicadin, a veritable steel

trap!

My best, Dianne

> Dianne,

>

> I wish you lot's of luck on your surgery. I know how it

feels after you leave the doctor you get all these questions you

should have asked or forgot to ask. There lucky we can't reach them

by phone easily. LOL

>

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

Sharon,

I've been trying to locate the spelling of Ann's last name in order to send

a card to her. Do you have it? I've just spent a lot of time and came up

dry! If you're around, maybe you could spell it for me?

Thanks!

Carole

[Guest guest]

Hey Dianne,

Your surgery is scheduled on my birthday.

I'm not going to get in to particulars, but whatever you do...make sure

paperwork reflects EXACTLY what will be done to you. I'm curious as to why you

won't need an osteotomy. Is there another way to correct flatback?

Again, without getting in to particulars, if paperwork does not reflect

procedures done, medical insurance can get out of payment. Not that they

will...but they can. Ask me how I know this.

xoxo's

PS Are you scheduled for a discogram?

[Guest guest]

Hi ,

Good to see you posting again! I've been down with a nasty flu for

the past week and am only just now getting back on my feet. With so

much lying around, my back feels like mush and is hurting like

crazy. My posture is more pitched and it takes real effort to stay

straight. As a matter of fact, I just straightened up while typing

that, hah! It doesn't take much to deteriorate, sadly.

As to your question re: discogram, no, I'm not scheduled for one.

And thanks for the advice on having my paperwork in complete order,

I'll make sure to take extra care with that.

It looks like things are progressing quickly for you surgerywise.

Keep us posted along the way.

All my best, Dianne

> Hey Dianne,

> Your surgery is scheduled on my birthday.

> I'm not going to get in to particulars, but whatever you

do...make sure paperwork reflects EXACTLY what will be done to you.

I'm curious as to why you won't need an osteotomy. Is there another

way to correct flatback?

> Again, without getting in to particulars, if paperwork does not

reflect procedures done, medical insurance can get out of payment.

Not that they will...but they can. Ask me how I know this.

> xoxo's

>

>

> PS Are you scheduled for a discogram?

[Guest guest]

PRECISELY WHY I RESIGNED MY COMMISSION AND GOT OUT OF THE ARMY RESERVE

AFTER 15.5 YEARS OF SERVICE!!!

update

Hello group, it's been a while since I have written and a lot has gone

on. Just a little background. I received 4 shots ending March 1999.

Since then my and my wife's health has steadily gotten worse. The

normal symptoms (flu like) has stayed with me to this date. In January

of this year I was hospitalized with what was determined as Transverse

myelitis. The myelin has been striped away from my spinal cord. This

is a singular attack of Multiple Sclerosis. The attack has left me with

many concerns and many more questions. Vaccines such as the Anthrax

vaccine cause this to happen. During the same time I was hospitalized

my wife experienced the same symptoms. She has been diagnosed with MS.

The doctors are amazed at us, not for having the disease but for have it

together. I now spend a lot of my time working with veterans as a

member of the American Legion and Rolling Thunder. It's so hard to

watch young people filled with excitement as they " get to got to war "

only to find out there is no backing for them once the government is

through with them.

Well, that's just a quick note for now..

Tom & Debbie Starkweather

308 Lakeshore Dr.

Battle Creek, MI 49015-3132

269.962.6792

http://www.geocities.com/mrwizzardfive/MS.html

_____________________________________________________________

Switch to Netscape Internet Service.

As low as $9.95 a month -- Sign up today at

http://isp.netscape.com/emreg

Netscape. Just the Net You Need.

Our Anthrax information web site:

http://www.dallasnw.quik.com/cyberella/

/files/VAERS.pdf

DESTROY QUARANTINED VACCINE:

http://www.PetitionOnline.com/mod_perl/signed.cgi?robi2662 & amp;amp;amp;a

mp;1

PETITION TO OVERTURN/REPEAL FERES DOCTRINE

http://www.petitiononline.com/fd1950/petition.html

To visit Dr. Meryl Nass's web site, go to: http://www.anthraxvaccine.org

Also visit: Anthrax Vaccine Benefit vs Risk: http://www.avip2001.net AND

http://www.MajorBates.com/

Anthrax Vaccine Network http://www.ngwrc.org/anthrax/default.asp

Military Vaccine Education Center link, http://www.milvacs.org

Sgt. Larson's story:

http://www.ngwrc.org/anthrax/heroes/sandralarson.htm

http://www.avip2001.net/CongressionalTestimony.htm

Tom Heemstra's new book -

http://www.anthraxadeadlyshotinthedark.com/index.html

Contact list owner: Gretchen at: anna_nim@...

[Guest guest]

> The myelin has been striped away from my spinal cord.

Essential Fatty Acids such as Omega 3 and Flax Seed Oil help to rebuild

this covering.

Lechner

[Guest guest]

My heart goes out to you both. I suggest you contact the Paralyzed Veterans of

America. They specifically advocate for Veterans with central nervous system

injuries of all types. I understand they're as effective as the DAV but more

specific.

Transverse myelitis is generally a self-limited condition that remits on its own

never to return, if it follows certain virus infections. Since you and your

wife BOTH have been diagnosed with the initial presentation of MS (apparently

ruling out post-virus TM), I strongly suggest you go to your local university

medical center and see if whatever caused TM in one of you also caused it in the

other. If that's the case, then either (1) there's something in the AVA that's

contaigious and it's important to know that; (2) neither your nor your wife's is

related to the AVA but instead to something else (although that may be next to

impossible to demonstrate); (3) your TM is related to the AVA but hers isn't and

it's simply coincidental that you both developed it at about the same time. (I

assume that your wife did NOT get the AVA at anytime for any reason.)

It's particularly important that you investigate (1). If there's something

" alive " in the AVA that's contaigious, that's vitally important information that

we all need to know.

Again, you have my symathies.

Fisher, MD

LTCOL USAFR MC FS (Ret)

update

Hello group, it's been a while since I have written and a lot has gone on. Just

a little background. I received 4 shots ending March 1999. Since then my and

my wife's health has steadily gotten worse. The normal symptoms (flu like) has

stayed with me to this date. In January of this year I was hospitalized with

what was determined as Transverse myelitis. The myelin has been striped away

from my spinal cord. This is a singular attack of Multiple Sclerosis. The

attack has left me with many concerns and many more questions. Vaccines such as

the Anthrax vaccine cause this to happen. During the same time I was

hospitalized my wife experienced the same symptoms. She has been diagnosed with

MS. The doctors are amazed at us, not for having the disease but for have it

together. I now spend a lot of my time working with veterans as a member of the

American Legion and Rolling Thunder. It's so hard to watch young people filled

with excitement as they " get to got to war " only to find out there is no backing

for them once the government is through with them.

Well, that's just a quick note for now..

Tom & Debbie Starkweather

308 Lakeshore Dr.

Battle Creek, MI 49015-3132

269.962.6792

http://www.geocities.com/mrwizzardfive/MS.html

_____________________________________________________________

Switch to Netscape Internet Service.

As low as $9.95 a month -- Sign up today at http://isp.netscape.com/emreg

Netscape. Just the Net You Need.

Our Anthrax information web site: http://www.dallasnw.quik.com/cyberella/

/files/VAERS.pdf

DESTROY QUARANTINED VACCINE:

http://www.PetitionOnline.com/mod_perl/signed.cgi?robi2662 & amp;amp;amp;1

PETITION TO OVERTURN/REPEAL FERES DOCTRINE

http://www.petitiononline.com/fd1950/petition.html

To visit Dr. Meryl Nass's web site, go to: http://www.anthraxvaccine.org

Also visit: Anthrax Vaccine Benefit vs Risk: http://www.avip2001.net AND

http://www.MajorBates.com/

Anthrax Vaccine Network http://www.ngwrc.org/anthrax/default.asp

Military Vaccine Education Center link, http://www.milvacs.org

Sgt. Larson's story: http://www.ngwrc.org/anthrax/heroes/sandralarson.htm

http://www.avip2001.net/CongressionalTestimony.htm

Tom Heemstra's new book - http://www.anthraxadeadlyshotinthedark.com/index.html

Contact list owner: Gretchen at: anna_nim@...

[Guest guest]

Penny I am so glad your bed is a success !! Do you sit up in bed - do you 'lie' on your back to sleep ?

I have also bought a bed with a head and foot end that can be raised, but because of my severe arthritis of my spine I cannot lie on my back for long and lying on my side does not work when the bed is high enough to prevent reflux. I have got it as high as I can tolerate it but I tend to slip down !

Sorry to hear you also have arthritis of your spine - I presume it is still early days so you can still do some prevention. Do try to prevent yourself from becoming hunchbacked - it makes life so difficult. There are exercises you can do to keep your muscles strong to keep you upright. Swimming is an excellent form of exercise for those of us with arthritis of the spine - it does not involve jarring the spine.

Congratulations on the weight loss ! now that is an achievement !

Joan

Johannesburg

South Africa

UPDATE

Well i have had my bed for a week now and it is great i would strongly recomend anyone who can get one to do so i have been sleeping much better . I have only had the choking attacks twice and it was because i did not have the bed up enough . It is a wonderful feeling to be able to sleep and not worry about choking . Of course i will be glad to have the surgery and be able to sleep next to my husband but he says it is nice to see me at least sleeping in the same room instead of in a chair in the living room . In the weight department i have lost another 5 pounds . Benn very hot here and i was just told last week by the family doc that i have arthritis in my spine which makes walking not much fun but i will keep going not giving up that easy , well hope everyone is doing well talk soon Penny

[Guest guest]

,

I am so sorry the stimulator did not work out for you. I truly hope

you start feeling better soon. just hang in there and hopefully your

dr can find a treatment plan that can help you.

Take care of yourself and get yourself well soon.

wendy

> Hey guys!

> , first of all, I know what it is like to be so strung out and

> led along. Those doctors can be real buttheads. They may try you on

> some Wellbutrin or even some Trazadone. Both of which I am on, but

> the Wellbutrin is to help me lose weight. The Trazadone I take at

> night and it helps me sleep (finally). Hang in there sweetie, I am

> praying for you as well.

> Now for my update: Unfortunately, it was a no go. They inserted the

> stimulator and brought me out of conscious sedation and started

> testing it out on me. It made the pain in my left foot feel better,

> but reproduced (made worse) the pain in my right leg x 10. The doc

> put me back under and tried to move the leads, and said that once the

> unit was turned on to a level 2, I was literally coming up off the

> table (and I was still under sedation). They brought me back out of

> sedation again. Started asking me what I was feeling. I explained

> to them that it felt as if I had razors runing down the length of my

> leg there at the nerve site. The doc and the stimulator guy started

> discussing it amongst themselves. Again, they tried a different sort

> of lead placement and again the pain got worse. So they finally said

> they were just going to take the thing out. So here I am now, 10

> staples later, and my pain is worse than ever. I still have no

> feeling below my right knee, and now the pain that was mainly in my

> right leg and hip, and left foot now includes pain into my left

> calf. I am so depressed. I was really counting on this thing to

> work. I don't remember much after they said that they were going to

> take the thing out, but I do remember laying there and crying, and

> looking up at the doc and saying " now what " . The blank expression on

> his face said it all. The next day when I was getting ready to be

> released from the hospital, he came in and told me that we would

> discuss other options when I come back into the office for the staple

> removal. He told me not to even think about anything, just to heal--

> easier said than done. I hope and pray that I am the only one that

> this happens to of the ones who are facing this insertion in the near

> future. I surely would not wish this even on the devil.

> Hugs and prayers,

>

> PS

> May not write for a while--hard to sit for a long period of time. My

> private email is hazzardfans@y... for anyone wwho would like to

> talk:)

[Guest guest]

Penny,

Its good to hear from you and glad to hear that your dad is at home. This means so much to be back with family and away from the sterile hospital setting.

Keep plugging a way, and I do hope that you have good news soon about a doctor to treat you. Any more news from your Legislator(?) person who was helping with your case to see another doctor?

Hugs,

Jan in Northern KY

[Guest guest]

Hi ,

I am so happy you are doing so well.There have been so many that

have had the surgery lately that I can't keep up with everyone.I have

a couple more weeks until I go for my consult at TCC.Not sure what I

want to do yet.Keep us informed with your progress.

Sherry

[Guest guest]

,

Sounds like you are doing great! I am so pleased to hear that.

As for me, I'm having a bit of trouble. When I got up this morning,

I felt great. By this eve., I took a turn for the worse. I had 1 cup

of soup at 7 PM. It is now 11:30 PM and I can't sleep because my

stomach is solid just above my belly button, as if it is not moving

down right. I've been trying to walk it off and then lay down, put

it is painful! Pain radiating to my shoulders and neck. My husband

had SX on his stomach exactly 19 years ago to the day that I had mine

and I remember him having this problem with the upper part being hard

and his neck, shoulder's and back having pain from it.

I have to call my doctor tomorrow for a follow up and I am anxious to

hear what he says. I want to be moving toward less pain, not more!

Rita

[Guest guest]

I will!

Thanks!!

Re:

update

Hi ,

I am so happy you are doing so well.There

have been so many that

have had the surgery lately that I can't keep up

with everyone.I have

a couple more weeks until I go for my consult at

TCC.Not sure what I

want to do yet.Keep us informed with your

progress.

Sherry

[Guest guest]

,

I am glad to hear that everything went well for you and that your just begun recovery is coming along. Take your time to recover completely and take good care of your self.

Best wishes,

Jan in Northern KY