Fibro-World??

[Guest guest]

My longsuffering husband, Donnie, cracked me up the other day telling

me about a mythical place he has invented called " Fibro-World " ! It's

a Disneyworld for fibromites! There are rest stations everywhere so

you can lie down when you are tired, and vendors distributing

supplements so you have energy to get to the next attraction. It's a

place where everyone understands your condition and makes allowances

for it. Sure sounds great to me! Now, my only problem would be in

TRAVELING to Fibro-World, unless it was no more than 30 minutes my

home. Riding in a car wears me out to the point of utter exhaustion

ever since I worked in toxic mold in 2005, so I have been on a short

leash these past few years.

Many years ago I got as far as the real Disneyworld parking lot in

Orlando, but was so ill from FMS/CFIDS that I had to turn back and go

home! The 4-hour trip there exhausted me and I had no energy left to

go into the park and deal with all the walking and excessive stimuli.

Can anyone else relate to this?

In my pre-fibro days I went to Disneyland in CA (when I was a college

student at UCLA) and also to Disneyworld later when I moved to FL in

my 20's. Had a great time! I know people think I'm strange to not be

able to travel anymore. Mostly my husband would like for us to be

able to go see various relatives who live as far away as 500 miles

from our home. He hates going alone. I feel so bad about this, but

there's nothing I can do. Also, with the sleep disorder, I don't

sleep well in strange beds. I'm a lousy traveling companion anymore!

Dom

[Guest guest]

I relate so well, I recently took a car trip from Davie, FL (Ft. Lauderdale) to Key West, approx. 3 1/2 hrs and I was just hurting so badly that I didn't know what to do with myself. My kids just didn't understand that if you're just sitting and doing nothing, that how could this affect you, but it sure did. Any you're right...when I arrived I was so tired and hurting that I just couldn't do anything. Both of my children are in college and this is supposed to be a time for me to enjoy, but how?

Also, I'm just wondering something. I worked in a mold infested place (a school) and got so ill that I really thought that I was dying. This was back in 2003-2006 and then found a leak in my home when it was too late and had mold in my home as well. I was hospitalized because I was so sick from the mold. Even though I wasn't diagnosed with FMS until 9 mo's ago I'm wondering how this affected you having FMS? I believe that I've had FMS since the 80's because of the various symptoms so I'm wondering if there is a connection with the mold issue. Any thoughts on that?

Thanks for that Fibro land story, very very cute indeed. Thank you.

From: Dominie Bush <dombush@...>Subject: "Fibro-World"??dominie Date: Saturday, October 4, 2008, 10:18 PM

My longsuffering husband, Donnie, cracked me up the other day tellingme about a mythical place he has invented called "Fibro-World" ! It'sa Disneyworld for fibromites! There are rest stations everywhere soyou can lie down when you are tired, and vendors distributingsupplements so you have energy to get to the next attraction. It's aplace where everyone understands your condition and makes allowancesfor it. Sure sounds great to me! Now, my only problem would be inTRAVELING to Fibro-World, unless it was no more than 30 minutes myhome. Riding in a car wears me out to the point of utter exhaustionever since I worked in toxic mold in 2005, so I have been on a shortleash these past few years. Many years ago I got as far as the real Disneyworld parking lot inOrlando, but was so ill from FMS/CFIDS that I had to turn back and gohome! The 4-hour trip there exhausted me and I had no energy left togo

into the park and deal with all the walking and excessive stimuli.Can anyone else relate to this? In my pre-fibro days I went to Disneyland in CA (when I was a collegestudent at UCLA) and also to Disneyworld later when I moved to FL inmy 20's. Had a great time! I know people think I'm strange to not beable to travel anymore. Mostly my husband would like for us to beable to go see various relatives who live as far away as 500 milesfrom our home. He hates going alone. I feel so bad about this, butthere's nothing I can do. Also, with the sleep disorder, I don'tsleep well in strange beds. I'm a lousy traveling companion anymore! :(Dom

[Guest guest]

- Yes. Working in a " sick building " in 2005 wrecked me. I've

had FMS/CFIDS since 1982 - with varying severity depending on the meds

and supplements I was taking

http://www.fms-help.com/fibro.htm

but sadly I became extremely debilitated by the mold exposure in 2005

- see my story at

http://www.fms-help.com/mold.htm

I have never been the same since - more fatigued and have this strange

travel fatigue. It has something to do with brain function when

exposed to excessive stimuli and the inability to maintain

homeostasis. There's a book called MOLD WARRIORS you might want to

google. Also, visit

http://www.chronicneurotoxins.com

MOLD IS MAKING PEOPLE SICK!!!!!!

Dom

>

> I relate so well, I recently took a car trip from Davie, FL (Ft.

Lauderdale) to Key West, approx. 3 1/2 hrs and I was just hurting so

badly that I didn't know what to do with myself. 

[Guest guest]

Yes, it is and thank you for that information. I forgot to mention that I had to live in a hotel for one year with my two kids when my house had to be literally gutted from top to bottom because of this mold. It was not a fun time in my life nor for my kids.

>> I relate so well, I recently took a car trip from Davie, FL (Ft.Lauderdale) to Key West, approx. 3 1/2 hrs and I was just hurting sobadly that I didn't know what to do with myself.

[Guest guest]

I have learned to plan rest periods into my vacations. Drive to my destination, rest the next day , enjoy my vacation , come home and have another rest day. It is the only thing I can do, because I have to drive because I get car sick if I am a passenger.Darlene 420/393/290/160Dr. Houston2/25/2004 Aspire to Inspire before you

Expire!!

From: Dominie Bush <dombushbellsouth (DOT) net>Subject: "Fibro-World" ??dominie@groups .comDate: Saturday, October 4, 2008, 10:18 PM

My longsuffering husband, Donnie, cracked me up the other day tellingme about a mythical place he has invented called "Fibro-World" ! It'sa Disneyworld for fibromites! There are rest stations everywhere soyou can lie down when you are tired, and vendors distributingsupplements so you have energy to get to the next attraction. It's aplace where everyone understands your condition and makes allowancesfor it. Sure sounds great to me! Now, my only problem would be inTRAVELING to Fibro-World, unless it was no more than 30 minutes myhome. Riding in a car wears me out to the point of utter exhaustionever since I worked in toxic mold in 2005, so I have been on a shortleash these past few years. Many years ago I got as far as the real Disneyworld parking lot inOrlando, but was so ill from FMS/CFIDS that I had to turn back and gohome! The 4-hour trip there exhausted me and I had no energy left togo

into the park and deal with all the walking and excessive stimuli.Can anyone else relate to this? In my pre-fibro days I went to Disneyland in CA (when I was a collegestudent at UCLA) and also to Disneyworld later when I moved to FL inmy 20's. Had a great time! I know people think I'm strange to not beable to travel anymore. Mostly my husband would like for us to beable to go see various relatives who live as far away as 500 milesfrom our home. He hates going alone. I feel so bad about this, butthere's nothing I can do. Also, with the sleep disorder, I don'tsleep well in strange beds. I'm a lousy traveling companion anymore! :(Dom

[Guest guest]

I have learned to plan rest periods into my vacations. Drive to my destination, rest the next day , enjoy my vacation , come home and have another rest day. It is the only thing I can do, because I have to drive because I get car sick if I am a passenger.Darlene 420/393/290/160Dr. Houston2/25/2004 Aspire to Inspire before you

Expire!!

From: Dominie Bush <dombushbellsouth (DOT) net>Subject: "Fibro-World" ??dominie@groups .comDate: Saturday, October 4, 2008, 10:18 PM

My longsuffering husband, Donnie, cracked me up the other day tellingme about a mythical place he has invented called "Fibro-World" ! It'sa Disneyworld for fibromites! There are rest stations everywhere soyou can lie down when you are tired, and vendors distributingsupplements so you have energy to get to the next attraction. It's aplace where everyone understands your condition and makes allowancesfor it. Sure sounds great to me! Now, my only problem would be inTRAVELING to Fibro-World, unless it was no more than 30 minutes myhome. Riding in a car wears me out to the point of utter exhaustionever since I worked in toxic mold in 2005, so I have been on a shortleash these past few years. Many years ago I got as far as the real Disneyworld parking lot inOrlando, but was so ill from FMS/CFIDS that I had to turn back and gohome! The 4-hour trip there exhausted me and I had no energy left togo

into the park and deal with all the walking and excessive stimuli.Can anyone else relate to this? In my pre-fibro days I went to Disneyland in CA (when I was a collegestudent at UCLA) and also to Disneyworld later when I moved to FL inmy 20's. Had a great time! I know people think I'm strange to not beable to travel anymore. Mostly my husband would like for us to beable to go see various relatives who live as far away as 500 milesfrom our home. He hates going alone. I feel so bad about this, butthere's nothing I can do. Also, with the sleep disorder, I don'tsleep well in strange beds. I'm a lousy traveling companion anymore! :(Dom