I am new...

[Guest guest]

Hi Lynn and welcome!

An M.D. will typically not order these tests, and judging from your

comments about your doctor, he'd probably laugh his head off.

(His comments re adrenals and CFS are the epitome of

ignorance as far as I'm concerned.)

Anyway, amino acid tests can be very helpful, but even if you go

to a naturopath, they're usually not even covered then. I had a

test similar to Dan's about 4 years ago, and I think it was about

$200 (from Great Smokies Diagnostics lab).

Best regards,

Dan B.

<ditzyfitzy@a...> wrote:

> Hi-

> I just signed up at this site....and my first question is:

>

> How do you get your doctor to order these tests? My doctor

won't even test my adrenal levels...as she said that the results

are not " science based " as far as treating CFS.....

> Thanks,

> Lynn

>

>

> alpha-aminoadipate, plasma

amino acids test results

>

>

> I got plasma amino acids test results back. I haven't

discussed them with the

> doctor who prescribed them yet, but I want to be prepared.

Among the

> findings:

>

> I'm low in: glutamine, glutamate (badly), taurine, tryptophan

> I'm high in: alpha-aminoadipate (very badly), sarcosine

> I'm in a pretty normal range in: Cystine, most other amino

acids

>

> alpha-aminoadipate is, if I understand the internet correctly,

part of a

> pathway that some yeast and other fungi use to produce

lysine from glutamate.

> So it seems perhaps I have a large colony of yeast in my gut

using up all my

> glutamate before I can, converting it to AAA, preventing me

from making much

> glutamine or glutathione. Does this seem reasonable? Has

anybody else had

> similar results?

>

> Peace,

>

> Dan Keshet

> (again of) Boston, MA

>

>

>

>

>

[Guest guest]

You probably need a new doc. Sounds like this one has got her so-called mind

entirely shut and you ain't gonna open it.

Unless maybe, if you are very science-minded and can marshall " facts " that will

convince her. Find studies that show some good science. Probly easier to find a

new doc.

Welcome!

Adrienne

alpha-aminoadipate, plasma amino acids test

results

I got plasma amino acids test results back. I haven't discussed them with

the

doctor who prescribed them yet, but I want to be prepared. Among the

findings:

I'm low in: glutamine, glutamate (badly), taurine, tryptophan

I'm high in: alpha-aminoadipate (very badly), sarcosine

I'm in a pretty normal range in: Cystine, most other amino acids

alpha-aminoadipate is, if I understand the internet correctly, part of a

pathway that some yeast and other fungi use to produce lysine from

glutamate.

So it seems perhaps I have a large colony of yeast in my gut using up all my

glutamate before I can, converting it to AAA, preventing me from making much

glutamine or glutathione. Does this seem reasonable? Has anybody else had

similar results?

Peace,

Dan Keshet

(again of) Boston, MA

[Guest guest]

Dan,

By chance is your doctor Dr. Gersten in Cal?

Tim

> alpha-aminoadipate, plasma amino

acids test results

>

>

> I got plasma amino acids test results back. I haven't

discussed them with the

> doctor who prescribed them yet, but I want to be prepared.

Among the

> findings:

>

> I'm low in: glutamine, glutamate (badly), taurine, tryptophan

> I'm high in: alpha-aminoadipate (very badly), sarcosine

> I'm in a pretty normal range in: Cystine, most other amino

acids

>

> alpha-aminoadipate is, if I understand the internet correctly,

part of a

> pathway that some yeast and other fungi use to produce lysine

from glutamate.

> So it seems perhaps I have a large colony of yeast in my gut

using up all my

> glutamate before I can, converting it to AAA, preventing me

from making much

> glutamine or glutathione. Does this seem reasonable? Has

anybody else had

> similar results?

>

> Peace,

>

> Dan Keshet

> (again of) Boston, MA

>

>

>

>

>

[Guest guest]

\<ballynahinchy@y...> wrote:

> Dan,

>

> By chance is your doctor Dr. Gersten in Cal?

>

> Tim

Hi Tim. No, I'm up in Seattle. Medicaid doctor. ARGH....

I've heard of Gersten though, and would consider seeing him if I

was down there.

d.

>

> > alpha-aminoadipate,

plasma amino

> acids test results

> >

> >

> > I got plasma amino acids test results back. I haven't

> discussed them with the

> > doctor who prescribed them yet, but I want to be prepared.

> Among the

> > findings:

> >

> > I'm low in: glutamine, glutamate (badly), taurine, tryptophan

> > I'm high in: alpha-aminoadipate (very badly), sarcosine

> > I'm in a pretty normal range in: Cystine, most other amino

> acids

> >

> > alpha-aminoadipate is, if I understand the internet

correctly,

> part of a

> > pathway that some yeast and other fungi use to produce

lysine

> from glutamate.

> > So it seems perhaps I have a large colony of yeast in my

gut

> using up all my

> > glutamate before I can, converting it to AAA, preventing me

> from making much

> > glutamine or glutathione. Does this seem reasonable?

Has

> anybody else had

> > similar results?

> >

> > Peace,

> >

> > Dan Keshet

> > (again of) Boston, MA

> >

> >

> >

> >

> >

[Guest guest]

My Medicaid doc is the one who is writing b12 scrips for me and orders tests

freely. But he works out of a mental health clinic and appreciates the heck out

of me, (at least when he is in a good mood), because I am smart and merely

excentric, instead of totally bats, like most of his patients.

Adrienne

alpha-aminoadipate,

plasma amino

> acids test results

> >

> >

> > I got plasma amino acids test results back. I haven't

> discussed them with the

> > doctor who prescribed them yet, but I want to be prepared.

> Among the

> > findings:

> >

> > I'm low in: glutamine, glutamate (badly), taurine, tryptophan

> > I'm high in: alpha-aminoadipate (very badly), sarcosine

> > I'm in a pretty normal range in: Cystine, most other amino

> acids

> >

> > alpha-aminoadipate is, if I understand the internet

correctly,

> part of a

> > pathway that some yeast and other fungi use to produce

lysine

> from glutamate.

> > So it seems perhaps I have a large colony of yeast in my

gut

> using up all my

> > glutamate before I can, converting it to AAA, preventing me

> from making much

> > glutamine or glutathione. Does this seem reasonable?

Has

> anybody else had

> > similar results?

> >

> > Peace,

> >

> > Dan Keshet

> > (again of) Boston, MA

> >

> >

> >

> >

> >

[Guest guest]

Hi Dan:

I can't comment on your test results but I did very similar tests to

what you described many years ago through Dr. Gersten and tested low

on most amino acids. He put me on a high amino acid regimen along

with antioxidants etc. and I was on this for about four months. The

cost of the products alone was ~$700/month; amino acids are

expensive. Damn, it's embarrassing to admit you've been had. The

reason I say this is he told me 70% recovered, 15% felt

significantly better and the other 15% didn't respond. I was newly

ill and ignorant and swallowed the hook. Dr. Gersten has been

discussed a few times on this list before and no one reported having

any success with him.

I had zero results and it was rough to swallow 40+ plus pills a day

at different intervals; take these on an empty stomach, take those

after meals. I know you aren't seeing Dr. Gersten but perhaps once

you are given a treatment plan you can list it here and people can

comment. I don't mean to discourage you but I haven't heard that

balancing amino acids has had too much success; if any. Perhaps

someone else can comment. Good luck and success whatever you decide,

Tim

> > Dan,

> >

> > By chance is your doctor Dr. Gersten in Cal?

> >

> > Tim

>

> Hi Tim. No, I'm up in Seattle. Medicaid doctor. ARGH....

>

> I've heard of Gersten though, and would consider seeing him if I

> was down there.

[Guest guest]

My name is Stacie and I use the name Buckleinc on . I am

introducing myself, and would like to say thanks for allowing me to

join this group.

I have had chronic fatigue and fibromyalgia for over 13 years, and

just recently I came out of denial of both and decided to reach out to

others. I gave up on doctors years ago, but still have faith that one

day they will come to their senses and treat me like a real patient.

I had a question that maybe someone can relate to and hopefully fill

me in. I have all of the most common side effects of Chronic fatigue,

but I have one that I am not sure is related. When I lay down to go to

sleep, of course that takes hours even with RX, I get these shocks

throughout my body like someone has hooked a 220 line up to me. It

literally feels like someone is trying to electrocute me. Has anyone

else had this and do you think it is related to the diseases herein?

Any refernce or advice will be great.

Thanks and have a blessed day.

Stacie

[Guest guest]

Hello Stacie and welcome. My name is and I don't know if this is what you're talking about, but also when I go to bed, my body jumps out of nowhere, but it doesn't hurt. This happens over and over and I never thought anything about it until now. I just thought that it was maybe the meds that I take at night. It doesn't happen at all during the day though. Don't know if this helps or if anyone out there has heard of this that would be great. Soft hugs.

From: buckleinc <sbuckle1@...>Subject: I am new...dominie Date: Tuesday, October 14, 2008, 3:58 PM

My name is Stacie and I use the name Buckleinc on . I am introducing myself, and would like to say thanks for allowing me to join this group. I have had chronic fatigue and fibromyalgia for over 13 years, and just recently I came out of denial of both and decided to reach out to others. I gave up on doctors years ago, but still have faith that one day they will come to their senses and treat me like a real patient.I had a question that maybe someone can relate to and hopefully fill me in. I have all of the most common side effects of Chronic fatigue, but I have one that I am not sure is related. When I lay down to go to sleep, of course that takes hours even with RX, I get these shocks throughout my body like someone has hooked a 220 line up to me. It literally feels like someone is trying to electrocute me. Has anyone else had this and do you think it is related to the diseases

herein?Any refernce or advice will be great.Thanks and have a blessed day.Stacie

[Guest guest]

I have Periodic Limb Movement Disorder and from what you are

describing, this could be it. My arms and legs jerk and flail

uncontrollably. I smack hubby and have literally thrown myself out of

the bed. The movements are similar to Grand Mal seizures if you are

familiar with this.

There is no pain though, just the horrid inability to control ones own

body. I started with Restless Legs Syndrome and it progressed to this

over time.

Could this be what you are describing?

Thai

>

> I had a question that maybe someone can relate to and hopefully fill

> me in. I have all of the most common side effects of Chronic fatigue,

> but I have one that I am not sure is related. When I lay down to go to

> sleep, of course that takes hours even with RX, I get these shocks

> throughout my body like someone has hooked a 220 line up to me. It

> literally feels like someone is trying to electrocute me. Has anyone

> else had this and do you think it is related to the diseases herein?

> Any refernce or advice will be great.

> Thanks and have a blessed day.

> Stacie

>

[Guest guest]

Wow I didn't realize it had a name...def need to talk to doc. Is this also symptom of FMS or something else? Like I said I thought it was from meds so thx for sending in this post. Good luck to u. If you'd like I can keep u posted for your sake unless you're going to see your doc before the 27th of this month. Just let me know. Soft hugs to uSent from my BlackBerry® smartphone with SprintSpeedFrom: "Thai" <brenkengu@...>Date: Wed, 15 Oct 2008 01:46:05 -0000<dominie >Subject: Re: I am new... I have Periodic Limb Movement Disorder and from what you are describing, this could be it. My arms and legs jerk and flail uncontrollably. I smack hubby and have literally thrown myself out of the bed. The movements are similar to Grand Mal seizures if you are familiar with this. There is no pain though, just the horrid inability to control ones own body. I started with Restless Legs Syndrome and it progressed to this over time. Could this be what you are describing? Thai > > I had a question that maybe someone can relate to and hopefully fill > me in. I have all of the most common side effects of Chronic fatigue, > but I have one that I am not sure is related. When I lay down to go to > sleep, of course that takes hours even with RX, I get these shocks > throughout my body like someone has hooked a 220 line up to me. It > literally feels like someone is trying to electrocute me. Has anyone > else had this and do you think it is related to the diseases herein? > Any refernce or advice will be great. > Thanks and have a blessed day. > Stacie >

[Guest guest]

Welcome, Stacie! I have electrical shocks, but they are not just at bedtime. With that along with other symptoms that I'm not sure are related to FM, I am hoping to be able to afford a neurological consult soon. I know it is frustrating when doctors don't take us seriously, but I would encourage you to talk to your doctor about this symptom.Great to have you here,Amity------------------------------------My name is Stacie and I use the name Buckleinc on . I am

introducing myself, and would like to say thanks for allowing me to

join this group.

I have had chronic fatigue and fibromyalgia for over 13 years, and

just recently I came out of denial of both and decided to reach out to

others. I gave up on doctors years ago, but still have faith that one

day they will come to their senses and treat me like a real patient.

I had a question that maybe someone can relate to and hopefully fill

me in. I have all of the most common side effects of Chronic fatigue,

but I have one that I am not sure is related. When I lay down to go to

sleep, of course that takes hours even with RX, I get these shocks

throughout my body like someone has hooked a 220 line up to me. It

literally feels like someone is trying to electrocute me. Has anyone

else had this and do you think it is related to the diseases herein?

Any refernce or advice will be great.

Thanks and have a blessed day.

Stacie

[Guest guest]

Stacie,

This is the first time I've seen this subject come up. I also get what feels like strong electrical current running down my arms some times.

Some of the other symptoms I get and don't read a lot about are:

cramps in my toes and legs

muscle spasms in my back, neck and deep in my abdomen

if I get excited or agitated my body temperature turns on high and I start sweating

I sometimes have intestinal spasms as well, feels pretty weird

Anybody else get some of these symptoms?

Deb Halvorson

Re:I am new...

Welcome, Stacie! I have electrical shocks, but they are not just at bedtime. With that along with other symptoms that I'm not sure are related to FM, I am hoping to be able to afford a neurological consult soon. I know it is frustrating when doctors don't take us seriously, but I would encourage you to talk to your doctor about this symptom.Great to have you here,Amity------------ --------- --------- ------My name is Stacie and I use the name Buckleinc on . I am introducing myself, and would like to say thanks for allowing me to join this group. I have had chronic fatigue and fibromyalgia for over 13 years, and just recently I came out of denial of both and decided to reach out to others. I gave up on doctors years ago, but still have faith that one day they will come to their senses and treat me like a real patient.I had a question that maybe someone can

relate to and hopefully fill me in. I have all of the most common side effects of Chronic fatigue, but I have one that I am not sure is related. When I lay down to go to sleep, of course that takes hours even with RX, I get these shocks throughout my body like someone has hooked a 220 line up to me. It literally feels like someone is trying to electrocute me. Has anyone else had this and do you think it is related to the diseases herein?Any refernce or advice will be great.Thanks and have a blessed day.Stacie

[Guest guest]

I also suffer from electrical shocks. Mine are anytime during the day and occur in my feet. Stacie would you email me elaborate more for me, please.

Milissa

-- Re:I am new...

Welcome, Stacie! I have electrical shocks, but they are not just at bedtime. With that along with other symptoms that I'm not sure are related to FM, I am hoping to be able to afford a neurological consult soon. I know it is frustrating when doctors don't take us seriously, but I would encourage you to talk to your doctor about this symptom.Great to have you here,Amity------------------------------------My name is Stacie and I use the name Buckleinc on . I am introducing myself, and would like to say thanks for allowing me to join this group. I have had chronic fatigue and fibromyalgia for over 13 years, and just recently I came out of denial of both and decided to reach out to others. I gave up on doctors years ago, but still have faith that one day they will come to their senses and treat me like a real patient.I had a question that maybe someone can relate to and hopefully fill me in. I have all of the most common side effects of Chronic fatigue, but I have one that I am not sure is related. When I lay down to go to sleep, of course that takes hours even with RX, I get these shocks throughout my body like someone has hooked a 220 line up to me. It literally feels like someone is trying to electrocute me. Has anyone else had this and do you think it is related to the diseases herein?Any refernce or advice will be great.Thanks and have a blessed day.Stacie

[Guest guest]

Deb: Absolutely have these symptoms! You need to check out dysautonomia and its connection to FMS/CFIDS.

Neurological symptoms from a neuro disorder. Also, if you take any benzodiazepines you can have some of these symptoms as a tolerance/withdrawal syndrome.

You can check out the Dinet.org site for dysautonomia and also the NDRF forums. Lots of folks think that this disorder is just about people who have crashing blood pressures, but that isn't true.

S.

Re: Re:I am new...

Stacie,

This is the first time I've seen this subject come up. I also get what feels like strong electrical current running down my arms some times.

Some of the other symptoms I get and don't read a lot about are:

cramps in my toes and legs

muscle spasms in my back, neck and deep in my abdomen

if I get excited or agitated my body temperature turns on high and I start sweating

I sometimes have intestinal spasms as well, feels pretty weird

Anybody else get some of these symptoms?

Deb Halvorson

Re:I am new...

Welcome, Stacie! I have electrical shocks, but they are not just at bedtime. With that along with other symptoms that I'm not sure are related to FM, I am hoping to be able to afford a neurological consult soon. I know it is frustrating when doctors don't take us seriously, but I would encourage you to talk to your doctor about this symptom.

Great to have you here,

Amity

------------ --------- --------- ------

My name is Stacie and I use the name Buckleinc on . I am

introducing myself, and would like to say thanks for allowing me to

join this group.

I have had chronic fatigue and fibromyalgia for over 13 years, and

just recently I came out of denial of both and decided to reach out to

others. I gave up on doctors years ago, but still have faith that one

day they will come to their senses and treat me like a real patient.

I had a question that maybe someone can relate to and hopefully fill

me in. I have all of the most common side effects of Chronic fatigue,

but I have one that I am not sure is related. When I lay down to go to

sleep, of course that takes hours even with RX, I get these shocks

throughout my body like someone has hooked a 220 line up to me. It

literally feels like someone is trying to electrocute me. Has anyone

else had this and do you think it is related to the diseases herein?

Any refernce or advice will be great.

Thanks and have a blessed day.

Stacie

McCain or Obama? Stay updated on coverage of the Presidential race while you browse - Download Now!

[Guest guest]

Thanks, I'll check into that.

Deb Halvorson

Re:I am new...

Welcome, Stacie! I have electrical shocks, but they are not just at bedtime. With that along with other symptoms that I'm not sure are related to FM, I am hoping to be able to afford a neurological consult soon. I know it is frustrating when doctors don't take us seriously, but I would encourage you to talk to your doctor about this symptom.Great to have you here,Amity------------ --------- --------- ------My name is Stacie and I use the name Buckleinc on . I am introducing myself, and would like to say thanks for allowing me to join this group. I have had chronic fatigue and fibromyalgia for over 13 years, and just recently I came out of denial of both and decided to reach out to others. I gave up on doctors years ago, but still have faith that one day they will come to their senses and treat me like a real patient.I had a question that maybe someone can

relate to and hopefully fill me in. I have all of the most common side effects of Chronic fatigue, but I have one that I am not sure is related. When I lay down to go to sleep, of course that takes hours even with RX, I get these shocks throughout my body like someone has hooked a 220 line up to me. It literally feels like someone is trying to electrocute me. Has anyone else had this and do you think it is related to the diseases herein?Any refernce or advice will be great.Thanks and have a blessed day.Stacie

McCain or Obama? Stay updated on coverage of the Presidential race while you browse - Download Now!

[Guest guest]

I think the electrical shock feeling might be a pinched nerve or something similar.

Pam

Re:I am new...

Welcome, Stacie! I have electrical shocks, but they are not just at bedtime. With that along with other symptoms that I'm not sure are related to FM, I am hoping to be able to afford a neurological consult soon. I know it is frustrating when doctors don't take us seriously, but I would encourage you to talk to your doctor about this symptom.Great to have you here,Amity------------ --------- --------- ------My name is Stacie and I use the name Buckleinc on . I am introducing myself, and would like to say thanks for allowing me to join this group. I have had chronic fatigue and fibromyalgia for over 13 years, and just recently I came out of denial of both and decided to reach out to others. I gave up on doctors years ago, but still have faith that one day they will come to their senses and treat me like a real patient.I had a question that maybe someone can relate to and hopefully fill me in. I have all of the most common side effects of Chronic fatigue, but I have one that I am not sure is related. When I lay down to go to sleep, of course that takes hours even with RX, I get these shocks throughout my body like someone has hooked a 220 line up to me. It literally feels like someone is trying to electrocute me. Has anyone else had this and do you think it is related to the diseases herein?Any refernce or advice will be great.Thanks and have a blessed day.Stacie

[Guest guest]

Deb,I have all of the symptoms you listed even the jolts of pain through my feet. I have problems with muscle cramps and I run a low grade fever 24/7. The best way I have ever found to describe to people about FMS is that it is like having the flu all of the time. The aches and pains, fever and chills are all the same as the flu.Darlene From: Debbie Halvorson <djh_50fab@...>Subject: Re: Re:I am new...dominie Date: Wednesday, October 15, 2008, 12:45 PM

Stacie,

This is the first time I've seen this subject come up. I also get what feels like strong electrical current running down my arms some times.

Some of the other symptoms I get and don't read a lot about are:

cramps in my toes and legs

muscle spasms in my back, neck and deep in my abdomen

if I get excited or agitated my body temperature turns on high and I start sweating

I sometimes have intestinal spasms as well, feels pretty weird

Anybody else get some of these symptoms?

Deb Halvorson

Re:I am new...

Welcome, Stacie! I have electrical shocks, but they are not just at bedtime. With that along with other symptoms that I'm not sure are related to FM, I am hoping to be able to afford a neurological consult soon. I know it is frustrating when doctors don't take us seriously, but I would encourage you to talk to your doctor about this symptom.Great to have you here,Amity------------ --------- --------- ------My name is Stacie and I use the name Buckleinc on . I am introducing myself, and would like to say thanks for allowing me to join this group. I have had chronic fatigue and fibromyalgia for over 13 years, and just recently I came out of denial of both and decided to reach out to others. I gave up on doctors years ago, but still have faith that one day they will come to their senses and treat me like a real patient.I had a question that maybe someone

can

relate to and hopefully fill me in. I have all of the most common side effects of Chronic fatigue, but I have one that I am not sure is related. When I lay down to go to sleep, of course that takes hours even with RX, I get these shocks throughout my body like someone has hooked a 220 line up to me. It literally feels like someone is trying to electrocute me. Has anyone else had this and do you think it is related to the diseases herein?Any refernce or advice will be great.Thanks and have a blessed day.Stacie

[Guest guest]

I think our FMS/CFIDS condition is caused by a virus that affects an

area of our brain (the body's " control center " ) and our nervous system

(central & autonomic). I have had these kinds of symptoms with

varying severity since 1982

http://www.fms-help.com/fibro.htm - FMS

http://www.fms-help.com/fatigue.htm - CFIDS

depending on my stress levels and environmental toxins such as mold,

and sometimes they flare up without any known cause. Our nervous

systems are very sensitive and " revved up. " Are you sleeping well?

My internal medicine doc says that if we can resolve my sleep

disorder, a lot of the other symptoms will get better. I am doing well

with his new regimen now. I'll explain it in my next newsletter,

which will be out next week.

Dom

>

> Deb,

> I have all of the symptoms you listed even the jolts of pain through

my feet.  I have problems with muscle cramps and I run a low grade

fever 24/7.  The best way I have ever found to describe to people

about FMS is that it is like having the flu all of the time.  The

aches and pains, fever and chills are all the same as the flu.

[Guest guest]

I get all of these symptoms as well as cramps in my fingers and hands. Mostly I get cramps in the outside edge of my hands from the pinky up to the wrist, and down the center where the hands fold. The only thing I have found to help is major pressure being put on the spot for about five minutes. After that it seems to dull out and go away for a few hours.

Stacie

[Guest guest]

Deb,

I don't get the electrical shocks, but I do get the things that you

mention. The electrical current...cramps...muscle spasams...sweating

profusely when nervous...intestinal spasms. Wasn't sure whether it

was the Fibro or the diabetes...or just me! Good to hear that I am

not just messed up...sorry to hear you have them!

God Bless,

K.

(Since we have two 's, maybe you can call me Bren, my nickname)

>

> Stacie,

>

> This is the first time I've seen this subject come up.  I also get

what feels like strong electrical current running down my arms some

times.  

>

> Some of the other symptoms I get and don't read a lot about are:

>

> cramps in my toes and legs

> muscle spasms in my back, neck and deep in my abdomen

> if I get excited or agitated my body temperature turns on high and I

start sweating

> I sometimes have intestinal spasms as well, feels pretty weird

>

> Anybody else get some of these symptoms? 

> Deb Halvorson

[Guest guest]

I get all of the symptoms Deb. Those intestinal spasms are awful. Well, they are all awful aren't they?

Hugs,

Annie

From: <brendakking02@...>Subject: Re:I am new...dominie Date: Friday, October 17, 2008, 7:34 AM

Deb,I don't get the electrical shocks, but I do get the things that youmention. The electrical current...cramps. ..muscle spasams...sweatingprofusely when nervous...intestina l spasms. Wasn't sure whether itwas the Fibro or the diabetes...or just me! Good to hear that I amnot just messed up...sorry to hear you have them!God Bless, K.(Since we have two 's, maybe you can call me Bren, my nickname)>> Stacie,> > This is the first time I've seen this subject come up. I also getwhat feels like strong electrical current running down my arms sometimes. > > Some of the other symptoms I get and don't read a lot about are:> > cramps in my toes and legs> muscle spasms

in my back, neck and deep in my abdomen> if I get excited or agitated my body temperature turns on high and Istart sweating> I sometimes have intestinal spasms as well, feels pretty weird> > Anybody else get some of these symptoms? > Deb Halvorson__________________________________________________

[Guest guest]

Ya, you should see the look on my husbands face when I tell him I can feel electrical currents running down my arms--you'd think I was ready for the looney bin.

Deb Halvorson

Re:I am new...dominie@groups .comDate: Friday, October 17, 2008, 7:34 AM

Deb,I don't get the electrical shocks, but I do get the things that youmention. The electrical current...cramps. ..muscle spasams...sweatingprofusely when nervous...intestina l spasms. Wasn't sure whether itwas the Fibro or the diabetes...or just me! Good to hear that I amnot just messed up...sorry to hear you have them!God Bless, K.(Since we have two 's, maybe you can call me Bren, my nickname)>> Stacie,> > This is the first time I've seen this subject come up. I also getwhat feels like strong electrical current running down my arms sometimes. > > Some of the other symptoms I get and don't read a lot about are:> > cramps

in my toes and legs> muscle spasms in my back, neck and deep in my abdomen> if I get excited or agitated my body temperature turns on high and Istart sweating> I sometimes have intestinal spasms as well, feels pretty weird> > Anybody else get some of these symptoms? > Deb Halvorson____________ _________ _________ _________ _________ __

[Guest guest]

I have diabetes also. These days I'm never too sure which one to attribute symptoms to as well.

Deb Halvorson

Re:I am new...

Deb,I don't get the electrical shocks, but I do get the things that youmention. The electrical current...cramps. ..muscle spasams...sweatingprofusely when nervous...intestina l spasms. Wasn't sure whether itwas the Fibro or the diabetes...or just me! Good to hear that I amnot just messed up...sorry to hear you have them!God Bless, K.(Since we have two 's, maybe you can call me Bren, my nickname)>> Stacie,> > This is the first time I've seen this subject come up. I also getwhat feels like strong electrical current running down my arms sometimes. > > Some of the other symptoms I get and don't read a lot about are:> > cramps in

my toes and legs> muscle spasms in my back, neck and deep in my abdomen> if I get excited or agitated my body temperature turns on high and Istart sweating> I sometimes have intestinal spasms as well, feels pretty weird> > Anybody else get some of these symptoms? > Deb Halvorson__________________________________________________

[Guest guest]

The very first symptom of my FMS was waking up one morning in June of

1982 with a dull pain at the base of my neck and something like

electrical shocks going from there down my arms to the tips of my

fingers on both sides. I attributed it to typing too much (I was a

legal secretary in the days before computers, pounding on an old IBM

typerwriter 8 hours a day under extreme stress.) Strange neurological

symptoms followed, and the rest is history - described at

http://www.fms-help.com/fibro.htm and

http://www.fms-help.com/interview.htm

Dom

>

> Ya, you should see the look on my husbands face when I tell him I

can feel electrical currents running down my arms--you'd think I was

ready for the looney bin.

>

[Guest guest]

Yea, Im the same way.. plus a whole bunch of other weird indescribable feelings..

From: darlene hughes <ndshughes@...>dominie Sent: Wednesday, October 15, 2008 11:45:22 PMSubject: Re: Re:I am new...

Deb,I have all of the symptoms you listed even the jolts of pain through my feet. I have problems with muscle cramps and I run a low grade fever 24/7. The best way I have ever found to describe to people about FMS is that it is like having the flu all of the time. The aches and pains, fever and chills are all the same as the flu.Darlene

From: Debbie Halvorson <djh_50fab@...>Subject: Re: Re:I am new...dominie Date: Wednesday, October 15, 2008, 12:45 PM

Stacie,

This is the first time I've seen this subject come up. I also get what feels like strong electrical current running down my arms some times.

Some of the other symptoms I get and don't read a lot about are:

cramps in my toes and legs

muscle spasms in my back, neck and deep in my abdomen

if I get excited or agitated my body temperature turns on high and I start sweating

I sometimes have intestinal spasms as well, feels pretty weird

Anybody else get some of these symptoms?

Deb Halvorson

Re:I am new...

Welcome, Stacie! I have electrical shocks, but they are not just at bedtime. With that along with other symptoms that I'm not sure are related to FM, I am hoping to be able to afford a neurological consult soon. I know it is frustrating when doctors don't take us seriously, but I would encourage you to talk to your doctor about this symptom.Great to have you here,Amity------------ --------- --------- ------My name is Stacie and I use the name Buckleinc on . I am introducing myself, and would like to say thanks for allowing me to join this group. I have had chronic fatigue and fibromyalgia for over 13 years, and just recently I came out of denial of both and decided to reach out to others. I gave up on doctors years ago, but still have faith that one day they will come to their senses and treat me like a real patient.I had a question that maybe someone can

relate to and hopefully fill me in. I have all of the most common side effects of Chronic fatigue, but I have one that I am not sure is related. When I lay down to go to sleep, of course that takes hours even with RX, I get these shocks throughout my body like someone has hooked a 220 line up to me. It literally feels like someone is trying to electrocute me. Has anyone else had this and do you think it is related to the diseases herein?Any refernce or advice will be great.Thanks and have a blessed day.Stacie