FMS & CFS

[Guest guest]

Laurie,

Welcome to the list. I am just beginning to use it too. Today, on the

website for this list, I discovered files. You will find information there to

get you started. There is a great summary of highlights at CFSlist.txt and read

Rob Napier Treatment Plan.

In my opinion, from what I have gathered in the last few days, CFIDS needs a 3

pronged approach.

1. Treat toxicity: Detox diets, antioxidants....

2. Treat infections: Some people are using antibiotics, some " natural "

antibotics

3. Treat hyper-coagulation of the blood: blood thinners: for example: tumeric,

bromelain, enzymes...

I just came up from under, and am making a new start.

Best to you,

~jeanne

-----Original Message-----

From: Laurie Brant [sMTP:Lauriekb@...]

[Guest guest]

Hi Laurie-

This site is packed with his stuff under the Dr Cheney Treatment Plans link.

http://virtualhometown.com/dfwcfids/menu.html

Kathy

FMS & CFS

Although I have tried special diets in the past, like no dairy, 8

months of a whole food diet, and more, I am ready to get serious again.

I am new to this site and am interested in what Dr. Chenny has to say.

Does he have a web site? Does he have a supplement/vitamin protocal

for FM patients? I have been suffering for over 10 years, and am

currently on high dose narcotics. I still am very fatigued, despite

taking Ritalin. I need info on diet for FM and CFS (like getting rid

of sugar, for example) and the usual supplements to take, along with

multi vitamins. Any help is appreciated, but don't just tell me to

look in the archives. What do I exactly look up? I'll look forward to

hearing from anyone who can help.

Fondly,

Laurie in MI

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Laurie,

Try going to www.cfsresearch.org/cfs/ You will find a ton of info about Cheney

at that site. To my knowledge he does not have a new web site since he moved

from Bald Head Island. You can also do google a search on Carol Sieverling.She

keeps up with Dr. Cheney's protocal and post it on line.

Good luck,

Sydney

From: Laurie Brant

Sent: Wednesday, December 11, 2002 3:50 PM

Subject: FMS & CFS

Although I have tried special diets in the past, like no dairy, 8

months of a whole food diet, and more, I am ready to get serious again.

I am new to this site and am interested in what Dr. Chenny has to say.

Does he have a web site? Does he have a supplement/vitamin protocal

for FM patients? I have been suffering for over 10 years, and am

currently on high dose narcotics. I still am very fatigued, despite

taking Ritalin. I need info on diet for FM and CFS (like getting rid

of sugar, for example) and the usual supplements to take, along with

multi vitamins. Any help is appreciated, but don't just tell me to

look in the archives. What do I exactly look up? I'll look forward to

hearing from anyone who can help.

Fondly,

Laurie in MI

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

I apologize up front if you are reading this 2x, but I wrote a

message and lost it. I don't think it went thru though. Anyway, my

name is and I'm new to the group. I have FMS and CFS and was

diagnosed approx. 9 mo's ago by various doctors including 3 different

Rheumatologist, 2 Neurologists, my family physician and a

Physiatrist. I do believe however, that I have had this since the

80's because of the various symptoms, however, I had not suffered

this great pain as I do now. I have tried Lyrica, Cymbalta and many

many other long term meds, of which I cannot tolerate. My current

physician, the Physiatrist has now said that he doesn't know what to

do for me anymore because I can't tolerate any of the meds and the

pain meds only take a slight edge off.

From everything that Dominie has listed as the symptoms of this

dreaded illness I have 47. It was easier to count what I didn't

have. I'm on meds for the various other symptoms and they seems to

be working. As with other sufferers I don't sleep and am constantly

crying from the pain, lack of sleep, frustration, depression and the

lack of being understood. I feel that one of the most important

factors in dealing and living with this is to have a good support

system at home and unfortunately, I do not have this. I'm a single

mom of two kids 18 and 20 and they've always had me to do everything

for them and now that I can't it's become very difficult. When I go

to lay down I hear, " You're going to lay down again? " This really

hurts. My boyfriend claims to understand but then gets upset when I

ask him to not do certain things because of my pain, for example,

don't use chemicals or cologne or close doors quieter, all because of

the hypersensitivity to smell, sounds etc. He likes to hug me

tightly and I've tried to explain that it hurts and again he gets

upset and then pouts and stays away from me, then makes snide

remarks. This is a really difficult illness for me because I've

always been able to do whatever I wanted and nothing would slow me

down.

In a nutshell, I'm in extreme pain and just don't know where to go

from here. I would appreciate any help, support, ideas,

understanding and just plain friends who trully can understand and

not judge or not believe.

I thank each and every one of you for reading this post and

understanding me. I'm sure most of you have always been able to help

others and never thought that you yourself would be asking for help,

well I'm one of those people, so thank you all for helping me even if

it's just to say hello we care.