Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 Fibromyalgia Isn't a Real DiseaseSo Says Prominent Fibromyalgia Research Doctor From THE FRONT PAGE of The New York Times Article Read the entire article at the link here: " Dr. Frederick Wolfe, the director of the National Databank for Rheumatic Diseases and the lead author of the 1990 paper that first defined the diagnostic guidelines for fibromyalgia, says he has become cynical and discouraged about the diagnosis. He now considers the condition a physical response to stress, depression, and economic and social anxiety. " Dr. Wolfe goes on to say, " Some of us in those days thought that we had actually identified a disease, which this clearly is not. " " ...other doctors -- including the one who wrote the 1990 paper that defined fibromyalgia but who has since changed his mind -- say that the disease does not exist and that Lyrica and the other drugs will be taken by millions of people who do not need them. " Just when I was optimistic that the traditional medical community was finally getting the message that fibromyalgia is a very real and very serious illness, this kind of short-sighted, arrogant, and simple- minded myth raises its ugly head once again. This bit of news, by a prominent rheumatologist, isn't a huge surprise. When was the last time you visited your rheumatologist (after waiting months to be seen) and felt like they understood your fibromyalgia? And if they did believe you had fibromyalgia, were they helpful? Probably not, since their answer is to recommend more and more drugs, year end and year out. The side effects of these drugs begin to add up and pretty soon you realize your fibromyalgia symptoms aren't much better, and worse, you've got additional symptoms from all those meds. I've repeatedly been asked to give my opinion on the over-hyped new drug for fibromyalgia, Lyrica. I've kept relatively quiet for two reasons. One, I wanted to give Lyrica the benefit of the doubt. Unfortunately Lyrica has proven to be ineffective for the majority of my patients, as well as the fibromyalgia sufferers I'm in contact with around the world. Secondly, I thought at least Pfizer's multi-million dollar drug campaign would help the public understand the pain fibromyalgia patients experience day in and day out. Surely the TV and print ads would help others realize that yes there is such a thing as fibromyalgia, here are the symptoms, and this is why aunt Jane feels so miserable each day. Sadly, The New York Times and other print media have elected to take a different slant. Instead of helping dispel the myth that those with fibromyalgia are crazy, lazy, or depressed, they've elected to focus on the minority of doctors who think fibromyalgia isn't real. As I lecture and interact with doctors throughout North America, I routinely encounter doctors who don't believe fibromyalgia exists, but the number has steadily declined. But an article like this one really burns me up. You already have enough of a challenge facing you each day without having to justify to others that your illness is real. As I've said before to the doubting 's - spend one day in the life of one of my patients and see if this fibromyalgia thing is real or not. I haven't had any takers yet. Dr. Rodger Murphree 205-879-2383 www.TreatinandBeating.com 2700 Drive, Suite 204, Homewood, AL 35209, USA Quote Link to comment Share on other sites More sharing options...
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