Lots Of Concerns and Questions

[Guest guest]

Hi Everyone!

It has been awhile since I have written in. I have just not been

able to do it and I have missed it. I hope you are all well and

enjoying this holiday season.

Well, a lot has happened since last I wrote and now I have a lot of

questions, concerns, thoughts and worries. I know you guys are so

very helpful and I would welcome ALL and ANY advice, comments,

anything you can share with me.

Here is what is going on.....I have known personally that I had

Firbomyalgia and had several doctors 'mention' that I have it BUT it

has never been " officially " diagnosed until yesterday. I saw a

Rheumatologist yesterday and he confirmed that I have SEVERE

Fibromyalgia but is also testing me for numbers of other things. I

have been to the ER around 8 times, been hospitalized twice this year

and have seen countless 'specialist' and yet I am suffering more now

than I have ever. What I wanted to know is if any of you have a lot

of chest pain with heart palpitations. Back in May I was placed in

the hospital for chest pain and they did a nuclear stress test, EKG,

chest x-ray, blood work and echocardiogram and all were fine. Since

that time I wore a heart monitor for a month and it showed the

palpitations but the cardio doc was not concerned. Since that time

the chest pain has gotten worse and the palpitations MUCH worse.

With any activity it is all made worse. Now, the cardio wants to do

a heart cath and I just don't want to have to go through that as my

body is so weak that I just don't think I could do it. Does anyone

have any thoughts about this or suffer from chest pains, too?!?! The

Rheumatologist told me that all those test that I had done could be

FALSE NEGATIVE in women and that scared me even more but then he went

onto say that chest pain could be attributed to the Fibromyalgia but

what about the palpitations?!?!?! I am extremely concerned. Also, I

am suffering with such pain that any activity that I do brings on

terrible sinking feeling and loads of additional pain. I am becoming

more and more homebound and also bed bound. Does this sound

familiar?!?! I just don't know what is going on and I can tell you I

have been through so many test this year that have only shown (not

that they are not concerning but no doctor seems concerned) fluid on

my spine, cysts on both ovaries/fibroid tumor/thickening of my uterus

(which they want to do a biopsy), and my d-dimer (some component in

my blood) keeps rising that again no doctor seems concerned with

these findings but yet I keep getting worse. Does anyone have any

other ideas or places I should check? My back hurts so bad that I

can barely sit down and that is hard when that is all I feel like

doing. I cannot hardly go out without being exhausted and in

unbearable pain. My whole body aches and I now have lumps that keep

coming up in my legs and left arm. I bruise very easily and stay

nauseated and fuzzy feeling in my head. The Rheumatologist also said

that he thought I was depressed and thought I should face that fact

and come to terms with it. I told him I would not be so depressed if

I was not in so much pain and in such suffering. I am worried that

the doctors have missed something vital....especially in my heart.

Any help and comments would be VERY welcome!

Next, is the fact that the dr mentioned a couple of medicines for

fibromyalgia (which he did not give me any medications) but I read A

LOT of horrible comments from people who took Cymbalta and that is

not something I want to take chances with...to take something that

would make me worse. Any ideas on medications? I am very sensitive

to all meds so I have to be careful what I take. Again, I would

appreciate ANY advice you might have.

I am not so sure this doctor I saw cared very much for my well-being

which has been the case this whole year (I have been going through a

lot since January). I just keep thinking that the next doctor I see

will be the 'one' to finally help me and NO ONE helps. I have no

insurance so I am OVERLOADED in medical expenses and wonder if this

is the reason why the doctor's will not help. If anybody is in

Georgia and have high recommendations for a doc...I would appreciate

that information, too. THANKS!

Thanks for hearing me out. Thanks for this group. I appreciate ANY

comments and help you might can offer. May God bless you all and I

pray you are all feeling comforted today and the pain is not too

bad. Very GENTLE hugs!

Jane in Georgia

You can personally e-mail me at n2butterflyz@... or you can just

reply within the group. Thanks!!!!

[Guest guest]

Jane,

I experienced that severe chest pain that you are talking about. I was hospitalized twice and continued showing up at the ER, even though I sort of knew all they would do is send me away with some pain medication. Finally I found a doctor who was able to diagnose a hiatel hernia, which caused acid reflux. Now I take Nexium and no more pain. If you haven't been tested for acid reflux, mention that to your doctor.

I take Cymbalta with no problems and I find it helps me quite a bit. We have talked about this quite a bit on this message board and what we really learn is that everybody is different. So unfortunately you'll probably have to try some of these meds before you know if they work and if you can take them. My magic pharmacy is Cymbalta and Neurontin.

I hope you get things worked out and eventually find some relief. I wish you God's blessings.

Pam H

Lots Of Concerns and Questions

Hi Everyone!It has been awhile since I have written in. I have just not been able to do it and I have missed it. I hope you are all well and enjoying this holiday season. Well, a lot has happened since last I wrote and now I have a lot of questions, concerns, thoughts and worries. I know you guys are so very helpful and I would welcome ALL and ANY advice, comments, anything you can share with me. Here is what is going on.....I have known personally that I had Firbomyalgia and had several doctors 'mention' that I have it BUT it has never been "officially" diagnosed until yesterday. I saw a Rheumatologist yesterday and he confirmed that I have SEVERE Fibromyalgia but is also testing me for numbers of other things. I have been to the ER around 8 times, been hospitalized twice this year and have seen countless 'specialist' and yet I am suffering more now than I have ever. What I wanted to know is if any of you have a lot of chest pain with heart palpitations. Back in May I was placed in the hospital for chest pain and they did a nuclear stress test, EKG, chest x-ray, blood work and echocardiogram and all were fine. Since that time I wore a heart monitor for a month and it showed the palpitations but the cardio doc was not concerned. Since that time the chest pain has gotten worse and the palpitations MUCH worse. With any activity it is all made worse. Now, the cardio wants to do a heart cath and I just don't want to have to go through that as my body is so weak that I just don't think I could do it. Does anyone have any thoughts about this or suffer from chest pains, too?!?! The Rheumatologist told me that all those test that I had done could be FALSE NEGATIVE in women and that scared me even more but then he went onto say that chest pain could be attributed to the Fibromyalgia but what about the palpitations?!?!?! I am extremely concerned. Also, I am suffering with such pain that any activity that I do brings on terrible sinking feeling and loads of additional pain. I am becoming more and more homebound and also bed bound. Does this sound familiar?!?! I just don't know what is going on and I can tell you I have been through so many test this year that have only shown (not that they are not concerning but no doctor seems concerned) fluid on my spine, cysts on both ovaries/fibroid tumor/thickening of my uterus(which they want to do a biopsy), and my d-dimer (some component in my blood) keeps rising that again no doctor seems concerned with these findings but yet I keep getting worse. Does anyone have any other ideas or places I should check? My back hurts so bad that I can barely sit down and that is hard when that is all I feel like doing. I cannot hardly go out without being exhausted and in unbearable pain. My whole body aches and I now have lumps that keep coming up in my legs and left arm. I bruise very easily and stay nauseated and fuzzy feeling in my head. The Rheumatologist also said that he thought I was depressed and thought I should face that fact and come to terms with it. I told him I would not be so depressed if I was not in so much pain and in such suffering. I am worried that the doctors have missed something vital....especially in my heart. Any help and comments would be VERY welcome!Next, is the fact that the dr mentioned a couple of medicines for fibromyalgia (which he did not give me any medications) but I read A LOT of horrible comments from people who took Cymbalta and that is not something I want to take chances with...to take something that would make me worse. Any ideas on medications? I am very sensitive to all meds so I have to be careful what I take. Again, I would appreciate ANY advice you might have. I am not so sure this doctor I saw cared very much for my well-being which has been the case this whole year (I have been going through a lot since January). I just keep thinking that the next doctor I see will be the 'one' to finally help me and NO ONE helps. I have no insurance so I am OVERLOADED in medical expenses and wonder if this is the reason why the doctor's will not help. If anybody is in Georgia and have high recommendations for a doc...I would appreciate that information, too. THANKS!Thanks for hearing me out. Thanks for this group. I appreciate ANY comments and help you might can offer. May God bless you all and I pray you are all feeling comforted today and the pain is not too bad. Very GENTLE hugs!Jane in GeorgiaYou can personally e-mail me at n2butterflyzaol or you can just reply within the group. Thanks!!!!

[Guest guest]

Jane,

here. I also have a hiatel hernia but no chest pain from it. My pain actually is where the stomach is sticking out and sometimes gets caught. I do get chest pain from my asthma but I do have terrible palpatations. Sometimes so badly that I cannot catch my breath. That is when they scare me. The doctors just shrug them off. They say my heart is fine and strong.

I also get chest pain that is from muscle spasm from the neck and shoulder. Sometimes that pain hits so hard I have a hard time breathing. But it is just referred pain.

Glad you are reaching out.

Hugs,

Sue

From: Pam Horne <pmarshall@...>Subject: Re: Lots Of Concerns and Questionsdominie Date: Wednesday, December 17, 2008, 2:12 PM

Jane,

I experienced that severe chest pain that you are talking about. I was hospitalized twice and continued showing up at the ER, even though I sort of knew all they would do is send me away with some pain medication. Finally I found a doctor who was able to diagnose a hiatel hernia, which caused acid reflux. Now I take Nexium and no more pain. If you haven't been tested for acid reflux, mention that to your doctor.

I take Cymbalta with no problems and I find it helps me quite a bit. We have talked about this quite a bit on this message board and what we really learn is that everybody is different. So unfortunately you'll probably have to try some of these meds before you know if they work and if you can take them. My magic pharmacy is Cymbalta and Neurontin.

I hope you get things worked out and eventually find some relief. I wish you God's blessings.

Pam H

Lots Of Concerns and Questions

Hi Everyone!It has been awhile since I have written in. I have just not been able to do it and I have missed it. I hope you are all well and enjoying this holiday season. Well, a lot has happened since last I wrote and now I have a lot of questions, concerns, thoughts and worries. I know you guys are so very helpful and I would welcome ALL and ANY advice, comments, anything you can share with me. Here is what is going on.....I have known personally that I had Firbomyalgia and had several doctors 'mention' that I have it BUT it has never been "officially" diagnosed until yesterday. I saw a Rheumatologist yesterday and he confirmed that I have SEVERE Fibromyalgia but is also testing me for numbers of other things. I have been to the ER around 8 times, been hospitalized twice this year and have seen countless 'specialist' and yet I am suffering more now than I have ever. What I

wanted to know is if any of you have a lot of chest pain with heart palpitations. Back in May I was placed in the hospital for chest pain and they did a nuclear stress test, EKG, chest x-ray, blood work and echocardiogram and all were fine. Since that time I wore a heart monitor for a month and it showed the palpitations but the cardio doc was not concerned. Since that time the chest pain has gotten worse and the palpitations MUCH worse. With any activity it is all made worse. Now, the cardio wants to do a heart cath and I just don't want to have to go through that as my body is so weak that I just don't think I could do it. Does anyone have any thoughts about this or suffer from chest pains, too?!?! The Rheumatologist told me that all those test that I had done could be FALSE NEGATIVE in women and that scared me even more but then he went onto say that chest pain could be attributed to the

Fibromyalgia but what about the palpitations? !?!?! I am extremely concerned. Also, I am suffering with such pain that any activity that I do brings on terrible sinking feeling and loads of additional pain. I am becoming more and more homebound and also bed bound. Does this sound familiar?!?! I just don't know what is going on and I can tell you I have been through so many test this year that have only shown (not that they are not concerning but no doctor seems concerned) fluid on my spine, cysts on both ovaries/fibroid tumor/thickening of my uterus(which they want to do a biopsy), and my d-dimer (some component in my blood) keeps rising that again no doctor seems concerned with these findings but yet I keep getting worse. Does anyone have any other ideas or places I should check? My back hurts so bad that I can barely sit down and that is hard when that is all I feel like doing. I cannot hardly go

out without being exhausted and in unbearable pain. My whole body aches and I now have lumps that keep coming up in my legs and left arm. I bruise very easily and stay nauseated and fuzzy feeling in my head. The Rheumatologist also said that he thought I was depressed and thought I should face that fact and come to terms with it. I told him I would not be so depressed if I was not in so much pain and in such suffering. I am worried that the doctors have missed something vital....especially in my heart. Any help and comments would be VERY welcome!Next, is the fact that the dr mentioned a couple of medicines for fibromyalgia (which he did not give me any medications) but I read A LOT of horrible comments from people who took Cymbalta and that is not something I want to take chances with...to take something that would make me worse. Any ideas on medications? I am very sensitive to all meds so I

have to be careful what I take. Again, I would appreciate ANY advice you might have. I am not so sure this doctor I saw cared very much for my well-being which has been the case this whole year (I have been going through a lot since January). I just keep thinking that the next doctor I see will be the 'one' to finally help me and NO ONE helps. I have no insurance so I am OVERLOADED in medical expenses and wonder if this is the reason why the doctor's will not help. If anybody is in Georgia and have high recommendations for a doc...I would appreciate that information, too. THANKS!Thanks for hearing me out. Thanks for this group. I appreciate ANY comments and help you might can offer. May God bless you all and I pray you are all feeling comforted today and the pain is not too bad. Very GENTLE hugs!Jane in GeorgiaYou can personally e-mail me at n2butterflyz@ aol.com or you can just reply within the group. Thanks!!!!

[Guest guest]

Jane, I trully feel for you and what you're experiencing. I too have had chest pains accompanied by palpitations, flutters and shortness of breath. For quite some time the doctors kept treating me for anxiety and just kept throwing Valium my way and telling me that I was suffering form extreme anxiety. Yes I was hyperventilating along with the chest pains and all the other symptoms. Basically the doctors assisted me in feeling like I was going crazy and I was beginning to think that I was going crazy. One day I went to a new doctor and she was checking me over and said I have a heart murmur and could hear clicking and believed that I may have MVP (Mitral Valves Prolapse). I was sent for testing, which included an Echocardiogram and it showed the flap abnormality. I was so relieved that I just didn't know what

to do with myself. I was hyperventilating because of the anxiety I was getting when I would get all the symptoms from the MVP. I went off of everything they had me on,I still traveled with the paper bags to breathe into, until I was more comfortable. This was when I was 18 yrs old and now I'm 48. That's one explanation...I know you said you had an Echocardiogram, but maybe you could have someone else take a look at the films. You could have a slight MVP and it not show up. Inderal wards off the symptoms of MVP, if it works for you.

Also, about 2 yrs ago, again I was having very bad chest pains, went to the cardiologist and they did an EKG and some other test that I can't remember the name of. I was told there was an abnormality and it looked like I may have had a heart attack. I of course, went to another cardiologist and he told me to have a cardiac cath, which of course, I was in such fear of. The doc told me if I don't have it don't there's a possibility that I could suffer from damage, if I had a blockage of some sort, so basically I had no choice but to have the cardiac cath. I have to say I was extremely scared, but it was so so simple and painless! Thankfully the cardiac cath was fine, thankfully, but it still didn't explain my chest pains once again.

I went for my routine Colonoscopy and because of the chest pains they did an upper at the same time. It was found that I had a Reflux and something with the name acid in the diagnosis. I was put on Nexium and praise god, was a new person. The chest pains went away and I felt so much better. If I miss my Nexium for any reason, I get the chest pains and feel like I'm having a heart attack, it gets that bad. I know there are others in the group that do agree with me and I think it's Pam.

Anyway, what I am trying to say is it doesn't necessarily have to be something horrible, but please please do not ignore this! Insist, persist, until you have answers. I tend to be mousey but am learning with the help from the group. I have a doctor appt with my pain doc tomorrow and I'm just not looking forward to it, the doc literally scares me!

Also, I have been on Cymbalta, which did not work for me and I've tried the Lyrica, which is a common med for FMS. This med made me very zombie like, couldn't function at all, was very drugged and had a hard time doing anything. It was horrible but there are some people that do tolerate it. I too am very sensitive to meds and the doctor's just don't know what to do for me. The only med I'm on for the FMS is the pain med and they barely work.

I also have a Fibroid tumor and I'm scheduled for surgery Jan 6th have a hysteroscopy. My Gyno said she could do a biopsy, but it is not as conclusive as going in and cleaning and scraping and even after the biopsy she would more than likely still have to do the hysteroscopy, so instead I'm just having her do it.

I DO NOT have any faith in my doctor's as you and have been to over 100 doctor's in a two year period. These doctor's where I live are just not any good, I'm sure there are exceptions, but I haven't found any as of yet. I had one of the FMS books with me when I went to yet another Neurologist a couple of weeks ago and both of the doctor's laughed at the book! I thought how dare you, and I even told them that I've gotten more information from this book then I have from all the doctor's combined. What they did they was that I had a SEVERE case of FMS, also. My dear dear boyfriend can't even hug me because it hurts so badly.

I too am in bed most of the time, but when I do have to leave the house I come home in such horrible pain. Today I had to leave and called my boyfriend to see if he could pick something up from the store that I was in front of. I just couldn't do it I was hurting so badly. I would have left my car if I had had a ride home. I trully feel for you and wish there was something I could do for you, as I very very much understand all of what you're going through. Please please feel free to contact me anytime you need to voice, vent, scream, cry or just need an ear. Very soft hugs to you! H

From: butterflyflyhere <N2butterflyz@...>Subject: Lots Of Concerns and Questionsdominie Date: Wednesday, December 17, 2008, 12:58 PM

Hi Everyone!It has been awhile since I have written in. I have just not been able to do it and I have missed it. I hope you are all well and enjoying this holiday season. Well, a lot has happened since last I wrote and now I have a lot of questions, concerns, thoughts and worries. I know you guys are so very helpful and I would welcome ALL and ANY advice, comments, anything you can share with me. Here is what is going on.....I have known personally that I had Firbomyalgia and had several doctors 'mention' that I have it BUT it has never been "officially" diagnosed until yesterday. I saw a Rheumatologist yesterday and he confirmed that I have SEVERE Fibromyalgia but is also testing me for numbers of other things. I have been to the ER around 8 times, been hospitalized twice this year and have seen countless 'specialist' and yet I am suffering more now than I have ever. What I

wanted to know is if any of you have a lot of chest pain with heart palpitations. Back in May I was placed in the hospital for chest pain and they did a nuclear stress test, EKG, chest x-ray, blood work and echocardiogram and all were fine. Since that time I wore a heart monitor for a month and it showed the palpitations but the cardio doc was not concerned. Since that time the chest pain has gotten worse and the palpitations MUCH worse. With any activity it is all made worse. Now, the cardio wants to do a heart cath and I just don't want to have to go through that as my body is so weak that I just don't think I could do it. Does anyone have any thoughts about this or suffer from chest pains, too?!?! The Rheumatologist told me that all those test that I had done could be FALSE NEGATIVE in women and that scared me even more but then he went onto say that chest pain could be attributed to the

Fibromyalgia but what about the palpitations? !?!?! I am extremely concerned. Also, I am suffering with such pain that any activity that I do brings on terrible sinking feeling and loads of additional pain. I am becoming more and more homebound and also bed bound. Does this sound familiar?!?! I just don't know what is going on and I can tell you I have been through so many test this year that have only shown (not that they are not concerning but no doctor seems concerned) fluid on my spine, cysts on both ovaries/fibroid tumor/thickening of my uterus(which they want to do a biopsy), and my d-dimer (some component in my blood) keeps rising that again no doctor seems concerned with these findings but yet I keep getting worse. Does anyone have any other ideas or places I should check? My back hurts so bad that I can barely sit down and that is hard when that is all I feel like doing. I cannot hardly go

out without being exhausted and in unbearable pain. My whole body aches and I now have lumps that keep coming up in my legs and left arm. I bruise very easily and stay nauseated and fuzzy feeling in my head. The Rheumatologist also said that he thought I was depressed and thought I should face that fact and come to terms with it. I told him I would not be so depressed if I was not in so much pain and in such suffering. I am worried that the doctors have missed something vital....especially in my heart. Any help and comments would be VERY welcome!Next, is the fact that the dr mentioned a couple of medicines for fibromyalgia (which he did not give me any medications) but I read A LOT of horrible comments from people who took Cymbalta and that is not something I want to take chances with...to take something that would make me worse. Any ideas on medications? I am very sensitive to all meds so I

have to be careful what I take. Again, I would appreciate ANY advice you might have. I am not so sure this doctor I saw cared very much for my well-being which has been the case this whole year (I have been going through a lot since January). I just keep thinking that the next doctor I see will be the 'one' to finally help me and NO ONE helps. I have no insurance so I am OVERLOADED in medical expenses and wonder if this is the reason why the doctor's will not help. If anybody is in Georgia and have high recommendations for a doc...I would appreciate that information, too. THANKS!Thanks for hearing me out. Thanks for this group. I appreciate ANY comments and help you might can offer. May God bless you all and I pray you are all feeling comforted today and the pain is not too bad. Very GENTLE hugs!Jane in GeorgiaYou can personally e-mail me at n2butterflyz@ aol.com or you can just reply within the group. Thanks!!!!

[Guest guest]

Pam, as bad as I am with this Fibro, they can take all my meds away and leave me with the Nexium only and I would be happy. I cannot and will not live without my Nexium, that feeling without it is just horrific. Thank god for Nexium! Hugs H

From: Pam Horne <pmarshall@...>Subject: Re: Lots Of Concerns and Questionsdominie Date: Wednesday, December 17, 2008, 2:12 PM

Jane,

I experienced that severe chest pain that you are talking about. I was hospitalized twice and continued showing up at the ER, even though I sort of knew all they would do is send me away with some pain medication. Finally I found a doctor who was able to diagnose a hiatel hernia, which caused acid reflux. Now I take Nexium and no more pain. If you haven't been tested for acid reflux, mention that to your doctor.

I take Cymbalta with no problems and I find it helps me quite a bit. We have talked about this quite a bit on this message board and what we really learn is that everybody is different. So unfortunately you'll probably have to try some of these meds before you know if they work and if you can take them. My magic pharmacy is Cymbalta and Neurontin.

I hope you get things worked out and eventually find some relief. I wish you God's blessings.

Pam H

Lots Of Concerns and Questions

Hi Everyone!It has been awhile since I have written in. I have just not been able to do it and I have missed it. I hope you are all well and enjoying this holiday season. Well, a lot has happened since last I wrote and now I have a lot of questions, concerns, thoughts and worries. I know you guys are so very helpful and I would welcome ALL and ANY advice, comments, anything you can share with me. Here is what is going on.....I have known personally that I had Firbomyalgia and had several doctors 'mention' that I have it BUT it has never been "officially" diagnosed until yesterday. I saw a Rheumatologist yesterday and he confirmed that I have SEVERE Fibromyalgia but is also testing me for numbers of other things. I have been to the ER around 8 times, been hospitalized twice this year and have seen countless 'specialist' and yet I am suffering more now than I have ever. What I

wanted to know is if any of you have a lot of chest pain with heart palpitations. Back in May I was placed in the hospital for chest pain and they did a nuclear stress test, EKG, chest x-ray, blood work and echocardiogram and all were fine. Since that time I wore a heart monitor for a month and it showed the palpitations but the cardio doc was not concerned. Since that time the chest pain has gotten worse and the palpitations MUCH worse. With any activity it is all made worse. Now, the cardio wants to do a heart cath and I just don't want to have to go through that as my body is so weak that I just don't think I could do it. Does anyone have any thoughts about this or suffer from chest pains, too?!?! The Rheumatologist told me that all those test that I had done could be FALSE NEGATIVE in women and that scared me even more but then he went onto say that chest pain could be attributed to the

Fibromyalgia but what about the palpitations? !?!?! I am extremely concerned. Also, I am suffering with such pain that any activity that I do brings on terrible sinking feeling and loads of additional pain. I am becoming more and more homebound and also bed bound. Does this sound familiar?!?! I just don't know what is going on and I can tell you I have been through so many test this year that have only shown (not that they are not concerning but no doctor seems concerned) fluid on my spine, cysts on both ovaries/fibroid tumor/thickening of my uterus(which they want to do a biopsy), and my d-dimer (some component in my blood) keeps rising that again no doctor seems concerned with these findings but yet I keep getting worse. Does anyone have any other ideas or places I should check? My back hurts so bad that I can barely sit down and that is hard when that is all I feel like doing. I cannot hardly go

out without being exhausted and in unbearable pain. My whole body aches and I now have lumps that keep coming up in my legs and left arm. I bruise very easily and stay nauseated and fuzzy feeling in my head. The Rheumatologist also said that he thought I was depressed and thought I should face that fact and come to terms with it. I told him I would not be so depressed if I was not in so much pain and in such suffering. I am worried that the doctors have missed something vital....especially in my heart. Any help and comments would be VERY welcome!Next, is the fact that the dr mentioned a couple of medicines for fibromyalgia (which he did not give me any medications) but I read A LOT of horrible comments from people who took Cymbalta and that is not something I want to take chances with...to take something that would make me worse. Any ideas on medications? I am very sensitive to all meds so I

have to be careful what I take. Again, I would appreciate ANY advice you might have. I am not so sure this doctor I saw cared very much for my well-being which has been the case this whole year (I have been going through a lot since January). I just keep thinking that the next doctor I see will be the 'one' to finally help me and NO ONE helps. I have no insurance so I am OVERLOADED in medical expenses and wonder if this is the reason why the doctor's will not help. If anybody is in Georgia and have high recommendations for a doc...I would appreciate that information, too. THANKS!Thanks for hearing me out. Thanks for this group. I appreciate ANY comments and help you might can offer. May God bless you all and I pray you are all feeling comforted today and the pain is not too bad. Very GENTLE hugs!Jane in GeorgiaYou can personally e-mail me at n2butterflyz@ aol.com or you can just reply within the group. Thanks!!!!

[Guest guest]

[Jane - Here are three video links posted just recently. The Dog in the Snow & Christian the Lion are wonderful. The third, a CFS video will instill hope. I've placed them all in one spot to make it easier for you. Enjoy ... Carlene.]

Dog in the snow

Here's a dog having the most wonderful time in the snow.

http://maniacworld.com/dog-having-a-blast-in-the-snow.html

Pam H

Christian the Lion

This is a video about a lion cub rescued in the late 60s by two guys in the UK. They raised him until he no longer fit in their house, then arranged to have him released into the wild in Africa. A year later they went to see him, although they knew he now had his own pride and was wild. The video is amazing. I cry every time I watch it. Enjoy.

http://www.youtube.com/watch?v=adYbFQFXGOU

Pam H

Re: Watch Video - CFS Cause/Possible Treatments - Ground Breaking Research http://www.youtube.com/watch?v=nfLoiqf6I4o & NR=1

>> Hi Everyone!> > It has been awhile since I have written in. I have just not been > able to do it and I have missed it. I hope you are all well and > enjoying this holiday season. > > Well, a lot has happened since last I wrote and now I have a lot of > questions, concerns, thoughts and worries. I know you guys are so > very helpful and I would welcome ALL and ANY advice, comments, > anything you can share with me. > Jane in Georgia> You can personally e-mail me at n2butterflyz@... or you can just > reply within the group. Thanks!!!!

[Guest guest]

Hi Jane - I'm Carlene, and I'm really looking forward to getting to know you. Sorry to hear you're suffering so much with the severe Fibromyalgia! And all of the pain, worry, and fear that goes with it. A long time ago I had pain in the sternum area - and flip flop palpitations. I stopped using strong chemicals. But, several years ago I used a full-strength 'Domestos' kitchen cleaning solution. I'm sure I used too much of it ... strong fumes etc. After that the palpitations became unbearable! Then, a year later they began to subside.

I had read about the herb Hawthorn being helpful for the heart re: palpitations. I began having 2 - 3 Hawthorn tablets every day. And found almost immediate relief. It helps me so much that I just can't do without it. In your case you'll most probably be taking medications, soon. So, I wouldn't advise you to mix medications with herbal preparations. Certainly, not without medical advice or through your pharmacist. For some people herbs can cause a toxic reaction. I completely understand you feeling concerned about the palpitations.

That "terrible sinking feeling" you describe - I've been through it, too. I'm sure many of us in this group know it, only too well. People who haven't experienced these things can't even begin to imagine what it's like. And, it's normal to feel depressed when you're in pain, and going through so much suffering. I hope you find a caring doctor who will map out a good treatment plan for you.

The "nauseated and fuzzy feeling" you describe - for some reason - I've had this in the last 24-hours. And it is AWFUL!!! I used to get this quite a lot. But, over time, the nausea, and the fuzziness have decreased. I do pray that your symptoms will begin to improve, soon. For information (for doctor or pharmacist) about Hawthorn, and drug interactions I've included the comprehensive Link below. You'll also get some good ideas from knowledgeable people, here. In the meantime, keep us up to date with your progress. hugs Carlene

Providence [Health and Services - See: Hawthorn Re: Drug Interactions]

http://www.providence.org/healthlibrary/contentViewer.aspx?hwid=hn-2106005 & serviceArea=generic

>> Hi Everyone!> > It has been awhile since I have written in. I have just not been > able to do it and I have missed it. I hope you are all well and > enjoying this holiday season. > > Well, a lot has happened since last I wrote and now I have a lot of > questions, concerns, thoughts and worries. I know you guys are so > very helpful and I would welcome ALL and ANY advice, comments, > anything you can share with me. > Jane in Georgia> You can personally e-mail me at n2butterflyz@... or you can just > reply within the group. Thanks!!!!