RE: [HeidiLiane] re:PAIN-michele

[Guest guest]

Michele,

I used to take Darvocet for migraines. I cannot take it anymore. Hurts my stomach. I was recently put on daily cellebrex but my stomach just cannot deal. It is destroyed from the mountains of drugs I have had to take for over thirty years for my migraines.

I don't want to take Lyrica. It is too new of a drug. I also have to be functional. I have a fourteen year old, two dressage horses, I teach riding, I am a judge {of horse shows} have a design business , a ill father I care for and lots else. I had to stop cellebrex because it made me a zombie.

I am not sure how to manage this pain besides what I am doing with diet, working on my life to reduce stress, physical therapy, all the other things {massage, infared therapy, epsom salt baths, on and on and on} , Herb and oil rubs, supplements,learning to watch how much I do in a day..........I really think I need a pain management doctor.

Oh, and you did not write too much. I always do.

Hugs,

Sue

From: Michele Townsend <mtownsend29@...>Subject: RE: [HeidiLiane] re:PAINHeidiLiane Date: Tuesday, December 30, 2008, 10:27 PM

Dear Sue,

I take Darvocet daily, three times a day, every day. I couldn't function without it. When it comes down to quality of life, I feel the risk is worth it. But I also tolerate Lyrica, it took a while but now I do. I have gained some weight and have lots of brain fog (had it before the meds too) but I can function somewhat. I watch the babies, with my husband's help most of the time, and eat and sleep (a lot). I don't do much more than that but being able to spend this time with my grandchildren as opposed to day care is something I love and they are better off for it. Zachary starts kindergarten next year so it will just be the twins next fall which is good as it is rather challenging with the three of them. But like I said, my husband helps out a lot so it is bearable. Oops, did not mean to

write so much.

Hugs, Michele - Nana & DayCare provider toTwins is and , 2 yrs., Zachary, 4 yrs.,Ethan, 8 yrs., and Tony, 12 yrs.

From: UrbanczykSent: Tuesday, December 30, 2008 7:28 PM

OK, here is the skoop for me. Nothing,nothing I try. All the suggestions here, that I read over and over. Acupunture,massage, rubs,pain killers {have not tried narcotics... ...yet}, exercise {which you all know I faithfully do},heat,cool, baths...oh I could but won't go on helps this pain. I am in excrutiating pain tonight. If someone says "boo" to me I am going to cry. I feel like I am swimming in it or rather drowning it it. Nothing touches it. All the above things help in the moment with the regular horrible pain, getting me through the day {along with my DBT skills} but this, this is unbearable. I am losing hope that there is no solution to the pain. Only bandaides on huge gaping wounds.

Sue

[Guest guest]

Just tried sending you a message Sue, but something happened, not sure if it went through, but just in case it didn't here goes.

You've known me now for a while and as you've said in the past, we are very very much alike in so many aspects, including our severe chronic pain. I've seen several different Rheumy's and several different Neuro's and they're all the same, at least for me, all textbook docs. I've been seeing the Pain Mgt. doc now since I believe Mar or April and I have to say they are extremely thorough. My initial consultation took 2 hrs with him exclusively and then he had me come back to continue to consultation because of my many many ailments. My problem are the medi))cations. I cannot tolerate most meds or they work opposite for me and just don't work at all, so it becomes very frustrating not only for me but for the doctor's as well. I will tell you that when you see the Pain Mgt doc he/she will send you for his own set of testing on all levels. Bring in as many reports as you can. Mine has tried numerous long

term pain meds that one would take once daily but I couldn't tolerate those either. Be very careful of any pain meds with Tylenol. I had to go off all because of my LFT's (Liver Function Tests). My numbers are high so that's worrying the doctor.

Like I said Sue, out of all the Rheumy's and Neuro's I've seen, probably between those two specialties I've been to about 20 of them all different docs, but very much the same in technique. Going to a Pain Mgt doc is a great idea but they can't always help you either. It's a slow and long process with them because they are so thorough. I've been going now for 8-9 months and we're still trying to find the right meds for me. I have a specially formulated medication that is made and mixed exclusively for me and this is what is done for each patient depending on what they need it for. It's very expensive buy my insurance company pays it. I believe it's called a compound drug and you have to have a script and you cannot get this from a regular pharmacy, it's only made by certain pharmacies.

Good luck Sue, hope this helps at least a little. Keep in touch, I'll check with you privately in a few to see how you're doing. Hugs H

From: Michele Townsend <mtownsend29@ comcast.net>Subject: RE: [HeidiLiane] re:PAINHeidiLiane@gro ups.comDate: Tuesday, December 30, 2008, 10:27 PM

Dear Sue,

I take Darvocet daily, three times a day, every day. I couldn't function without it. When it comes down to quality of life, I feel the risk is worth it. But I also tolerate Lyrica, it took a while but now I do. I have gained some weight and have lots of brain fog (had it before the meds too) but I can function somewhat. I watch the babies, with my husband's help most of the time, and eat and sleep (a lot). I don't do much more than that but being able to spend this time with my grandchildren as opposed to day care is something I love and they are better off for it. Zachary starts kindergarten next year so it will just be the twins next fall which is good as it is rather challenging with the three of them. But like I said, my husband helps out a lot so it is bearable. Oops, did not mean to

write so much.

Hugs, Michele - Nana & DayCare provider toTwins is and , 2 yrs., Zachary, 4 yrs.,Ethan, 8 yrs., and Tony, 12 yrs.

From: UrbanczykSent: Tuesday, December 30, 2008 7:28 PM

OK, here is the skoop for me. Nothing,nothing I try. All the suggestions here, that I read over and over. Acupunture,massage, rubs,pain killers {have not tried narcotics... ...yet}, exercise {which you all know I faithfully do},heat,cool, baths...oh I could but won't go on helps this pain. I am in excrutiating pain tonight. If someone says "boo" to me I am going to cry. I feel like I am swimming in it or rather drowning it it. Nothing touches it. All the above things help in the moment with the regular horrible pain, getting me through the day {along with my DBT skills} but this, this is unbearable. I am losing hope that there is no solution to the pain. Only bandaides on huge gaping wounds.

Sue