CFS, MCS, SLE, Celiac and more....................

[Guest guest]

I was doing reading on the subject of allergy to lectins (grains and beans) which I suffer from, when I came across the following which maybe of interest to some here.

Clare in Tassie

SOMA HEALTH ASSOCIATION OF AUSTRALIA LIMITED

http://www.pyxis.com.au/soma/documents/Articles/Grave%20new%20world%201.doc

UNDER-INVESTIGATION OF SYMPTOMS IN CHRONIC FATIGUE SYNDROME (CFS) AND MULTIPLE CHEMICAL SENSITIVITY SYNDROME (MCSS). Statement by Dr C M Reading: B.Sc., Dip.Ag.Sci.,M.B.,B.S.,F.R.A.N.Z.C.P.,A.C.N.E.M.

Since 1980 I have treated over two thousand patients for CHRONIC FATIGUE SYNDROME and well over a hundred for MULTIPLE CHEMICAL SENSITIVITY. All these patients, when thoroughly investigated, showed food and chemical sensitivities / intolerances on the CYTOTOXIC TEST, especially to cow’s milk, gluten-containing grains, legumes and beans, all of which can cause severe malabsorption state for vitamins, minerals, amino acids, etc. These patients tend to have severe nutrient deficiencies due to malabsorption, and are usually low in Vits. B1, B2, B6, C, A, Folic Acid and, less often, B 12. They often have anaemia due to the above deficiencies but may have sideropaenia – low iron without anaemia. Many have low serum zinc, and hair analysis shows low calcium, magnesium, manganese, molybdenum, iron, chromium, zinc, selenium and cobalt, raised copper and aluminum, and unsatisfactory lead, mercury and nickel levels.

(The Cytotoxic Test is accepted by the LANCET, Letter, January 24, 1987.)

The glare/photophobia so often observed in CFS patients indicates low iron, low Retinol A and low Zinc – hence white dots in nails often, despite a normal haemoglobin/film, and thus not anaemia. Many patients also have raised IgE and a host of inhalant allergies to pollens (grass, weeds, trees – pollinosis), moulds, mites, etc., as well as food allergies, and are sensitive to fumes, chemicals, perfumes, petrol, etc.

Most CFS patients have missed coeliac disease (nine out of ten in a row, diagnosed as CFS by a leading Sydney hospital – POW) and missed because most psychiatrists do not routinely have measurements done of Endomysial IgA, Gluten IgA and IgG or alpha-gliadin IgA and IgG, reticulin antibodies and IgM to see if these are raised, nor do they look for low C3, C4 and raised immune complexes as seen in coeliac disease, IgM can be raised-to-low also in coeliac disease.

An extremely high percentage of CFS/MCSS patients are MISSED COELIACS and about 5% are MISSED SLE –which is not usually even considered. All CFS patients should be tested for ANF and, if positive, then do dsDNA; and, if not raised (diagnosing SLE), then ENA screen, C3, C4 complements, immune complexes, anti-lymphocyte antibodies, immunoglobulins (IgA, IgM, IgG) and if any of the above are abnormal (despite a negative ENA screen) then a skin biopsy on unexposed skin with immunofluorescent technique to confirm/diagnose SLE.

Many patients with CFS show white dots in their nails which is associated with low B6, zinc and pyroluria with kryptopyrroles in the urine, and if these levels are high there is high risk for acute intermittent poryphyria, especially if reacting to drugs , chemicals, fumes, perfumes and chlorpyrifos/pesticides and herbicides which can cause a flare-up of porphyria, as also can barbiturates, sulphnamides, neuroleptics, etc.

Most CFS/MCSS patients have severe autoimmune disease (as seen with SLE, coeliac disease, and show gastritis, thyroidiotis, cholangitis, vasculitis, autoimmune neuritis,etc.) and need a gluten-free diet or a diet design to reverse SLE. These patients, in my experience, have severe cow’s milk alpha-casein, +/- alpha-lactalbumin, +/- beta-lactalbumin, sensitivity/intolerance when antibodies to these peptides of cow’s milk are measured - as well over a thousand patients since 1980. (cont.)

Under-investigation of symptoms in CFS and MCSS: (cont.)

When intolerant/hypersensitive to cow’s milk albumin-globulin, then these cross-react with egg and beef albumin and globulin, and also need to be avoided. In addition, because of the suppressed/compromised immune system and often low cortisol DHEA, MCSS patients (often being coeliacs) are at risk for opportunist pathogenes such as candida albicans, mycoplasma, rickettsia, helicobacter pylori, chlamydia pneumoniae and campylobacter jejuni aggravating/complicating their treatment. These pathogens need to be identified and killed off.

High levels of aluminium, copper and , less often, lead and mercury are seen in CFS/MCSS patients and show especially on hair analysis. They also have low serum cortisol +/- low serum DHEAS, i.e. adrenal exhaustion, and many are hypothyroid. Most have a marked tendency to hypoglycaemia and need to eat protein two-hourly in order not to become hypyglocaemic. Severe amino acid deficiencies are common in my experience (also refer Newcastle University research) and may have low Vit B3 in addition to nutrient deficiencies mentioned above. High levels of pesticides/herbicides are common in CFS/MCSS patients (work of Dr Mark Donohoe and Tim et al of Newcastle University). They also have abnormal metabolites in the urine (and Kryptopyrolles / pyroluria ).

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[Guest guest]

Thanks Clare, this is so interesting to me, thank you. I do have CFS and MCS so I'm very curious about this. I wonder how they test for all of this, would you have any idea? Thanks again. Hugs H

From: Clare@GOOGLE MAIL <theclaremcharris@...>Subject: CFS, MCS, SLE, Celiac and more.....................Undisclosed-Recipient@...Date: Thursday, December 11, 2008, 10:51 PM

I was doing reading on the subject of allergy to lectins (grains and beans) which I suffer from, when I came across the following which maybe of interest to some here.

Clare in Tassie

SOMA HEALTH ASSOCIATION OF AUSTRALIA LIMITED

http://www.pyxis. com.au/soma/ documents/ Articles/ Grave%20new% 20world%201. doc

UNDER-INVESTIGATION OF SYMPTOMS IN CHRONIC FATIGUE SYNDROME (CFS) AND MULTIPLE CHEMICAL SENSITIVITY SYNDROME (MCSS).

Statement by Dr C M Reading: B.Sc., Dip.Ag.Sci., M.B.,B.S. ,F.R.A.N. Z.C.P.,A.. C.N.E.M.

Since 1980 I have treated over two thousand patients for CHRONIC FATIGUE SYNDROME and well over a hundred for MULTIPLE CHEMICAL SENSITIVITY. All these patients, when thoroughly investigated, showed food and chemical sensitivities / intolerances on the CYTOTOXIC TEST, especially to cow’s milk, gluten-containing grains, legumes and beans, all of which can cause severe malabsorption state for vitamins, minerals, amino acids, etc. These patients tend to have severe nutrient deficiencies due to malabsorption, and are usually low in Vits. B1, B2, B6, C, A, Folic Acid and, less often, B 12. They often have anaemia due to the

above deficiencies but may have sideropaenia – low iron without anaemia. Many have low serum zinc, and hair analysis shows low calcium, magnesium, manganese, molybdenum, iron, chromium, zinc, selenium and cobalt, raised copper and aluminum, and unsatisfactory lead, mercury and nickel levels.

(The Cytotoxic Test is accepted by the LANCET, Letter, January 24, 1987.)

The glare/photophobia so often observed in CFS patients indicates low iron, low Retinol A and low Zinc – hence white dots in nails often, despite a normal haemoglobin/ film, and thus not anaemia. Many patients also have raised IgE and a host of inhalant allergies to pollens (grass, weeds, trees – pollinosis), moulds, mites, etc., as well as food allergies, and are sensitive to fumes, chemicals, perfumes, petrol, etc.

Most CFS patients have missed coeliac disease (nine out of ten in a row, diagnosed as CFS by a leading Sydney hospital – POW) and missed because most psychiatrists do not routinely have measurements done of Endomysial IgA, Gluten IgA and IgG or alpha-gliadin IgA and IgG, reticulin antibodies and IgM to see if these are raised, nor do they look for low C3, C4 and raised immune complexes as seen in coeliac disease, IgM can be raised-to-low also in coeliac disease.

An extremely high percentage of CFS/MCSS patients are MISSED COELIACS and about 5% are MISSED SLE –which is not usually even considered. All CFS patients should be tested for ANF and, if positive, then do dsDNA; and, if not raised (diagnosing SLE), then ENA screen, C3, C4 complements, immune complexes, anti-lymphocyte antibodies, immunoglobulins (IgA, IgM, IgG) and if any of the above are abnormal (despite a negative ENA screen) then a skin biopsy on unexposed skin with immunofluorescent technique to confirm/diagnose SLE.

Many patients with CFS show white dots in their nails which is associated with low B6, zinc and pyroluria with kryptopyrroles in the urine, and if these levels are high there is high risk for acute intermittent poryphyria, especially if reacting to drugs , chemicals, fumes, perfumes and chlorpyrifos/ pesticides and herbicides which can cause a flare-up of porphyria, as also can barbiturates, sulphnamides, neuroleptics, etc.

Most CFS/MCSS patients have severe autoimmune disease (as seen with SLE, coeliac disease, and show gastritis, thyroidiotis, cholangitis, vasculitis, autoimmune neuritis,etc. ) and need a gluten-free diet or a diet design to reverse SLE. These patients, in my experience, have severe cow’s milk alpha-casein, +/- alpha-lactalbumin, +/- beta-lactalbumin, sensitivity/ intolerance when antibodies to these peptides of cow’s milk are measured - as well over a thousand patients since 1980.

(cont.)

Under-investigation of symptoms in CFS and MCSS: (cont.)

When intolerant/hypersen sitive to cow’s milk albumin-globulin, then these cross-react with egg and beef albumin and globulin, and also need to be avoided. In addition, because of the suppressed/compromi sed immune system and often low cortisol DHEA, MCSS patients (often being coeliacs) are at risk for opportunist pathogenes such as candida albicans, mycoplasma, rickettsia, helicobacter pylori, chlamydia pneumoniae and campylobacter jejuni aggravating/ complicating their treatment. These pathogens need to be identified and killed off.

High levels of aluminium, copper and , less often, lead and mercury are seen in CFS/MCSS patients and show especially on hair analysis. They also have low serum cortisol +/- low serum DHEAS, i.e. adrenal exhaustion, and many are hypothyroid. Most have a marked tendency to hypoglycaemia and need to eat protein two-hourly in order not to become hypyglocaemic. Severe amino acid deficiencies are common in my experience (also refer Newcastle University research) and may have low Vit B3 in addition to nutrient deficiencies mentioned above. High levels of pesticides/herbicid es are common in CFS/MCSS patients (work of Dr Mark Donohoe and Tim

et al of Newcastle University). They also have abnormal metabolites in the urine (and Kryptopyrolles / pyroluria ).

Please help stop email address harvesting and subsequent spamming & protect your family, friends and yourself.Use BCC when sending to multiple email addresses and also delete old email addresses BEFORE forwarding on emails. Thank you.

[Guest guest]

I came across the article accidentally......

I have gluten sensitivity Casein sensitivity Cannot under any

circumstances, even after soaking and boiling beans and lentils,

consume them, and am currently being evaluated for auto immune SLE. I

am latex intol as well, and I am scared the list will keep growing. I

avoid Soy too.......

Now as to your question, sadly I do not know where testing for this

takes place, but IF I do discover anything more I will post to the list.

Cheer's,

Clre in Taz

[Guest guest]

Thanks Clare, I can ask the doctor I'm seeing for the nutritional aspects to see what he thinks. Thanks so much again. H

From: Clare <theclaremcharris@...>Subject: Re: CFS, MCS, SLE, Celiac and more....................dominie Date: Friday, December 12, 2008, 3:30 AM

I came across the article accidentally. .....I have gluten sensitivity Casein sensitivity Cannot under any circumstances, even after soaking and boiling beans and lentils, consume them, and am currently being evaluated for auto immune SLE. I am latex intol as well, and I am scared the list will keep growing. I avoid Soy too.......Now as to your question, sadly I do not know where testing for this takes place, but IF I do discover anything more I will post to the list.Cheer's,Clre in Taz