Re: Re:Third Fibromyalgia Drug May Be Approved Soon

[Guest guest]

Dominie, my good friend who has HHPV 6 took the same med for 6 months, she sees an infection control specialist in Pinnellas Park, Fl. She was also on the antibiotic protocol for a year for mycoplasm, she is doing better. In fact, after being off the antibiotics, for 3 months, a few weeks ago she got this crud going around, and has improved greatly, to the point she only has a mild cough at night. Before, she would be sick all winter. There is another antiviral that is given IV, to treat HHPV6 She is on Lyrica, for RSD, and it has helped her greatly, she was on 150mg every 12 hours, and has reduced down to 75mg every 12 hours and is doing great compared to what she was before. Sandie -- Re:Third Fibromyalgia Drug May Be Approved Soon There's a link between CFIDS and HHPV-6 (oral herpes virus). I take acyclovir (anti-viral) for one week every month (and sometimes more often). It helps me to not get sick as often. It was prescribed by my good doc in ville (Dr. Balbona). I have also reported on Dr. Dantini in Ormond Beach, FL who uses anti-virals for CFIDS patients. Search my newsletter archives at http://www.fms-help.com/newsletters.htm I met a lady in a chiro office years ago who told me he "cured" her. Dom > > I hate to be mean, but it is just another anti depressant. ly, I only get depressed when I think about the fact that I have a virus. When they come up with an anti virul medication for the chronic fatigue portion then I am interested. ------------------------------------

[Guest guest]

My depression did not start until I had been sick for quite some time and then, wham, I felt as if it came over night with the severe depression. I agree that if I wasn't sick I probably wouldn't be depressed. I do have to say, however, that I am willing to try a new med for FMS to see if it would help my symptoms. I look forward to feeling better, even if it's only slightly, as slightly better is better than nothing at all. Hugs karen H

From: Stacie Buckle <sbuckle1@...>Subject: Re:Third Fibromyalgia Drug May Be Approved Soondominie Date: Tuesday, December 9, 2008, 8:48 AM

I hate to be mean, but it is just another anti depressant. ly, I only get depressed when I think about the fact that I have a virus. When they come up with an anti virul medication for the chronic fatigue portion then I am interested. I lived most of my life on anti depressants and none of them worked. When I finally got off of them, I realized I wasn't truly depressed. I realized I was simply feeling sad over the fact that I am not a formidable member of society because of the virus.

Not trying to be mean, but they keep avoiding the real issue. How many people here would figure they wouldn't be depressed if they could perform a full day without running out of energy and knew they could get a good nights rest without meds?

I know that the diseases herein causes many more diseases that cannot be cured, but knowing the virus was gone or going to be gone would certainly inspire me to get better in other departments.

Okay, I'm done with my rant, thanks for listening.

Stacie