My Name is Fibromyalgia

[Guest guest]

Helen,

Thanks for sending this. I asked my rheumatologist about

how concerned I need to be about fibromyalgia, and he

confirmed just what this item said: that I have to be quite

concerned about all of this. The next time that I see my

rheumatologist I will have him check me for the trigger

points.

The part that especially got me was the part about the

accidents. I had my left leg caught in the door of a very

old car when I was a teenager. I thought that I had pushed

the door as far back as I could so that I could get out of

the car and when I tried to get out the door came back on

my leg. Thanks to that and other injuries to that leg I

have osteoarthritis.

In addition to the arthritis I also have endometriosis and

some other female stuff going on.

I'm glad to see this as I just said and so now I know that

I will be seeing about having my trigger points checked.

And as for going from dr to dr, I did that as a result of

the endo. What a true test of my patience.

Thank you again.

=====

Kristy

http://www.geocities.com/sokokl/kristyspersonalpage.html

__________________________________________________

[Guest guest]

WOW! You've really done a great job explaining

Fibromyalgia and the other diseases that mimic FM. I'm very impressed with

what you've done. I hope I never have to deal with FM after reading your

3 e-mails regarding it. Great job!

Love and hugs,

ie B

fbertaud@...

angelbear1129@... wrote:

"My Name is Fibromyalgia, and I'm an Invisible Chronic Illness. I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over. Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered

from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay. I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away, told to think positively poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day. Your family friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a "Normal" person, and can't remember what you were going to say next!

In closing, (I was hoping that I kept this part a secret), but I guess you already found out. . . the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia.

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Being Sick Community

Visual problems with colors? Click the link below and select the modify

link to your right. Then select the **Send Plain Text Email** option. This

will stop you receiving emails with colored or enlarged fonts./join

Members Lounge:- Photo Album, memorial page, members profiles, birthdays,

locations, medical resources, counselling via email and a whole bunch of

free things.http://www.elderwyn.com/members

Message Archives and Digest Attachment Pictures:-/messages

Chat:-

Scheduled Daily Chats at # on IRC DALnet./files/chat.htm

Bookmarks:-

Add a website URL you have found useful./links

Personal Complaints or problems:-

Please contact a moderator either via email

<-owner >

Subscription Details:-

1) Individual email - means that every email sent to the list you receive.

2) Daily Digest - sends you 25 messages in one single email for you to browse.

This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.

To modify your subscription settings please visit:- /join

To subscribe or unsubscribe please email:-

-subscribe

-unsubscribe

~~~~ *** ~~~ *** ~~~ *** ~~~~ “Hold on to what is good, even if

it's a handful of earth. Hold on to what you believe, even if it's a tree

that stands by itself. Hold on to what you must do even, if it's a long way

from here. Hold on to your life, even if it's easier to let go." - Pueblo

Prayer

~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Hi Helen and everyone,

Thanks for sharing this TRUE anecdote. I just want to know who ( what kind of specialists)

can make the diagnosis?

I don't know, and after reading your posts, I'm sure that this is a condition that I've too.

Till now, no doctor could tell me what was going on.

After reading on the site that has refered to take a look at, I began taking

about those symptoms that I had since I was 9 years.

Thanks for your help and all others who may have more info, please send them to my

e-mail at xiomara@...

Thanks again and lots of love to you all,

Xiomi

[Guest guest]

Xiomi,

I've heard of many different types of doctors diagnosing Fibromyalgia, even dentists, but I was diagnosed by a Rheumatologist. I'm not sure which site I gave to you, but here is a website from a friend of mine, who is a doctor with Fibromyalgia. She is a leader in the industry of medicine, and has written a few books about Fibromyalgia. Her site is here: http://www.sover.net/~devstar/ and it has a lot of information, can be an overload at times. She does have her books available on there (not a shameless plug, honest!) and I do own all of her books. I highly recommend them. It really makes you feel less alone...I always felt very alone, and even thought I was crazy sometimes. I'm sure anyone on here would agree that that tends to go hand in hand with FMS.

~~To laugh often and much; to win the respect of intelligent people and the affection of children...to leave the world a better place...to know even one life has breathed easier because you have lived. This is to have succeeded.--- Ralph Waldo Emerson

RE: My Name is fibromyalgia

Hi Helen and everyone,

Thanks for sharing this TRUE anecdote. I just want to know who ( what kind of specialists)

can make the diagnosis?

I don't know, and after reading your posts, I'm sure that this is a condition that I've too.

Till now, no doctor could tell me what was going on.

After reading on the site that has refered to take a look at, I began taking

about those symptoms that I had since I was 9 years.

Thanks for your help and all others who may have more info, please send them to my

e-mail at xiomara@...

Thanks again and lots of love to you all,

Xiomi

[Guest guest]

A Rheumatologist diagnoised me. I also have been ill sinse I was 11 or 12. Have had something else going wrong ever sinse then about every couple of years ( Keep looking till you put it all together!!!

{{{ Healthy Hgus }}}

Helen

Hi Helen and everyone,

 

Thanks for sharing this TRUE anecdote. I just want to know who ( what kind of specialists)

can make the diagnosis?

I don't know, and after reading your posts, I'm sure that this is a condition that I've too.

Till now, no doctor could tell me what was going on.

After reading on the site that has refered to take a look at, I began taking

about those symptoms that I had since I was 9 years.

 

Thanks for your help and all others who may have more info, please send them to my

e-mail at xiomara@...

 

Thanks again and lots of love to you all,

 

Xiomi

BLESS OUR COUNTRY !!!

AND

ALL WHO SERVE !!!

[Guest guest]

thanks Helen for the information-good article as to how it really feels.

carol

On Thu, 25 Apr 2002 01:25:52 EDT angelbear1129@... writes:

> MY NAME IS FIBROMYALGIA

> author unknown

> Note: I wish I knew who wrote this so I could give them proper

> credit. This

>

> really tells the story of what it's like to have fibromyalgia

> My Name is Fibromyalgia, and I'm an Invisible Chronic Illness. I am

> now

> velcroed

> to you for life. Others around you can't see me or hear me, but YOUR

> body

> feels

> me. I can attack you anywhere and anyhow I please. I can cause

> severe pain

> or,

> if I'm in a good mood, I can just cause you to ache all over.

> Remember when

> you

> and Energy ran around together and had fun? I took Energy from you,

> and gave

> you

> Exhaustion. Try to have fun now! I also took Good Sleep from you

> and, in its

> place, gave you Brain Fog. I can make you tremble internally or make

> you feel

>

> cold or hot when everyone else feels normal. Oh, yeah, I can make

> you feel

> anxious or depressed, too. If you have something planned, or are

> looking

> forward

> to a great day, I can take that away, too. You didn't ask for me. I

> chose you

>

> for various reasons: That virus you had that you never recovered

> from, or

> that

> car accident, or maybe it was the years of abuse and trauma. Well,

> anyway,

> I'm

> here to stay! I hear you're going to see a doctor who can get rid

> of me. I'm

>

> rolling on the floor, laughing. Just try. You will have to go to

> many, many

> doctors until you find one who can help you effectively. You will be

> put on

> pain

> pills, sleeping pills, energy pills, told you are suffering from

> anxiety or

> depression, given a TENs unit, get massaged, told if you just sleep

> and

> exercise

> properly I will go away, told to think positively, poked, prodded,

> and MOST

> OF

> ALL, not taken as seriously as you feel when you cry to the doctor

> how

> debilitating life is every day. Your family, friends and coworkers

> will all

> n to you until they just get tired of hearing about how I make you

> feel,

>

> and that I'm a debilitating disease. Some of them will say things

> like " Oh,

> you

> are just having a bad day " or " Well, remember, you can't do the

> things you

> use

> to do 20 YEARS ago " , not hearing that you said 20 DAYS ago. Some

> will just

> start

> talking behind your back, while you slowly feel that you are losing

> your

> dignity

> trying to make them understand, especially when you are in the

> middle of a

> conversation with a " Normal " person, and can't remember what you

> were going

> to

> say next! In closing, (I was hoping that I kept this part a secret),

> but I

> guess

> you already found out. .. the ONLY place you will get any support

> and

> understanding in dealing with me is with Other People With

> Fibromyalgia.

>

>

> ***************************************

> Being an earth angel doesn’t always involve something major, such

> as saving a

> life.

> Sometimes we’re just needed to hold a hand, whisper a word of

> comfort or even

> provide food or drink.

> As one writer put it,

> “If People were more like Angels, Earth would be more like

> Heaven.â€

> Think about it during this very special week..

>

> ***************************************

>

> " Encourage one another. Many times a word of praise or thanks or

> appreciation

> or cheer has kept people on their feet. "

> Swindoll

>

> ***************************************

>

>

>

>

>

>

[Guest guest]

Boy,,, this thing just explained the last 5 years of my life!!! Thanks Helen,,, Hugs "My Name is Fibromyalgia "My Name is Fibromyalgia, and I'm an Invisible Chronic Illness. I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over. Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay. I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away, told to think positively poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day. Your family friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a "Normal" person, and can't remember what you were going to say next! In closing, (I was hoping that I kept this part a secret), but I guess you already found out. . . the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia. ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

helen did you write this? i would love to put this on my webpage....

sandra

My Name is Fibromyalgia

" " Hi. . .

* My Name is Fibromyalgia, and I'm an Invisible Chronic Illness. I am now

velcroed to you,....for life.

* Others around you can't see me or hear me, but YOUR body feels me. I can

attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a

good mood, I can just cause you to ache all over. Remember when you and Energy

ran around together and had fun? I took Energy from you, and gave you

Exhaustion. Try to have fun now!

* I also took Good Sleep from you and, in its place, gave you Brain Fog. I can

make you tremble internally or make you feel cold or hot when everyone else

feels normal.

* Oh, yeah, I can make you feel anxious or depressed, too. If you have

something planned, or are looking forward to a great day, I can take that away,

too.

* You didn't ask for me. I chose you for various reasons: That virus you had

that you never recovered from, or that car accident, or maybe it was the years

of abuse and trauma.

* Well, anyway, I'm here to stay!

* I hear you're going to see a doctor who can get rid of me. I'm rolling on

the floor, laughing. Just try. You will have to go to many, many doctors until

you find one who can help you effectively.

* You will be put on pain pills, sleeping pills, energy pills, told you are

suffering from anxiety or depression, given a TENs unit, get massaged, told if

you just sleep and exercise properly I will go away, told to think positively,

poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry

to the doctor how debilitating life is every day.

* Your family, friends and co-workers will all listen to you until they just

get tired of hearing about how I make you feel, and that I'm a debilitating

disease.

* Some of them will say things like " Oh, you are just having a bad day " or

" Well, remember, you can't do the things you use to do 20 YEARS ago " , not

hearing that you said 20 DAYS ago. Some will just start talking behind your

back, while you slowly feel that you are losing your dignity trying to make them

understand, especially when you are in the middle of a conversation with a

" Normal " person, and can't remember what you were going to say next!

* In closing, (I was hoping that I kept this part a secret), but I guess you

already found out. . . * the ONLY place you will get any support and

understanding in dealing with me is with Other People With Fibromyalgia. ..

* Except the minority of us, who like me, have support from their immediate

family; some get it from their spouses, and then again.......sometimes, not!

* Others spend years explaining and re-explaining to siblings, children,

neighbors, and so on, only to find that they are really non-believers. And,

yes.....there are even

*medical professionals

* who don't believe I exist. But, I do..........and, one day they will see the

light. Some will even be afflicted.

* Now,.....YOU know *why* they call ME the *Invisible Disease!

*; and, if you don't yet because you are newly diagnosed, no doubt you will

encounter the disbelief and sarcasm sooner or later......so, brace yourself!!

* I am real.......I DO exist. At least, you, the afflicted, know this! You

feel the pain every day, with every breath.

* Your mission, if you choose to accept, is to seek the best medical care you

can find, because you are going to need it!! Stand up for yourself, and ignore

the non-believers. They are not afflicted nor are they affected by your pain and

anguish, so discard them, and move on to those who will help US.

* I guess you figured out, already......we're roommates......we're a team! We

might as well find a way to get along with each other.....somehow. I only wish

we could have met under better circumstances.

* In the words of *Sonny & Cher*, " I Got You, Babe! " "

+++++++++++++++++++++++++++++++++++++++

P.S.: it is true that today, there is no cure , but there is a lot of hope,

and lots of research being done. ''We are each of us Angels with only one wing

and can only fly embracing each other.''

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Being Sick Community

Message Archives-/messages

Chat:- Scheduled Chats at

/chat

Bookmarks:-

Add a website URL you have found useful.

/links

Personal Complaints or problems:-

Please contact a moderator

email: -owner

Subscription Details:-

1) Individual email - means that every email sent to the list you receive.

2) Daily Digest - sends you 25 messages in one single email for you to browse.

This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into groups at your

convenience and receive no email.

To modify your subscription settings please visit:-

/join

To subscribe or unsubscribe please email:-

-subscribe

-unsubscribe

This group is not intended to diagnose or treat illnesses. No one on this

group is qualified to diagnose medical conditions. If you feel you need medical

attention, seek the advice of a qualified physician.

~~~~ *** ~~~ *** ~~~ *** ~~~~

When nothing is sure, everything is possible.

--- Margaret Drabble

~~~~ *** ~~~ *** ~~~ *** ~~~~

------------------------------------------------------------------------------

[Guest guest]

No, sorry to say I didn't... It does sound just like us though doesn't

it...it was by Terri Been...

((( Hugs )))

Helen

helen did you write this? i would love to put this on my webpage....

sandra

[Guest guest]

My Name is Fibromyalgia

http://www.fms-help.com/mnif.htm

This short, classic article is an EASY way to explain fibro to someone

without using medical terms.

[Guest guest]

Thanks Dom for sending this. It is me to a T. You are a great help to FM patients. I feel like sending it to my doctor who still believes that after 42 years I can make it go away if I just do the right things he tells me to so. Funny I thought I had already tried them all. LOL

Beth Ingleston

My Name is Fibromyalgia

My Name is Fibromyalgiahttp://www.fms-help.com/mnif.htmThis short, classic article is an EASY way to explain fibro to someone without using medical terms.