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> Neurontin, if so what are your thoughts. I have been waking up

with

> headaches and a hung over feeling. Just curious what others

thought... I

Hello,

Yes,I was given Neurontin. I had severe tremors of my hands. They

would not stop shaking. It got me pretty scared. I had to stop it

because of it.

good luck

Jim

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Hi Jane,

I am taking Neurontin for the nerve pain. I take a relatively low dose

(300mg 2x a day), as it does make me feel a little out of it. I couldn't

live without it, though, as it relieves the nerve pain AND HEADACHES. I

am housebound anyway, so the spaciness(?) doesn't bother me much. It has

really decreased from when I first started taking it.

Hang in there and treat the sx as they pop up. You'll be ok. :-)

See you soon,

Joan LI NY

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> Neurontin, if so what are your thoughts. I have been waking up

with

> headaches and a hung over feeling. Just curious what others

thought... I

Hello,

Yes,I was given Neurontin. I had severe tremors of my hands. They

would not stop shaking. It got me pretty scared. I had to stop it

because of it.

good luck

Jim

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Guest guest

Hi Jane,

So sorry you have to suffer the pain of LD now too, I am on 1800mg of

Neurontin daily, it does help me with the nerve pain, I tried not taking it

to see what would happen, and I quickly restarted it and raised the dosage.

I think maximum dose is 2400mg. I have heard that others were very groggy,

almost drunk-like when they started this med, fortunately, I had no problem

with it. Hang in there I hear it passes.

Hugs,

Marta

From: jvspl@... <jvspl@...>

>Hi All

>A huge " UH OH! " here! Looks like I spoke too soon... I really thought I

had

>put the Lyme buggers to sleep after 8 mos of abx, however, it seems as

though

>that is not the case.

>My low grade fevers have returned along with the emotional roller

coaster...

>Here is the new twist... Originally all my symptoms were neuro ones...

Now

>it looks as though the " normal " Lyme joint aches and pain are now mine too

>)<:

>

>Even though I am quite upset right now, I will not let this get me down! I

>am taking Neurontin for sensory nerve issues. Anyone else out there on

>Neurontin, if so what are your thoughts. I have been waking up with

>headaches and a hung over feeling. Just curious what others thought... I

>know we are all different...

>

>Looking forward to meeting everyone next week.

>Take Care,

>Jane

>

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Guest guest

Hi Jane,

So sorry you have to suffer the pain of LD now too, I am on 1800mg of

Neurontin daily, it does help me with the nerve pain, I tried not taking it

to see what would happen, and I quickly restarted it and raised the dosage.

I think maximum dose is 2400mg. I have heard that others were very groggy,

almost drunk-like when they started this med, fortunately, I had no problem

with it. Hang in there I hear it passes.

Hugs,

Marta

From: jvspl@... <jvspl@...>

>Hi All

>A huge " UH OH! " here! Looks like I spoke too soon... I really thought I

had

>put the Lyme buggers to sleep after 8 mos of abx, however, it seems as

though

>that is not the case.

>My low grade fevers have returned along with the emotional roller

coaster...

>Here is the new twist... Originally all my symptoms were neuro ones...

Now

>it looks as though the " normal " Lyme joint aches and pain are now mine too

>)<:

>

>Even though I am quite upset right now, I will not let this get me down! I

>am taking Neurontin for sensory nerve issues. Anyone else out there on

>Neurontin, if so what are your thoughts. I have been waking up with

>headaches and a hung over feeling. Just curious what others thought... I

>know we are all different...

>

>Looking forward to meeting everyone next week.

>Take Care,

>Jane

>

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  • 3 months later...
Guest guest

for some reason I am only recieving empty pages as mail, no text. would

someone email me and tell me what i have done wrong! ACK!!! Pepi

rod@... ty

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  • 4 years later...
  • 3 months later...

Hi folks:

Just to say that today I jumped a small obstacle and landed

unexpectedly on ice, lost my footing and my right shoulder took the

full impact, landing on rock solid ice. Result: a clean break of the

humerus about an inch below the shoulder joint.

Typing one hand, left-handed, is time consuming until my left arm

and, probably more important, right brain get better trained. So I

will be lurking for the foreseeable future.

Fortunately my ability to read everyone's wonderful posts is not

impaired.

Rodney.

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Very sorry to hear about your mishap...

I don't know if this has been studied but perhaps you might want to eat 100% of

your

caloric estimate for maintenance at your current weight, at least until your

bones knit up.

I can't imagine a mechanism for CR helping bone healing, but concede this is

just speculation on my part.

JR

PS: You might take the opportunity to ask your doctor about your apparent bone

mass from

viewing the X-Ray images.

-----Original Message-----

From: Rodney [mailto:perspect1111@...]

Sent: Sunday, January 23, 2005 5:01 PM

Subject: [ ] Uh oh

Hi folks:

Just to say that today I jumped a small obstacle and landed

unexpectedly on ice, lost my footing and my right shoulder took the

full impact, landing on rock solid ice. Result: a clean break of the

humerus about an inch below the shoulder joint.

Typing one hand, left-handed, is time consuming until my left arm

and, probably more important, right brain get better trained. So I

will be lurking for the foreseeable future.

Fortunately my ability to read everyone's wonderful posts is not

impaired.

Rodney.

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  • 3 years later...
Guest guest

Hey !

He always does 3 pages of labs when he takes blood and the antibodies

are in there. I'm guessing that test was normal or he wouldn't have wanted

me to decrease. I increased on my own from 3 grains to 3.5 the week before

I went in based on symptoms. Since then which has been 2 weeks since I

stated on 1/2 grain more, I increased to 4 grains and feel a ton better. I

have had no heart palps or other hyper symptoms. I guess I will start

looking for research to take him that shows dosing by symptoms is what we

hashi's need:) I will call and request my labs to be mailed.

cw

-- Re: Re: Uh oh

Hi,

I can second the paragraph about Armour helping with Hashi's. I had lab work

done, and I have no sign of hashi's at the present time. My levels are

perfect, and I am feeling great! So, I am so greatful for Armour. Currently

taking 2 1/4 dose. No sign of antibodies.

Hang in there Crystal. Keep looking up. You may have to fight this one.

Have you had your antibody levels checked?

Hugs,

venizia1948 <nelsonck@...> wrote:

Chrystal,

I feel your pain. The following is a paragraph from

" stopthethyroidmadness " website. For the rest of it go to

stopthethyroidmadness.com, click on " causes of hypo " then click the

blue highlighted " Hashimoto's " You will get more info.

Venizia

HOW DO I TREAT IT? You treat Hashi's the same way you do just plan

hypothyroid–with thyroid medications. We have seen those on thyroxine

T4-only have some success in stopping the attack, but patients who

switched to Armour noticed even better results, especially if they

dosed by symptoms rather than labs. Some doctors have unwisely

recommended non-treatment until labwork " stabilizes " , but that could

take months and years, and you continue to suffer.

The attack can happen over a few weeks or extend into years. It has

been stated that antibodies can be present for years even after you

counter the attack with thyroid hormones like Armour. But patients on

Armour have noted that antibodies greatly fall if they dose high enough.

>

> My doc called and wants me to reduce my 3.5 grains of Armour to 3

even now I

> ve started on 4 based on symptoms. I do have hashi's and thought I was

> suppose to be dosed on symptoms. Can some one please remind me why

we dose

> by symptoms with hashi's. Gracias

> crystal

>

> " Aslan, " said Lucy, " you're bigger. "

> (Deep soft voice) " That is becuase you are older, little one, "

answered he.

> " Not because you are? "

> " I am not. But every year you grow, you will find me bigger. "

> ------ Lucy and Aslan in Prince Caspian

>

>

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you go girl. I had to have four grains too--from 90mg to 240mg in one week.

Gracia

Hey !

He always does 3 pages of labs when he takes blood and the antibodies

are in there. I'm guessing that test was normal or he wouldn't have wanted

me to decrease. I increased on my own from 3 grains to 3.5 the week before

I went in based on symptoms. Since then which has been 2 weeks since I

stated on 1/2 grain more, I increased to 4 grains and feel a ton better. I

have had no heart palps or other hyper symptoms. I guess I will start

looking for research to take him that shows dosing by symptoms is what we

hashi's need:) I will call and request my labs to be mailed.

cw

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