Phoenix Rising: Big CBT/GET Trial Published

[Guest guest]

Hitting its Paces? The biggest and the baddest CBT/GET study has finally arrived. The UK took their best shot at behavioral therapies for ME/CFS in their mult-million dollar, multi-center, multi-year, 600 plus patient PACE Trial. This, the biggest, most expensive and rigorous treatment trial for CFS ever, had taken years to plan; it's program alone was hundreds of pages long. The stakes were high. The big Belgian government funded CBT study to end all CBT studies failed miserably last year leading CBT advocates to sputter that the trial had not failed but that expectations were simply too high - as if a return to health was an unreasonable expectation.

Check out what happened in

A Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No Significant Effects

CDC Changing Its Tune? - One thing the CDC does not do is meet with patients but in an abrupt break with past history, the new Chief of the CDC's CFS research program, Dr. Unger agreed to meet with ME/CFS reps to discuss concerns about the CDC's CFS program. Her predecessor Dr. Reeves had refused several efforts by patient reps to meet. The meeting was prompted by a collective effort by 11 patient advocacy organizations - lead by PANDORA - to marshall their forces to produce change at the CDC. Check that startling step out in

CDC Chief Unger Pledges to "Restore Trust" - Agrees to Meet with ME/CFS Reps

Five Star Treatment Book - Another treatment book I thought…….Dr. Teitlebaum's books had pretty comprehensively covered the waterfront for me on that end. What more could a patient authored book offer? It turns out - a lot. This reference manual on pharmacological treatments for CFS was an eye-opener. See the author talk about the book and her experiences on low-dose naltrexone

Reviving the Broken nette: A treatment manual for CFS and Fibromyalgia

A Buddhist - On CFS - Toni Bernhardt is a Buddhist who has CFS. In How to Be Side: A Buddhist Inspired Guide to CFS, Toni relates how Buddhistic teachings have helped her carve satisfaction and love in a life that would, judging from its circumstance, offer little of either. Check out the first installment in a series of blogs as I work my way through the book.

In the Dragon's Jaws - How to Be Sick #!

Plus this just in. CBS Nightly News on CFS! - Reports are that Couric will be doing a piece on CFS and the PACE trial with Dr. Klimas and others tomorrow night on CBS and that an exciting study finding will be announced as well. Cross your fingers! Check that out here.

-- Cort Phoenix Rising (www.aboutmecfs.org)The Phoenix Rising Forums (forums.aboutmecfs.org)The Bringing the Heat blog (blog.aboutmecfs.org)Proud to be allied with the ME-CFSCommunity Center (me-cfscommunity.com)-- Cort Phoenix Rising (www.aboutmecfs.org)The Phoenix Rising Forums (forums.aboutmecfs.org)The Bringing the Heat blog (blog.aboutmecfs.org)Proud to be allied with the ME-CFSCommunity Center (me-cfscommunity.com)