Cancer

[Guest guest]

In a message dated 11/23/2004 9:05:14 AM Central Standard Time, campolo3@... writes:

Is this the right group for those who use LDN for cancer?

Hi Lou, YES, it is the right group for anyone interested in LDN. There are lots of us here with MS, but we're supposed to try to stay on the LDN topic and not overburden the group with MS talk. Please forgive us if we sometimes get carried away and talk too much about just MS. I know we have others with Krohn's Disease, Parkinson's and other...I believe some with Cancer as well, so hang in and you'll see some of those reply now, I think.

You and I will just have to ride out the wait to get our mail in Daily Digest form--it's a big email with 25 messages but at least it doesn't overwhelm the inbox.

Welcome!

Daphne

[Guest guest]

It seems that any change regarding the group settings can take 1-2 weeks

before it goes into effect.

-----Original Message-----

From: Lou Campolo [mailto:campolo3@...]

Sent: Tuesday, November 23, 2004 9:55 AM

low dose naltrexone

Subject: [low dose naltrexone] Cancer

My best wishes to all of you who are doing so well with LDN for MS.

However, my wife has pancreatic cancer and I've been giving her LDN for

a few weeks now and it just may be helping! Is this the right group for

those who use LDN for cancer? I've read a lot of posts and so far have

found none dealing with cancer.

Also, even though I do want to read the messages regularly, I don't want

them ALL going to my email account! I've tried several times to change

my account to not receive emails, but no matter what I've done, I still

get them. I even left the group and re-joined with the same result.

What am I doing wrong?

Thanks,

Lou

[Guest guest]

I am so glad your wife is doing better - and YES this is the right

group. I know we sometimes get all caught up with MS - but it really

is a LDN group - for all diseases. Good news is always appreciated.

Can't help with your email problem. I have my account set to never

get email - I just check the site when I can - and it works for me.

Hopefully you will get it worked out, and again - wonderful news.

Thanks for posting it - Cinders

[Guest guest]

I go to " Edit My Membership " in the upper right-hand corner of the blue area

towards the top of the forum and click to come and read the board, this way no

emails come to my inbox and I can read what I want.

Here are links to cancer posts that might be of interest to you.

Low Dose Naltrexone Forum - A link to a post about a cancer patient & LDN

http://ldn.proboards3.com/index.cgi?board=forum & action=display & num=1100473004

============

Low Dose Naltrexone Forum - My mom has scheduled a phone consult. w/Dr. Bihari

http://ldn.proboards3.com/index.cgi?board=forum & action=display & num=1085983361 & st\

art=0

============

Low Dose Naltrexone Forum - cancer and ldn & 's mom and cancer

http://ldn.proboards3.com/index.cgi?board=forum & action=display & num=1100117507

[Guest guest]

Guys,

3 close family members have cancer. And

was wondering if anyone has any recommendations.

Thanks.

Larry

[Guest guest]

Make sure they research all the available treatment options for their specific disease to ensure they are getting the best possible therapy.

On 6/23/05, ilson_il <ilson@...> wrote:

Guys,3 close family members have cancer. Andwas wondering if anyone has any recommendations.Thanks.

Larry

[Guest guest]

Diane; I think it is misleading to say: " cancer is not a death sentence "

(carte blanche) . It " need not " be a death sentence for many. But there

are still people with terminal cancers who will die of their disease (unless

some miraculous cure is discovered) . It is heartening to hear about Jay

Gould, but he is in the minority if he survived a cancer with poor survival

rates (which means most, not all, people with that type of cancer die from

it).

I personally know several people with terminal cancer and have lost some -

most recently a 37 year old friend of the family who succumbed to breast

cancer last year.

Sorry if I'm being morbid - not my intent.

on 6/23/2005 12:27 PM, Diane Walter at dianepwalter@... wrote:

> Larry,

> From personal experience, I concur with that your relatives do

> *a lot* of research on treatment. And Rodney is correct - cancer is

> not a death sentence. In fact, Harvard evolutionary theorist

> Jay Gould survived mesothelioma, a cancer with very poor survival

> statistics. In his book, " Full House " , he explains how statistics can

> be very misleading. A good attitude and **lots** of information are

> both very important weapons in the fight against cancer.

>

> Diane

[Guest guest]

> It is heartening to hear about Jay

> Gould, but he is in the minority if he survived ....

Actually, he died in 2002 of his disease.

Tom

[Guest guest]

I think it doesn't print out the futility of cancer as much as the futility of determining the right nutrition. Last count I think I had over 1000 herb chemicals supposedly good for cancer. I can tell you when your PSA is high and your doc starts weasel-wording everything you get concerned.

Best to get as much info as possible to discuss things intelligently with the doc.

It's like sitting in a tree and a snake crawls in your lap. He won't hurt you, but you might hurt you getting out of that tree.

Regards.

----- Original Message -----

From: Francesca Skelton

Sent: Thursday, June 23, 2005 12:01 PM

Subject: Re: [ ] Re: Cancer

Diane; I think it is misleading to say: "cancer is not a death sentence"(carte blanche) . It "need not" be a death sentence for many. But thereare still people with terminal cancers who will die of their disease (unlesssome miraculous cure is discovered) . It is heartening to hear about JayGould, but he is in the minority if he survived a cancer with poor survivalrates (which means most, not all, people with that type of cancer die fromit).I personally know several people with terminal cancer and have lost some -most recently a 37 year old friend of the family who succumbed to breastcancer last year.Sorry if I'm being morbid - not my intent.on 6/23/2005 12:27 PM, Diane Walter at dianepwalter@... wrote:

[Guest guest]

Hi Larry:

What is your question? What kind of suggestions, dear? With three family

members with cancer, you must have many questions, and much uncertainty...

Below is my first response...

I am a cancer survivor. If I had to do it all over again (ha Ha), there are

some thighs that I would do a bit differently.

For the cancer patient:

_____________________

1. I had a biopsy & went to the appt alone to get the results. I recommend

that anyone take their closest friend & defender (not necessarily a

spouse...) or someone with a medical background. The original shock did

prevent me from asking some questions...

2. Carry around a small notebook to write down questions.

3. Immediately check the Internet & library for books by real people who

have had that kind of cancer. I found an online breast cancer group that was

full of good information, but only after my second surgery. I wish it had

been sooner.

4. Take someone along for every appointment, even it seems to be minor. Take

the question notebook. Write down instructions, etc.

5. *** Ask for Xerox copies of all tests, procedures, and office visits. ***

The treatment center lost my records - I did have backup!!

6. Seek out and religiously attend a support group. For breast cancer

survivors, attendance at a monthly meeting for one year equals three years

more life... You would take your vitamins if the survival stats were that

good!!

7. Walk - get outside & get your vitamin D. I have access to 140 acres - a

good place to pray, fight with God, lie in the snow, & throw a temper

tantrum, and later to express heartfelt gratitude. Find a walking buddy -

someone to go with you,,, maybe they'll walk one direction & you another,

and maybe some days you'll walk together.

8. Pick up a portable hobby. I crocheted a queen-sized afghan while waiting

in hospital corridors. I also did crossword puzzles. I saw some folks doing

small paint by the numbers projects.

9. Be gentle with yourself. Get a good manicure (guys too!!), buy yourself

roses or your favorite fruit. Look for the small treasures in everyday life.

Celebrate every possible occasion - birthdays, sunrises, sunsets, haircuts,

and arrival of the mail... a luncheon with friends, meaningful work, new

mown grass Write these down in your gratitude journal every day.

10. If the cancer has a proven genetic link (i.e. breast cancer), write

relatives & ask if they would like the official medical diagnosis, etc. for

their family medical records. Most women in my family wanted the two

paragraphs write up that the Dr. gave me. I sent it on a separate page

inside the Christmas card!

11. Some people may distance from you as their way of handling your cancer.

Write those folks & let them know you appreciate the distance that have

given you, and you treasure them in your heart. Learn to listen to them...

One may ask, " Well, you seem ok, aren't you? " and another may ask " well, how

are you getting along with that cancer thing? " Answer as you audience can

tolerate.

12. Yes, you may live or you may die... So much more so the reason to do it

well. If you live, you have just had a dress rehearsal, and you will have

the opportunity to write an e-mail like this one day. If you die, you will

have lived your best.

For the cancer patient family member:

_____________________

1. I apologize now fore very cross word, every outburst, every scream and

every unprovoked tear, It is not you, and not even this disease. It is that

I can no longer pretend that everything is ok, and I am seeing my self as I

really am. This has made me raw, and fresh, like tearing back the skin with

a concrete burn. That is the way I am all over, and all inside. I will make

a contentious choice to give you all the good I can, and to be honest with

you about the bad.

2. You may feel like there is someone else in the relationship now. There

is, of sorts..

3. I do not expect you to be my nursemaid. I hope we can respect and

treasure each other through these circumstances.

4. As much as you can, be normal. We all need the everyday stuff to be the

frame for our lives.

5. Talk to me, and talk to a professional.

6. Come with me when you want to.

7. Ask the hard questions.

8. Take care of yourself!! I care for yor deeply - my investment in your

life is something that I treasure.

9. I want to see you really living. It gives me hope for the future.

Marsha S Finley

-----Original Message-----

From:

[mailto: ]On Behalf Of ilson_il

Sent: Thursday, June 23, 2005 11:04 AM

Subject: [ ] Cancer

Guys,

3 close family members have cancer. And

was wondering if anyone has any recommendations.

Thanks.

Larry

[Guest guest]

Hi Marsha:

In regard to this particular point, let me say that often the reason

for the 'distancing' is that they do not know how to handle the

situation. The cancer patient's friend's immediate thought is that

they do not want to do, or say, the WRONG thing. So doing or saying

nothing seems the safest course.

Which is why input like yours can be so helpful for the person who

needs help to know how to respond appropriately to their friend with

cancer.

Rodney.

> 11. Some people may distance from you as their way of handling your

cancer.

> Write those folks & let them know you appreciate the distance that

have

> given you, and you treasure them in your heart. Learn to listen to

them...

> One may ask, " Well, you seem ok, aren't you? " and another may

ask " well, how

> are you getting along with that cancer thing? " Answer as you

audience can

> tolerate.