Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 Larry, that was a friend of mine. I don't care what she says, almost died! I saw her at the pool class in June and she was so happy she told me she did not have MS anymore. The only difference is she does not take Rebif anymore. She always walked and started to have some walking problems when she decided to do this treatment. She has not regained bladder and bowel control either. We could not understand why she was so excited except for the fact that she no longer injecting a CRAB. I tried and so did another friend to tell her to try LDN before she had the chemo because the end results were the same except the "almost dying" part. She felt this was a free trial and LDN costs money. Some people are just stupid! She is a lovely woman, just not too bright! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 There was just a news story about MS on WNBC NY News. It's about a cancer treatment that they're using on people who've had bad luck with 2 of the CRABs and keep getting worse. Of course, the side effects can include DEATH, but what the hey. Anyway, Dr. Max Gomez did the story. This is his page on the web: http://www.wnbc.com/drmaxgomez/index.html healthnews@... is the email address you can write to if you would like to tell them about Your experiences with LDN. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2004 Report Share Posted August 30, 2004 > Larry, that was a friend of mine. I don't care what she says, > almost died! I saw her at the pool class in June and she was so happy she told me > she did not have MS anymore. The only difference is she does not take Rebif > anymore. She always walked and started to have some walking problems when > she decided to do this treatment. She has not regained bladder and bowel > control either. We could not understand why she was so excited except for the fact > that she no longer injecting a CRAB. I tried and so did another friend to > tell her to try LDN before she had the chemo because the end results were the > same except the " almost dying " part. She felt this was a free trial and LDN > costs money. Some people are just stupid! She is a lovely woman, just not too > bright! ================ Cytoxan was one of the 3 combination chemo drugs that they were planning on giving my mom as a breast cancer preventative since my mom was hormone resistant. My mom refused chemo and chose to do 4.5mg of LDN and radiation only. So far, so good. I feel the radiation was un-necessary and my mom did too but to keep the rest of the family from having us both declared incompetent, my mom did the radiation. Our phone consultation with Dr. Bihari convinced my mom to refuse the chemo. We faxed Bihari all of my mom's medical records and the plan drawn up for the chemo. I am so glad my mom refused the chemo. And after reading the update on Susie Sedlock's dad's cancer blood test being indicative of remission after him refusing chemo and radiation and only using 4.5mg of LDN for Multiple Myeloma bone cancer, I know my mom made the right choice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 When I felt that I was getting worse, I did 2 years of cytoxin - one infusion - one day per month. I just sent this longer treatment protocol to my neurologist to see what he thinks. I'll let you know what he says. ps. I felt better - and didn't die. Bestaunt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Mona, this was not the same treatment you had.. They killed her immune system and then brought her back to life. She was in the hospital for a month . She could not have visitors because of infection fear. It was all done at once, not spread out. She lost all her hair and believe me, all her old problems are still with her. She is just thrilled that she does not have to inject. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 How horrible - my treatment was a breeze. I did hear from my neurologist and he said this intensive treatment is done in acute situations only. Mona Quote Link to comment Share on other sites More sharing options...
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