Re: Questions???

August 31, 2001

> Hi, my son will be 3 next month, and is nonverbal. He has been gf/cf

> for about 5 months. After about 1 month he stopped spinning wheels,

> himself, lining objects up, and he started sleeping through the

> night. We started the enzymes about 3 weeks ago he is more active,

> more vocal, stims more, poops are better. We introduced

gluten/caisen

> back little bit 1 week ago now he has trouble sleeping through the

> night again! Wondering if the enzymes aren't working for

> gluten/caisen, or is this just withdrawls and will tapper off? Any

> help would be appreciated. Thank you, Malinda (Texas)

Can be two things that I can think of --

1. Milk is high phenols, and sleep issues can be related to high

phenols. So if your son has phenol issues, the enzymes might be

helping with the milk/casein issue but not the phenol issue. Here is

more information on that.

http://home.pacbell.net/cscomp/phenol.htm

2. My kids appear to be also celiac. This means the enzymes help to

fully digest the glutens, but they do not help with the " poison "

effect of the gliadin component of the gluten. My son was gfcf for 18

months, then I started enzymes, then I re-introduced gluten one meal

per day, and by two weeks I saw regression. If this is true for your

son, you would still have to be gf, and possibly also cf. But these

enzymes do help my kids with many other of their food issues. Here is

more information on celiac.

http://www.celiac.com/index.html

To test which [if any] of these ideas would qualify for your son, keep

giving enzymes but remove the gluten and casein for 1-2 weeks. Then

add back casein and see if your son starts waking in the night etc.

This way, you will know if it is the casein. If you find it is the

casein, it is probably a phenol effect, but not necessarily. Remove

the casein and wait a week, then add back just the gluten and see if

you see waking and/or regression. If so, then you will know it is

gluten, and you should consider celiac. You can also consider a

celiac test, but you would have to give gluten every day, without

enzymes, for two months before the test would be valid.

Dana

October 23, 2001

Lori,

I'm confused. Do you mean you bought the Peptizyde to use with the

DPP-IV Forte? The Peptizyde already includes DDP-IV, so you would

use it alone. Or, do you mean you bought the Complete with DPP-IV

Forte also and plan on trying the Peptizyde, then go off and try the

Complete with DPP-IV (or vice versa) in order to compare products?

The DDP-IV was intended to be used with the Complete if you are

intending to have both gluten and casein infractions.

So, I think for your purposes, you should be using either Peptizyde

or Complete, not Peptizyde with the DPP-IV Forte.

> Hi,

>

> After lurking for a while and reading several posts, I have decided

> to try my daughter on enzymes again. I have ordered the peptiztde

> from houstonni as well as DPP-IV Forte from Kirkmans. We have been

> GFCF for almost 3 years now and have tried Serenaid and Enzyme Aid

in

> the past to no avail. She has always complied with the GFCF diet

with

> not many problems (occasional cheating in the beginning). Now that

> she is 10 and aware of her dietary differences she has once again

> began cheating. We don't see major changes in her now when she

does

> cheat like we use to. I can always tell however because she just

> seems a little off, distracted, a little more angry, tempermental,

> etc. and usually when I ask her she confirms my suspensions.

> Anyway, I made a deal with her that if she would not cheat for 3

> weeks we would try the enzymes and see if she could tolerate the

> occasional GFCF treat. The catch being that she would have to take

> them with every meal (she hates pills). She agreed.

>

> Any way my question, I want to build her up slowly on these because

> she does have mold issues. What dosage plan should I use? She is

10

> years old and weighs about 69 pounds. Is 3 weeks enough to build

her

> up to a safe dosage?

>

> If these work well I do plan on trying the Zyn-Prime as well

because

> I know she has other food issues that I haven't been able to

> pinpoint.

>

> Thanks for any input.

>

> Lori

October 23, 2001

I think I messed up. In my investigation into several different

enzymes, I think I got my research crossed. I got the pep today. So

I will begin using it today and see what happens. If it doesn't work

for us I will get the complete and try it with the DPP-IV forte.

It's all so confusing as to what is what. As you can see I am very

new to the enzyme game.

Thanks for the info.

Lori

> > Hi,

> >

> > After lurking for a while and reading several posts, I have

decided

> > to try my daughter on enzymes again. I have ordered the

peptiztde

> > from houstonni as well as DPP-IV Forte from Kirkmans. We have

been

> > GFCF for almost 3 years now and have tried Serenaid and Enzyme

Aid

> in

> > the past to no avail. She has always complied with the GFCF diet

> with

> > not many problems (occasional cheating in the beginning). Now

that

> > she is 10 and aware of her dietary differences she has once again

> > began cheating. We don't see major changes in her now when she

> does

> > cheat like we use to. I can always tell however because she just

> > seems a little off, distracted, a little more angry,

tempermental,

> > etc. and usually when I ask her she confirms my suspensions.

> > Anyway, I made a deal with her that if she would not cheat for 3

> > weeks we would try the enzymes and see if she could tolerate the

> > occasional GFCF treat. The catch being that she would have to

take

> > them with every meal (she hates pills). She agreed.

> >

> > Any way my question, I want to build her up slowly on these

because

> > she does have mold issues. What dosage plan should I use? She

is

> 10

> > years old and weighs about 69 pounds. Is 3 weeks enough to build

> her

> > up to a safe dosage?

> >

> > If these work well I do plan on trying the Zyn-Prime as well

> because

> > I know she has other food issues that I haven't been able to

> > pinpoint.

> >

> > Thanks for any input.

> >

> > Lori

October 13, 2003

My husband who is 46 now has vision loss in one of his eyes because his first

surgery wasn't till he was 4. Glasses or contacts do not correct his vision.

My daughter had surgery when 4 mo. just to raise her eyelid up so she could

see out.

This surgery needs to be done early as possible so as to avoid vision loss

permanently and also if one side is worse than the other, one eye will become

stronger and take over the other eye and become dominant and one eye will stay

weaker if not corrected as in my husband's case, when technology was not what

it is today.

October 13, 2003

I didn't have my first surgery until i was 5 yrs. old and i have no neck

problems at all. I've been told that the eyelid has to be so far above the

pupil in order for the child to learn to see the correct way. The reason my

youngest had surgery when he was a baby was because you could hardly see any

of his pupil. They lifted them just enough so he would learn to see

correctly. At least they said they lifted them enough. He has such poor

vision now it makes me wonder if they waited too long to lift them in the

first place. Even the surgery they do at age 5 isn't the one where they

raise the eyelids. At least not on me or my 2 kids. We have to wait 4 to 6

months after they do the corners of the eyes before they do the ptosis

surgery.

August 29, 2004

HEY AS A FELLOW MSer MAYBE I CAN HELP E-Mail me if you want to

over twenty years experience!

regkreil@...

-------Original Message-------

From: low dose naltrexone

Date: 08/29/04 13:32:10

low dose naltrexone

Subject: [low dose naltrexone] Questions???

I find myself having a lot of questions lately, about having MS, that are not related to LDN. Can anyone suggest a good online forum? Thank you.

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

August 30, 2004

Have you tried the Histamine, LDN etc Message Board?

http://disc.server.com/Indices/148285.html

If you go to the bottom of that Front Page you can do a search on

any MS related or therapy words and read whatever may have been

discussed on that subject.

> I find myself having a lot of questions lately, about having MS,

> that are not related to LDN. Can anyone suggest a good online

> forum? Thank you.

>

January 22, 2006

Peg, me too.

I am extremely sensitive to meds as well. The side effects are worse

than the condition. Extremely frustrating when trying to fight a

debilitating illness. I have to choose between being in bed all day

with RA flares or being in bed all day with sickness from MTX or

allergies to the biologics. NSAIDS are simply a joke to the level of

RA I have. 1000 mg means nothing to it and the higher the dose the

more the risk. Prevacid and the like did not help me. However, ask

your doc about the meds specifically for MTX to help with stomach

upset. I will try to get the name. I was given those. Can't tell you

if it works because was taken off the MTX after liver scare. A real

catch 22 but keep trying to find the right therapy because RA is not

very nice.

take care,

ebony

January 22, 2006

I had the same problem. Constant nausea, diarrhea, vomiting. I

finally had to quit...it was more trouble than the little bit of help

I was getting from it. I basically slept on the bathroom floor for

months!!! Even with large doses of folic acid (5mg daily) and

Leukovorin I got no relief. I even swtiched from pills to injections

and still no relief. Methotrexate is a drug that either you love or

you hate!!!

My doc told me that if I switched to injections the GI side effects

would go away because it was not going though the GI tract. He

lied...because it has an affect on all mucous membranes...it still

can affect you...though most say the effects are lessened.

The side effects for me were horrible!!!! Besides the GI stuff I had

sores over every mucous membrane in or on my body...eyes, mouth,

throat, genitalia...EVERYWHERE!!!! None of the drugs they prescribed

to combat the the side effects did anything for me. Then I also had

drug induced pneumonitis...which can be fatal if left untreated or

can do permenent damage to your lungs. I was lucky the damage healed

with no permenent problems. However my rheummy ignored me for weeks

when I complained of dry hacking cough...when it reached the point

that I could not talk or eat due to the constant coughing...and my

ribs were all bruised up...I went to see my PCP and he immediately

stopped the drug...He and the rheummy had it out.

I no longer have that quack doctor...he moved to Dallas and it

messing up people there.

I do take Nexium or Prilosec when I have to take NSAIDS to protect my

stomach. I am not suppose to use them due to the fact that I am post

op weight loss surgery (lapband) but they are a necessity at times.

The Nexium or Prilosec does help a lot...I try not to take NSAIDS for

more that a day or two at a time. I just tough it out.

Toni

>

> Hey to all,

> I was having trouble with the anti-inflammatory I am taking. It

is hard on my stomach, so the dr suggested taking prilosec or pepto

along with it. That helps some, but I still have a hard time with it.

Now I am having the same problem with the methotrexate. Is this

common?? Anyone else having trouble digesting meds? I have been

taking metx since Oct 10mg a week. It helps me, but now do I have to

worry about staying close to the bathroom????? Any help is

appreciated, thanks Peg

>

> ---------------------------------

> Autos. Looking for a sweet ride? Get pricing, reviews, &

more on new and used cars.

>

January 22, 2006

Leukovorin is what is commonly given to combat side effects. Its

usually take the day of or the day after the MTX dosage. Leukovorin

is also used to enhance certain types of chemo...My grandmother had

colon cancer and she took Leukovorin which ran in her chemo pump(like

an insulin pump) for 24 hrs before she started her next week of

chemo. The chemo pump ran 24/7...so they are able to use lower doses.

Leukovorin, did nothing for me...stopping MTX was the best option for

me. I was tired of living life on the bathroom floor! LOL

Toni

>

> Peg, me too.

>

> I am extremely sensitive to meds as well. The side effects are

worse

> than the condition. Extremely frustrating when trying to fight a

> debilitating illness. I have to choose between being in bed all

day

> with RA flares or being in bed all day with sickness from MTX or

> allergies to the biologics. NSAIDS are simply a joke to the level

of

> RA I have. 1000 mg means nothing to it and the higher the dose the

> more the risk. Prevacid and the like did not help me. However,

ask

> your doc about the meds specifically for MTX to help with stomach

> upset. I will try to get the name. I was given those. Can't tell

you

> if it works because was taken off the MTX after liver scare. A

real

> catch 22 but keep trying to find the right therapy because RA is

not

> very nice.

>

> take care,

>

> ebony

>

January 22, 2006

Hi Peg,

I don't know which NSAID you are on, but I take diclofenac (Voltaren)

and my doctor encouraged me to go back on Prevacid too. I know I can't

take it on an empty stomach, or it will come right back up! As long as

I've eaten something first, there's no problem, and the doc said she

feels the Prevacid will keep me from having problems (I do have reflux.)

Good luck!

Judi

January 25, 2006

Hi Judi,

Thanks for the info. I am taking Daypro (oxyprozen?) I have cut the dose down

to 600mg instead of 1200. I am eating tums like candy, but the lower dose and

the tums and the fact that I don't let my stomach get too empty are helping.

Even though the lower dose means less relief, I can deal with that more than the

upset stomach. Thanks again for the info. Peg

nonny46 <nonny46@...> wrote:

Hi Peg,

I don't know which NSAID you are on, but I take diclofenac (Voltaren)

and my doctor encouraged me to go back on Prevacid too. I know I can't

take it on an empty stomach, or it will come right back up! As long as

I've eaten something first, there's no problem, and the doc said she

feels the Prevacid will keep me from having problems (I do have reflux.)

Good luck!

Judi

January 25, 2006

Hi Ebony,

Thanks for the info. I am trying to only take 600mg of NSAIDS and wash them

down with a bottle of tums . It has helped a little. I am trying different

antacids to help with the stomach restlessness. So far that is helping with the

stomach issues, but by cutting down on the nsaids, I don't seem to get as much

relief. I will keep trying until I find something that works. Thanks again,

Peggy

stillbreathing29 <stillbreathing29@...> wrote: