Re: my goodness, where is everyone? NT

[Guest guest]

I have been wondering the exact same thing! Have we run out of things to talk about? Or are a good many living in Florida? If you're in Florida, my thoughts and prayers are with you!

Marcie

[Guest guest]

Kathy,

I did BVT for a year. I stopped recently because the woman who was catching the bees for me was attacked, and understandably, her family doesn't want her to do this anymore. All of the local hives, wild and domesticated, have been mixed with the Africanized bees. (I am in West Texas) During the year that I was stinging, I never had a UTI. I don't think that the stings would cause them though. I am doing fine without BVT. LDN and a few supplements only is all that I am doing. I do believe the BVT was helpful for me, but I think LDN has stopped progression of my MS. I think it was Cinders who said it earlier that she was no worse and maybe a little better. That is a very good way to sum up how I feel on LDN.

Marcie (PPMS)

In a message dated 9/10/2004 6:53:09 PM Central Standard Time, kathybreiner@... writes:

Marvie,

I also am doing bee stings and keep having UTIs and am

wondering if the bee stings are causing the UTIs. I

have never heard of this before. I am also taking LDN but I am taking 6.5 mg. Anything less makes me

[Guest guest]

Thanks Marcie.

I did evacuate for 6 days - but I agree, where is everyone?

Are you OK Carol? Tom?

Bestaunt (Mona)

[Guest guest]

Hi all,

I'm here too, and wondering if everyone is just lurking,rather than

posting. It's been so quiet! Usually I get three or four LDN

messages daily, and now if I get one I'm lucky.

I just got my upped dosage of 4.5 today....hopefully that will

straighten things out...we'll see. I do notice that with the little

bit more, I'm having more feeling in my feet---actually pain, because

I'm walking differently---also because I am not having pain in my

knee, from a cortisone shot that is suppose to hold me until my

surgery!

Pam

[Guest guest]

I don't have much to say about LDN that hasn't been said, and am a bit reluctant to bring up off topic subjects lest I receive a beating... I'm not sure where the pendulum is right now on the off topic issue. Sometimes the group welcomes off topic discussions; sometimes the person bringing up a new topic gets smacked around a bit. The pendulum swings from one side to the other.

I also hope our friends in Florida are OK.

JT

----- Original Message -----

From: pamridge49

low dose naltrexone

Sent: Friday, September 10, 2004 4:09 PM

Subject: [low dose naltrexone] Re: my goodness, where is everyone? NT

Hi all,I'm here too, and wondering if everyone is just lurking,rather than posting. It's been so quiet! Usually I get three or four LDN messages daily, and now if I get one I'm lucky.

[Guest guest]

I LOVE " OFF TOPICS " . SURE BEATS WAITING AROUND FOR " IVAN " .

BESTAUNT

[Guest guest]

What are UTI's? I did BVT for over 2 years faithfully without positive results.

Original Message -----

From: marciemjm@...

low dose naltrexone

Sent: Friday, September 10, 2004 9:01 PM

Subject: Re: [low dose naltrexone] my goodness, where is everyone? NT

Kathy, I did BVT for a year. I stopped recently because the woman who was catching the bees for me was attacked, and understandably, her family doesn't want her to do this anymore. All of the local hives, wild and domesticated, have been mixed with the Africanized bees. (I am in West Texas) During the year that I was stinging, I never had a UTI. I don't think that the stings would cause them though. I am doing fine without BVT. LDN and a few supplements only is all tha t I am doing. I do believe the BVT was helpful for me, but I think LDN has stopped progression of my MS. I think it was Cinders who said it earlier that she was no worse and maybe a little better. That is a very good way to sum up how I feel on LDN. Marcie (PPMS) In a message dated 9/10/2004 6:53:09 PM Central Standard Time, kathybreiner@... writes:

Marvie, I also am doing bee stings and keep having UTIs and am wondering if the bee stings are causing the UTIs. I have never heard of this before. I am also taking LDN but I am taking 6.5 mg. Anything less makes me

[Guest guest]

UTI = urinary tract infection, very common in people with neurogenic bladders that do not empty completely

can be lifethreatening if the infection spreads to the kidneys and/or becomes systemic

-------------- Original message --------------

What are UTI's? I did BVT for over 2 years faithfully without positive results.

Original Message -----

From: marciemjm@...

low dose naltrexone

Sent: Friday, September 10, 2004 9:01 PM

Subject: Re: [low dose naltrexone] my goodness, where is everyone? NT

Kathy, I did BVT for a year. I stopped recently because the woman who was catching the bees for me was attacked, and understandably, her family doesn't want her to do this anymore. All of the local hives, wild and domesticated, have been mixed with the Africanized bees. (I am in West Texas) During the year that I was stinging, I never had a UTI. I don't think that the stings would cause them though. I am doing fine without BVT. LDN and a few supplements only is all tha t I am doing. I do believe the BVT was helpful for me, but I think LDN has stopped progression of my MS. I think it was Cinders who said it earlier that she was no worse and maybe a little better. That is a very good way to sum up how I feel on LDN. Marcie (PPMS) In a message dated 9/10/2004 6:53:09 PM Central Standard Time, kathybreiner@... writes:

Marvie, I also am doing bee stings and keep having UTIs and am wondering if the bee stings are causing the UTIs. I have never heard of this before. I am also taking LDN but I am taking 6.5 mg. Anything less makes me

[Guest guest]

Matcie,

I get my bee sent to me from Calif. Ilive in

Coloradp.

If you can someone to sting you. I order my bees from

s bee ranch 530-221-1458 U also got a bee condo

from a lady whose had designed it, he had MS Ed

recommened it. Anyway hope that helps. Take care,

Kathy

--- jmlrussell@... wrote:

> UTI = urinary tract infection, very common in people

> with neurogenic bladders that do not empty

> completely

> can be lifethreatening if the infection spreads to

> the kidneys and/or becomes systemic

>

> -------------- Original message --------------

>

> What are UTI's? I did BVT for over 2 years

> faithfully without positive results.

> Original Message -----

> From: marciemjm@...

> low dose naltrexone

> Sent: Friday, September 10, 2004 9:01 PM

> Subject: Re: [low dose naltrexone] my goodness, where

> is everyone? NT

>

>

> Kathy,

>

> I did BVT for a year. I stopped recently because the

> woman who was catching the bees for me was attacked,

> and understandably, her family doesn't want her to

> do this anymore. All of the local hives, wild and

> domesticated, have been mixed with the Africanized

> bees. (I am in West Texas) During the year that I

> was stinging, I never had a UTI. I don't think that

> the stings would cause them though. I am doing fine

> without BVT. LDN and a few supplements only is all

> tha t I am doing. I do believe the BVT was helpful

> for me, but I think LDN has stopped progression of

> my MS. I think it was Cinders who said it earlier

> that she was no worse and maybe a little better.

> That is a very good way to sum up how I feel on LDN.

>

>

> Marcie (PPMS)

>

>

>

> In a message dated 9/10/2004 6:53:09 PM Central

> Standard Time, kathybreiner@... writes:

>

>

>

> Marvie,

> I also am doing bee stings and keep having UTIs and

> am

> wondering if the bee stings are causing the UTIs. I

> have never heard of this before. I am also taking

> LDN but I am taking 6.5 mg. Anything less makes me

>

>

>

>

>

>

[Guest guest]

Hi Mona,

We also evacuated for a few days. We came back yesterday after " Ivan "

changed course.

All is well.

Regards,

Tom

----- Original Message -----

From: <BESTAUNT@...>

<low dose naltrexone >

Sent: Friday, September 10, 2004 5:25 PM

Subject: Re: [low dose naltrexone] my goodness, where is everyone? NT

> Thanks Marcie.

> I did evacuate for 6 days - but I agree, where is everyone?

> Are you OK Carol? Tom?

> Bestaunt (Mona)

>

>

>

>

>

[Guest guest]

Hi Mona!

How are you? I hope everything is going ok for you. How is your project

doing?

Honestly, I am so tired of the NMSS society. At least here, only the

volunteers

seem motivated to help people. The staffies only seem to want to put on the

same old programs/meeting regardless if it does anything for MS'ers. The

meetings

are usually very quiet, some polite questions, and then after the meeting

the attendees

get together and try to help one another.

This really came home for me after I attended a Muscular Dystrophy event

with my

neighbor who has this disease. Even the telethons are such great fund

raisers and

do such a spectacular job of not only raising funds for research but put

this disease

in the national spotlight. I wrote NMSS and asked them why they didn't do

something

like this and all I got back was a message saying they wouldn't because

they are so

expensive...then asking me if I wanted to volunteer to be a local fund

raiser. Oh well...

I really am anxious and hopeful to hear about progress on your project.

Best of luck. You have never been out of my mind.

Your friend,

Jim Dervin

[Guest guest]

THIS IS NOT MONA, YOU HAVE THE WRONG PERSON

----- Original Message -----

From: " wjdervin " <wjdervin@...>

<low dose naltrexone >

Sent: Wednesday, October 06, 2004 6:00 PM

Subject: Re: [low dose naltrexone] my goodness, where is everyone? NT

>

>

> Hi Mona!

>

> How are you? I hope everything is going ok for you. How is your project

> doing?

>

> Honestly, I am so tired of the NMSS society. At least here, only the

> volunteers

> seem motivated to help people. The staffies only seem to want to put on

> the

> same old programs/meeting regardless if it does anything for MS'ers. The

> meetings

> are usually very quiet, some polite questions, and then after the meeting

> the attendees

> get together and try to help one another.

>

> This really came home for me after I attended a Muscular Dystrophy event

> with my

> neighbor who has this disease. Even the telethons are such great fund

> raisers and

> do such a spectacular job of not only raising funds for research but put

> this disease

> in the national spotlight. I wrote NMSS and asked them why they didn't do

> something

> like this and all I got back was a message saying they wouldn't because

> they are so

> expensive...then asking me if I wanted to volunteer to be a local fund

> raiser. Oh well...

>

> I really am anxious and hopeful to hear about progress on your project.

>

> Best of luck. You have never been out of my mind.

>

> Your friend,

>

> Jim Dervin

>

>

>

>

>

>

>

[Guest guest]

Bacolfen,Zanaflex or herbs?ernest frazier <efrazier1@...> wrote:

THIS IS NOT MONA, YOU HAVE THE WRONG PERSON----- Original Message ----- From: "wjdervin" <wjdervin@...><low dose naltrexone >Sent: Wednesday, October 06, 2004 6:00 PMSubject: Re: [low dose naltrexone] my goodness, where is everyone? NT>>> Hi Mona!>> How are you? I hope everything is going ok for you. How is your project> doing?>> Honestly, I am so tired of the NMSS society. At least here, only the> volunteers> seem motivated to help people. The staffies only seem to want to put on > the> same old programs/meeting regardless if it does anything for MS'ers. The> meetings> are usually very quiet, some polite questions, and then after the meeting> the attendees> get together and

try to help one another.>> This really came home for me after I attended a Muscular Dystrophy event> with my> neighbor who has this disease. Even the telethons are such great fund> raisers and> do such a spectacular job of not only raising funds for research but put> this disease> in the national spotlight. I wrote NMSS and asked them why they didn't do> something> like this and all I got back was a message saying they wouldn't because> they are so> expensive...then asking me if I wanted to volunteer to be a local fund> raiser. Oh well...>> I really am anxious and hopeful to hear about progress on your project.>> Best of luck. You have never been out of my mind.>> Your friend,>> Jim Dervin>>>>>>>

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