RE: RE: UK MS Society

[Guest guest]

Hello Steve,

I went to MS Society in London in 1988 to tell them about some

treatment, they did not even finish listening to me, they said to me

'Good for you " , gave me they literature............................they

are not interested in US & MS, they are interested in $$$$$ and it

prestige their employment position offers!!!!!

*Zora*

San

Trinidad

West Indies

***

-----Original Message-----

From: Steve [mailto:steve_sarahwill@...]

Sent: Monday, September 06, 2004 1:33 PM

low dose naltrexone

Subject: [low dose naltrexone] RE: UK MS Society

Hi

If the MS Society really gave a hoot about MS'ers then I think they

would be

getting someone to run a trial on LDN, not merely inviting Bob ce

, a

retired GP with MS who prescribes LDN in the UK on private prescription,

to

" apply for a grant " . For heavens sake the MS Society should have people

researching and investigating all claims for things that do or might

help in

MS. If not then I have to believe that they are funded by the drug

companies, which I have believed for some time.

The method by which LDN works is more plausible to a layman than how the

RAB

drugs work, and a s for Copaxone nobody even seems for sure how it works

anyway!

I take LDN. I keep to THE diet. I take THE supplements. I distrust the

MS

Society. I made a post on their website re diet and sunlight. I was shot

down in flames by an anonymous " subscriber " within 2 minutes. Anonymous

" moderator " I was sure.

Don't trust anyone who offers a miracle " cure " unless its free or the

person

offering it has no vested interest in it. Don't trust drug companies who

have huge resources for marketing and advertising and can run endless

trials, they are bound to find one that shows up a positive result!

I took Avonex for 5 months. I felt ill. My MS got worse. I felt

depressed. I

got off it and am getting better every day. Biogen make a billion US

dollars

worth of sales and that Avonex alone.A billion. LDN will not make anyone

rich, it is out of " licence " it is not worth a drug company doing the

sort

of trial that is good enough for the authorities or the Society.

It's a Catch 22 and we have to fight back with knowledge, communication,

intuition and dogged determination that this thing can be cured.

Sure if a drug company comes up with something new and convincing I will

try

it. If it works I will rejoice. But for now I am doing fine thanks very

much.

The CRAB drugs have never even been proven to slow progress to

disability!

And our governments (taxpayers ultimately) spend billions on them. Why?

You

know why! Vested interests. The politicians make money indirectly or

directly from the drug companies. Fact.

Best Wishes

Steve, UK

_________________________________________________________________

Don't just search. Find. Check out the new MSN Search!

http://search.msn.click-url.com/go/onm00200636ave/direct/01/

[Guest guest]

You should have asked to see someone else for a second

opinion. They use pounds in the UK.

--- Tackoors <janska@...>

wrote:

---------------------------------

Hello Steve,

I went to MS Society in London in 1988 to tell them

about some

treatment, they did not even finish listening to me,

they said to me

'Good for you " , gave me they

literature............................they

are not interested in US & MS, they are interested in

$$$$$ and it

prestige their employment position offers!!!!!

*Zora*

San

Trinidad

West Indies

***

-----Original Message-----

From: Steve

[mailto:steve_sarahwill@...]

Sent: Monday, September 06, 2004 1:33 PM

low dose naltrexone

Subject: [low dose naltrexone] RE: UK MS Society

Hi

If the MS Society really gave a hoot about MS'ers then

I think they

would be

getting someone to run a trial on LDN, not merely

inviting Bob ce

, a

retired GP with MS who prescribes LDN in the UK on

private prescription,

to

" apply for a grant " . For heavens sake the MS Society

should have people

researching and investigating all claims for things

that do or might

help in

MS. If not then I have to believe that they are funded

by the drug

companies, which I have believed for some time.

The method by which LDN works is more plausible to a

layman than how the

RAB

drugs work, and a s for Copaxone nobody even seems for

sure how it works

anyway!

I take LDN. I keep to THE diet. I take THE

supplements. I distrust the

MS

Society. I made a post on their website re diet and

sunlight. I was shot

down in flames by an anonymous " subscriber " within 2

minutes. Anonymous

" moderator " I was sure.

Don't trust anyone who offers a miracle " cure " unless

its free or the

person

offering it has no vested interest in it. Don't trust

drug companies who

have huge resources for marketing and advertising and

can run endless

trials, they are bound to find one that shows up a

positive result!

I took Avonex for 5 months. I felt ill. My MS got

worse. I felt

depressed. I

got off it and am getting better every day. Biogen

make a billion US

dollars

worth of sales and that Avonex alone.A billion. LDN

will not make anyone

rich, it is out of " licence " it is not worth a drug

company doing the

sort

of trial that is good enough for the authorities or

the Society.

It's a Catch 22 and we have to fight back with

knowledge, communication,

intuition and dogged determination that this thing can

be cured.

Sure if a drug company comes up with something new and

convincing I will

try

it. If it works I will rejoice. But for now I am doing

fine thanks very

much.

The CRAB drugs have never even been proven to slow

progress to

disability!

And our governments (taxpayers ultimately) spend

billions on them. Why?

You

know why! Vested interests. The politicians make money

indirectly or

directly from the drug companies. Fact.

Best Wishes

Steve, UK

_________________________________________________________________

Don't just search. Find. Check out the new MSN Search!

http://search.msn.click-url.com/go/onm00200636ave/direct/01/