Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Hello. I have found reading postings by this group encouraging. I live in land, but grew up in Michigan where I witnessed my father's MS progression to his death in 1979. My brother Nick (still in Michigan) was diagnosed with MS in 1992 when he was 35. It is PPMS and he is losing ground. He is not on-line and has been relying on traditional doctors for help, if you can call it that. He was on betaseron for awhile, before his neurologist told him his disease had progressed beyond the point where it is helpful. I sent him some information from the LDN website to see if he could get a prescription from his neurologist. The neuro told him to forget about it because it is not approved for that use by the FDA, and recommended some strong cancer chemotherapy drug that Nick is reluctant to take. He went to a holistic nutritionist, who recommended a gluten-free, casein-free diet and EFA's (makes sense), but also told him to forget about LDN because it only works for people with RRMS. Reading postings here leads me to believe that LDN has potential to help people with all types of MS. The nutritionist is not a doctor so he couldn't write a prescription anyway. Anyway, I could use some advice on how Nick might approach his GP to get an LDN Rx. I would also appreciate hearing from any of you with PPMS who have benefited from LDN that I could pass on to Nick to give him some encouragement and motivation to keep working to get a Rx and give LDN a try. And if anyone knows of a doc familiar with LDN in southwest Michigan that he could work with, please advise. Many thanks, Charlie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Charlie, I have ppms and have been taking LDN since 7/8/03. No progression, improved urinary frequency, improved balance and leg strength. Tell your Brother there is a lot of hope and progress. Here is a list of doc's and pharmacies for LDN. Regards, Tom Dr Bernard BIhari new york,NY 212-929-4196 (the man himself-neuro) Dr Wisconsin 608-785-8038 608-785-0038 ...had 2 no's on list Dr Sidney, NY 607-561-2000 Dr Carole Saratoga springs,NY 518-587-3438 Dr Bruce Sharpnack Hickory,PA 724-356-2273 Dr Jeff Esper Erie,PA 814-877-4600 Dr Sullivan Mechanicsburg,PA 717-697-5050 Dr Patti Townely Dwight,Illinois 815-584-3343 Dr Myers Skokie,Illinois 847-677-2980 Dr Alan Buchman Chicago,Illinois 312-695-5620 Dr Bernard s Vernon Hills,Illinois 847-367-0843 Dr Stanley Knep(Neuro) Clifton,NJ 973-471-3680 Dr ph Wezensky( MD. GP.) & Dr Rick Jensen (ND) Kokopelli zhealth & Wellness Grand Junction,Colorado 970-263-4660 PHARMACIES RELIABLE SOURCE of LDN SUPPLY - some on net Irmats NY (212) 685-0500 Skips Pharmacy florida (800) 553-7429 Keys Pharmacy South Kent,WA (800) 878-1322 's Pharmacy Canada (800) 361-6624 ----- Original Message ----- From: " chaz4bro " <charlierewa@...> <low dose naltrexone > Sent: Monday, September 06, 2004 12:50 PM Subject: [low dose naltrexone] Advice for Nick > Hello. I have found reading postings by this group encouraging. I > live in land, but grew up in Michigan where I witnessed my > father's MS progression to his death in 1979. My brother Nick (still > in Michigan) was diagnosed with MS in 1992 when he was 35. It is > PPMS and he is losing ground. He is not on-line and has been relying > on traditional doctors for help, if you can call it that. He was on > betaseron for awhile, before his neurologist told him his disease had > progressed beyond the point where it is helpful. I sent him some > information from the LDN website to see if he could get a > prescription from his neurologist. The neuro told him to forget > about it because it is not approved for that use by the FDA, and > recommended some strong cancer chemotherapy drug that Nick is > reluctant to take. > > He went to a holistic nutritionist, who recommended a gluten-free, > casein-free diet and EFA's (makes sense), but also told him to forget > about LDN because it only works for people with RRMS. Reading > postings here leads me to believe that LDN has potential to help > people with all types of MS. The nutritionist is not a doctor so he > couldn't write a prescription anyway. > > Anyway, I could use some advice on how Nick might approach his GP to > get an LDN Rx. I would also appreciate hearing from any of you with > PPMS who have benefited from LDN that I could pass on to Nick to give > him some encouragement and motivation to keep working to get a Rx and > give LDN a try. And if anyone knows of a doc familiar with LDN in > southwest Michigan that he could work with, please advise. > > Many thanks, > Charlie > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.