neuropathic pain/surgery topic/and my LDN update

September 7, 2004

Hi all,

Just got around to checking email and caught the threads about

pain, LDN and neuropathic pain.

I find that Elavil (Amiltryptaline) is helpful for neuropathic/neuritis type

pain.

It is an anti-depressant that also improves bladder spasms and insomnia.

But I don't seem to need as much of it with the LDN.

When I do have a flareup of neuritis (usually a burning pain- feels like a

sunburn without the sun-part) I have to resort to opiate meds. That does

interact with the LDN and causes me much more than nausea! Usually stomach

upset and extra fatigue. So I try to avoid.

Whoever noted that Xanax is not an opiate was absolutely right. It is a

benzodiazepine and can be used safely with LDN.

I am interested in the note that you should discontinue LDN 2-3 days before

surgery.

I had a private conversation with someone that recommended I disco. the LDN

for about 5-10 days prior to my upcoming surgery (for uterine fibroids and

blood cysts on an ovary). And then to stay off the LDN until about 10 days

after they withdraw me from using pain meds post-op. I'm not thrilled to be

going off the LDN for that long but I am also not seeing " miraculous "

results like some of you are.

BTW, my MS/Myelopathy testing came back normal. The neuro thinks many of my

problems, including the neuropathic pain, stems from the combo of the

leftover antibodies to my thyroid, recovering from the endocrine imbalance

and some other autoimmune conditions...

So i have a loose Dx of Fibromyalgia, Peripheral Neuropathy secondary to

pernicious B12 anemia and most likely a disease called Behcet's.

It may take me longer to see major improvements from the LDN? Or it may be

that I still have deeper issues...who knows?

I will say that I do have days where my energy level is much better- I

missed the last two colds that went around the neighborhood- and some of my

chronic pain is better.

Have not checked my HepC viral load yet- am hoping that is improved.

And I continue to take my Hypericin (the antiviral portion) religously for

my liver's sake. I'll let you all know if my viral count has dropped!

Hope all are safe and well (especially you folk in florida!) and enjoyed the

long weekend. Best all around, Lara

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