Re: Tom / 'Disclosure of MS'

[Guest guest]

Thanks Tom,

That felt very fatherly!

When do you think someone will come up with a fast

food chain for health food to make it easier for those

who like to travel and not snack on unhealthy rubbish?

Tonight my husband and I are going out socializing

for the first time ever in America in five months.

We're going to a pizza place. There is no alternative

except Mc Dons & Burger King.

I will meet his cycling buddies and sit in front of a

salad and water whilst everyone else will be tucking

into pizza and alcohol.

When is a good time to tell people you have MS? All my

life I have kept it a secret because I was diagnosed

16 years after first symptoms. I have told family and

a couple of close friends but my husband's family

don't know yet. His mum is an occupational therapist

and is very narrow minded so she hasn't been told, not

for the want of trying. She has met severe cases of

MS.

My symptoms aren't visible and I am a recluse when I

have them anyway.

I want to tell people but I worry about how they will

react. Marks family is a difficult one. We got married

recently after a twelve year relatonship. I thought

she would encourage him to end it if she knew the

truth.

Can anyone in the group tell me about their

experiences of disclosure?

Audrey

Audrey

--- Bayuk <tbayuk@...> wrote:

---------------------------------

Audrey,

I have read most of your posts and I think you are on

the right track. I am

not a doctor and am basically self-taught. Most, if

not all of my info

comes from my own reading and trial and error during

the past 20 or so

years.

Don't allow all this info to confuse you. It is basic

common sense. We all

need the essential nutrients ie: vitamins, minerals,

etc. It is really not

that difficult to ensure that you get them. No one

should be taking

" Mega-Doses " of anything.

There are several nutrients that can cause trouble if

too much is taken.

Such as: Iron, Niacin, B12, etc. However, it is

really hard to overdose.

Common sense is the rule. The best source of B-12 is

from beef. Ms'er's

might have a problem absorbing the B-12 so an

intravenous injection would be

helpful. Once a week or so would not cause an

overdose.

Ms'er's should have a blood test to determine B-12,

Vit. D, Niacin, Iron

every six months.

Use common sense, read labels, and make sure that your

doc is familiar with

nutrition and alternative medicine.

Regards,

Tom

----- Original Message -----

From: " Audrey Henry " <mumpuss@...>

<low dose naltrexone >

Sent: Thursday, August 19, 2004 4:18 PM

Subject: Re: [low dose naltrexone] Tom

> Dear Tom,

> I'm getting so confused about what I should be doing

,

> what I shouldn't be doing.

> This is getting so confusing all this info. on diet

> and supplements.

> I do feel I've always been on track but some of the

> new info is backfiring.

> I've recently started to use Pure Synergy and Vita

> Synergy. I think the Philosphy behind what

> May is doing is spot on so now I'm waiting for

someone

> to now tell me its wrong.

> I'm due another haphazard B12 so I'll chat with the

> Doc.

> Thanks Tom

>

> Audrey

>

> ---------------------------------

>

[Guest guest]

You have no obligation to tell anyone you have MS, particularly family members... Your medical condition, health, etc, are private information you should share only with those you feel very comfortable with. If your health begins to affect your performance at work you may need to explain the problem, but not all employers are understanding. That can be a tough issue - do I tell my boss or not? But the family and friends thing is entirely your choice. I tend to tell all, keep no secrets, wear my heart on my sleeve. But only with people I am comfortable with and trust.

If people you are eating with are rude enough to question your menu choices simply tell them that you have some dietary restrictions that seem to improve your overall health, and you hope they enjoy their meal as much as you enjoy yours. (and the fat and heartburn that comes with their pizza - perhaps that should remain unspoken...)

One of the unfortunate things that people will do is try to fix your health for you. "I knew so and so and they did such and such and were well forever after! Why don't you try that?" or, like my stepdaughter, they will say something dreadfully discouraging "Our pastor's wife found out she had MS and a year later she couldn't walk at all." Thanks for the encouragement...

My husband is currently receiving radiation and chemo for prostate cancer. Some of my family members know; some do not. I simply don't feel like listening to some of them, and their knowing or not doesn't change what we must do.

Will it help you in any way for your in-laws to know you have MS? Unless it is going to make your life easier, make it easier to deal with the effects of MS, or somehow change your relationship with them for the better you have no real reason to tell them.

I don't mean to imply that having MS should be kept a deep dark secret. Simply that it is a facet of your life you have a right to keep private. It isn't necessary for everyone to know everything about you.

Your value as a person is not changed by your health, and you should not allow anyone to make you feel that it is.

My stepmother had cancer for nine years, and she and my father chose not to tell us until it became obvious that she would lose the fight. My sisters were angry at being left out; I felt that it was none of my business until they chose to make it so. By not telling everyone they were able to live as normal a life as was possible. More power to them.

I hope this helps and doesn't just sound like blithering drivel!

When is a good time to tell people you have MS? All mylife I have kept it a secret because I was diagnosed16 years after first symptoms. I have told family anda couple of close friends but my husband's familydon't know yet. His mum is an occupational therapistand is very narrow minded so she hasn't been told, notfor the want of trying. She has met severe cases ofMS.My symptoms aren't visible and I am a recluse when Ihave them anyway.I want to tell people but I worry about how they willreact. Marks family is a difficult one. We got marriedrecently after a twelve year relatonship. I thoughtshe would encourage him to end it if she knew thetruth.Can anyone in the group tell me about theirexperiences of disclosure? Audrey Audrey--- Bayuk <tbayuk@...> wrote: ---------------------------------Audrey,I have read most of your posts and I think you are onthe right track. I amnot a doctor and am basically self-taught. Most, ifnot all of my infocomes from my own reading and trial and error duringthe past 20 or soyears.Don't allow all this info to confuse you. It is basiccommon sense. We allneed the essential nutrients ie: vitamins, minerals,etc. It is really notthat difficult to ensure that you get them. No oneshould be taking"Mega-Doses" of anything.There are several nutrients that can cause trouble iftoo much is taken.Such as: Iron, Niacin, B12, etc. However, it isreally hard to overdose.Common sense is the rule. The best source of B-12 isfrom beef. Ms'er'smight have a problem absorbing the B-12 so anintravenous injection would behelpful. Once a week or so would not cause anoverdose.Ms'er's should have a blood test to determine B-12,Vit. D, Niacin, Ironevery six months.Use common sense, read labels, and make sure that yourdoc is familiar withnutrition and alternative medicine.Regards,Tom----- Original Message ----- From: "Audrey Henry" <mumpuss@...><low dose naltrexone >Sent: Thursday, August 19, 2004 4:18 PMSubject: Re: [low dose naltrexone] Tom> Dear Tom,> I'm getting so confused about what I should be doing,> what I shouldn't be doing.> This is getting so confusing all this info. on diet> and supplements.> I do feel I've always been on track but some of the> new info is backfiring.> I've recently started to use Pure Synergy and Vita> Synergy. I think the Philosphy behind what > May is doing is spot on so now I'm waiting forsomeone> to now tell me its wrong.> I'm due another haphazard B12 so I'll chat with the> Doc.> Thanks Tom>> Audrey>> --------------------------------->

[Guest guest]

"Been there, done that !"

Take Audrey's advice, please, you

won't regret it. <:-)* Tom

----- Original Message -----

From:

low dose naltrexone

Sent: Friday, August 20, 2004 4:00 PM

Subject: Re: [low dose naltrexone] Tom / 'Disclosure of MS'

You have no obligation to tell anyone you have MS, particularly family members... Your medical condition, health, etc, are private information you should share only with those you feel very comfortable with. If your health begins to affect your performance at work you may need to explain the problem, but not all employers are understanding. That can be a tough issue - do I tell my boss or not? But the family and friends thing is entirely your choice. I tend to tell all, keep no secrets, wear my heart on my sleeve. But only with people I am comfortable with and trust.

If people you are eating with are rude enough to question your menu choices simply tell them that you have some dietary restrictions that seem to improve your overall health, and you hope they enjoy their meal as much as you enjoy yours. (and the fat and heartburn that comes with their pizza - perhaps that should remain unspoken...)

One of the unfortunate things that people will do is try to fix your health for you. "I knew so and so and they did such and such and were well forever after! Why don't you try that?" or, like my stepdaughter, they will say something dreadfully discouraging "Our pastor's wife found out she had MS and a year later she couldn't walk at all." Thanks for the encouragement...

My husband is currently receiving radiation and chemo for prostate cancer. Some of my family members know; some do not. I simply don't feel like listening to some of them, and their knowing or not doesn't change what we must do.

Will it help you in any way for your in-laws to know you have MS? Unless it is going to make your life easier, make it easier to deal with the effects of MS, or somehow change your relationship with them for the better you have no real reason to tell them.

I don't mean to imply that having MS should be kept a deep dark secret. Simply that it is a facet of your life you have a right to keep private. It isn't necessary for everyone to know everything about you.

Your value as a person is not changed by your health, and you should not allow anyone to make you feel that it is.

My stepmother had cancer for nine years, and she and my father chose not to tell us until it became obvious that she would lose the fight. My sisters were angry at being left out; I felt that it was none of my business until they chose to make it so. By not telling everyone they were able to live as normal a life as was possible. More power to them.

I hope this helps and doesn't just sound like blithering drivel!

When is a good time to tell people you have MS? All mylife I have kept it a secret because I was diagnosed16 years after first symptoms. I have told family anda couple of close friends but my husband's familydon't know yet. His mum is an occupational therapistand is very narrow minded so she hasn't been told, notfor the want of trying. She has met severe cases ofMS.My symptoms aren't visible and I am a recluse when Ihave them anyway.I want to tell people but I worry about how they willreact. Marks family is a difficult one. We got marriedrecently after a twelve year relatonship. I thoughtshe would encourage him to end it if she knew thetruth.Can anyone in the group tell me about theirexperiences of disclosure? Audrey Audrey--- Bayuk <tbayuk@...> wrote: ---------------------------------Audrey,I have read most of your posts and I think you are onthe right track. I amnot a doctor and am basically self-taught. Most, ifnot all of my infocomes from my own reading and trial and error duringthe past 20 or soyears.Don't allow all this info to confuse you. It is basiccommon sense. We allneed the essential nutrients ie: vitamins, minerals,etc. It is really notthat difficult to ensure that you get them. No oneshould be taking"Mega-Doses" of anything.There are several nutrients that can cause trouble iftoo much is taken.Such as: Iron, Niacin, B12, etc. However, it isreally hard to overdose.Common sense is the rule. The best source of B-12 isfrom beef. Ms'er'smight have a problem absorbing the B-12 so anintravenous injection would behelpful. Once a week or so would not cause anoverdose.Ms'er's should have a blood test to determine B-12,Vit. D, Niacin, Ironevery six months.Use common sense, read labels, and make sure that yourdoc is familiar withnutrition and alternative medicine.Regards,Tom----- Original Message ----- From: "Audrey Henry" <mumpuss@...><low dose naltrexone >Sent: Thursday, August 19, 2004 4:18 PMSubject: Re: [low dose naltrexone] Tom> Dear Tom,> I'm getting so confused about what I should be doing,> what I shouldn't be doing.> This is getting so confusing all this info. on diet> and supplements.> I do feel I've always been on track but some of the> new info is backfiring.> I've recently started to use Pure Synergy and Vita> Synergy. I think the Philosphy behind what > May is doing is spot on so now I'm waiting forsomeone> to now tell me its wrong.> I'm due another haphazard B12 so I'll chat with the> Doc.> Thanks Tom>> Audrey>> --------------------------------->

[Guest guest]

,

I forgot to mention that when I told my

boss I had MS he told me my work had slipped and

sacked me. I know I could have contested it but I'd

had enough anyway. It was my first and last job.

Unfortunately it was a very specialized field so

finding another would be very difficult.

After reading what you said I'm going to keep it to

myself for as long as I can get away with. It would

only create too much fuss and stress if they knew.

It's better they just work out for themselves that i'm

different.

Thanks

Audrey

S --- <jatrac1@...> wrote:

> You have no obligation to tell anyone you have MS,

> particularly family members... Your medical

> condition, health, etc, are private information you

> should share only with those you feel very

> comfortable with. If your health begins to affect

> your performance at work you may need to explain the

> problem, but not all employers are understanding.

> That can be a tough issue - do I tell my boss or

> not? But the family and friends thing is entirely

> your choice. I tend to tell all, keep no secrets,

> wear my heart on my sleeve. But only with people I

> am comfortable with and trust.

>

> If people you are eating with are rude enough to

> question your menu choices simply tell them that you

> have some dietary restrictions that seem to improve

> your overall health, and you hope they enjoy their

> meal as much as you enjoy yours. (and the fat and

> heartburn that comes with their pizza - perhaps that

> should remain unspoken...)

>

> One of the unfortunate things that people will do is

> try to fix your health for you. " I knew so and so

> and they did such and such and were well forever

> after! Why don't you try that? " or, like my

> stepdaughter, they will say something dreadfully

> discouraging " Our pastor's wife found out she had

> MS and a year later she couldn't walk at all. "

> Thanks for the encouragement...

>

> My husband is currently receiving radiation and

> chemo for prostate cancer. Some of my family

> members know; some do not. I simply don't feel like

> listening to some of them, and their knowing or not

> doesn't change what we must do.

>

> Will it help you in any way for your in-laws to know

> you have MS? Unless it is going to make your life

> easier, make it easier to deal with the effects of

> MS, or somehow change your relationship with them

> for the better you have no real reason to tell them.

>

> I don't mean to imply that having MS should be kept

> a deep dark secret. Simply that it is a facet of

> your life you have a right to keep private. It

> isn't necessary for everyone to know everything

> about you.

>

> Your value as a person is not changed by your

> health, and you should not allow anyone to make you

> feel that it is.

>

> My stepmother had cancer for nine years, and she and

> my father chose not to tell us until it became

> obvious that she would lose the fight. My sisters

> were angry at being left out; I felt that it was

> none of my business until they chose to make it so.

> By not telling everyone they were able to live as

> normal a life as was possible. More power to them.

>

> I hope this helps and doesn't just sound like

> blithering drivel!

>

>

>

> When is a good time to tell people you have MS?

> All my

> life I have kept it a secret because I was

> diagnosed

> 16 years after first symptoms. I have told family

> and

> a couple of close friends but my husband's family

> don't know yet. His mum is an occupational

> therapist

> and is very narrow minded so she hasn't been told,

> not

> for the want of trying. She has met severe cases

> of

> MS.

>

> My symptoms aren't visible and I am a recluse when

> I

> have them anyway.

>

> I want to tell people but I worry about how they

> will

> react. Marks family is a difficult one. We got

> married

> recently after a twelve year relatonship. I

> thought

> she would encourage him to end it if she knew the

> truth.

>

> Can anyone in the group tell me about their

> experiences of disclosure?

> Audrey

> Audrey

>

>

> --- Bayuk <tbayuk@...> wrote:

>

> ---------------------------------

> Audrey,

> I have read most of your posts and I think you are

> on

> the right track. I am

> not a doctor and am basically self-taught. Most,

> if

> not all of my info

> comes from my own reading and trial and error

> during

> the past 20 or so

> years.

>

> Don't allow all this info to confuse you. It is

> basic

> common sense. We all

> need the essential nutrients ie: vitamins,

> minerals,

> etc. It is really not

> that difficult to ensure that you get them. No

> one

> should be taking

> " Mega-Doses " of anything.

>

> There are several nutrients that can cause trouble

> if

> too much is taken.

> Such as: Iron, Niacin, B12, etc. However, it is

> really hard to overdose.

> Common sense is the rule. The best source of B-12

> is

> from beef. Ms'er's

> might have a problem absorbing the B-12 so an

> intravenous injection would be

> helpful. Once a week or so would not cause an

> overdose.

>

> Ms'er's should have a blood test to determine

> B-12,

> Vit. D, Niacin, Iron

> every six months.

>

> Use common sense, read labels, and make sure that

> your

> doc is familiar with

> nutrition and alternative medicine.

> Regards,

> Tom

> ----- Original Message -----

> From: " Audrey Henry " <mumpuss@...>

> <low dose naltrexone >

> Sent: Thursday, August 19, 2004 4:18 PM

> Subject: Re: [low dose naltrexone] Tom

>

>

> > Dear Tom,

> > I'm getting so confused about what I should be

> doing

> ,

> > what I shouldn't be doing.

> > This is getting so confusing all this info. on

> diet

> > and supplements.

> > I do feel I've always been on track but some of

> the

> > new info is backfiring.

> > I've recently started to use Pure Synergy and

> Vita

> > Synergy. I think the Philosphy behind what

>

> > May is doing is spot on so now I'm waiting for

> someone

> > to now tell me its wrong.

> > I'm due another haphazard B12 so I'll chat with

> the

> > Doc.

> > Thanks Tom

> >

> > Audrey

> >

> > ---------------------------------

> >

>

>

>

>

[Guest guest]

Hi Audrey,"Hind sight is 20/20"

Sorry you had to learn the hard way.

From now on, remember:

"Lose lips.......Sink ships"

Don't tell anyone.

For the first 14 years I told no one.

I went to a doctor for a bad accident, in which

I almost broke my neck, the neurolgist

never new I had MS, and I didn't tell him.

*_Tom

----- Original Message -----

From: Audrey Henry

low dose naltrexone

Sent: Friday, August 20, 2004 5:28 PM

Subject: Re: [low dose naltrexone] Tom / 'Disclosure of MS'

, I forgot to mention that when I told myboss I had MS he told me my work had slipped andsacked me. I know I could have contested it but I'dhad enough anyway. It was my first and last job.Unfortunately it was a very specialized field sofinding another would be very difficult. After reading what you said I'm going to keep it tomyself for as long as I can get away with. It wouldonly create too much fuss and stress if they knew.It's better they just work out for themselves that i'mdifferent. Thanks Audrey S --- <jatrac1@...> wrote: > You have no obligation to tell anyone you have MS,> particularly family members... Your medical> condition, health, etc, are private information you> should share only with those you feel very> comfortable with. If your health begins to affect> your performance at work you may need to explain the> problem, but not all employers are understanding. > That can be a tough issue - do I tell my boss or> not? But the family and friends thing is entirely> your choice. I tend to tell all, keep no secrets,> wear my heart on my sleeve. But only with people I> am comfortable with and trust. > > If people you are eating with are rude enough to> question your menu choices simply tell them that you> have some dietary restrictions that seem to improve> your overall health, and you hope they enjoy their> meal as much as you enjoy yours. (and the fat and> heartburn that comes with their pizza - perhaps that> should remain unspoken...)> > One of the unfortunate things that people will do is> try to fix your health for you. "I knew so and so> and they did such and such and were well forever> after! Why don't you try that?" or, like my> stepdaughter, they will say something dreadfully> discouraging "Our pastor's wife found out she had> MS and a year later she couldn't walk at all." > Thanks for the encouragement...> > My husband is currently receiving radiation and> chemo for prostate cancer. Some of my family> members know; some do not. I simply don't feel like> listening to some of them, and their knowing or not> doesn't change what we must do.> > Will it help you in any way for your in-laws to know> you have MS? Unless it is going to make your life> easier, make it easier to deal with the effects of> MS, or somehow change your relationship with them> for the better you have no real reason to tell them.> > I don't mean to imply that having MS should be kept> a deep dark secret. Simply that it is a facet of> your life you have a right to keep private. It> isn't necessary for everyone to know everything> about you. > > Your value as a person is not changed by your> health, and you should not allow anyone to make you> feel that it is.> > My stepmother had cancer for nine years, and she and> my father chose not to tell us until it became> obvious that she would lose the fight. My sisters> were angry at being left out; I felt that it was> none of my business until they chose to make it so. > By not telling everyone they were able to live as> normal a life as was possible. More power to them.> > I hope this helps and doesn't just sound like> blithering drivel!> > > > When is a good time to tell people you have MS?> All my> life I have kept it a secret because I was> diagnosed> 16 years after first symptoms. I have told family> and> a couple of close friends but my husband's family> don't know yet. His mum is an occupational> therapist> and is very narrow minded so she hasn't been told,> not> for the want of trying. She has met severe cases> of> MS.> > My symptoms aren't visible and I am a recluse when> I> have them anyway.> > I want to tell people but I worry about how they> will> react. Marks family is a difficult one. We got> married> recently after a twelve year relatonship. I> thought> she would encourage him to end it if she knew the> truth.> > Can anyone in the group tell me about their> experiences of disclosure?> Audrey> Audrey> > > --- Bayuk <tbayuk@...> wrote: > > ---------------------------------> Audrey,> I have read most of your posts and I think you are> on> the right track. I am> not a doctor and am basically self-taught. Most,> if> not all of my info> comes from my own reading and trial and error> during> the past 20 or so> years.> > Don't allow all this info to confuse you. It is> basic> common sense. We all> need the essential nutrients ie: vitamins,> minerals,> etc. It is really not> that difficult to ensure that you get them. No> one> should be taking> "Mega-Doses" of anything.> > There are several nutrients that can cause trouble> if> too much is taken.> Such as: Iron, Niacin, B12, etc. However, it is> really hard to overdose.> Common sense is the rule. The best source of B-12> is> from beef. Ms'er's> might have a problem absorbing the B-12 so an> intravenous injection would be> helpful. Once a week or so would not cause an> overdose.> > Ms'er's should have a blood test to determine> B-12,> Vit. D, Niacin, Iron> every six months.> > Use common sense, read labels, and make sure that> your> doc is familiar with> nutrition and alternative medicine.> Regards,> Tom> ----- Original Message ----- > From: "Audrey Henry" <mumpuss@...>> <low dose naltrexone >> Sent: Thursday, August 19, 2004 4:18 PM> Subject: Re: [low dose naltrexone] Tom> > > > Dear Tom,> > I'm getting so confused about what I should be> doing> ,> > what I shouldn't be doing.> > This is getting so confusing all this info. on> diet> > and supplements.> > I do feel I've always been on track but some of> the> > new info is backfiring.> > I've recently started to use Pure Synergy and> Vita> > Synergy. I think the Philosphy behind what> > > May is doing is spot on so now I'm waiting for> someone> > to now tell me its wrong.> > I'm due another haphazard B12 so I'll chat with> the> > Doc.> > Thanks Tom> >> > Audrey> >> > ---------------------------------> >> > > >

[Guest guest]

Thanks Tom I'll remember that one.

Auds

--- * Tom <chtucker@...> wrote:

>

> Hi Audrey,

> " Hind sight is 20/20 "

> Sorry you had to learn the hard way.

> From now on, remember:

> " Lose lips.......Sink ships "

> Don't tell anyone.

> For the first 14 years I told no one.

> I went to a doctor for a bad accident, in which

> I almost broke my neck, the neurolgist

> never new I had MS, and I didn't tell him.

> *_Tom

>

>

> ----- Original Message -----

> From: Audrey Henry

> low dose naltrexone

> Sent: Friday, August 20, 2004 5:28 PM

> Subject: Re: [low dose naltrexone] Tom / 'Disclosure

> of MS'

>

>

> ,

> I forgot to mention that when I told

> my

> boss I had MS he told me my work had slipped and

> sacked me. I know I could have contested it but

> I'd

> had enough anyway. It was my first and last job.

> Unfortunately it was a very specialized field so

> finding another would be very difficult.

> After reading what you said I'm going to keep it

> to

> myself for as long as I can get away with. It

> would

> only create too much fuss and stress if they knew.

> It's better they just work out for themselves that

> i'm

> different.

> Thanks

> Audrey

>

>

>

> S --- <jatrac1@...> wrote:

> > You have no obligation to tell anyone you have

> MS,

> > particularly family members... Your medical

> > condition, health, etc, are private information

> you

> > should share only with those you feel very

> > comfortable with. If your health begins to

> affect

> > your performance at work you may need to explain

> the

> > problem, but not all employers are

> understanding.

> > That can be a tough issue - do I tell my boss or

> > not? But the family and friends thing is

> entirely

> > your choice. I tend to tell all, keep no

> secrets,

> > wear my heart on my sleeve. But only with

> people I

> > am comfortable with and trust.

> >

> > If people you are eating with are rude enough to

> > question your menu choices simply tell them that

> you

> > have some dietary restrictions that seem to

> improve

> > your overall health, and you hope they enjoy

> their

> > meal as much as you enjoy yours. (and the fat

> and

> > heartburn that comes with their pizza - perhaps

> that

> > should remain unspoken...)

> >

> > One of the unfortunate things that people will

> do is

> > try to fix your health for you. " I knew so and

> so

> > and they did such and such and were well forever

> > after! Why don't you try that? " or, like my

> > stepdaughter, they will say something dreadfully

> > discouraging " Our pastor's wife found out she

> had

> > MS and a year later she couldn't walk at all. "

> > Thanks for the encouragement...

> >

> > My husband is currently receiving radiation and

> > chemo for prostate cancer. Some of my family

> > members know; some do not. I simply don't feel

> like

> > listening to some of them, and their knowing or

> not

> > doesn't change what we must do.

> >

> > Will it help you in any way for your in-laws to

> know

> > you have MS? Unless it is going to make your

> life

> > easier, make it easier to deal with the effects

> of

> > MS, or somehow change your relationship with

> them

> > for the better you have no real reason to tell

> them.

> >

> > I don't mean to imply that having MS should be

> kept

> > a deep dark secret. Simply that it is a facet

> of

> > your life you have a right to keep private. It

> > isn't necessary for everyone to know everything

> > about you.

> >

> > Your value as a person is not changed by your

> > health, and you should not allow anyone to make

> you

> > feel that it is.

> >

> > My stepmother had cancer for nine years, and she

> and

> > my father chose not to tell us until it became

> > obvious that she would lose the fight. My

> sisters

> > were angry at being left out; I felt that it was

> > none of my business until they chose to make it

> so.

> > By not telling everyone they were able to live

> as

> > normal a life as was possible. More power to

> them.

> >

> > I hope this helps and doesn't just sound like

> > blithering drivel!

> >

> >

> >

> > When is a good time to tell people you have

> MS?

> > All my

> > life I have kept it a secret because I was

> > diagnosed

> > 16 years after first symptoms. I have told

> family

> > and

> > a couple of close friends but my husband's

> family

> > don't know yet. His mum is an occupational

> > therapist

> > and is very narrow minded so she hasn't been

> told,

> > not

> > for the want of trying. She has met severe

> cases

> > of

> > MS.

> >

> > My symptoms aren't visible and I am a recluse

> when

> > I

> > have them anyway.

> >

> > I want to tell people but I worry about how

> they

> > will

> > react. Marks family is a difficult one. We got

> > married

> > recently after a twelve year relatonship. I

> > thought

> > she would encourage him to end it if she knew

> the

> > truth.

> >

> > Can anyone in the group tell me about their

> > experiences of disclosure?

> > Audrey

> > Audrey

> >

> >

> > --- Bayuk <tbayuk@...> wrote:

> >

> > ---------------------------------

> > Audrey,

> > I have read most of your posts and I think you

> are

> > on

> > the right track. I am

> > not a doctor and am basically self-taught.

> Most,

> > if

> > not all of my info

> > comes from my own reading and trial and error

> > during

> > the past 20 or so

> > years.

> >

> > Don't allow all this info to confuse you. It

> is

>

=== message truncated ===

___________________________________________________________ALL-NEW

Messenger - all new features - even more fun! http://uk.messenger.

[Guest guest]

--- In low dose naltrexone , Audrey Henry <mumpuss@y...>

wrote:

> ,

> I forgot to mention that when I told my

> boss I had MS he told me my work had slipped and

> sacked me.-----------------------------

Audrey: Once your employer knows that you are disabled, under the ADA

and state anti-discrimination laws, most employers must provide you

with reasonable accommodations. You must still be able to perform the

essential functions of that job. I suggest to clients that they let

someone at the job know what is going on especially if they need

accommodations. (In Massachusetts small companies and businesses with

6 or less employees are exempt from the laws!)

I realize that fighting the boss is a tough battle but if you are

discriminated against, that boss should pay!

Telling friends and family is a totally personal matter and we all

have to do what is right for us.

Gail

[Guest guest]

ah yes,memories of disclosure..1989

my husband...crying. my father (a world class surgeon) saying "we'll pray for you honey" people asking me if ms was contagious! i began withdrawing

16 years later....it's kinda obvious something's amiss...i walk like a drunk toddler, and if someone directly asks me what the diagnosis is, i tell them. i work in a hospital, every day i count my blessings, life can be so much worse.

-------------- Original message -------------- > Thanks Tom, > That felt very fatherly! > > When do you think someone will come up with a fast > food chain for health food to make it easier for those > who like to travel and not snack on unhealthy rubbish? > > Tonight my husband and I are going out socializing > for the first time ever in America in five months. > We're going to a pizza place. There is no alternative > except Mc Dons & Burger King. > > I will meet his cycling buddies and sit in front of a > salad and water whilst everyone else will be tucking > into pizza and alcohol. > > When is a good time to tell people you have MS? All my > life I have kept it a secret because I was diagnosed > 16 years after first symptoms. I have told family and > a couple of close friends but my husband's family > don't know yet. His mum is an occupational therapist > and is very narrow minded so she hasn't been told, not > for the want of trying. She has met severe cases of > MS. > > My symptoms aren't visible and I am a recluse when I > have them anyway. > > I want to tell people but I worry about how they will > react. Marks family is a difficult one. We got married > recently after a twelve year relatonship. I thought > she would encourage him to end it if she knew the > truth. > > Can anyone in the group tell me about their > experiences of disclosure? > Audrey > Audrey > >